Re: Lidocaine Infusion - To Do or Not To Do ???

[Guest guest]

Hi Rashid,

Just hearing that your pain management doctor is EXTREMELY interested in giving

you Lidocaine Infusion makes me VERY CONCERNED that you will be used as a

'guinea pig'. When docs get over-excited, 'extrememly' interested or pushy, back

away, far away. In other words, buyer beware.

And yes, Lidocaine is temporary. There is NO published research on CMT and

Lidocaine Injections.

Can you and your doctors work out a pain management plan with some sort of

medication combo or use of pain patches, or even an implanted stimulator?

Perhaps even adding a naturopath or herbalist who may use Vitamin E, or Arnica

may be added to your pain management regime.

I don't know what your pain feels like or how bad it is, but when I smell a rat,

I know I'm smelling a rat, if you get my drift.

Stay safe, be cautious. Ask the pain docs 100s of questions, get info on their

background, why they do what they do, what types of people have they treated

previously (RA, Ataxia, MS, bla bla). Even if your pain is so terribly bad, a

pain patch worn on the skin is much less invasive and more effective.

Gretchen

[Guest guest]

I sure wouldn't want to be the first with CMT to try this treatment. I

would wait until we had more information on it.

In a message dated 12/9/2010 4:38:10 P.M. Pacific Standard Time,

rashidbinquadir@... writes:

All of that said.....is there anyone out there who has practical

experience or knowledge of Lidocaine and how it may relate

to us CMT'ers.

[Guest guest]

Hi Rashid,

By change is the pain management doctor a Physiatrist?  We saw one before

we got

our final diagnosis, he was all about pushing the meds.  I'm not one to just

" try " something if there hasn't been documented proof that it works.  For

example, the first year the H1N1 shot was available, we didn't get it. 

If there is no real documentation that the Lidocaine is going to help you for a

long run, I'd be concerned.  Especially if the doctor is anxious. 

Just my 2 cents worth.  :-)

Mother to Ashlee Rayne & Aimee Renae

Family Blog

________________________________

From: gfijig <gfijig@...>

Sent: Thu, December 9, 2010 6:37:54 PM

Subject: Re: Lidocaine Infusion - To Do or Not To Do ???

 

Hi Rashid,

Just hearing that your pain management doctor is EXTREMELY interested in giving

you Lidocaine Infusion makes me VERY CONCERNED that you will be used as a

'guinea pig'. When docs get over-excited, 'extrememly' interested or pushy, back

away, far away. In other words, buyer beware.

And yes, Lidocaine is temporary. There is NO published research on CMT and

Lidocaine Injections.

Can you and your doctors work out a pain management plan with some sort of

medication combo or use of pain patches, or even an implanted stimulator?

Perhaps even adding a naturopath or herbalist who may use Vitamin E, or Arnica

may be added to your pain management regime.

I don't know what your pain feels like or how bad it is, but when I smell a rat,

I know I'm smelling a rat, if you get my drift.

Stay safe, be cautious. Ask the pain docs 100s of questions, get info on their

background, why they do what they do, what types of people have they treated

previously (RA, Ataxia, MS, bla bla). Even if your pain is so terribly bad, a

pain patch worn on the skin is much less invasive and more effective.

Gretchen

[Guest guest]

Hi Rashid,

I've not had the treatment you mention.  However, I do use Lidocaine patches 5%

nearly every day.  It's a 12 hrs on, 12 hrs off thing.  It provides minor

relief, not great relief.  It's part of my overall pain treatment plan, along

with ice/heat, injections, and pills.  When I get the injections directly into

my joints or my spine, the medication is a cocktail, including steroids and

lidocaine.  The doc told the Lidocaine gives immediate, temporary relief, while

the steroids may have a longer-term effect.

But, I've not heard of the IV push every 2 weeks.  It's good that you are

thoroughly researching it first and speaking to your primary doctor about it.

From: Rashid <rashidbinquadir@...>

Subject: Lidocaine Infusion - To Do or Not To Do ???

" CMT_BayArea " <cmtpeninsulagooglegroups>, " CMT_SAGFacilitator "

<cmta_sagfgooglegroups>,

Date: Thursday, December 9, 2010, 1:32 PM

 

Howdy Crew,

New question for you. I recently went to a Pain Clinic here in town and to add

to a regiment of pain meds the doctor suggested a " Lidocaine Infusion "

treatment. This would involve an IV Push every 2 week, in the hospital, each

appt., would be 2hrs, and take approximately 14 weeks. The suggestion did not

come from my primary physician but a doctor in the pain clinic. This is only the

2nd time I have seen him but he has a strong grasp of my history [because I

clearly conveyed that].

am not sure why but he and his team were EXTREMELY eager to sign me up??

Naturally, I hesitated because I wanted to 1] run it past my primary physician,

2] do my own research, and 3] check in with my fellow CMT'ers. My quick

research on Lidocaine shows that

it's a simple drug that is typically used for temporary relief at dentist

appointments??? I found very little on this in the area of infusion, CMT, and\or

neuropathy pain???

All of that said.....is there anyone out there who has practical experience or

knowledge of Lidocaine and how it may relate

to us CMT'ers.

Thanks in advance for your wisdom

Rashid

[Guest guest]

Rashid,

It's pretty hard to undo an injection. I had a nerve block at the

knee for the first of my foot surgeries, with a pain pump for afterward.

Those nerves never recovered and the nerve pain has been much worse ever

since.

O

[Guest guest]

I also use the lido patches.

In a message dated 12/10/2010 11:54:02 A.M. Pacific Standard Time,

agraham2k@... writes:

I do use Lidocaine patches 5% nearly every day.