Guest guest Posted June 16, 2003 Report Share Posted June 16, 2003 , I did not tolerate Imuran well. A lot of nausea and just bad feeling. Headaches too which I never have. They switched me to Cellcept and I love it. There are other choices. Hang in there. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2003 Report Share Posted June 16, 2003 Suzy I haven't heard of Betane but you probably should have something to replace the prednisone....the real treatment for this diease is to suppresss the immune system so it doesn't produce auto-antibodies that will attack your liver...that is what the imuran is for how long were you on the imuran...it takes 4 weeks or so to start working.....there are other things beside imuran you can take.... cellcept, 6MP, even cyclosporine....I take prograf ...but I'm a slightly different case. I'll find out about Betane..... now that think about it ...it does sound familiar... love jerry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2003 Report Share Posted June 16, 2003 , I could never take imuran. I was treated w/ pred only. I have never heard of Betane. Others are on 6MP or some other alternative to imuran & may be able to help. Good luck. Patty [ ] medication question I just came from the doctor and left with more questions than I had to begin with. He told me that I am " sensitive " to Imuran and am no longer able to take it. He started me out on 100 mg and also 40 mg of pred. I'm down to 30 mg of pred and am awaiting for my liver enzyme results. Has anyone else had a bad reaction to Imuran? Also, my doc told me about something called Betane that is supposed to helpful in improving liver metabolism. He suggested that I check it out at the local health food store and that he has read clinical data that support it as useful. Has anyone heard of this?? Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2003 Report Share Posted June 16, 2003 Suzy would you check the spelling on that Betane? I can't locate any info...... As i sidearlie the main goal of treatment is to suppress the immune system...if treated corrctly the liver will function as it should and would need no help in metabolizing. This of course is my opinion and I'm not a doctor and please believe me when I say I 'll not get into a discussion on the useful ness of herbs. I have never heard of any thing you can purchase at a health food store that will suppress your immune system and is used to treat AIH sucessfully... not anything approved by the FDA for that purpose, anyway...would that it be that simple ....we would all be on it and not paying these high drug costs.. my look on it only... Please check the spelling of betane again for me. What kind of doctor are you seeing by the way ...is he a hepatologis or a gastroentrologist or is he your general practicioner?? And how did he arrive at the conclusion you can't tolerate imuran...? Curious busy body.. me... with love..... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2005 Report Share Posted January 25, 2005 > > I have been taking supplemental testosterone for about two years > now. Reason being that I have hypogonadism. I started out on > Androderm. I switched to an injection because I found it bothersome > to wear a patch especially since I am an avid basketball player and > workout 4-5 times a week. About a year ago I switched again to > Androgel because I wanted a steadier level of testosteone and have > been quite happy with it. My problem now is that my company's > insurance has switched providers and according to my pharmacist not > covered by my insurance. According to my insurance's website and a > human resource person at work, it is a non-prferred drug and I would > have to pay 30% or $50. What is covered completely are Android and > Danazol. My question is: Are capsules as effective as gel or > injections? I was told by my doctor that they are not as effective. > And some of my independent research has backed that up. What is > everyone elses opinions and can you point me in a direction towards > more unbiased info? Thanks in advance ---------------------------------------------- Call a local compounding pharmacy and have them whip up a jar of 10% testosterone gel, put on 1/4 teaspoon a day (12.5 mg) costs about $75 for couple months supple. Or call Highland Pharmacy in Albuquerque ask for Tom at 1-505-243-3777 he will ship it to you, norton Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2005 Report Share Posted January 25, 2005 Capsules aren't supposed to work well for men, from what i have read. The higher dosese required in capsule form for men can damage the liver, I think. Mark Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2005 Report Share Posted January 25, 2005 On Tue, 25 Jan 2005 14:44:26 -0000, you wrote: >I have been taking supplemental testosterone for about two years >now. Reason being that I have hypogonadism. I started out on >Androderm. I switched to an injection because I found it bothersome >to wear a patch especially since I am an avid basketball player and >workout 4-5 times a week. About a year ago I switched again to >Androgel because I wanted a steadier level of testosteone and have >been quite happy with it. If you are forced back to injections consider getting a shot once a week or 10 days. This provides most folks and " even " enough dose. I'm guessing you were on a two week or even three week schedule before. - - - - Just another albino black sheep Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2005 Report Share Posted January 25, 2005 Hi, There are many forms of therapy and the oldest, and I think the best, is hormone pellets inserted under the skin below the belt line every 4 months at a cost of about $450 per visit or $1350/year. The trouble is finding a doctor that provides hormone pellets for men. I am treated by Dr. R. Don Gambrell, Augusta, GA and most of my expense is cared for by Medicare. I get 20 pellets per visit based on his formula: subtract 30 pounds from you total weight and for every 10 pounds remaining you should get one 75mg pellet. It is trouble free and nothing to do until the next visit. Other forms of TRT can cause conversion of T to E2 which brings other problems. This is mostly due to sudden surges or spurts of hormone enetering the body. Pellets dissolve very gradually with no sudden changes in level, 24/7. Other doctors involved in all forms of TRT are on this web site: http://www.tuneupyourt.com/ ernestnolan > > I have been taking supplemental testosterone for about two years > now. Reason being that I have hypogonadism. I started out on > Androderm. I switched to an injection because I found it bothersome > to wear a patch especially since I am an avid basketball player and > workout 4-5 times a week. About a year ago I switched again to > Androgel because I wanted a steadier level of testosteone and have > been quite happy with it. My problem now is that my company's > insurance has switched providers and according to my pharmacist not > covered by my insurance. According to my insurance's website and a > human resource person at work, it is a non-prferred drug and I would > have to pay 30% or $50. What is covered completely are Android and > Danazol. My question is: Are capsules as effective as gel or > injections? I was told by my doctor that they are not as effective. > And some of my independent research has backed that up. What is > everyone elses opinions and can you point me in a direction towards > more unbiased info? Thanks in advance Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2005 Report Share Posted January 26, 2005 Me, I'd pay the $50. Or less with the compounded gel like Norton suggests. About a year ago I switched again to > Androgel because I wanted a steadier level of testosteone and have > been quite happy with it. My problem now is that my company's > insurance has switched providers-- What is covered completely are Android and > Danazol. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2005 Report Share Posted May 10, 2005 I haven't posted in a long time, but needed to ask all you experts about Risperdal. I have a script for it, written in March, but have not filled it yet. For some reason, putting my son ( - 9 1/2) on this 2nd medication scares me, and I can't figure out why. Last time we saw the pdoc, my son had been on 10 mg Prozac, with great OCD relief but huge activating side effects that were starting to cause problems at school. We dropped back to 5 mg, and OCD was back in full swing. The pdoc's answer - a 3 part plan. Plan A: 5mg twice a day - maybe splitting the doses will reduce the side effects. Worked for about 2 weeks, then the nonstop verbal tics and leg bouncing returned. Plan B: Go to liquid Prozac and take 8 mg dose. Hope that this provides enough OCD relief with less side effects. Plan C: Back to 10 mg of Prozac with teeny tiny dose of Risperdal added to combat side effects. He did not want to consider switching SSRIs, as Prozac is apparently effective at controlling the OCD So I've been stuck in Plan B, because it's helping with MOST of the OCD, and the hyperactivity is gone, but the constant LOUD verbal tics are still here and now a new face tic has developed. The side effects are tolerable, but not ideal, and the OCD that remains is the constant reassurance questioning, need to repeat everything he already knows or we've already told him. He's also avoiding the refrigerator again. So we can live with it and have been, but I keep wondering if I'm denying him (and us) full relief by not trying the higher dose with Risperdal. And then I wonder, if never given a chance to practice OCD boss back with these smaller issues because the medication is working so well, how will he handle it if something bigger crops up. I guess because the pdoc saw it as plan C, (I asked him what he would do if it was his child), I feel like it's the desperation move - not the best for him if we don't have to. Just wondered if anyone had thoughts, experience with Risperdal and could offer advice. I HATE how this is all left up to me to decide! AAARGH! - in MI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2005 Report Share Posted May 10, 2005 My youngest daughter has been taking Risperdal for a couple of years now and we are very happy with it. She also takes Luvox and Clonidine. My oldest daughter takes Abilify with her Luvox for the same reasons takes the Risperdal--to help stabilize her mood and to give the Luvox a " boost. " I know it is scary to give extra meds but sometimes the OCD is scarier! Kelley in NV Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2005 Report Share Posted May 10, 2005 My youngest daughter has been taking Risperdal for a couple of years now and we are very happy with it. She also takes Luvox and Clonidine. My oldest daughter takes Abilify with her Luvox for the same reasons takes the Risperdal--to help stabilize her mood and to give the Luvox a " boost. " I know it is scary to give extra meds but sometimes the OCD is scarier! Kelley in NV Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2005 Report Share Posted May 10, 2005 Hi , putting my child on Risperdal, about a year after starting an SSRI, was hard for me. I'm not sure whether it was the idea of giving *two* meds = she's really affected, or that Risp. is an antipsychotic, or what. In any case I also delayed starting it. However I finally decided to because 1) unlike an SSRI, you know in a few days whether Risperdal is a good match for your child or not and 2) I could always stop it if it didn't seem to add much relief. However, it turned out to be a very good med for my child in terms of boosting anti-OCD effect of her SSRI, reducing tics and urge behaviors, fidgetiness in school which was a constant complaint of teachers, and even sleep--it made her drowsy so we always gave it at bedtime. My daughter didn't gain weight on Risperdal, a side effect that you'll want to watch for if you decide to try it with your son. FWIW, your doctor may have seen adding Risperdal to your son's meds as plan C because it does involve adding medication rather than simply adjusting the dose of an established med--not that it is to be avoided if at all possible. I think a lot of times doctors leave these sorts of decisions up to the parents because it's a judgment call of how intrusive and bothersome the situation is, whether it warrants treatment or not. We've never run out of opportunities to utilize ERP boss-back techniques even with medication :-) My daughter does not relish these opportunities and truly would enjoy the " problem " of medication working so well there was nothing left to boss back LOL! Kathy R. in Indiana ----- Original Message ----- From: <RHelinski@...> >I haven't posted in a long time, but needed to ask all you experts about > Risperdal. I have a script for it, written in March, but have not filled > it > yet. For some reason, putting my son ( - 9 1/2) on this 2nd > medication > scares me, and I can't figure out why. Last time we saw the pdoc, my son > had > been on 10 mg Prozac, with great OCD relief but huge activating side > effects > that were starting to cause problems at school. We dropped back to 5 mg, > and > OCD was back in full swing. The pdoc's answer - a 3 part plan. Plan A: > 5mg > twice a day - maybe splitting the doses will reduce the side effects. > Worked for about 2 weeks, then the nonstop verbal tics and leg bouncing > returned. > Plan B: Go to liquid Prozac and take 8 mg dose. Hope that this provides > enough OCD relief with less side effects. Plan C: Back to 10 mg of > Prozac > with teeny tiny dose of Risperdal added to combat side effects. He did > not want > to consider switching SSRIs, as Prozac is apparently effective at > controlling the OCD > > So I've been stuck in Plan B, because it's helping with MOST of the OCD, > and > the hyperactivity is gone, but the constant LOUD verbal tics are still > here > and now a new face tic has developed. The side effects are tolerable, but > not ideal, and the OCD that remains is the constant reassurance > questioning, > need to repeat everything he already knows or we've already told him. > He's > also avoiding the refrigerator again. So we can live with it and have > been, but > I keep wondering if I'm denying him (and us) full relief by not trying the > higher dose with Risperdal. And then I wonder, if never given a chance to > practice OCD boss back with these smaller issues because the medication is > working so well, how will he handle it if something bigger crops up. I > guess > because the pdoc saw it as plan C, (I asked him what he would do if it was > his > child), I feel like it's the desperation move - not the best for him if we > don't > have to. Just wondered if anyone had thoughts, experience with Risperdal > and could offer advice. I HATE how this is all left up to me to decide! > AAARGH! - in MI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2005 Report Share Posted May 10, 2005 Hi , I'm a bit late in replying but I'll still through in my two cents' worth : I would question why your doctor is so stuck on Prozac. All the doctors I have consulted about my daughter have said that Prozac is the last SSRI they try on children because it tends to be so activating. Of course all children react differently to all meds, but it does sound as if your son is experiencing some side effects. In your shoes I would try a different SSRI before I augmented it with Risperdal. That being said, we tried three different drugs before we DID end up adding Risperdal, but that was primarily for the tics and aggressiveness. Risperdal does tend to really help " mop up " the OCD if an SSRI isn't giving complete relief, but it IS a serious drug and not one that I'd want to try before exhausting all other possibilities. Again, this is just my opinion and I'm just a mom! in NV, mom to a 12 year old with OCD, ADHD, and TS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2005 Report Share Posted May 11, 2005 Re: Risperdal We are adding another ml (up to 2.0) now of Risperdal to our son's medication because of a relapse in his OCD. This seems to be the only thing that will truly help his tics and obsessions to calm down and since it has been about a year since he was originally put on 1.0 ml. and he's gained 20-25 lbs. we felt it was time to increase it, along with his SSRI - Luvox from 50 mg. to 75 mg/day. Actually, our experience with Luvox has been that it has only helped his OCD marginally and helps more with depression than anything else for him. However, why I am writing is because I am concerned about the need to add more medication after a year of treatment for OCD (he's 15). As time goes on with OCD, through the years, do you find that the medication loses its power and has to be increased. If so, how far can you go. I mean, if after a year we're having to adjust from 1.0 to 2.0 ml. of Risperdal, I worry about this drug anyway and the side effects. What has others experience been with long term OCD treated with medication. How much adjustment/increase in medication is needed over time due to growing bodies and general " pooping out " of the medicine. Hope this makes sense. Thanks. In your shoes I would try a different SSRI before I augmented it with Risperdal. That being said, we tried three different drugs before we DID end up adding Risperdal, but that was primarily for the tics and aggressiveness. Risperdal does tend to really help " mop up " the OCD if an SSRI isn't giving complete relief, but it IS a serious drug and not one that I'd want to try before exhausting all other possibilities. Again, this is just my opinion and I'm just a mom! in NV, mom to a 12 year old with OCD, ADHD, and TS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2005 Report Share Posted November 13, 2005 Hi Kathy,welcome to the group. My so Clay who is 10 going on 30 ,has started showing some signs of puberty,talking back,saying soooo....or whatever! Drives me nuts! But anyway he was put on Paxil 10 mg and then they upped it to 20mg and he was off the hook,so they lowered it back down to ten and he's been fine.One thing they have noticed is that after they are on meds(Clay anyway)it tends to kind of wear off after a couple of months ,but if I keep giving him regular doses of the same amount it will eventually start working again in about a month.Also....word to the wise ,children with autosm and aspergers tend to internalize when they become adloscents. Instead of talking back and "hating their parents" like other kids they will ocassionally hurt themselves. Clay does this also ,espeacially when his meds seem to wane,he bites his fingers and the bottoms of his feet,sometimes until they bleed.We've had him to the doctor several times because of this.Just try to keep them on the lowest dose possible whatever they prescribe. hope this helps:) imgarkat <imgarkat@...> wrote: Hi every one. I am new to the group and just joined tonight. I have a quick question. Have any of you ever had your child go with out medication his whole life and then when he hit puberty found that his behavior changed, he got more impulsive and nothing you did would help? And what meds if any did you find to really help?ThanksKathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2005 Report Share Posted November 13, 2005 Hi Kathy,welcome to the group. My so Clay who is 10 going on 30 ,has started showing some signs of puberty,talking back,saying soooo....or whatever! Drives me nuts! But anyway he was put on Paxil 10 mg and then they upped it to 20mg and he was off the hook,so they lowered it back down to ten and he's been fine.One thing they have noticed is that after they are on meds(Clay anyway)it tends to kind of wear off after a couple of months ,but if I keep giving him regular doses of the same amount it will eventually start working again in about a month.Also....word to the wise ,children with autosm and aspergers tend to internalize when they become adloscents. Instead of talking back and "hating their parents" like other kids they will ocassionally hurt themselves. Clay does this also ,espeacially when his meds seem to wane,he bites his fingers and the bottoms of his feet,sometimes until they bleed.We've had him to the doctor several times because of this.Just try to keep them on the lowest dose possible whatever they prescribe. hope this helps:) imgarkat <imgarkat@...> wrote: Hi every one. I am new to the group and just joined tonight. I have a quick question. Have any of you ever had your child go with out medication his whole life and then when he hit puberty found that his behavior changed, he got more impulsive and nothing you did would help? And what meds if any did you find to really help?ThanksKathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2005 Report Share Posted November 13, 2005 Hello and Welcome Kathy! Yes, Yes, Yes! I know exactly what your talking about. My Aspie son will be 14 next month and boy has he changed in the past year. He used to be so different. He now tells me off and is very moody and cranky. I noticed this around the time he started breaking out in pimples and growing beard hairs. It dawned on me, that it must be Hormone changes. I do hope it gets better, cause it's not fun! His attitude has been so bad. He tells me and my husband off and yells and stomps his feet and slams his fist on the table. Luckily he does not hit anyone or break things. The funny thing, is that he is a whole other person at school, he doesn't say one word and is so quiet and mild there. His teacher's probably wouldn't believe me if I told them how he was at home. My son is not mediacated for his AS or never has been. He has what they call a mild-moderate case. His greatest problem with the AS is his socializing skills and him also throwing a fit when he doesn't get his way. The only problems I noticed with the textile problems is certain clothing bothers him and certain sounds, but that's about it. imgarkat <imgarkat@...> wrote: Hi every one. I am new to the group and just joined tonight. I have a quick question. Have any of you ever had your child go with out medication his whole life and then when he hit puberty found that his behavior changed, he got more impulsive and nothing you did would help? And what meds if any did you find to really help?ThanksKathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2007 Report Share Posted January 9, 2007 Hi I can't advise you what to do, but can comment on your question re NSAIDS and DMARDS (the 'disease modifying drugs'). When diagnosed with Reiter's or similar, rheumatologists often prescribe a NSAID first, as, for some lucky people, a NSAID alone will be sufficient to knock the inflammation on the head. If not, rheumatologists then prescribe, alongside the NSAID, one or more of the DMARDs. They usually start off with plaquenil, sulphasalazine or methotrexate (there are others) - older drugs with well-known side effect profiles. You can be on one, two or three DMARDs simultaneously, in fact it seems more common these days to be on 2 or more. If a person still doesn't improve, the newer biologics are considered: these are more expensive and have a less well-known side-effect profile, so are reserved for those who don't respond to the other drugs, or who have an especially aggressive flare. The rheumatologist's dilemma is working out how to balance getting a person's inflammation under control as quickly as possible, along with finding the 'weakest' drug(s) - with less side-effects - that will work effectively. The bummer is that all the DMARDs (and the NSAIDs, to a lesser degree) need a trial of several months, to establish their efficacy. If a remission is acheived, the NSAID and DMARDs can be gradually tapered and eventually discontinued. I've stopped my NSAID now, as I'm on 2 DMARDs which are effectively controlling my disease. The NSAID would be an unnecessary drug for me at present, with the risk of unnecessary side-effects. If my condition flares up again, I'll start taking them again. I believe the biologics work much faster than the older DMARDS. And we all respond differently to different drugs, so Humira could work for you, even if methotrexate and others didn't. I hope you get some relief soon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2007 Report Share Posted January 10, 2007 Hi You may be in the " rare category of everything " , but you're not alone! :-) I also have many associated eye problems, which have been far more serious then all the other stuff I've been diagnosed with, and have had more eye surgeries then I can count. I can't say I've ever tried Methotrexate, Imurin, or Cyclosporine, but I've been on numerous sorts of NSAIDS and in my experience anyway, the side effects were worse then the disease. I was on one NSAID in which I had only the uncommon side effects and none of the common ones. I had side effects that weren't even listed in the brochure. I don't mean to scare you away from NSAIDS though. Not in the least! Every person is different and what works for you may not work for me, and vice versa. Our bodies all react differently to the drugs our doctors prescribe us. Only you can determine if the benefits outweigh the side effects iof a particular medication. I am HLA-B27 positive and have juvenile onset arthritis that slowly over several years progressed from the knees, ankles, and finally the hips and sacroiliac joints. Fortunately for me, the arthritis in these joints are extremely mild. Only once in a blue moon do I have pain in the lower back and hips and it is usually tolerable, even without medication, but my childhood rheumy put me on the poisons anyway. Of course, this probably makes me a rareity, especially in this group. My biggest health problems have always been with the eyes - iritis, glaucoma, cataracts, corneal deteriation, and severe dry eyes. Sorry if I rambled too much. Good luck and hope you find the medicine and treatment that will help you the best. --------------------------------- Have a burning question? Go to Answers and get answers from real people who know. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2007 Report Share Posted January 10, 2007 , you are not alone. I had migraines for over 5 years. Had a hysterectomy to remove the ovaries and found out there was a mass in my uterus. It was cancer free, thank goodness. I never fully recovered. I never got strong, went back to work tired and having memory issues. Then I changed jobs, a good move for me, because it was what I loved. Working in a school. However, the diseases were growing stronger, I had so much fatigue I had episodes at work, and fell asleep coming home. I was also having eye problems. Finally I went to the DRs during the summer when I blew up like a baloon with water and in pain. She ran tests, nothing...no lyme, no RA, nothing. So, in 2 months I went to an RH Dr. He found I was possitive for the gene, and had a combo of Reactive Arthritis, and Fibro. With a side of eye issues. I started the Methotrexate, went back to work but never got better. I had to leave, luckily my hubby took a job with less pay for the benenfits. His plant had closed down and lost a job he had for 20 years. I started on pain pills, anti-inflamatories and MTX. He kept increasing the MTX but it wasn't helping. After a year, I just saw a new DR for a 2nd opinion. He said I should have been on one of the drugs like Enbrel 6 or more months ago. I was totally disabled. My hands hurt and wouldn't work. I couldn't walk due to the tendon in my heels. And so many more, expecially the knees. I just started Enbrel shots, and I am changing to the new doc, he is more agressive, but honestly after 18 months or more, I should have better treatment. Talk to the DRs, get a 2nd opinion. Read as much as you can find...and ask around for a good Doc. You deserve to feel better. I am having a flare in my left eye, almost wish I had a patch so I could just read with my rt eye clearly. Good luck, you are not alone. There are some of us women in that 1% and have eye issues too. Not to mention I have tons of allergies to meds and Fibro which makes the ReA fight each other big time. Glad you found us, Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2007 Report Share Posted January 11, 2007 Hi Kay, Wow, it sounds like you and I were separated at birth! We have almost identical problems and experiences! Are you legally blind in either eye? My iritis and uveitis caused corroidal newvascularization in my retina (basically the wet form of macular degeneration) in both eyes. After four years of treatements for that--they finally arrested it--but I still have the permanent damage from it. And I also have fibro--though my doctor's just pretty much ignore it, like it's nothing to be concerned about. Sometimes I think my fibro is more the cause for my daily pain than the Reiters. And right now I'm in a wheelchair due to severe inflammation in my heel where the plantar fascia attaches to the achilles. It's kind of plantar fasciitis but it's driven by my disease. It's almost better though. But it will be a slow and steady course getting out of the wheelchair. Must go slowly so I don't cause the heels to flare again. I have been on just about every NSAID there is and have never really gotten that much relief from them. I think they keep things to a certain level, but they don't help with acute pain at all. Just the drugs I can remember are: Sulfasalazine, Plaquenil, Indocin, Methotrexate, Imuran, Prednisoe(lots!), about four NSAIDS whose names I can't remember now, Etodolac, and now I'm on Oxaprozine as an NSAID and I'm on no poisons. I am thinking my poor immune system needs a break. I'm on disability right now and I think I need to try and get my body as healthy as I can before I go back on an immunosuppresant like Humira. I hear it actually helps fatigue and that's a good thing--all the other poisons made me feel like I was at death's door. While on methotrexate I was so tired I was falling asleep at work! I can't imagine if I had cancer and had to take a large dose regularly! No, me and the poisons don't get along. The side effects have always been worse than the disease--well-except for becoming blind and in a wheelchair! Sheesh. The thing is, the eyes became blinded WHILE I was on the poisons. So what good did they really do?? They just weakened my immune system and let in all sorts of infections and mono and stuff and the different infections destroyed my thyroid and my adrenal glands! Oh, and I got Lyme's Disease too about a year and a half ago. Just seems strange that I've been hiking and living in the woods my whole life until the last three years. And then, just from sitting in the mowed lawn at work--in the city--I get a deer tick bite?? I think I must have gotten bites before and it never turned to Lyme's. But this time my body was really weak. So, no poisons I think--not for awhile. I'm going to see if I can fight this myself first. Ok--now THAT was a ramble! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2007 Report Share Posted April 27, 2007 I think you mean Abilify. We tried it on our son at age four and it seemed to help initially but was of no help after a few months...our case is complicated with seizure meds also. God Bless > > Hi! > Our 13 y.o. son who wasdx'ed with aspergers syndrome 3 yrs ago was > just this past week put on a medicine called Ambilfy, anyone heard of > it? It has really helped our son immencely in so many areas of his > daily life. Has anyone else in the group had any experience with this > med.? I'd appreciate any input on this you all could offer. > Thanks!! > Merica > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2007 Report Share Posted April 27, 2007 in what areas has it helped?jimmynjoshuasmom <jimmynjoshuasmom@...> wrote: Hi!Our 13 y.o. son who wasdx'ed with aspergers syndrome 3 yrs ago was just this past week put on a medicine called Ambilfy, anyone heard of it? It has really helped our son immencely in so many areas of his daily life. Has anyone else in the group had any experience with this med.? I'd appreciate any input on this you all could offer.Thanks!!Merica Ahhh...imagining that irresistible "new car" smell? Check out new cars at Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2007 Report Share Posted April 27, 2007 Hello Merica, my dd is 14 and has been on Abilify for almost 1 yr in addition to her adderall xr and namenda. It was dx'd in her case for her bi polar and I really have not seen any negatives with it. As long as I can get her to take it nightly, it works. good luck and God bless! DeeDeejimmynjoshuasmom <jimmynjoshuasmom@...> wrote: Hi!Our 13 y.o. son who wasdx'ed with aspergers syndrome 3 yrs ago was just this past week put on a medicine called Ambilfy, anyone heard of it? It has really helped our son immencely in so many areas of his daily life. Has anyone else in the group had any experience with this med.? I'd appreciate any input on this you all could offer.Thanks!!Merica Ahhh...imagining that irresistible "new car" smell? Check out new cars at Autos. Quote Link to comment Share on other sites More sharing options...
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