Guest guest Posted July 23, 2000 Report Share Posted July 23, 2000 nathan soon to be 9, has tried all of those, with no help at all, but kids are different, for nathan they caused increased agitation, and agression, some hallucinating which was noticable to others even, i know our kids often sef stim make look like halluc. but it was different way out there. shawna >From: Loren Spina <salori@...> >Reply-egroups >egroups >Subject: medication question >Date: Sun, 23 Jul 2000 11:30:04 -0700 > >Hi, > >I haven't posted in a while, but I am desperate for some medication help. >We have been trying several meds to try to get a handle on n's (age 6) >extreme hyperactivity, impulsiveness, and aggression. We are also trying a >lot behavioral things as well. After several months, if anything, n >seems somewhat worse. Currently, n is on 40mg of Paxil. He began on >10mg, went to 20, and now has been on 40mg for a little less than a week. >He seems worse to me, however I read somewhere (don't ask me where) that >lower doses of Paxil can cause aggitation in children but can be helpful in >higher doses. Does anyone have experience with this drug? If so, how long >did it take for it to be helpful? I'm willing to wait it out if it will >eventually help, but if it isn't I want to try something else. Prior to >Paxil, we tried Clonidine, which overly sedating, and Propranolol which >caused aggitation. > >Thanks a lot, > >Loren > > >------------------------------------------------------------------------ >Remember four years of good friends, bad clothes, explosive chemistry >experiments. >1/7077/13/_/691668/_/964377611/ >------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2000 Report Share Posted July 23, 2000 SEveral months seems long enough to know if a drug will work. TAlk to the physician in charge of the medications. Andy takes a combo of Buspar and Risperdal. We used the Buspar for a year before adding the Risperdal and the jury is out on Risperdal mostly because of illnesses.... Sorry you're having trouble finding what you need. j At 11:30 AM 7/23/00 -0700, you wrote: >Hi, > >I haven't posted in a while, but I am desperate for some medication help. >We have been trying several meds to try to get a handle on n's (age 6) >extreme hyperactivity, impulsiveness, and aggression. We are also trying a >lot behavioral things as well. After several months, if anything, n >seems somewhat worse. Currently, n is on 40mg of Paxil. He began on >10mg, went to 20, and now has been on 40mg for a little less than a week. >He seems worse to me, however I read somewhere (don't ask me where) that >lower doses of Paxil can cause aggitation in children but can be helpful in >higher doses. Does anyone have experience with this drug? If so, how long >did it take for it to be helpful? I'm willing to wait it out if it will >eventually help, but if it isn't I want to try something else. Prior to >Paxil, we tried Clonidine, which overly sedating, and Propranolol which >caused aggitation. > >Thanks a lot, > >Loren > > >------------------------------------------------------------------------ >Remember four years of good friends, bad clothes, explosive chemistry >experiments. >1/7077/13/_/691668/_/964377611/ >------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2000 Report Share Posted July 24, 2000 In a message dated 7/24/00 3:09:33 PM Central Daylight Time, jcantonwine@... writes: << My son, Tanner, is on Paxil. He takes 10 mg. Now, however, it seems to not be working so well. >> Jill, the same thing has happened to with Ritalin, Risperdal, Depakote and other meds. She starts out on them with wonderful results and then several weeks or months later the effectiveness reduces greatly. It sure seems like there is some kind of phenomenon with kids with DS metabolizing meds differently than other kids and becoming immune to them more quickly. I wish someone would study this. I spoke with an MD/neuropharmacologist at the Univesity of Chicago about this last year and he told me he has seen anecdotal evidence of this phenomenon with people with DS, and he agreed that a study needed to be done. Gosh, our kids are complicated, aren't they? Maureen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2000 Report Share Posted July 24, 2000 Hi Loren, My son, Tanner, is on Paxil. He takes 10 mg. The last time I spoke with his doctor, he asked if we wanted to increase the dose; we said we were satisfied. Now, however, it seems to not be working so well. Also, the doc. said 30 mg. was an adult dosage (I *think* I remember him saying that.....maybe I'm wrong). I figured we had lots of time (he's 8) before we reached adulthood and adult dosages of meds, so I didn't want to increase the dose after being on it for only a few months. When we started on Paxil, his stimming was reduced a bit, masturbation (we had a BIG problem here) was DRAMATICALLY reduced and he seemed much less fearful in crowds and social situations. His stimming (finger flipping and weird sounds) are back to where they were before, maybe even more so. We have also had problems with Tanner pushing children, although I don't think it's aggression, I think it's more attention-getting. Paxil didn't help with this bahavior, but I didn't really expect it to. I guess that didn't really answer your questions, except to say that Paxil is less than we were hoping for. Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2001 Report Share Posted August 17, 2001 PJ I would be very interested in any info you get.......I suffer from encephalitis a lot and my brain fog is taking over again Thanks Amy a1m1bishop@... In a message dated 8/17/01 9:04:56 PM Eastern Daylight Time, PJSNYDERNY@... writes: > hi guys, i just came back from a visit with a LL psychiatrist. he wants me > to > start Provigil, and says it will charge the hypothalamus, in just the > frontal > lobe region which is the area affected by encephalitis/lyme. originally > used > for narcolepsy, now in studies for lyme and ms, etc. he says he should help > keep focused, alert, and energized through out the day. anyone have any > experinces with this med or one similiar? thanx pj > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2001 Report Share Posted August 18, 2001 Hi PJ, I tried Provigil for several months, my Neurologist put me on it for the same reasons as you. It did not seem to work for me and I stopped taking it. But, give it a try because it has helped some and everyone is different. Take care, Kim S. --- PJSNYDERNY@... wrote: > hi guys, i just came back from a visit with a LL > psychiatrist. he wants me to > start Provigil, and says it will charge the > hypothalamus, in just the frontal > lobe region which is the area affected by > encephalitis/lyme. originally used > for narcolepsy, now in studies for lyme and ms, etc. > he says he should help > keep focused, alert, and energized through out the > day. anyone have any > experinces with this med or one similiar? thanx pj __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2001 Report Share Posted August 18, 2001 > Is this also an antidepressant, or used primarily/only for the symptoms described below? If so, I sure could use it...have some narcolepsy problems occasionally, but need the antidepressant as well. Love ya, Rose > --- PJSNYDERNY@A... wrote: > > <snip>...Provigil...says it will charge the > > hypothalamus.......originally used > > for narcolepsy, now in studies for lyme and ms, etc. > > he says he should help > > keep focused, alert, and energized Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2001 Report Share Posted August 18, 2001 Amy, I too suffered from encephalitis, the doctor put me on Rocepherin IV for 4wks. and carbatrol for the seizures. Sheryl Re: [ ] Medication Question > PJ I would be very interested in any info you get.......I suffer from > encephalitis a lot and my brain fog is taking over again > > Thanks > Amy > a1m1bishop@... > > In a message dated 8/17/01 9:04:56 PM Eastern Daylight Time, > PJSNYDERNY@... writes: > > > > hi guys, i just came back from a visit with a LL psychiatrist. he wants me > > to > > start Provigil, and says it will charge the hypothalamus, in just the > > frontal > > lobe region which is the area affected by encephalitis/lyme. originally > > used > > for narcolepsy, now in studies for lyme and ms, etc. he says he should help > > keep focused, alert, and energized through out the day. anyone have any > > experinces with this med or one similiar? thanx pj > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2001 Report Share Posted August 18, 2001 it is actually used as an adjunct to antidepressants in some cases, esp. like the one i take, Remeron, which can cause excessive daytime sleepiness. but it is not an antidepressant itself. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2001 Report Share Posted August 18, 2001 Thanks, I will ask about it. I don't have as much of a problem now, but at times in is very bothersome. I also take Paxil and Tegretol. A few years ago it was really bad, but so was the encephalitis at that time. We were considering Ritalin then, but my LLMD was very hesitant...almost ready to try it, things had gotten so bad, but still very hesitant. Situation improved dramatically, so didn't go on it after all. I have not heard of this particular medication, so I will ask if it would be a possibility in my particular situation. > it is actually used as an adjunct to antidepressants Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2001 Report Share Posted October 4, 2001 hey, been there done that too!! my 16yr old son with ds has had some terrible problems with temper and behavior. we had tried everything and actually all the diff meds he was on made him out of control. so out of control that we had to admit him to a pshych hospital this summer to get everything straightened out. he was on about seven diff meds which included prozac, desyrel, ambian, serroquel, topamax etc. now he is only on depakote. it has been a miracle drug for us. we have been through in school suspension, out of school suspension, calls from school practically every day telling us we had to do something. we have been hit and our alot of things were destroyed by him during this time. it was obvious he had no control. i am happy to report that he is having one of his best years ever at school and is back to being the happy kid he was before. i guess my advise to you is to do what is best for your child. ( i know, sounds kinda like " duh " ). but sometimes meds allow them to live a better life without as much anxiety etc. we also found as he was getting older, the frustrations and anxiety was getting worse. make the best decisions you can and always remember not to give up trying. it took us a long time and i can honestly say i didnt like my son at all during that time. everyday was a struggle. now we are one big happy family (except for my moody 13yr old son). any time you wanna talk, i wanna listen. these groups were her for me when i needed them and helped me make the right decisions for ben. hopefully you will also get the help you need!! kerrie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2001 Report Share Posted October 4, 2001 hey, been there done that too!! my 16yr old son with ds has had some terrible problems with temper and behavior. we had tried everything and actually all the diff meds he was on made him out of control. so out of control that we had to admit him to a pshych hospital this summer to get everything straightened out. he was on about seven diff meds which included prozac, desyrel, ambian, serroquel, topamax etc. now he is only on depakote. it has been a miracle drug for us. we have been through in school suspension, out of school suspension, calls from school practically every day telling us we had to do something. we have been hit and our alot of things were destroyed by him during this time. it was obvious he had no control. i am happy to report that he is having one of his best years ever at school and is back to being the happy kid he was before. i guess my advise to you is to do what is best for your child. ( i know, sounds kinda like " duh " ). but sometimes meds allow them to live a better life without as much anxiety etc. we also found as he was getting older, the frustrations and anxiety was getting worse. make the best decisions you can and always remember not to give up trying. it took us a long time and i can honestly say i didnt like my son at all during that time. everyday was a struggle. now we are one big happy family (except for my moody 13yr old son). any time you wanna talk, i wanna listen. these groups were her for me when i needed them and helped me make the right decisions for ben. hopefully you will also get the help you need!! kerrie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2001 Report Share Posted October 5, 2001 In a message dated 10/5/01 7:32:46 AM Central Daylight Time, drf218@... writes: > Now that you said that, Nic's behavior worsened AFTER he was taken OFF the > Depekote. I wonder if it was mellowing him out ..... > > Di, mom to Jake(18,nda) and 4 (DS) HI Di So Nic is off meds now?? How's he doing seizure wise? Sara should come of meds soon. Im hoping she will regain more memory retention and have less impulsive behavior. I did ask her Neuro if she will go back to normal and in his foreign accent he said " No. Mrs. , she'll never be normal...she has DS " I nearly cracked up Kathy mom to Sara 9 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2001 Report Share Posted October 5, 2001 In a message dated 10/5/01 7:32:46 AM Central Daylight Time, drf218@... writes: > Now that you said that, Nic's behavior worsened AFTER he was taken OFF the > Depekote. I wonder if it was mellowing him out ..... > > Di, mom to Jake(18,nda) and 4 (DS) HI Di So Nic is off meds now?? How's he doing seizure wise? Sara should come of meds soon. Im hoping she will regain more memory retention and have less impulsive behavior. I did ask her Neuro if she will go back to normal and in his foreign accent he said " No. Mrs. , she'll never be normal...she has DS " I nearly cracked up Kathy mom to Sara 9 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2001 Report Share Posted October 5, 2001 Now that you said that, Nic's behavior worsened AFTER he was taken OFF the Depekote. I wonder if it was mellowing him out ..... Di, mom to Jake(18,nda) and 4 (DS) Pennsylvania Re: Medication question hey, been there done that too!! my 16yr old son with ds has had some terrible problems with temper and behavior. we had tried everything and actually all the diff meds he was on made him out of control. so out of control that we had to admit him to a pshych hospital this summer to get everything straightened out. he was on about seven diff meds which included prozac, desyrel, ambian, serroquel, topamax etc. now he is only on depakote. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2001 Report Share Posted October 5, 2001 Now that you said that, Nic's behavior worsened AFTER he was taken OFF the Depekote. I wonder if it was mellowing him out ..... Di, mom to Jake(18,nda) and 4 (DS) Pennsylvania Re: Medication question hey, been there done that too!! my 16yr old son with ds has had some terrible problems with temper and behavior. we had tried everything and actually all the diff meds he was on made him out of control. so out of control that we had to admit him to a pshych hospital this summer to get everything straightened out. he was on about seven diff meds which included prozac, desyrel, ambian, serroquel, topamax etc. now he is only on depakote. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2001 Report Share Posted October 5, 2001 ROTFL..............doctors! ha! Yes Nic was weaned off in April. we saw neurologist in July had an EEG done-came back good... we see him again in Nov and if all is good we are done with him (unless of course there's a problem), no seizure activity since he's been off....YIPPEE! Di, mom to Jake(18,nda) and 4 (DS) Pennsylvania Re: Medication question In a message dated 10/5/01 7:32:46 AM Central Daylight Time, drf218@... writes: > Now that you said that, Nic's behavior worsened AFTER he was taken OFF the > Depekote. I wonder if it was mellowing him out ..... > > Di, mom to Jake(18,nda) and 4 (DS) HI Di So Nic is off meds now?? How's he doing seizure wise? Sara should come of meds soon. Im hoping she will regain more memory retention and have less impulsive behavior. I did ask her Neuro if she will go back to normal and in his foreign accent he said " No. Mrs. , she'll never be normal...she has DS " I nearly cracked up Kathy mom to Sara 9 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2001 Report Share Posted October 5, 2001 ROTFL..............doctors! ha! Yes Nic was weaned off in April. we saw neurologist in July had an EEG done-came back good... we see him again in Nov and if all is good we are done with him (unless of course there's a problem), no seizure activity since he's been off....YIPPEE! Di, mom to Jake(18,nda) and 4 (DS) Pennsylvania Re: Medication question In a message dated 10/5/01 7:32:46 AM Central Daylight Time, drf218@... writes: > Now that you said that, Nic's behavior worsened AFTER he was taken OFF the > Depekote. I wonder if it was mellowing him out ..... > > Di, mom to Jake(18,nda) and 4 (DS) HI Di So Nic is off meds now?? How's he doing seizure wise? Sara should come of meds soon. Im hoping she will regain more memory retention and have less impulsive behavior. I did ask her Neuro if she will go back to normal and in his foreign accent he said " No. Mrs. , she'll never be normal...she has DS " I nearly cracked up Kathy mom to Sara 9 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2001 Report Share Posted October 5, 2001 it sure has worked wonders for our ben. never swears and does not even begin to get aggressive. he is real talkative now and laughs alot more. he is one happy guy (most of the time). kerrie:)) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2001 Report Share Posted October 5, 2001 it sure has worked wonders for our ben. never swears and does not even begin to get aggressive. he is real talkative now and laughs alot more. he is one happy guy (most of the time). kerrie:)) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2001 Report Share Posted October 6, 2001 > I did ask her Neuro if she will go back to normal and in > his foreign accent he said " No. Mrs. , she'll never be normal...she has > DS " I nearly cracked up Kathy, this is hysterical...I really laughed when I read it. Did you ask the nuero if she'd be able to play the violin ? R. Mom to (7, ds) and Grace (4) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2001 Report Share Posted October 6, 2001 > I did ask her Neuro if she will go back to normal and in > his foreign accent he said " No. Mrs. , she'll never be normal...she has > DS " I nearly cracked up Kathy, this is hysterical...I really laughed when I read it. Did you ask the nuero if she'd be able to play the violin ? R. Mom to (7, ds) and Grace (4) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2002 Report Share Posted January 16, 2002 In a message dated 1/16/02 10:29:54 AM Eastern Standard Time, Jase4567@... writes: > I am scheduling an appointment for a physical and would like to know if > anyone out there is on meds to help with weightloss? I would appreciate > any > feedback on this. I have been told health ins. will cover xenical. > > I asked my Dr. about medication and she said " NO WAY " in her opinion the danger from the drugs was far greater than the danger from my fat. I was 250 pounds at the time. I can see where they might be appropriate if your health is failing and you need a fast fix, but I wonder what happens when you stop taking the drugs. 260/184/140 I think Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2002 Report Share Posted January 17, 2002 > feedback on this. I have been told health ins. will cover xenical. No matter what meds you may get from your doctor, you *still* have to follow a low calorie food plan and exercise, so why not try it the " natural " way first? Be sure to read the warnings and side effects of any medication before taking it, especially if there's even a slight possibility of you getting pregnant while taking it. Sue in NJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2002 Report Share Posted January 17, 2002 > No matter what meds you may get from your doctor, you *still* have to follow > a low calorie food plan and exercise, so why not try it the " natural " way > first? > Sue in NJ is so right. I have taken Xenical & Meridia.... Xenical didn't do very much for me because the fat intake is not the problem with me... I went off of that & onto Meridia... Still didn't see that it helped much... I really think that the natural way is best because there is no miracle cure... we have to cut back our intake to loose weight! Quote Link to comment Share on other sites More sharing options...
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