dietary question

[Guest guest]

Hi all,

I am a lurker, have been reading posts for some time now to understand more

about this condition.  I have a dear friend with CMT  My question is:  from what

I've seen, CMT gets so much worse when the body is under attack from any

sickness, etc.  Has anyone ever tried dietary intervention to strengthen the

immune system and thereby control the symptoms?  If so have they seen any

success with it?  I know the raw diet and/or the gluten free, casein free and

soy free diet are supposed to be very good for strengthening the immune system. 

Is this worth looking into?  I'd appreciate any insight, positive or negative.

Cook

 

Hi everyone- sorry not to chime in earlier, of course I got knock-down

sick this week- bronchitis and sinus infection, ouch!

My experience with CMT and fatigue was that I didn't notice it until I had a

crash in my early thirties with worsening symtoms. All through college and my

twenties I kept up with demanding schedules. At one time I was commuting an

hour each way to teach five days a week with first and second graders in LA, and

going to night school and Saturday classes. Of course, I could watch a lot of

movies in the evening back then, but today I couldn't repeat that schedule.

I always needed lots of sleep and my parent say I was the best baby because I

loved napping so much .

My 2 year old found me, I'll try to post more soon. My main message is that it

wasn't an issue for me until serious weakness set in, it feels like I push so

hard to get through the day, my system just can't keep up. Some days I wake more

tired than when I went to sleep the night before. Of course, I also have

little ones who keep the day very entertaining (no downtime for mama) so that

contributes, too