Guest guest Posted April 27, 2007 Report Share Posted April 27, 2007 Our 5 yo son was put on the med for his anxiety problems. He has the same diagnosis. We took him off after 3 weeks. His teachers begged us to. THey said the spark was gone, he lost his personality. We found he was more defiant. It scared us to thepoint where we will not do this again. The one positive was that his handwriting improved greatly. I am glad that things are going well in your case. > > Hi! > Our 13 y.o. son who wasdx'ed with aspergers syndrome 3 yrs ago was > just this past week put on a medicine called Ambilfy, anyone heard of > it? It has really helped our son immencely in so many areas of his > daily life. Has anyone else in the group had any experience with this > med.? I'd appreciate any input on this you all could offer. > Thanks!! > Merica > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2007 Report Share Posted April 30, 2007 Hope has been on Abilify for almost 1 year and a half. It has completely changed everything. I was unable to work, leave the house etc., because she was so violent and self injurious. It basically calmed her down enough for us to work with her. She continues to use it at 20mg, along with Tenex and DVATP for bed wetting. I have not yet seen a single reaction other than the sleepiness for the first 2 weeks we were using it. d corbin <jdcorbin_2000@...> wrote: Hello Merica, my dd is 14 and has been on Abilify for almost 1 yr in addition to her adderall xr and namenda. It was dx'd in her case for her bi polar and I really have not seen any negatives with it. As long as I can get her to take it nightly, it works. good luck and God bless! DeeDeejimmynjoshuasmom <jimmynjoshuasmom > wrote: Hi!Our 13 y.o. son who wasdx'ed with aspergers syndrome 3 yrs ago was just this past week put on a medicine called Ambilfy, anyone heard of it? It has really helped our son immencely in so many areas of his daily life. Has anyone else in the group had any experience with this med.? I'd appreciate any input on this you all could offer.Thanks!!Merica Ahhh...imagining that irresistible "new car" smell?Check out new cars at Autos. Message to those affected with autismNever change. We love you just as you are. We will teach you our communication style in the best way we know how. We want to learn how to communicate in your style too. Please teach us. When we achieve this goal, we can find the perfect balance of coexisting in this world, accepting each other for who we are. Ahhh...imagining that irresistible "new car" smell? Check out new cars at Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2007 Report Share Posted May 1, 2007 Merica Do you mean Abilify? If so my son is also on it, and has been for about a year but we are getting ready to go off of it. It has made him so hungry that the hunger makes behavior issues. Greta From: Autism and Aspergers Treatment [mailto:Autism and Aspergers Treatment ] On Behalf Of jimmynjoshuasmom Sent: Thursday, April 26, 2007 1:54 PM To: Autism and Aspergers Treatment Subject: medication question Hi! Our 13 y.o. son who wasdx'ed with aspergers syndrome 3 yrs ago was just this past week put on a medicine called Ambilfy, anyone heard of it? It has really helped our son immencely in so many areas of his daily life. Has anyone else in the group had any experience with this med.? I'd appreciate any input on this you all could offer. Thanks!! Merica Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2007 Report Share Posted May 5, 2007 My son just started on Clonidine yesterday and slept most of the day. I pray that it helps him with tantrums and sometimes violent behavior. Jodi > > > > Hi! > Our 13 y.o. son who wasdx'ed with aspergers syndrome 3 yrs ago was > just this past week put on a medicine called Ambilfy, anyone heard of > it? It has really helped our son immencely in so many areas of his > daily life. Has anyone else in the group had any experience with this > med.? I'd appreciate any input on this you all could offer. > Thanks!! > Merica > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2007 Report Share Posted May 5, 2007 Hi I am new to the group my son is 11 years old non verbal with autism & behavioral issues. He was prescribed abilify to help him focus & calm down for the most part it has helped, but with it his appetite has increased & he has gained weight. MP has always been a big & strong kid.Well with the weight increase his strength has also increased making it hard to handle him at times. We are doing an execise program (once a week & now that the nicer weather is comming we hope he will be able to be outside more which he loves ) & also with the weight gain we have to consintally increase his dose MP is around 5ft & 136 lbs I am happy to hear that others on abilify have been sucessful thanks for puting this group together I look forward to exchanging ideas & chatting with you all Valarie In Autism and Aspergers Treatment , Jen <diegowench@...> wrote: > > Hope has been on Abilify for almost 1 year and a half. It has completely changed everything. I was unable to work, leave the house etc., because she was so violent and self injurious. It basically calmed her down enough for us to work with her. She continues to use it at 20mg, along with Tenex and DVATP for bed wetting. I have not yet seen a single reaction other than the sleepiness for the first 2 weeks we were using it. > > > > d corbin <jdcorbin_2000@...> wrote: > Hello Merica, my dd is 14 and has been on Abilify for almost 1 yr in addition to her adderall xr and namenda. It was dx'd in her case for her bi polar and I really have not seen any negatives with it. As long as I can get her to take it nightly, it works. > > good luck and God bless! > DeeDee > > jimmynjoshuasmom <jimmynjoshuasmom@...> wrote: > Hi! > Our 13 y.o. son who wasdx'ed with aspergers syndrome 3 yrs ago was > just this past week put on a medicine called Ambilfy, anyone heard of > it? It has really helped our son immencely in so many areas of his > daily life. Has anyone else in the group had any experience with this > med.? I'd appreciate any input on this you all could offer. > Thanks!! > Merica > > > > > > --------------------------------- > Ahhh...imagining that irresistible " new car " smell? > Check out new cars at Autos. > > > > > Message to those affected with autism > Never change. We love you just as you are. We will teach you our communication style in the best way we know how. We want to learn how to communicate in your style too. Please teach us. When we achieve this goal, we can find the perfect balance of coexisting in this world, accepting each other for who we are. > > > > > > --------------------------------- > Ahhh...imagining that irresistible " new car " smell? > Check outnew cars at Autos. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2007 Report Share Posted May 6, 2007 my son takes clonidine 3 times a day if he dont take his concerta he is very tired but he is still a bit hyper with his concerta he is more focused but a behavior issue.at night when he takes the meds he will sleep okay some nights and still bad on other nihgts if he dont have to concerta he is alseep at 730 and will sleep all night it is so hard to find a good meds that work and dont contradict the other one goodluck heres to good sleep Re: medication question My son just started on Clonidine yesterday and slept most of the day. I pray that it helps him with tantrums and sometimes violent behavior. Jodi> > > > Hi!> Our 13 y.o. son who wasdx'ed with aspergers syndrome 3 yrs ago was > just this past week put on a medicine called Ambilfy, anyone heard of > it? It has really helped our son immencely in so many areas of his > daily life. Has anyone else in the group had any experience with this > med.? I'd appreciate any input on this you all could offer.> Thanks!!> Merica> Don't be flakey. Get for Mobile and always stay connected to friends. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2007 Report Share Posted May 7, 2007 Jodi, My daughter's Neurologist wants to put her on Clonidine also, but I thought it was more for her sleeping issues. If it would help her tantrums and behavior too, that would be unbelieveable. Did they tell you that? THanks, ELissaJeff and Jodi <jjkgardenier@...> wrote: My son just started on Clonidine yesterday and slept most of the day. I pray that it helps him with tantrums and sometimes violent behavior. Jodi> > > > Hi!> Our 13 y.o. son who wasdx'ed with aspergers syndrome 3 yrs ago was > just this past week put on a medicine called Ambilfy, anyone heard of > it? It has really helped our son immencely in so many areas of his > daily life. Has anyone else in the group had any experience with this > med.? I'd appreciate any input on this you all could offer.> Thanks!!> Merica> Check me out! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2007 Report Share Posted May 8, 2007 Sleep issues have been a part of our life also. Some medications help and some cause insomnia. I'm not an expert, but I would like to share that my son, now 10, has been sleeping better since I started giving him certain supplements. He is not on any prescription medication, but I give him 5HTP, magnesium, calcium, and Calms Forte before going to bed. Some people give melatonin and have found it to help. I, personally, take 5HTP and I've found that I sleep more deeply and if I get woken up for any reason, I am able to fall asleep again. By the way, its also great for your mood and suppresses the appetite if you take it before meals....I just thought I'd share this, cause I know our kids can't always tell us how they feel. HTH......SylviaSee what's free at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2007 Report Share Posted May 8, 2007 yes the do prescribe clonidine for behavior my son take 1 in the am 1 in ht eafternoon and 1 and half at bedtime it does help some what with the behavior Re: Re: medication question Jodi, My daughter's Neurologist wants to put her on Clonidine also, but I thought it was more for her sleeping issues. If it would help her tantrums and behavior too, that would be unbelieveable. Did they tell you that? THanks, ELissaJeff and Jodi <jjkgardenier@ sbcglobal. net> wrote: My son just started on Clonidine yesterday and slept most of the day. I pray that it helps him with tantrums and sometimes violent behavior. Jodi> > > > Hi!> Our 13 y.o. son who wasdx'ed with aspergers syndrome 3 yrs ago was > just this past week put on a medicine called Ambilfy, anyone heard of > it? It has really helped our son immencely in so many areas of his > daily life. Has anyone else in the group had any experience with this > med.? I'd appreciate any input on this you all could offer.> Thanks!!> Merica> Check me out! Ahhh...imagining that irresistible "new car" smell? Check out new cars at Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2007 Report Share Posted May 8, 2007 My son is on clonidine for sleep. Our neurologist says it lowers blood pressure so he will go to sleep and sleep through the night, which in turn, ends up helping with some of the behavior problems, because he gets a good night sleep. (which he never got before). I have a friend whose son is on a clonidine patch for anxiety…..and it does keep him calmer without a doubt. From: Autism and Aspergers Treatment [mailto:Autism and Aspergers Treatment ] On Behalf Of Elissa Mercado Sent: Monday, May 07, 2007 12:38 PM To: Autism and Aspergers Treatment Subject: Re: Re: medication question Jodi, My daughter's Neurologist wants to put her on Clonidine also, but I thought it was more for her sleeping issues. If it would help her tantrums and behavior too, that would be unbelieveable. Did they tell you that? THanks, ELissa Jeff and Jodi <jjkgardeniersbcglobal (DOT) net> wrote: My son just started on Clonidine yesterday and slept most of the day. I pray that it helps him with tantrums and sometimes violent behavior. Jodi > > > > Hi! > Our 13 y.o. son who wasdx'ed with aspergers syndrome 3 yrs ago was > just this past week put on a medicine called Ambilfy, anyone heard of > it? It has really helped our son immencely in so many areas of his > daily life. Has anyone else in the group had any experience with this > med.? I'd appreciate any input on this you all could offer. > Thanks!! > Merica > Check me out! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2007 Report Share Posted May 8, 2007 Amen! Sleep is our biggest issue around here…if one sleeps the other doesn’t! I never get any! From: Autism and Aspergers Treatment [mailto:Autism and Aspergers Treatment ] On Behalf Of vickie Sent: Saturday, May 05, 2007 10:48 PM To: Autism and Aspergers Treatment Subject: Re: Re: medication question my son takes clonidine 3 times a day if he dont take his concerta he is very tired but he is still a bit hyper with his concerta he is more focused but a behavior issue.at night when he takes the meds he will sleep okay some nights and still bad on other nihgts if he dont have to concerta he is alseep at 730 and will sleep all night it is so hard to find a good meds that work and dont contradict the other one goodluck heres to good sleep Re: medication question My son just started on Clonidine yesterday and slept most of the day. I pray that it helps him with tantrums and sometimes violent behavior. Jodi > > > > Hi! > Our 13 y.o. son who wasdx'ed with aspergers syndrome 3 yrs ago was > just this past week put on a medicine called Ambilfy, anyone heard of > it? It has really helped our son immencely in so many areas of his > daily life. Has anyone else in the group had any experience with this > med.? I'd appreciate any input on this you all could offer. > Thanks!! > Merica > Don't be flakey. Get Mail for Mobile and always stay connected to friends. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2007 Report Share Posted May 9, 2007 and it made my son super hyper figures RE: Re: medication question My son is on clonidine for sleep. Our neurologist says it lowers blood pressure so he will go to sleep and sleep through the night, which in turn, ends up helping with some of the behavior problems, because he gets a good night sleep. (which he never got before). I have a friend whose son is on a clonidine patch for anxiety…..and it does keep him calmer without a doubt. From: Autism and Aspergers Treatment [mailto:Autism and Aspergers Treatment ] On Behalf Of Elissa MercadoSent: Monday, May 07, 2007 12:38 PMAutism and Aspergers Treatment Subject: Re: Re: medication question Jodi, My daughter's Neurologist wants to put her on Clonidine also, but I thought it was more for her sleeping issues. If it would help her tantrums and behavior too, that would be unbelieveable. Did they tell you that? THanks, ELissaJeff and Jodi <jjkgardeniersbcglobal (DOT) net> wrote: My son just started on Clonidine yesterday and slept most of the day. I pray that it helps him with tantrums and sometimes violent behavior. Jodi> > > > Hi!> Our 13 y.o. son who wasdx'ed with aspergers syndrome 3 yrs ago was > just this past week put on a medicine called Ambilfy, anyone heard of > it? It has really helped our son immencely in so many areas of his > daily life. Has anyone else in the group had any experience with this > med.? I'd appreciate any input on this you all could offer.> Thanks!!> Merica> Check me out! No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.467 / Virus Database: 269.6.5/792 - Release Date: 5/6/2007 9:01 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2007 Report Share Posted May 9, 2007 At 07:30 09/05/2007, you wrote: and it made my son super hyper figures And this surprised you because? Do you not know that as an Aspie I did research into education and conditions within the spectrum. I found that 87% experienced " atypical reactions " to medications designed for Mundanes (Neurotypical); why do doctors think that we would be normal in medications and not is physiology? Most documented reactions are as follows: Psychotropic and calming medications (e.g. Xanax, Prozac, Valium, Ritalin, ...): Reaction being hyped-up, although often unable to communicate or articulate; what we call chemical zombification: results in a greater level of stress and anxiety, dark thoughts and depression; Aspies and Auties build up tolerances to these over time, resulting in higher doses, shorter intervals, lower performance and mobility, and when wearing off sudden build up of a display of confusion and anxiety, shown by extreme forceful behaviour (due to build up of excessive emotional stresses) we attempt to get out our reactions, observations, feelings as soon as we can; this is often thought to be aggressive, violent or disruptive behaviour, resulting in more meds which intensify the reaction. Tendancies of shown reactions in Mundanes <1%?, in Aspies 1 in 34%, Auties 1 in 27% (over 59% of Aspies with Allergies and A Bloodtypes) - predisposition to atypical reaction are inherited, like allergies. Pain killers: Aspirin, Paracetamol: in Mundanes this thins the blood, or increases blood flow: in Aspies and Auties, this is likely to have the tendancy or spreading the pain more widespread, resulting in higher anxiety and feeling less well, as more pain receptors respond. Often these should be avoided in favour of painblockers (Opiates, such as Iboprofen (Neurofen), Melfen - please note that these should only be taken in the MOST severe pain and rarely, not several a day, as they have to be taken with food, and are otherwise likely to cause Ulcers and severe reactions in the stomach and intestines due to their potency and acidity (taking regular amounts of this medication without food can result in death from burst or ruptured digestive tract and internal bleeding - usually seen before fatal by bloodloss in urine or fecal mattter, such as piles; Other affective Opiates which limit the amount of pain information getting to the brain and thus block the pain receptors include: Codeine, or products containing Quinine (e.g. Schweppes Indian Tonic Water). Small localised issues can be controlled by will-power. Steroid-based anti-inflamatories (Cortizone/Hydrocortisyl): these are usually given for Arthritis and swellings of joints and muscles in Mundanes; in Aspies and relatives have known reactions resulting in alternating hot/cold flushes, eczema (red inflamed skin with white bubbles popping up), kidney-pains and more severe localised pains on the affected joins, spreading all over the body (say from foot, where pain started, all the way up to the neck). It is not unknown to people to die or require emergency resuscitation: Reaction in Mundanes: 1 in 100,000; In Auties 18%+, Aspies 35.8%; Vacinations: because retention of metals and slow clearing of microbes and bacteria can take place reactions tend to hold for several days in people with genetic predisposition to an Autistic immunity, resulting in temperatures and general unease. Parents tend to blame vaccinations for intensification or start-up of Autism, as they sometimes occur at the same stages - in countries where they do not occur at the same time (e.g. where all vaccinations are between birth and 6 months), children still end up getting noted for Autism between 2-5 years old, as this is when most developmental key stages come and go and when failure to meet these is thus observed. While the reactions are known and documented, it is recommended that closer observation of a child from a family with a history of conditions within or adjacent to the spectrum. Ironically it is 1% LESS likely to get a diagnosis when vaccinated, then those whom are not - my belief is that this is because of greater socialisation and participation tends to help a child normalise to a degree that they go unobserved. Although my first son, Gene Tómas Iain Wise died (yesterday 12 years ago) at 24 days after a temperature 6 days from his BJC vaccination, and all his blood, gas and tissue samples appear to have gone missing, our other 3 children have been vaccinated on schedule between birth and 6 months - each of them were born with the atypical reactions which you might expect (secondary lactose intolerance in males; acute awareness and observation of shapes and sounds from birth; sitting up and looking around after a week, mild and quite disposition until 18 months, inquisitive active brain, hearing and light sensitivity) .... before the vaccinations occurred ... Standarised testing shows that conditions in the Autistic spectrum may be 9 times more common in peoples with Germanic and Scandinavian, Anglo-Irish and Celtic population then African, Native American or Indo-Chinese populations. RE: Re: medication question My son is on clonidine for sleep. Our neurologist says it lowers blood pressure so he will go to sleep and sleep through the night, which in turn, ends up helping with some of the behavior problems, because he gets a good night sleep. (which he never got before). I have a friend whose son is on a clonidine patch for anxiety…..and it does keep him calmer without a doubt. Damon Wise, Chair, Trustees of Federation Trust; Co-Ordinator, Charity-OnLine Consortium and Irish Equality and Human Rights Alliance; AspiesOnly2 Co--Moderator; The mind behind AUTINET C HA RI TY -O NL IN E Reuse, Repair and Upgrade Computers scheme for Disadvantaged Groups; Recycling Cartridges, Toners, Mobiles and used Stamps for development of services for Charity-OnLine. C/O 29 Ballycaseymore Ballycasey, Town, Co. Clare, Ireland, European Union; Tel/Fax: (061) 361 945; Fax: (061) 363 066; E-mail: Charity-Online@... General List: All Discussions of members Post message:Charity-Online-Recycling Scheme Subscribe: Charity-Online-Recycling Scheme-subscribe Unsubscribe: Charity-Online-Recycling Scheme-unsubscribe List owner: Charity-Online-Recycling Scheme-owner Home Page: Charity-Online-Recycling-Scheme/ ==================================================================== Federation Trust run a free information and support service for Disability related groups, Charities, Community and Voluntary Groups. Where we actually do work with a partner-group, such as an Incorporation, Application Forms, Newsletters, Stationary, Flag Day, Sponsorship Packs or Health and Safety Statements or where we source and supply wholesale or charity rate office Stationary, equipment, accessories and software, we charge towards some of the costs on a near cost, reduced cost, or set fee basis, which is below commercial rates, which many of our Partner Organisations would have trouble to afford. We have absolutely no funding from any source. Most of our costs, equipment, rent and telephone are paid for by the Trustees, from our own Social Welfare Payments. The Trustees and volunteers who support the Trust do not get paid. Where part of the time involved is charged, the income is provided towards the equipment, technology and software requirements. We are by Definition a Not-For-Profit Organisation - a one-stop shop or a charity for charities. Damon and Wise, Federation Trust, and related projects: To find our Sci-Fi merchandise, Books, DVD's, Videos, etc - Charity-OnLine Fundraising - for Charity Fundraising: http://www.amazon.co.uk/exec/obidos/redirect?link_code=ur2 & camp=1634 & tag=charitysuppor-21 & creative=6738 & path=http://www.amazon.co.uk/shops/Charity-OnLine : For other items check out http://www.amazon.co.uk/exec/obidos/redirect-home/charitysuppor-21 & placement=home_multi.gif & site=amazon http://www.rpoints.com/?ruid=99029 (For lists of other online sites, price comparison and collecting points - 500 points to join for you and our project) Amazon ZShop (under construction): http://www.amazon.Charity-OnLine.ie eBay Main shop (under construction): http://www.Ireland.Charity-OnLine.ie eBay Rarities Shop (under construction): http://www.Second-Chance.Charity-OnLine.ie Main Info site (under construction): http://www.Charity-OnLine.ie and Members-site (under construction): http://www.Federation-Trust.org e-mail: federationtrust@..., charity-online@...)) You can join our lists by going to the following web page: 1) AspiesOnly2 (List for Aspies and Cousins [NO P & P's)) 2) Irish_Equality_and_Human_Rights_Alliance/ (List for Equality, Human Rights and Anti Poverty Organisations in Ireland) 3) Irish_Equality_Alliance_Council/ (List for National Equality, Human Rights and Anti Poverty Organisations in Ireland) 4) Charity-Online-Recycling-Scheme/ (List for Charity-OnLine Member Groups, Associates and Supporting Recycling Groups) Irish_Equality_and_Human_Rights_Alliance and Irish_Equality_Alliance_Council and Charity-ONLine-Recycling-Scheme List Co-Ordinator; AspiesOnly2 Co--Moderator; =========================== Damon Wise [Person with Aspergers Syndrome (ASPIE)], The mind behind AUTINET, (autinet-list@...) No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.5.467 / Virus Database: 269.6.6/794 - Release Date: 08/05/2007 14:23 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2007 Report Share Posted May 14, 2007 That's really good to know. I don't know if it is my imagination or not, but just a few days on Omega 3 and 6 has given me a different child. I told her to go take her clothes off to take a shower and she said "OKAY!" I cannot believe it. I usually have to go through a tantrum and kicking/screaming fight with her. Unbelievable! Maybe (knock on wood) the Omegas will work so well that we don't need anything else (wouldn't that be great!) THanks, Elissavickie <blackfoot124@...> wrote: yes the do prescribe clonidine for behavior my son take 1 in the am 1 in ht eafternoon and 1 and half at bedtime it does help some what with the behavior Re: Re: medication question Jodi, My daughter's Neurologist wants to put her on Clonidine also, but I thought it was more for her sleeping issues. If it would help her tantrums and behavior too, that would be unbelieveable. Did they tell you that? THanks, ELissaJeff and Jodi <jjkgardenier@ sbcglobal. net> wrote: My son just started on Clonidine yesterday and slept most of the day. I pray that it helps him with tantrums and sometimes violent behavior. Jodi> > > > Hi!> Our 13 y.o. son who wasdx'ed with aspergers syndrome 3 yrs ago was > just this past week put on a medicine called Ambilfy, anyone heard of > it? It has really helped our son immencely in so many areas of his > daily life. Has anyone else in the group had any experience with this > med.? I'd appreciate any input on this you all could offer.> Thanks!!> Merica> Check me out! Ahhh...imagining that irresistible "new car" smell?Check out new cars at Autos. Check me out! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2007 Report Share Posted May 15, 2007 What is 5HTP? Thanks. Robinhorsbuf@... wrote: Sleep issues have been a part of our life also. Some medications help and some cause insomnia. I'm not an expert, but I would like to share that my son, now 10, has been sleeping better since I started giving him certain supplements. He is not on any prescription medication, but I give him 5HTP, magnesium, calcium, and Calms Forte before going to bed. Some people give melatonin and have found it to help. I, personally, take 5HTP and I've found that I sleep more deeply and if I get woken up for any reason, I am able to fall asleep again. By the way, its also great for your mood and suppresses the appetite if you take it before meals....I just thought I'd share this, cause I know our kids can't always tell us how they feel. HTH......Sylvia See what's free at AOL.com. Sick sense of humor? Visit TV's Comedy with an Edge to see what's on, when. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2007 Report Share Posted August 16, 2007 I don't know much about other meds. My son takes abilify and is heavy also - around 5'6 " - 203 lbs. But he also has psychosis and needs this med. I do know that not all kids gain weight with the meds - ours are just the unlucky ones! It's so depressing. > > My 17 year old son takes Abilify 15mg daily and Prozac 80mg daily. He has > taken Prozac for a number of years. He started Abilify several years ago > when he was no longer able to take stimulants. Up until about 4-5 years ago > he was slender (in fact in elementary school he was a " stick " ). We have > seen a huge weight gain over the last 4-5 years to the point he is now > markedly obese (5'8 " and 259 pounds). He also has metabolic syndrome which > was diagnosed about 3 years ago and takes Glucophage for this. We have had > several discussions with the pdoc in the last year or two about changing > meds to see if this would help with the weight issue; we have all resisted > this as he has done so well on the current combo. But, after seeing the GP > yesterday for a school physical I am very concerned. He has gained more > weight - 11 pounds since March so I now feel we have no choice but to > revisit the possibility of changing his meds. While I know every child is > different and reacts differently to meds I was wanting some feedback on good > combos that don't cause weight gain. Tyler's diagnoses are ADHD (dx'd age > 5) and Asperger's (dx'd age 15). > > > > Thanks in advance for your help. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2007 Report Share Posted August 16, 2007 Hi, do a google search for SSRI and weight gain (if I had more time I'd do it now) but there is more than one medication that I've seen listed in the past that - I think - you can take with an SSRI that helps stop, and even lose, the weight gain...I think topomax(sp?) was one but there are others. Anyway, I've seen this come up in group posts (other groups too) over the years and know that there is something(s) to help. OK, I did a quick search and found this paragraph on it, you might can find more to bring up to your son's doctor; this was on a page about OCD which Prozac is also taken for: " What drug options are available to manage weight gain? If all else fails, we sometimes try adding a second drug for a few weeks to try and assist with weight loss. Cytomel is a thyroid hormone preparation that can be used to speed metabolic rate. It is sometimes used for a few weeks to help weight loss. Sometimes a few weeks of a stimulant drug like Ritalin (Methylphenidate) will help curb appetite. One drug that often helps a lot with weight loss associated with anti-obsessional medication and is safe in low doses (i.e., 50mg) is Topamax (topiramide). There is a recent report on the ulcer drug, Nizatidine, reducing the weight gain associated with Zyprexa by as much as 50% without affecting the effectiveness of the Zyprexa. Chromium Piccolinate is recommended by some people (this can be obtained in health food stores), but we have limited and unimpressive experience to date. " > > My 17 year old son takes Abilify 15mg daily and Prozac 80mg daily. He has > taken Prozac for a number of years. He started Abilify several years ago > when he was no longer able to take stimulants. Up until about 4-5 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2007 Report Share Posted August 16, 2007 The only feedback I have is that my son is also dx'd with adhd/aspergers. He is on Focalin and Risperdal. Seems to work very well. Just the Focalin was great until at about 10 years old,,,,he started really having rages. So,,,in came the Risperdal. If he didn't take the Focalin,,,,he wouldn't need the Risperdal........ He'd be bouncing off the walls, but,.,,,,,,well,,,you get the idea. Good luck. Robin <cindyelgamal@...> wrote: My 17 year old son takes Abilify 15mg daily and Prozac 80mg daily. He has taken Prozac for a number of years. He started Abilify several years ago when he was no longer able to take stimulants. Up until about 4-5 years ago he was slender (in fact in elementary school he was a “stick”). We have seen a huge weight gain over the last 4-5 years to the point he is now markedly obese (5’8” and 259 pounds). He also has metabolic syndrome which was diagnosed about 3 years ago and takes Glucophage for this. We have had several discussions with the pdoc in the last year or two about changing meds to see if this would help with the weight issue; we have all resisted this as he has done so well on the current combo. But, after seeing the GP yesterday for a school physical I am very concerned. He has gained more weight – 11 pounds since March so I now feel we have no choice but to revisit the possibility of changing his meds. While I know every child is different and reacts differently to meds I was wanting some feedback on good combos that don’t cause weight gain. Tyler’s diagnoses are ADHD (dx’d age 5) and Asperger’s (dx’d age 15). Thanks in advance for your help. Sick sense of humor? Visit TV's Comedy with an Edge to see what's on, when. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2007 Report Share Posted August 17, 2007 ,Is it possible for him to remain on the Abilify and pay very close attention to his diet? The reason I'm asking is that I take Zyprexa, another med in the same class as Abilify, and I gained 50 pounds while on it. Once I came to my senses, I started watching what I was eating. So far, I've lost 30 pounds. Just an idle thought. Undoubtedly my circumstances are different from his. (The first one being that I'm not a 1;7 year old boy!)LizOn Aug 16, 2007, at 3:43 PM, wrote:My 17 year old son takes Abilify 15mg daily and Prozac 80mg daily. He has taken Prozac for a number of years. He started Abilify several years ago when he was no longer able to take stimulants. Up until about 4-5 years ago he was slender (in fact in elementary school he was a “stick”). We have seen a huge weight gain over the last 4-5 years to the point he is now markedly obese (5’8” and 259 pounds). He also has metabolic syndrome which was diagnosed about 3 years ago and takes Glucophage for this. We have had several discussions with the pdoc in the last year or two about changing meds to see if this would help with the weight issue; we have all resisted this as he has done so well on the current combo. But, after seeing the GP yesterday for a school physical I am very concerned. He has gained more weight – 11 pounds since March so I now feel we have no choice but to revisit the possibility of changing his meds. While I know every child is different and reacts differently to meds I was wanting some feedback on good combos that don’t cause weight gain. Tyler’s diagnoses are ADHD (dx’d age 5) and Asperger’s (dx’d age 15). Thanks in advance for your help. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2007 Report Share Posted August 17, 2007 Focalin is a stimulant and Tyler cannot take any stimulants – caused horrible hair and nail pulling and tics. That is why he was put on the Abilify as it helps with some of the ADHD issues. From: [mailto: ] On Behalf Of and/or Robin Lemke Sent: Thursday, August 16, 2007 5:42 PM Subject: Re: ( ) Medication question The only feedback I have is that my son is also dx'd with adhd/aspergers. He is on Focalin and Risperdal. Seems to work very well. Just the Focalin was great until at about 10 years old,,,,he started really having rages. So,,,in came the Risperdal. If he didn't take the Focalin,,,,he wouldn't need the Risperdal........ He'd be bouncing off the walls, but,.,,,,,,well,,,you get the idea. Good luck. Robin <cindyelgamal@...> wrote: My 17 year old son takes Abilify 15mg daily and Prozac 80mg daily. He has taken Prozac for a number of years. He started Abilify several years ago when he was no longer able to take stimulants. Up until about 4-5 years ago he was slender (in fact in elementary school he was a “stick”). We have seen a huge weight gain over the last 4-5 years to the point he is now markedly obese (5’8” and 259 pounds). He also has metabolic syndrome which was diagnosed about 3 years ago and takes Glucophage for this. We have had several discussions with the pdoc in the last year or two about changing meds to see if this would help with the weight issue; we have all resisted this as he has done so well on the current combo. But, after seeing the GP yesterday for a school physical I am very concerned. He has gained more weight – 11 pounds since March so I now feel we have no choice but to revisit the possibility of changing his meds. While I know every child is different and reacts differently to meds I was wanting some feedback on good combos that don’t cause weight gain. Tyler’s diagnoses are ADHD (dx’d age 5) and Asperger’s (dx’d age 15). Thanks in advance for your help. Sick sense of humor? Visit TV's Comedy with an Edge to see what's on, when. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2007 Report Share Posted August 17, 2007 Unfortunately, we have tried to address his weight in several ways. I took him to Weight Watchers for a while – initially he lost 13 pounds and then put it back on plus some. He lives with his dad and his dad quit buying sodas and other unhealthy things. I also don’t keep sodas or junk foods. We have talked to him about appropriate food choices and have gotten very graphic about the medical consequences of remaining obese (my husband is a general surgeon and I am a nurse). Food is one of his obsessions and he thinks about it all the time. But, he is going to a private school next year that doesn’t have a cafeteria so will have to take his lunch – we will use this opportunity to our advantage. We also try to get him to exercise but the sad truth is that he has gotten so big that he can’t tolerate much exertion. I did tell his dad that we have got to make him move – start out walking 5-10 minutes daily for a week and then bump it up weekly in 5 minutes increments. From: [mailto: ] On Behalf Of Liz Bohn Sent: Thursday, August 16, 2007 6:32 PM Subject: Re: ( ) Medication question , Is it possible for him to remain on the Abilify and pay very close attention to his diet? The reason I'm asking is that I take Zyprexa, another med in the same class as Abilify, and I gained 50 pounds while on it. Once I came to my senses, I started watching what I was eating. So far, I've lost 30 pounds. Just an idle thought. Undoubtedly my circumstances are different from his. (The first one being that I'm not a 1;7 year old boy!) Liz On Aug 16, 2007, at 3:43 PM, wrote: My 17 year old son takes Abilify 15mg daily and Prozac 80mg daily. He has taken Prozac for a number of years. He started Abilify several years ago when he was no longer able to take stimulants. Up until about 4-5 years ago he was slender (in fact in elementary school he was a “stick”). We have seen a huge weight gain over the last 4-5 years to the point he is now markedly obese (5’8” and 259 pounds). He also has metabolic syndrome which was diagnosed about 3 years ago and takes Glucophage for this. We have had several discussions with the pdoc in the last year or two about changing meds to see if this would help with the weight issue; we have all resisted this as he has done so well on the current combo. But, after seeing the GP yesterday for a school physical I am very concerned. He has gained more weight – 11 pounds since March so I now feel we have no choice but to revisit the possibility of changing his meds. While I know every child is different and reacts differently to meds I was wanting some feedback on good combos that don’t cause weight gain. Tyler’s diagnoses are ADHD (dx’d age 5) and Asperger’s (dx’d age 15). Thanks in advance for your help. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2007 Report Share Posted August 17, 2007 Thanks for the info. I will do a search tonight. From: [mailto: ] On Behalf Of Sent: Thursday, August 16, 2007 5:23 PM Subject: ( ) Re: Medication question Hi, do a google search for SSRI and weight gain (if I had more time I'd do it now) but there is more than one medication that I've seen listed in the past that - I think - you can take with an SSRI that helps stop, and even lose, the weight gain...I think topomax(sp?) was one but there are others. Anyway, I've seen this come up in group posts (other groups too) over the years and know that there is something(s) to help. OK, I did a quick search and found this paragraph on it, you might can find more to bring up to your son's doctor; this was on a page about OCD which Prozac is also taken for: " What drug options are available to manage weight gain? If all else fails, we sometimes try adding a second drug for a few weeks to try and assist with weight loss. Cytomel is a thyroid hormone preparation that can be used to speed metabolic rate. It is sometimes used for a few weeks to help weight loss. Sometimes a few weeks of a stimulant drug like Ritalin (Methylphenidate) will help curb appetite. One drug that often helps a lot with weight loss associated with anti-obsessional medication and is safe in low doses (i.e., 50mg) is Topamax (topiramide). There is a recent report on the ulcer drug, Nizatidine, reducing the weight gain associated with Zyprexa by as much as 50% without affecting the effectiveness of the Zyprexa. Chromium Piccolinate is recommended by some people (this can be obtained in health food stores), but we have limited and unimpressive experience to date. " > > My 17 year old son takes Abilify 15mg daily and Prozac 80mg daily. He has > taken Prozac for a number of years. He started Abilify several years ago > when he was no longer able to take stimulants. Up until about 4-5 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2007 Report Share Posted August 17, 2007 My daughter had terrible outbursts on stimulant medication. RE: ( ) Medication question Focalin is a stimulant and Tyler cannot take any stimulants – caused horrible hair and nail pulling and tics. That is why he was put on the Abilify as it helps with some of the ADHD issues. From: [mailto: ] On Behalf Of and/or Robin LemkeSent: Thursday, August 16, 2007 5:42 PM Subject: Re: ( ) Medication question The only feedback I have is that my son is also dx'd with adhd/aspergers. He is on Focalin and Risperdal. Seems to work very well. Just the Focalin was great until at about 10 years old,,,,he started really having rages. So,,,in came the Risperdal. If he didn't take the Focalin,,,,he wouldn't need the Risperdal........ He'd be bouncing off the walls, but,.,,,,,,well,,,you get the idea. Good luck. Robin <cindyelgamalsbcglobal (DOT) net> wrote: My 17 year old son takes Abilify 15mg daily and Prozac 80mg daily. He has taken Prozac for a number of years. He started Abilify several years ago when he was no longer able to take stimulants. Up until about 4-5 years ago he was slender (in fact in elementary school he was a “stick”). We have seen a huge weight gain over the last 4-5 years to the point he is now markedly obese (5’8” and 259 pounds). He also has metabolic syndrome which was diagnosed about 3 years ago and takes Glucophage for this. We have had several discussions with the pdoc in the last year or two about changing meds to see if this would help with the weight issue; we have all resisted this as he has done so well on the current combo. But, after seeing the GP yesterday for a school physical I am very concerned. He has gained more weight – 11 pounds since March so I now feel we have no choice but to revisit the possibility of changing his meds. While I know every child is different and reacts differently to meds I was wanting some feedback on good combos that don’t cause weight gain. Tyler’s diagnoses are ADHD (dx’d age 5) and Asperger’s (dx’d age 15). Thanks in advance for your help. Sick sense of humor? Visit TV's Comedy with an Edge to see what's on, when. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2007 Report Share Posted September 5, 2007 My daughter has been on Abilify for about a year now. She takes ten mg in the morning and 10mg in the evening. Abilify replaced Geodon, which was causing her to miss her menstrual cycle. So far, Angel's been doing fine on the Abilify. > > Just wanted to know if anyone out there has any experience with using a > medication called Abilify (Ariprazole) with their child. It is an > atypical anti-psychotic, from what I understand. Any > opinions/experiences, good/bad/horrible, that you can share would be > appreciated. Thanks. > Susie Redfern > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2007 Report Share Posted September 5, 2007 The experience with my daughter was 10 mg. at bedtime...she became too sleepy, vomited after meals, lost her ability to know when she had to go to the bathroom. None of the atypical anti-psychotics worked for her. Ellen K amilyguides wrote: Just wanted to know if anyone out there has any experience with using a medication called Abilify (Ariprazole) with their child. It is an atypical anti-psychotic, from what I understand. Any opinions/experiences, good/bad/horrible, that you can share would be appreciated. Thanks. Susie Redfern Quote Link to comment Share on other sites More sharing options...
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