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I have a dietary question. I have stage 3 pbc/aih. I know that alcohol is not good--I never drank any anyway. I was also told that caffeine is bad. I gave up coffee years ago, have reduced chocolate to almost nothing, and gave up my beloved Earl Grey tea in the mornings. Does anyone know if decaffeinated tea is acceptable? Thanks.

,

Washington, DC

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correct me if i am wrong but isnt the mechanism of

AIH's attack on the liver entirely different from that

of the " bad things " . Sure these will be no good if

you're liver is inflamed but under normal blood

conditions how can these externalities influence the

action of AIH and t-cells etc? Surely some people may

be living unneccesarily strict (and bland-tasting!)

lives.

I think many people confuse AIH treatment/diet etc.

with diets/lifestyles/treatments for damaged livers or

viral hepatitis etc.

--- persimmontree@... wrote:

> I have a dietary question. I have stage 3 pbc/aih.

> I know that alcohol is not good--I never drank any

> anyway. I was also told that caffeine is bad. I

> gave up coffee years ago, have reduced chocolate to

> almost nothing, and gave up my beloved Earl Grey tea

> in the mornings. Does anyone know if decaffeinated

> tea is acceptable? Thanks.

>

> ,

> Washington, DC

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I was reading about the cranberry juice and when I worked in the nursing home we made what was called a kidney buster.

You get a large cup and put cranbeerry juice and gingerale over ice and drink as much as you can. This will flush your whole system out and if you are starting a UTI it usually stops it.

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's question on caffiene is of great interest to me. As I have

determined that quality of my daily life is certainly better with a

dose of caffiene in the morning. Now that I am down to 10 mg of

prednisone, I have zero energy to get me going and happy for the

day, it's all I can do to get out of bed intime to do my job, and

take care of my kids, but a dose of caffiene changes the way my

whole day goes. I would not say that caffiene having an effect on

my day is just a dependance, or addiction, because I have been

totally off caffiene before, and I just felt crummy everyday until I

started on the predisone.

So If any other's of you have heard more than about whether or not

caffiene is really okay to use moderately with having AIH or not.

Kelli

> > I have a dietary question. I have stage 3 pbc/aih.

> > I know that alcohol is not good--I never drank any

> > anyway. I was also told that caffeine is bad. I

> > gave up coffee years ago, have reduced chocolate to

> > almost nothing, and gave up my beloved Earl Grey tea

> > in the mornings. Does anyone know if decaffeinated

> > tea is acceptable? Thanks.

> >

> > ,

> > Washington, DC

>

> Send instant messages to your online friends

http://uk.messenger.

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Guest guest

> AIH's attack on the liver entirely different from that

> of the " bad things " .

From what my Dr has told me, alcohol and caffeine are okay in

moderation as long as the disease in under control. He said that

large amounts require the liver to work harder - and because our

liver is impaired somewhat - it's a good idea to reduce these things

to make our liver's life a little easier.

Some things you can try:

1. green tea (less caffeine that regular tea)

2. Emergen-C (vitamin drink that is energy boosting)

3. Spirulina (herbal supplement that contain protein, plus minerals)

Personally, I have chosen to eliminate alcohol from my diet. But, I

have green tea in the mid-morning and mid-afernoon (always where I

notice a slump). And, the green tea has worked great for me. PLUS,

green tea has something in it called ECGC that is supposed to be good

for the liver.

Also, cranberry juice is good to drink to help flush the kidneys -

from the pred and imuran.

All if this info has come from my dr or my herbalist.

Steph

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my plan is to experiment a little. I doubt caffeine

and even alcohol will tip you over the edge if your

ALTs etc are OK. I only foudn out I had AIH in January

when I was inhospital for 2 weeks with ALTs around

2000. The levels have been dropping since and I am now

at 100 ALT, with 7.5mg prednisolone and 125mg imuran.

I have been drinking coffee the whole time and doing

other bad stuff like eating spicy food etc. Now maybe

the reduction in my ALTs would have been quicker

without these but maybe not. I dont like the idea of

basing the rest of my life on hypotheses. My main

priority is to get off these damn steroids as they

have ruined my face. Once my ALTs are in the normal

range then I will reduce the prednisolone to 0

eventually, i am less concerned about reducing the

imuran. As I am on blood tests every 2 weeks I have a

good hold on things. I plan to experiment a little

when off the steroids and that includes having

alcohol. If liver functions rise then I will

re-evaluate things.

I think the problem many people may have is that they

have bloods every 6 months or so when their ALTs etc

are normal and then are shocked when they relapse -

they then blame it on having a decaffinated coffee

every 2 weeks when in fact it could simply be a rise

in the AIH action that would have been more manageable

under more frequent blood analysis.

--- Kelli <kellictc@...> wrote:

---------------------------------

's question on caffiene is of great interest to

me. As I have

determined that quality of my daily life is certainly

better with a

dose of caffiene in the morning. Now that I am down

to 10 mg of

prednisone, I have zero energy to get me going and

happy for the

day, it's all I can do to get out of bed intime to do

my job, and

take care of my kids, but a dose of caffiene changes

the way my

whole day goes. I would not say that caffiene having

an effect on

my day is just a dependance, or addiction, because I

have been

totally off caffiene before, and I just felt crummy

everyday until I

started on the predisone.

So If any other's of you have heard more than about

whether or not

caffiene is really okay to use moderately with having

AIH or not.

Kelli

> > I have a dietary question. I have stage 3

pbc/aih.

> > I know that alcohol is not good--I never drank any

> > anyway. I was also told that caffeine is bad. I

> > gave up coffee years ago, have reduced chocolate

to

> > almost nothing, and gave up my beloved Earl Grey

tea

> > in the mornings. Does anyone know if

decaffeinated

> > tea is acceptable? Thanks.

> >

> > ,

> > Washington, DC

>

> Send instant messages to your online friends

http://uk.messenger.

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  • 2 years later...

When my niece first started with the DAN doctor, chocolate was on

the " no " list in any form. I think this was separate from " no

sugar " . I'll ask my sister tomorrow why it was a " no " .

Separate from that, sugar feeds yeast, so the chips could be a

problem for that reason, but that doesn't explain the worse reaction

to the soy-free chips. We use the " Enjoy Life " brand of chocolate

chips with no problem (as far as I can see). Their products are free

of the eight most common allergens, plus GF, plus free of a few other

possible irritants, including artificials. They are a total rip off

though, and the latest packaging for the Ghiradelli semi-sweet

chocolate chips have gone from " may contain milk " to " mfg. on same

equipment as milk " , so for those who are not SF, they are probably a

reasonable option. (Contain soy lecithin.) Perhaps your SF chips

contain artificials, corn syrup, or another possible irritant.

in NJ

>

> In an effort to avoid allergens I bought special chocolate from the

> chocolate emporium...a great allergen-free company. Thing is, I am

now

> wondering, are my kids truly allergic or do things like soy and

milk,

> chelate them. Gluten does not but the others may. My daughter

actually

> behaves worse on the soy-free chocolate. I wonder if it tears her

gut up

> more without the soy to smooth out the journey? Help! Anyone?

>

> Even son, the milk/stroke victim, does ok with a few milk chocolate

> chips but cheese detoxes him (pee everywhere for days with 1/4

piece of

> muenster tested in isolation). I always have to ask myself, did

they

> crave milk to pull out that fluoride. Perhaps the milk was, in some

ways

> our friend. Maybe with all of these things it was not an outright

> allergy or even celiac but too limited diet creating these

responses

> that have changed over time.

>

> Uncharted waters. No way to know I guess other than time, some

labs,

> behavior and growth assesssment, allergy testing when older, etc.

>

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bigcheech91 wrote

> When my niece first started with the DAN doctor, chocolate was on

> the " no " list in any form. I think this was separate from " no

> sugar " . I'll ask my sister tomorrow why it was a " no " .

Hi

Chocolate interferes with zinc/copper levels.

Kids low in zinc are negatively effected by chocolate.

We've had both my kids off chocolate for 2 years for this reason.

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I tried to follow a gluten free diet for my son, it was very hard.

Sometimes children with apraxia or an ASD disorder have specific foods they

like,

they are not really picky, but they don't like to try new foods. My son has

both, PDD NOS and Apraxia. He is doing well in all areas, but really

struggling

with speech. I found there was more time when he just wasn't eating when

the gluten free things were offered. Is there anything else I can do??? He

has a varied diet, but he does like carbs, pizza, apple pie, french fries, etc.

He also will eat some fruits and baked beans for vegetables and sweet

potatoe french fries. I don't want to offer him foods he doesn't like. He

does

have a speech delay quite significant. I really did try hard, buying all the

gluten free mixes and cookbooks and the majority of the gluten free food went

in the trash. It is hard when you have another child that doesn't have

these issues and wants regular pizza in the house. If my son saw her eating

regular foods, he wanted them too. I know some things are hard and you just

have

to stick to it, but it seemed like I was just wasting money and time. What

should I do? He is taking a probiotic, are there any other supplements that

can help.

**************************************Check out AOL's list of 2007's hottest

products.

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This is what my GI said: go off dairy and see what happens. It is

easier to get out and you will know if milk is your deal. If gluten

is your deal you must do it all the way to know and for health

reasons and that means working with the revolt. There are ways to do

this in step down stages for our kids. Someone posted a site for that

in the archives.

>

> I tried to follow a gluten free diet for my son, it was very

hard.

> Sometimes children with apraxia or an ASD disorder have specific

foods they like,

> they are not really picky, but they don't like to try new foods.

My son has

> both, PDD NOS and Apraxia. He is doing well in all areas, but

really struggling

> with speech. I found there was more time when he just wasn't

eating when

> the gluten free things were offered. Is there anything else I can

do??? He

> has a varied diet, but he does like carbs, pizza, apple pie,

french fries, etc.

> He also will eat some fruits and baked beans for vegetables and

sweet

> potatoe french fries. I don't want to offer him foods he doesn't

like. He does

> have a speech delay quite significant. I really did try hard,

buying all the

> gluten free mixes and cookbooks and the majority of the gluten

free food went

> in the trash. It is hard when you have another child that doesn't

have

> these issues and wants regular pizza in the house. If my son saw

her eating

> regular foods, he wanted them too. I know some things are hard

and you just have

> to stick to it, but it seemed like I was just wasting money and

time. What

> should I do? He is taking a probiotic, are there any other

supplements that

> can help.

>

>

>

> **************************************Check out AOL's list of

2007's hottest

> products.

> (http://money.aol.com/special/hot-products-2007?

NCID=aoltop00030000000001)

>

>

>

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A GF diet can be very challenging. If he is truly gluten intolerant

though, its like feeding him poison. I think most of us would love

to eat fries, pizza and bagels, but in fact that type of food is not

good for anyone anyway. Might I suggest a GF family? We have four

children without gluten issues, and one with. The rule is we just

dont have that kind of food in the house. No one even eats a crouton

in front of the one who cannot have it. I am way too overworked to

even think about cookbooks and mixes, and am sure those things taste

pretty awful for all the time and money spent. We just eliminate

breads and the like altogether. It may sound kind of heartless, but

when they get hungry enough they start scarfing down the spinach and

carrots. It truly has become a healthier and much easier kitchen to

run. There are bail-out measures for that piece of cake they binged

on at a birthday party though. Typically loaded down with pre-

digestive enzymes, perhaps some quercetin, and/or cyruta plus from

Standard Process. Severe food reactions can be mitigated with Alka

Seltzer Gold. These things aren't to be used so that the child can

eat gluten everyday, but perhaps could help for those accidental or

celebratory times when it just happens. Again, I wouldnt advise it,

but these things do happen with the best of parental intentions.

Best wishes, hope this helps a tad.

>

> I tried to follow a gluten free diet for my son, it was very

hard.

> Sometimes children with apraxia or an ASD disorder have specific

foods they like,

> they are not really picky, but they don't like to try new foods.

My son has

> both, PDD NOS and Apraxia. He is doing well in all areas, but

really struggling

> with speech. I found there was more time when he just wasn't

eating when

> the gluten free things were offered. Is there anything else I can

do??? He

> has a varied diet, but he does like carbs, pizza, apple pie,

french fries, etc.

> He also will eat some fruits and baked beans for vegetables and

sweet

> potatoe french fries. I don't want to offer him foods he doesn't

like. He does

> have a speech delay quite significant. I really did try hard,

buying all the

> gluten free mixes and cookbooks and the majority of the gluten

free food went

> in the trash. It is hard when you have another child that doesn't

have

> these issues and wants regular pizza in the house. If my son saw

her eating

> regular foods, he wanted them too. I know some things are hard

and you just have

> to stick to it, but it seemed like I was just wasting money and

time. What

> should I do? He is taking a probiotic, are there any other

supplements that

> can help.

>

>

>

> **************************************Check out AOL's list of

2007's hottest

> products.

> (http://money.aol.com/special/hot-products-2007?

NCID=aoltop00030000000001)

>

>

>

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We did the same thing. Tests later confirmed 3 of 4 of us need the

diet and the 4th benefitted anyway. My kids are small so there really

has been no unplanned contamination except for a vitamin mistake. I

know the deviation will eventually come when I lose the tight grip I

have now so your discussion of remedies was nice to read.

Doesn't Alka Seltzer Gold have an aluminum issue?

> >

> > I tried to follow a gluten free diet for my son, it was very

> hard.

> > Sometimes children with apraxia or an ASD disorder have specific

> foods they like,

> > they are not really picky, but they don't like to try new foods.

> My son has

> > both, PDD NOS and Apraxia. He is doing well in all areas, but

> really struggling

> > with speech. I found there was more time when he just wasn't

> eating when

> > the gluten free things were offered. Is there anything else I

can

> do??? He

> > has a varied diet, but he does like carbs, pizza, apple pie,

> french fries, etc.

> > He also will eat some fruits and baked beans for vegetables and

> sweet

> > potatoe french fries. I don't want to offer him foods he

doesn't

> like. He does

> > have a speech delay quite significant. I really did try hard,

> buying all the

> > gluten free mixes and cookbooks and the majority of the gluten

> free food went

> > in the trash. It is hard when you have another child that

doesn't

> have

> > these issues and wants regular pizza in the house. If my son

saw

> her eating

> > regular foods, he wanted them too. I know some things are hard

> and you just have

> > to stick to it, but it seemed like I was just wasting money and

> time. What

> > should I do? He is taking a probiotic, are there any other

> supplements that

> > can help.

> >

> >

> >

> > **************************************Check out AOL's list of

> 2007's hottest

> > products.

> > (http://money.aol.com/special/hot-products-2007?

> NCID=aoltop00030000000001)

> >

> >

> >

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I had not read that, but I will check and see. If there is, I

certainly wouldnt recommend using it. Truthfully I havent seen it in

use, but noted the recommendation. Always looking for back-pocket

pearls...

> > >

> > > I tried to follow a gluten free diet for my son, it was very

> > hard.

> > > Sometimes children with apraxia or an ASD disorder have

specific

> > foods they like,

> > > they are not really picky, but they don't like to try new

foods.

> > My son has

> > > both, PDD NOS and Apraxia. He is doing well in all areas, but

> > really struggling

> > > with speech. I found there was more time when he just wasn't

> > eating when

> > > the gluten free things were offered. Is there anything else I

> can

> > do??? He

> > > has a varied diet, but he does like carbs, pizza, apple pie,

> > french fries, etc.

> > > He also will eat some fruits and baked beans for vegetables

and

> > sweet

> > > potatoe french fries. I don't want to offer him foods he

> doesn't

> > like. He does

> > > have a speech delay quite significant. I really did try hard,

> > buying all the

> > > gluten free mixes and cookbooks and the majority of the gluten

> > free food went

> > > in the trash. It is hard when you have another child that

> doesn't

> > have

> > > these issues and wants regular pizza in the house. If my son

> saw

> > her eating

> > > regular foods, he wanted them too. I know some things are

hard

> > and you just have

> > > to stick to it, but it seemed like I was just wasting money

and

> > time. What

> > > should I do? He is taking a probiotic, are there any other

> > supplements that

> > > can help.

> > >

> > >

> > >

> > > **************************************Check out AOL's list of

> > 2007's hottest

> > > products.

> > > (http://money.aol.com/special/hot-products-2007?

> > NCID=aoltop00030000000001)

> > >

> > >

> > >

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I am not sure. There used to be a pharmacist on this board and I stay

in touch with her. She told me that there is aluminum in tums and a

lot of the chewable antacids so that is where I was coming from. I

have not researched it though.

I am banking on enzymes as my pearl when the time comes.

Cingrats on the diet. I am still stuck hiding good food in GFCF

pancakes and having them eat some carrots and apples, an occasional

red pepper and that is about it. The only meat daughter gets is in

pancakes. Son is getting more adventurous. He was actually more gut

impaired but healed faster I think. The GI is happy as she said they

are eating well for a 2 and 4 year old but to tell you the truth I'd

prefer what you are doing and we continously present the food...some

days are better than others.

> > > >

> > > > I tried to follow a gluten free diet for my son, it was very

> > > hard.

> > > > Sometimes children with apraxia or an ASD disorder have

> specific

> > > foods they like,

> > > > they are not really picky, but they don't like to try new

> foods.

> > > My son has

> > > > both, PDD NOS and Apraxia. He is doing well in all areas,

but

> > > really struggling

> > > > with speech. I found there was more time when he just

wasn't

> > > eating when

> > > > the gluten free things were offered. Is there anything else

I

> > can

> > > do??? He

> > > > has a varied diet, but he does like carbs, pizza, apple pie,

> > > french fries, etc.

> > > > He also will eat some fruits and baked beans for vegetables

> and

> > > sweet

> > > > potatoe french fries. I don't want to offer him foods he

> > doesn't

> > > like. He does

> > > > have a speech delay quite significant. I really did try

hard,

> > > buying all the

> > > > gluten free mixes and cookbooks and the majority of the

gluten

> > > free food went

> > > > in the trash. It is hard when you have another child that

> > doesn't

> > > have

> > > > these issues and wants regular pizza in the house. If my

son

> > saw

> > > her eating

> > > > regular foods, he wanted them too. I know some things are

> hard

> > > and you just have

> > > > to stick to it, but it seemed like I was just wasting money

> and

> > > time. What

> > > > should I do? He is taking a probiotic, are there any other

> > > supplements that

> > > > can help.

> > > >

> > > >

> > > >

> > > > **************************************Check out AOL's list of

> > > 2007's hottest

> > > > products.

> > > > (http://money.aol.com/special/hot-products-2007?

> > > NCID=aoltop00030000000001)

> > > >

> > > >

> > > >

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Re: Sometimes children with apraxia or an ASD disorder have specific

foods they like, they are not really picky, but they don't like to

try new foods.

That is the definition of a picky eater. Whether GFCF, SCD or some

other diet is needed, special needs or not, the goal is balance,

variety, whole food. If you do that your gut has the best shot at

digesting food properly and absorbing vitamins and minerals instead

of sort of adapting around the bad stuff. A number of these kids have

some gut stuff...some known and some unknown, to ask their guts to do

more is like trying to start a car when you drained the battery by

leaving the lights on all night.

A properly functioning gut can do a world of good for organ

development, brain function and immune system function. I say this

not as a doc but as a leaky gut sufferer on the mend. If my children

suffered as much as I think they have, I am so sad I did not catch

this sooner and I hope they forgive me. The joke of it is I did

organic...just the wrong foods for them.

>

> I tried to follow a gluten free diet for my son, it was very

hard.

> Sometimes children with apraxia or an ASD disorder have specific

foods they like,

> they are not really picky, but they don't like to try new foods.

My son has

> both, PDD NOS and Apraxia. He is doing well in all areas, but

really struggling

> with speech. I found there was more time when he just wasn't

eating when

> the gluten free things were offered. Is there anything else I can

do??? He

> has a varied diet, but he does like carbs, pizza, apple pie,

french fries, etc.

> He also will eat some fruits and baked beans for vegetables and

sweet

> potatoe french fries. I don't want to offer him foods he doesn't

like. He does

> have a speech delay quite significant. I really did try hard,

buying all the

> gluten free mixes and cookbooks and the majority of the gluten

free food went

> in the trash. It is hard when you have another child that doesn't

have

> these issues and wants regular pizza in the house. If my son saw

her eating

> regular foods, he wanted them too. I know some things are hard

and you just have

> to stick to it, but it seemed like I was just wasting money and

time. What

> should I do? He is taking a probiotic, are there any other

supplements that

> can help.

>

>

>

> **************************************Check out AOL's list of

2007's hottest

> products.

> (http://money.aol.com/special/hot-products-2007?

NCID=aoltop00030000000001)

>

>

>

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Really: I dont think that any food should be classified as not good for

children. Saying pizza and bagels are not is your opinion. Children with

sensory issues etc have a hard time eating certain foods, it is a matter of

starving a child or giving in to some of the foods they like. I don't feel

that the

post that was listed in response to my question was put very thoughtfully.

Not all children have the same set of circumstances and kids need to be kids

and if one child needed to be gluten free, I wouldnt make the other child do

it. Thanks.

**************************************Check out AOL's list of 2007's hottest

products.

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I didn't say in any way anyone was wrong. It just seemed like you were

implying that because a child eats pizza or bagels that the parent is not

feeding them nutritional foods. I never said you opinion was obnoxious, I

just

said it was your opinion. It is very hard to go through these issues, I just

wanted feed back on the question, not an implication that I was feeding my

children foods that were not nutritious. No two kids are the same and no one

has all the answers, it just seemed a tad harsh. This may have been studied

but not proven 100% or people who treat these children would make it a

recommendation. Some children may respond, others may not. I just found it

hard

with a picky eater to think of new ideas and wanted a few others, sorry if you

felt I didn't like the idea, I wouldn't have tried the diet in the first place

if I didn't.

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You basicaly said " Really, I think the scientists who studied the

opiate effects of these foods are wrong. " Gluten and casein are

generally not great for anyone in high doses. In picky eating kids,

some have found, like me, that my picky eaters of those two proteins

nearly in isolation were craving the opiate, it caused autoimmune

dysfunction and was a part of my son's issues.

Yes, scientists, doctors, etc are not always correct and this may not

even apply to your kid but this phenomenon has been anecdotally

observed and scientifically studied. If you don't want to forbid

pizza, don't. But do not tell someone they are not thoughtful because

you don't like the idea.

Just my obnoxious opinion.

If you want to read the science try googling it. You can't miss it.

Plus there are files on this board discussing it.

>

> Really: I dont think that any food should be classified as not good

for

> children. Saying pizza and bagels are not is your opinion.

Children with

> sensory issues etc have a hard time eating certain foods, it is a

matter of

> starving a child or giving in to some of the foods they like. I

don't feel that the

> post that was listed in response to my question was put very

thoughtfully.

> Not all children have the same set of circumstances and kids need

to be kids

> and if one child needed to be gluten free, I wouldnt make the

other child do

> it. Thanks.

>

>

>

> **************************************Check out AOL's list of

2007's hottest

> products.

> (http://money.aol.com/special/hot-products-2007?

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I was not implying anything because I did not write the post. In

fact, a member who identified herself as a medical doctor did. She, I

do not believe, was implying anything. She was stating the science

which says the particular proteins in question are not necessarily

good for anyone. She was not commenting on parenting. She was telling

her story in her home. No one cares what you feed your kids. That is

your business. Bear in mind if you ask a question about a restrictive

diet people are going to mention the restrictions and why they may be

applicable and not just to our kids.

I, not you, said my opinion was obnoxious because I was mad at myself

for not holding back. Here is why: You asked for a DAN Dr. I gave you

a name and you wanted an address. The doctor I gave you takes one

click of google to find. You asked about fish oil and links were

provided but you want someone to hold your hand and give you the

magic cure and doseage for your child. Nobody knows that. If we did

this board and others like it would not exist. You asked about a diet

that you did not see progress with. Someone explained, very

thoughtfully, the diet, how it worked in their home and you got

defensive about what you feed your child and called them thoughtless.

Honestly, pizza and bagels may very well be good for your kid. You

never know. One woman on this board, a nurse, looked into special

allergy testing that allowed her kid to eat stuff she thought was

nuts like easy mac and cheese and guess what, he started growing.

I do not know what to say. I am uncomfortable posting this because

you are a fellow mom in this thing that sucks and is hurting our

kids. I guess I just got fired up because in your defensiveness you

called someone, who seems to me to be very thoughtful, thoughtless.

It really is none of my business.

Happy Thanksgiving and I hope you do find your answer. Your child

deserves his voice.

>

> I didn't say in any way anyone was wrong. It just seemed like

you were

> implying that because a child eats pizza or bagels that the parent

is not

> feeding them nutritional foods. I never said you opinion was

obnoxious, I just

> said it was your opinion. It is very hard to go through these

issues, I just

> wanted feed back on the question, not an implication that I was

feeding my

> children foods that were not nutritious. No two kids are the same

and no one

> has all the answers, it just seemed a tad harsh. This may have

been studied

> but not proven 100% or people who treat these children would make

it a

> recommendation. Some children may respond, others may not. I

just found it hard

> with a picky eater to think of new ideas and wanted a few others,

sorry if you

> felt I didn't like the idea, I wouldn't have tried the diet in the

first place

> if I didn't.

>

>

>

> **************************************Check out AOL's list of

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You did mention wanting new ideas. If you meant fresh GFCF ideas

there are a lot in the links section as I discovered just today.

Best Wishes for real:)

Liz

> >

> > I didn't say in any way anyone was wrong. It just seemed like

> you were

> > implying that because a child eats pizza or bagels that the

parent

> is not

> > feeding them nutritional foods. I never said you opinion was

> obnoxious, I just

> > said it was your opinion. It is very hard to go through these

> issues, I just

> > wanted feed back on the question, not an implication that I was

> feeding my

> > children foods that were not nutritious. No two kids are the

same

> and no one

> > has all the answers, it just seemed a tad harsh. This may have

> been studied

> > but not proven 100% or people who treat these children would

make

> it a

> > recommendation. Some children may respond, others may not. I

> just found it hard

> > with a picky eater to think of new ideas and wanted a few

others,

> sorry if you

> > felt I didn't like the idea, I wouldn't have tried the diet in

the

> first place

> > if I didn't.

> >

> >

> >

> > **************************************Check out AOL's list of

> 2007's hottest

> > products.

> > (http://money.aol.com/special/hot-products-2007?

> NCID=aoltop00030000000001)

> >

> >

> >

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I can't stop myself. Did you get genetic testing? There are several

gluten snensitivity genes. Then there is the whole celiac thing. Why

try a diet until you know you need it when there is testing to help

guide you. This may be the new idea that you were looking

for...genetic testing.

> >

> > I didn't say in any way anyone was wrong. It just seemed like

> you were

> > implying that because a child eats pizza or bagels that the

parent

> is not

> > feeding them nutritional foods. I never said you opinion was

> obnoxious, I just

> > said it was your opinion. It is very hard to go through these

> issues, I just

> > wanted feed back on the question, not an implication that I was

> feeding my

> > children foods that were not nutritious. No two kids are the

same

> and no one

> > has all the answers, it just seemed a tad harsh. This may have

> been studied

> > but not proven 100% or people who treat these children would

make

> it a

> > recommendation. Some children may respond, others may not. I

> just found it hard

> > with a picky eater to think of new ideas and wanted a few

others,

> sorry if you

> > felt I didn't like the idea, I wouldn't have tried the diet in

the

> first place

> > if I didn't.

> >

> >

> >

> > **************************************Check out AOL's list of

> 2007's hottest

> > products.

> > (http://money.aol.com/special/hot-products-2007?

> NCID=aoltop00030000000001)

> >

> >

> >

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First of all I never asked for a Dan Dr or an address. I never asked for

anyone to hold my hand, this is supposed to be a place where people can

express their feelings and concerns. Don't respond to people if you think that

they

are asking too much from you. If you gave the fish oil links etc, just

leave it at that. Why respond any further. I think the next statement made is

even better, that I am looking for a magic cure, I love my son the way he is,

I am just trying to help him, wouldn't it be nice if there were magic cures.

My son is great and doesn't need a cure. I don't believe a special diet

would cure him from a thing, I just thought it might help him with his speech.

I just want to help him in any way I can. Just take into consideration a

mother's pain for a moment, this is a scary thing and saying that I want

someone to hold my hand is just a top notch answer. I too know many specialists

with many years experience in this field who have said it may work for some but

it is not the answer, the cure. Children grow and change and their bodies do

amazing things on their own without gluten free all the time. There is no

proof that this type of diet is the reason for any improvements. I wanted to

try it because I did hear positives from many people. More research needs to

be done on these type diets. I am done asking question regarding special

diets. I didn't say anyone was un thoughtful, I thought the way the

question was answered was not thoughtful. This is the last thing I am saying on

the

subject. Thanks, and if I offended you, sorry.

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Always upbeat and informative Ms. Janice. A better woman than me for

sure.

I am a groch today. I miss stuffing and was forced to make a

cheesecake I can't eat.

Re: For some reason after the casien is gone for a while

(about 3 weeks), whenever he had it, he got ill with diarrhea.

We have this. I recently allowed a little milk chocolate. A few days

later, diarrhea. Remember, my guy is small so the timing is

different. That may be die off.

As time goes on and I absorb all of this I think our many enemy is

milk and gluten was a secondary allergy and fluoride exacerbated

this. While had the learning delay was and is

pretty sick. Because they are little and because I can't know and

organ development is at issue, we will do the diet. With that said, I

plan to know everything and anything I can about enzymes because we

are certainly not perfect. Know anything positive or negative about

glutanease?

There is allergy testing that can help as they are older and I am

getting my husband and I tested.

My biggest motivation in is the bone and disposition changes

I have seen and the die off that scared me to death. In

those circles remain. We need to address them via vitamins, allergy

removal, and time. In me, my health has been back and forth. It will

take a while. I ordered the cds and will be scheduling NACD to sort

of get revved up for our new life post EI.

My daughter had no delays per say that anyone but me caught. Finding

help for my son did help her though. She was a late repeater which

ended immediately on diet. She always spoke and understood meanings

of words beyond her years but the conversation is so much more

complex, reactive, etc. One of the moms at the school, not knowing

her deal, commented that her pallor was so much better. I am lucky

and I am grateful. I am very white (Irish) and it always seemed odd

to have an olive tone daughter...that was her liver stuff I believe.

The GI said something the other day that still makes me both happy

and sad...and scared: " This is a much healthier little girl than the

one I saw 6 months ago. " I am not sure she would say that if she saw

the poop after that calcium bath which I pray is die off and if it

returns we will return to her ASAP.

This is hard. I apologize for being a jerk in earlier posts and wish

everyone a happy day and a healthy child, however you get that.

> > >

> > > I didn't say in any way anyone was wrong. It just seemed like

> > you were

> > > implying that because a child eats pizza or bagels that the

> parent

> > is not

> > > feeding them nutritional foods. I never said you opinion was

> > obnoxious, I just

> > > said it was your opinion. It is very hard to go through these

> > issues, I just

> > > wanted feed back on the question, not an implication that I

was

> > feeding my

> > > children foods that were not nutritious. No two kids are the

> same

> > and no one

> > > has all the answers, it just seemed a tad harsh. This may

have

> > been studied

> > > but not proven 100% or people who treat these children would

> make

> > it a

> > > recommendation. Some children may respond, others may not. I

> > just found it hard

> > > with a picky eater to think of new ideas and wanted a few

> others,

> > sorry if you

> > > felt I didn't like the idea, I wouldn't have tried the diet

in

> the

> > first place

> > > if I didn't.

> > >

> > >

> > >

> > > **************************************Check out AOL's list of

> > 2007's hottest

> > > products.

> > > (http://money.aol.com/special/hot-products-2007?

> > NCID=aoltop00030000000001)

> > >

> > >

> > >

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