Guest guest Posted May 19, 2005 Report Share Posted May 19, 2005 I'm not sure but there was an article on here not long ago about caffiene and I will look for it and see what I can find. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2005 Report Share Posted May 19, 2005 I have a dietary question. I have stage 3 pbc/aih. I know that alcohol is not good--I never drank any anyway. I was also told that caffeine is bad. I gave up coffee years ago, have reduced chocolate to almost nothing, and gave up my beloved Earl Grey tea in the mornings. Does anyone know if decaffeinated tea is acceptable? Thanks. , Washington, DC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2005 Report Share Posted May 19, 2005 correct me if i am wrong but isnt the mechanism of AIH's attack on the liver entirely different from that of the " bad things " . Sure these will be no good if you're liver is inflamed but under normal blood conditions how can these externalities influence the action of AIH and t-cells etc? Surely some people may be living unneccesarily strict (and bland-tasting!) lives. I think many people confuse AIH treatment/diet etc. with diets/lifestyles/treatments for damaged livers or viral hepatitis etc. --- persimmontree@... wrote: > I have a dietary question. I have stage 3 pbc/aih. > I know that alcohol is not good--I never drank any > anyway. I was also told that caffeine is bad. I > gave up coffee years ago, have reduced chocolate to > almost nothing, and gave up my beloved Earl Grey tea > in the mornings. Does anyone know if decaffeinated > tea is acceptable? Thanks. > > , > Washington, DC Send instant messages to your online friends http://uk.messenger. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2005 Report Share Posted May 19, 2005 I was reading about the cranberry juice and when I worked in the nursing home we made what was called a kidney buster. You get a large cup and put cranbeerry juice and gingerale over ice and drink as much as you can. This will flush your whole system out and if you are starting a UTI it usually stops it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2005 Report Share Posted May 19, 2005 's question on caffiene is of great interest to me. As I have determined that quality of my daily life is certainly better with a dose of caffiene in the morning. Now that I am down to 10 mg of prednisone, I have zero energy to get me going and happy for the day, it's all I can do to get out of bed intime to do my job, and take care of my kids, but a dose of caffiene changes the way my whole day goes. I would not say that caffiene having an effect on my day is just a dependance, or addiction, because I have been totally off caffiene before, and I just felt crummy everyday until I started on the predisone. So If any other's of you have heard more than about whether or not caffiene is really okay to use moderately with having AIH or not. Kelli > > I have a dietary question. I have stage 3 pbc/aih. > > I know that alcohol is not good--I never drank any > > anyway. I was also told that caffeine is bad. I > > gave up coffee years ago, have reduced chocolate to > > almost nothing, and gave up my beloved Earl Grey tea > > in the mornings. Does anyone know if decaffeinated > > tea is acceptable? Thanks. > > > > , > > Washington, DC > > Send instant messages to your online friends http://uk.messenger. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2005 Report Share Posted May 19, 2005 > AIH's attack on the liver entirely different from that > of the " bad things " . From what my Dr has told me, alcohol and caffeine are okay in moderation as long as the disease in under control. He said that large amounts require the liver to work harder - and because our liver is impaired somewhat - it's a good idea to reduce these things to make our liver's life a little easier. Some things you can try: 1. green tea (less caffeine that regular tea) 2. Emergen-C (vitamin drink that is energy boosting) 3. Spirulina (herbal supplement that contain protein, plus minerals) Personally, I have chosen to eliminate alcohol from my diet. But, I have green tea in the mid-morning and mid-afernoon (always where I notice a slump). And, the green tea has worked great for me. PLUS, green tea has something in it called ECGC that is supposed to be good for the liver. Also, cranberry juice is good to drink to help flush the kidneys - from the pred and imuran. All if this info has come from my dr or my herbalist. Steph Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2005 Report Share Posted May 20, 2005 my plan is to experiment a little. I doubt caffeine and even alcohol will tip you over the edge if your ALTs etc are OK. I only foudn out I had AIH in January when I was inhospital for 2 weeks with ALTs around 2000. The levels have been dropping since and I am now at 100 ALT, with 7.5mg prednisolone and 125mg imuran. I have been drinking coffee the whole time and doing other bad stuff like eating spicy food etc. Now maybe the reduction in my ALTs would have been quicker without these but maybe not. I dont like the idea of basing the rest of my life on hypotheses. My main priority is to get off these damn steroids as they have ruined my face. Once my ALTs are in the normal range then I will reduce the prednisolone to 0 eventually, i am less concerned about reducing the imuran. As I am on blood tests every 2 weeks I have a good hold on things. I plan to experiment a little when off the steroids and that includes having alcohol. If liver functions rise then I will re-evaluate things. I think the problem many people may have is that they have bloods every 6 months or so when their ALTs etc are normal and then are shocked when they relapse - they then blame it on having a decaffinated coffee every 2 weeks when in fact it could simply be a rise in the AIH action that would have been more manageable under more frequent blood analysis. --- Kelli <kellictc@...> wrote: --------------------------------- 's question on caffiene is of great interest to me. As I have determined that quality of my daily life is certainly better with a dose of caffiene in the morning. Now that I am down to 10 mg of prednisone, I have zero energy to get me going and happy for the day, it's all I can do to get out of bed intime to do my job, and take care of my kids, but a dose of caffiene changes the way my whole day goes. I would not say that caffiene having an effect on my day is just a dependance, or addiction, because I have been totally off caffiene before, and I just felt crummy everyday until I started on the predisone. So If any other's of you have heard more than about whether or not caffiene is really okay to use moderately with having AIH or not. Kelli > > I have a dietary question. I have stage 3 pbc/aih. > > I know that alcohol is not good--I never drank any > > anyway. I was also told that caffeine is bad. I > > gave up coffee years ago, have reduced chocolate to > > almost nothing, and gave up my beloved Earl Grey tea > > in the mornings. Does anyone know if decaffeinated > > tea is acceptable? Thanks. > > > > , > > Washington, DC > > Send instant messages to your online friends http://uk.messenger. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2007 Report Share Posted November 20, 2007 When my niece first started with the DAN doctor, chocolate was on the " no " list in any form. I think this was separate from " no sugar " . I'll ask my sister tomorrow why it was a " no " . Separate from that, sugar feeds yeast, so the chips could be a problem for that reason, but that doesn't explain the worse reaction to the soy-free chips. We use the " Enjoy Life " brand of chocolate chips with no problem (as far as I can see). Their products are free of the eight most common allergens, plus GF, plus free of a few other possible irritants, including artificials. They are a total rip off though, and the latest packaging for the Ghiradelli semi-sweet chocolate chips have gone from " may contain milk " to " mfg. on same equipment as milk " , so for those who are not SF, they are probably a reasonable option. (Contain soy lecithin.) Perhaps your SF chips contain artificials, corn syrup, or another possible irritant. in NJ > > In an effort to avoid allergens I bought special chocolate from the > chocolate emporium...a great allergen-free company. Thing is, I am now > wondering, are my kids truly allergic or do things like soy and milk, > chelate them. Gluten does not but the others may. My daughter actually > behaves worse on the soy-free chocolate. I wonder if it tears her gut up > more without the soy to smooth out the journey? Help! Anyone? > > Even son, the milk/stroke victim, does ok with a few milk chocolate > chips but cheese detoxes him (pee everywhere for days with 1/4 piece of > muenster tested in isolation). I always have to ask myself, did they > crave milk to pull out that fluoride. Perhaps the milk was, in some ways > our friend. Maybe with all of these things it was not an outright > allergy or even celiac but too limited diet creating these responses > that have changed over time. > > Uncharted waters. No way to know I guess other than time, some labs, > behavior and growth assesssment, allergy testing when older, etc. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2007 Report Share Posted November 20, 2007 bigcheech91 wrote > When my niece first started with the DAN doctor, chocolate was on > the " no " list in any form. I think this was separate from " no > sugar " . I'll ask my sister tomorrow why it was a " no " . Hi Chocolate interferes with zinc/copper levels. Kids low in zinc are negatively effected by chocolate. We've had both my kids off chocolate for 2 years for this reason. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2007 Report Share Posted November 20, 2007 **************************************Check out AOL's list of 2007's hottest products. (http://money.aol.com/special/hot-products-2007?NCID=aoltop00030000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2007 Report Share Posted November 20, 2007 I tried to follow a gluten free diet for my son, it was very hard. Sometimes children with apraxia or an ASD disorder have specific foods they like, they are not really picky, but they don't like to try new foods. My son has both, PDD NOS and Apraxia. He is doing well in all areas, but really struggling with speech. I found there was more time when he just wasn't eating when the gluten free things were offered. Is there anything else I can do??? He has a varied diet, but he does like carbs, pizza, apple pie, french fries, etc. He also will eat some fruits and baked beans for vegetables and sweet potatoe french fries. I don't want to offer him foods he doesn't like. He does have a speech delay quite significant. I really did try hard, buying all the gluten free mixes and cookbooks and the majority of the gluten free food went in the trash. It is hard when you have another child that doesn't have these issues and wants regular pizza in the house. If my son saw her eating regular foods, he wanted them too. I know some things are hard and you just have to stick to it, but it seemed like I was just wasting money and time. What should I do? He is taking a probiotic, are there any other supplements that can help. **************************************Check out AOL's list of 2007's hottest products. (http://money.aol.com/special/hot-products-2007?NCID=aoltop00030000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2007 Report Share Posted November 20, 2007 This is what my GI said: go off dairy and see what happens. It is easier to get out and you will know if milk is your deal. If gluten is your deal you must do it all the way to know and for health reasons and that means working with the revolt. There are ways to do this in step down stages for our kids. Someone posted a site for that in the archives. > > I tried to follow a gluten free diet for my son, it was very hard. > Sometimes children with apraxia or an ASD disorder have specific foods they like, > they are not really picky, but they don't like to try new foods. My son has > both, PDD NOS and Apraxia. He is doing well in all areas, but really struggling > with speech. I found there was more time when he just wasn't eating when > the gluten free things were offered. Is there anything else I can do??? He > has a varied diet, but he does like carbs, pizza, apple pie, french fries, etc. > He also will eat some fruits and baked beans for vegetables and sweet > potatoe french fries. I don't want to offer him foods he doesn't like. He does > have a speech delay quite significant. I really did try hard, buying all the > gluten free mixes and cookbooks and the majority of the gluten free food went > in the trash. It is hard when you have another child that doesn't have > these issues and wants regular pizza in the house. If my son saw her eating > regular foods, he wanted them too. I know some things are hard and you just have > to stick to it, but it seemed like I was just wasting money and time. What > should I do? He is taking a probiotic, are there any other supplements that > can help. > > > > **************************************Check out AOL's list of 2007's hottest > products. > (http://money.aol.com/special/hot-products-2007? NCID=aoltop00030000000001) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2007 Report Share Posted November 20, 2007 A GF diet can be very challenging. If he is truly gluten intolerant though, its like feeding him poison. I think most of us would love to eat fries, pizza and bagels, but in fact that type of food is not good for anyone anyway. Might I suggest a GF family? We have four children without gluten issues, and one with. The rule is we just dont have that kind of food in the house. No one even eats a crouton in front of the one who cannot have it. I am way too overworked to even think about cookbooks and mixes, and am sure those things taste pretty awful for all the time and money spent. We just eliminate breads and the like altogether. It may sound kind of heartless, but when they get hungry enough they start scarfing down the spinach and carrots. It truly has become a healthier and much easier kitchen to run. There are bail-out measures for that piece of cake they binged on at a birthday party though. Typically loaded down with pre- digestive enzymes, perhaps some quercetin, and/or cyruta plus from Standard Process. Severe food reactions can be mitigated with Alka Seltzer Gold. These things aren't to be used so that the child can eat gluten everyday, but perhaps could help for those accidental or celebratory times when it just happens. Again, I wouldnt advise it, but these things do happen with the best of parental intentions. Best wishes, hope this helps a tad. > > I tried to follow a gluten free diet for my son, it was very hard. > Sometimes children with apraxia or an ASD disorder have specific foods they like, > they are not really picky, but they don't like to try new foods. My son has > both, PDD NOS and Apraxia. He is doing well in all areas, but really struggling > with speech. I found there was more time when he just wasn't eating when > the gluten free things were offered. Is there anything else I can do??? He > has a varied diet, but he does like carbs, pizza, apple pie, french fries, etc. > He also will eat some fruits and baked beans for vegetables and sweet > potatoe french fries. I don't want to offer him foods he doesn't like. He does > have a speech delay quite significant. I really did try hard, buying all the > gluten free mixes and cookbooks and the majority of the gluten free food went > in the trash. It is hard when you have another child that doesn't have > these issues and wants regular pizza in the house. If my son saw her eating > regular foods, he wanted them too. I know some things are hard and you just have > to stick to it, but it seemed like I was just wasting money and time. What > should I do? He is taking a probiotic, are there any other supplements that > can help. > > > > **************************************Check out AOL's list of 2007's hottest > products. > (http://money.aol.com/special/hot-products-2007? NCID=aoltop00030000000001) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2007 Report Share Posted November 20, 2007 We did the same thing. Tests later confirmed 3 of 4 of us need the diet and the 4th benefitted anyway. My kids are small so there really has been no unplanned contamination except for a vitamin mistake. I know the deviation will eventually come when I lose the tight grip I have now so your discussion of remedies was nice to read. Doesn't Alka Seltzer Gold have an aluminum issue? > > > > I tried to follow a gluten free diet for my son, it was very > hard. > > Sometimes children with apraxia or an ASD disorder have specific > foods they like, > > they are not really picky, but they don't like to try new foods. > My son has > > both, PDD NOS and Apraxia. He is doing well in all areas, but > really struggling > > with speech. I found there was more time when he just wasn't > eating when > > the gluten free things were offered. Is there anything else I can > do??? He > > has a varied diet, but he does like carbs, pizza, apple pie, > french fries, etc. > > He also will eat some fruits and baked beans for vegetables and > sweet > > potatoe french fries. I don't want to offer him foods he doesn't > like. He does > > have a speech delay quite significant. I really did try hard, > buying all the > > gluten free mixes and cookbooks and the majority of the gluten > free food went > > in the trash. It is hard when you have another child that doesn't > have > > these issues and wants regular pizza in the house. If my son saw > her eating > > regular foods, he wanted them too. I know some things are hard > and you just have > > to stick to it, but it seemed like I was just wasting money and > time. What > > should I do? He is taking a probiotic, are there any other > supplements that > > can help. > > > > > > > > **************************************Check out AOL's list of > 2007's hottest > > products. > > (http://money.aol.com/special/hot-products-2007? > NCID=aoltop00030000000001) > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2007 Report Share Posted November 20, 2007 I had not read that, but I will check and see. If there is, I certainly wouldnt recommend using it. Truthfully I havent seen it in use, but noted the recommendation. Always looking for back-pocket pearls... > > > > > > I tried to follow a gluten free diet for my son, it was very > > hard. > > > Sometimes children with apraxia or an ASD disorder have specific > > foods they like, > > > they are not really picky, but they don't like to try new foods. > > My son has > > > both, PDD NOS and Apraxia. He is doing well in all areas, but > > really struggling > > > with speech. I found there was more time when he just wasn't > > eating when > > > the gluten free things were offered. Is there anything else I > can > > do??? He > > > has a varied diet, but he does like carbs, pizza, apple pie, > > french fries, etc. > > > He also will eat some fruits and baked beans for vegetables and > > sweet > > > potatoe french fries. I don't want to offer him foods he > doesn't > > like. He does > > > have a speech delay quite significant. I really did try hard, > > buying all the > > > gluten free mixes and cookbooks and the majority of the gluten > > free food went > > > in the trash. It is hard when you have another child that > doesn't > > have > > > these issues and wants regular pizza in the house. If my son > saw > > her eating > > > regular foods, he wanted them too. I know some things are hard > > and you just have > > > to stick to it, but it seemed like I was just wasting money and > > time. What > > > should I do? He is taking a probiotic, are there any other > > supplements that > > > can help. > > > > > > > > > > > > **************************************Check out AOL's list of > > 2007's hottest > > > products. > > > (http://money.aol.com/special/hot-products-2007? > > NCID=aoltop00030000000001) > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2007 Report Share Posted November 20, 2007 I am not sure. There used to be a pharmacist on this board and I stay in touch with her. She told me that there is aluminum in tums and a lot of the chewable antacids so that is where I was coming from. I have not researched it though. I am banking on enzymes as my pearl when the time comes. Cingrats on the diet. I am still stuck hiding good food in GFCF pancakes and having them eat some carrots and apples, an occasional red pepper and that is about it. The only meat daughter gets is in pancakes. Son is getting more adventurous. He was actually more gut impaired but healed faster I think. The GI is happy as she said they are eating well for a 2 and 4 year old but to tell you the truth I'd prefer what you are doing and we continously present the food...some days are better than others. > > > > > > > > I tried to follow a gluten free diet for my son, it was very > > > hard. > > > > Sometimes children with apraxia or an ASD disorder have > specific > > > foods they like, > > > > they are not really picky, but they don't like to try new > foods. > > > My son has > > > > both, PDD NOS and Apraxia. He is doing well in all areas, but > > > really struggling > > > > with speech. I found there was more time when he just wasn't > > > eating when > > > > the gluten free things were offered. Is there anything else I > > can > > > do??? He > > > > has a varied diet, but he does like carbs, pizza, apple pie, > > > french fries, etc. > > > > He also will eat some fruits and baked beans for vegetables > and > > > sweet > > > > potatoe french fries. I don't want to offer him foods he > > doesn't > > > like. He does > > > > have a speech delay quite significant. I really did try hard, > > > buying all the > > > > gluten free mixes and cookbooks and the majority of the gluten > > > free food went > > > > in the trash. It is hard when you have another child that > > doesn't > > > have > > > > these issues and wants regular pizza in the house. If my son > > saw > > > her eating > > > > regular foods, he wanted them too. I know some things are > hard > > > and you just have > > > > to stick to it, but it seemed like I was just wasting money > and > > > time. What > > > > should I do? He is taking a probiotic, are there any other > > > supplements that > > > > can help. > > > > > > > > > > > > > > > > **************************************Check out AOL's list of > > > 2007's hottest > > > > products. > > > > (http://money.aol.com/special/hot-products-2007? > > > NCID=aoltop00030000000001) > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2007 Report Share Posted November 20, 2007 Re: Sometimes children with apraxia or an ASD disorder have specific foods they like, they are not really picky, but they don't like to try new foods. That is the definition of a picky eater. Whether GFCF, SCD or some other diet is needed, special needs or not, the goal is balance, variety, whole food. If you do that your gut has the best shot at digesting food properly and absorbing vitamins and minerals instead of sort of adapting around the bad stuff. A number of these kids have some gut stuff...some known and some unknown, to ask their guts to do more is like trying to start a car when you drained the battery by leaving the lights on all night. A properly functioning gut can do a world of good for organ development, brain function and immune system function. I say this not as a doc but as a leaky gut sufferer on the mend. If my children suffered as much as I think they have, I am so sad I did not catch this sooner and I hope they forgive me. The joke of it is I did organic...just the wrong foods for them. > > I tried to follow a gluten free diet for my son, it was very hard. > Sometimes children with apraxia or an ASD disorder have specific foods they like, > they are not really picky, but they don't like to try new foods. My son has > both, PDD NOS and Apraxia. He is doing well in all areas, but really struggling > with speech. I found there was more time when he just wasn't eating when > the gluten free things were offered. Is there anything else I can do??? He > has a varied diet, but he does like carbs, pizza, apple pie, french fries, etc. > He also will eat some fruits and baked beans for vegetables and sweet > potatoe french fries. I don't want to offer him foods he doesn't like. He does > have a speech delay quite significant. I really did try hard, buying all the > gluten free mixes and cookbooks and the majority of the gluten free food went > in the trash. It is hard when you have another child that doesn't have > these issues and wants regular pizza in the house. If my son saw her eating > regular foods, he wanted them too. I know some things are hard and you just have > to stick to it, but it seemed like I was just wasting money and time. What > should I do? He is taking a probiotic, are there any other supplements that > can help. > > > > **************************************Check out AOL's list of 2007's hottest > products. > (http://money.aol.com/special/hot-products-2007? NCID=aoltop00030000000001) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2007 Report Share Posted November 21, 2007 Really: I dont think that any food should be classified as not good for children. Saying pizza and bagels are not is your opinion. Children with sensory issues etc have a hard time eating certain foods, it is a matter of starving a child or giving in to some of the foods they like. I don't feel that the post that was listed in response to my question was put very thoughtfully. Not all children have the same set of circumstances and kids need to be kids and if one child needed to be gluten free, I wouldnt make the other child do it. Thanks. **************************************Check out AOL's list of 2007's hottest products. (http://money.aol.com/special/hot-products-2007?NCID=aoltop00030000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2007 Report Share Posted November 21, 2007 I didn't say in any way anyone was wrong. It just seemed like you were implying that because a child eats pizza or bagels that the parent is not feeding them nutritional foods. I never said you opinion was obnoxious, I just said it was your opinion. It is very hard to go through these issues, I just wanted feed back on the question, not an implication that I was feeding my children foods that were not nutritious. No two kids are the same and no one has all the answers, it just seemed a tad harsh. This may have been studied but not proven 100% or people who treat these children would make it a recommendation. Some children may respond, others may not. I just found it hard with a picky eater to think of new ideas and wanted a few others, sorry if you felt I didn't like the idea, I wouldn't have tried the diet in the first place if I didn't. **************************************Check out AOL's list of 2007's hottest products. (http://money.aol.com/special/hot-products-2007?NCID=aoltop00030000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2007 Report Share Posted November 21, 2007 You basicaly said " Really, I think the scientists who studied the opiate effects of these foods are wrong. " Gluten and casein are generally not great for anyone in high doses. In picky eating kids, some have found, like me, that my picky eaters of those two proteins nearly in isolation were craving the opiate, it caused autoimmune dysfunction and was a part of my son's issues. Yes, scientists, doctors, etc are not always correct and this may not even apply to your kid but this phenomenon has been anecdotally observed and scientifically studied. If you don't want to forbid pizza, don't. But do not tell someone they are not thoughtful because you don't like the idea. Just my obnoxious opinion. If you want to read the science try googling it. You can't miss it. Plus there are files on this board discussing it. > > Really: I dont think that any food should be classified as not good for > children. Saying pizza and bagels are not is your opinion. Children with > sensory issues etc have a hard time eating certain foods, it is a matter of > starving a child or giving in to some of the foods they like. I don't feel that the > post that was listed in response to my question was put very thoughtfully. > Not all children have the same set of circumstances and kids need to be kids > and if one child needed to be gluten free, I wouldnt make the other child do > it. Thanks. > > > > **************************************Check out AOL's list of 2007's hottest > products. > (http://money.aol.com/special/hot-products-2007? NCID=aoltop00030000000001) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2007 Report Share Posted November 22, 2007 I was not implying anything because I did not write the post. In fact, a member who identified herself as a medical doctor did. She, I do not believe, was implying anything. She was stating the science which says the particular proteins in question are not necessarily good for anyone. She was not commenting on parenting. She was telling her story in her home. No one cares what you feed your kids. That is your business. Bear in mind if you ask a question about a restrictive diet people are going to mention the restrictions and why they may be applicable and not just to our kids. I, not you, said my opinion was obnoxious because I was mad at myself for not holding back. Here is why: You asked for a DAN Dr. I gave you a name and you wanted an address. The doctor I gave you takes one click of google to find. You asked about fish oil and links were provided but you want someone to hold your hand and give you the magic cure and doseage for your child. Nobody knows that. If we did this board and others like it would not exist. You asked about a diet that you did not see progress with. Someone explained, very thoughtfully, the diet, how it worked in their home and you got defensive about what you feed your child and called them thoughtless. Honestly, pizza and bagels may very well be good for your kid. You never know. One woman on this board, a nurse, looked into special allergy testing that allowed her kid to eat stuff she thought was nuts like easy mac and cheese and guess what, he started growing. I do not know what to say. I am uncomfortable posting this because you are a fellow mom in this thing that sucks and is hurting our kids. I guess I just got fired up because in your defensiveness you called someone, who seems to me to be very thoughtful, thoughtless. It really is none of my business. Happy Thanksgiving and I hope you do find your answer. Your child deserves his voice. > > I didn't say in any way anyone was wrong. It just seemed like you were > implying that because a child eats pizza or bagels that the parent is not > feeding them nutritional foods. I never said you opinion was obnoxious, I just > said it was your opinion. It is very hard to go through these issues, I just > wanted feed back on the question, not an implication that I was feeding my > children foods that were not nutritious. No two kids are the same and no one > has all the answers, it just seemed a tad harsh. This may have been studied > but not proven 100% or people who treat these children would make it a > recommendation. Some children may respond, others may not. I just found it hard > with a picky eater to think of new ideas and wanted a few others, sorry if you > felt I didn't like the idea, I wouldn't have tried the diet in the first place > if I didn't. > > > > **************************************Check out AOL's list of 2007's hottest > products. > (http://money.aol.com/special/hot-products-2007? NCID=aoltop00030000000001) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2007 Report Share Posted November 22, 2007 You did mention wanting new ideas. If you meant fresh GFCF ideas there are a lot in the links section as I discovered just today. Best Wishes for real:) Liz > > > > I didn't say in any way anyone was wrong. It just seemed like > you were > > implying that because a child eats pizza or bagels that the parent > is not > > feeding them nutritional foods. I never said you opinion was > obnoxious, I just > > said it was your opinion. It is very hard to go through these > issues, I just > > wanted feed back on the question, not an implication that I was > feeding my > > children foods that were not nutritious. No two kids are the same > and no one > > has all the answers, it just seemed a tad harsh. This may have > been studied > > but not proven 100% or people who treat these children would make > it a > > recommendation. Some children may respond, others may not. I > just found it hard > > with a picky eater to think of new ideas and wanted a few others, > sorry if you > > felt I didn't like the idea, I wouldn't have tried the diet in the > first place > > if I didn't. > > > > > > > > **************************************Check out AOL's list of > 2007's hottest > > products. > > (http://money.aol.com/special/hot-products-2007? > NCID=aoltop00030000000001) > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2007 Report Share Posted November 22, 2007 I can't stop myself. Did you get genetic testing? There are several gluten snensitivity genes. Then there is the whole celiac thing. Why try a diet until you know you need it when there is testing to help guide you. This may be the new idea that you were looking for...genetic testing. > > > > I didn't say in any way anyone was wrong. It just seemed like > you were > > implying that because a child eats pizza or bagels that the parent > is not > > feeding them nutritional foods. I never said you opinion was > obnoxious, I just > > said it was your opinion. It is very hard to go through these > issues, I just > > wanted feed back on the question, not an implication that I was > feeding my > > children foods that were not nutritious. No two kids are the same > and no one > > has all the answers, it just seemed a tad harsh. This may have > been studied > > but not proven 100% or people who treat these children would make > it a > > recommendation. Some children may respond, others may not. I > just found it hard > > with a picky eater to think of new ideas and wanted a few others, > sorry if you > > felt I didn't like the idea, I wouldn't have tried the diet in the > first place > > if I didn't. > > > > > > > > **************************************Check out AOL's list of > 2007's hottest > > products. > > (http://money.aol.com/special/hot-products-2007? > NCID=aoltop00030000000001) > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2007 Report Share Posted November 22, 2007 First of all I never asked for a Dan Dr or an address. I never asked for anyone to hold my hand, this is supposed to be a place where people can express their feelings and concerns. Don't respond to people if you think that they are asking too much from you. If you gave the fish oil links etc, just leave it at that. Why respond any further. I think the next statement made is even better, that I am looking for a magic cure, I love my son the way he is, I am just trying to help him, wouldn't it be nice if there were magic cures. My son is great and doesn't need a cure. I don't believe a special diet would cure him from a thing, I just thought it might help him with his speech. I just want to help him in any way I can. Just take into consideration a mother's pain for a moment, this is a scary thing and saying that I want someone to hold my hand is just a top notch answer. I too know many specialists with many years experience in this field who have said it may work for some but it is not the answer, the cure. Children grow and change and their bodies do amazing things on their own without gluten free all the time. There is no proof that this type of diet is the reason for any improvements. I wanted to try it because I did hear positives from many people. More research needs to be done on these type diets. I am done asking question regarding special diets. I didn't say anyone was un thoughtful, I thought the way the question was answered was not thoughtful. This is the last thing I am saying on the subject. Thanks, and if I offended you, sorry. **************************************Check out AOL's list of 2007's hottest products. (http://money.aol.com/special/hot-products-2007?NCID=aoltop00030000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2007 Report Share Posted November 22, 2007 Always upbeat and informative Ms. Janice. A better woman than me for sure. I am a groch today. I miss stuffing and was forced to make a cheesecake I can't eat. Re: For some reason after the casien is gone for a while (about 3 weeks), whenever he had it, he got ill with diarrhea. We have this. I recently allowed a little milk chocolate. A few days later, diarrhea. Remember, my guy is small so the timing is different. That may be die off. As time goes on and I absorb all of this I think our many enemy is milk and gluten was a secondary allergy and fluoride exacerbated this. While had the learning delay was and is pretty sick. Because they are little and because I can't know and organ development is at issue, we will do the diet. With that said, I plan to know everything and anything I can about enzymes because we are certainly not perfect. Know anything positive or negative about glutanease? There is allergy testing that can help as they are older and I am getting my husband and I tested. My biggest motivation in is the bone and disposition changes I have seen and the die off that scared me to death. In those circles remain. We need to address them via vitamins, allergy removal, and time. In me, my health has been back and forth. It will take a while. I ordered the cds and will be scheduling NACD to sort of get revved up for our new life post EI. My daughter had no delays per say that anyone but me caught. Finding help for my son did help her though. She was a late repeater which ended immediately on diet. She always spoke and understood meanings of words beyond her years but the conversation is so much more complex, reactive, etc. One of the moms at the school, not knowing her deal, commented that her pallor was so much better. I am lucky and I am grateful. I am very white (Irish) and it always seemed odd to have an olive tone daughter...that was her liver stuff I believe. The GI said something the other day that still makes me both happy and sad...and scared: " This is a much healthier little girl than the one I saw 6 months ago. " I am not sure she would say that if she saw the poop after that calcium bath which I pray is die off and if it returns we will return to her ASAP. This is hard. I apologize for being a jerk in earlier posts and wish everyone a happy day and a healthy child, however you get that. > > > > > > I didn't say in any way anyone was wrong. It just seemed like > > you were > > > implying that because a child eats pizza or bagels that the > parent > > is not > > > feeding them nutritional foods. I never said you opinion was > > obnoxious, I just > > > said it was your opinion. It is very hard to go through these > > issues, I just > > > wanted feed back on the question, not an implication that I was > > feeding my > > > children foods that were not nutritious. No two kids are the > same > > and no one > > > has all the answers, it just seemed a tad harsh. This may have > > been studied > > > but not proven 100% or people who treat these children would > make > > it a > > > recommendation. Some children may respond, others may not. I > > just found it hard > > > with a picky eater to think of new ideas and wanted a few > others, > > sorry if you > > > felt I didn't like the idea, I wouldn't have tried the diet in > the > > first place > > > if I didn't. > > > > > > > > > > > > **************************************Check out AOL's list of > > 2007's hottest > > > products. > > > (http://money.aol.com/special/hot-products-2007? > > NCID=aoltop00030000000001) > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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