Welcome !

[Guest guest]

Hi Vivian

I go to Church in Carmichaels Pa. We are members of the Greene Valley

Church of God. I live in ville Pa. It's about 7 miles west of

Waynesburg and about a mile from west greene high school! Small world! I am

going to Uniontown mall tonight to take my 11 yr old and her friends

shopping for her birthday! I'll be thinking of you while I:m there! lol

I have considered doing the 21 day challenge but I don't have time on

Sunday's! I think I need to get the 8 min for that! It takes us 1/2 hour to

drive to church and then I have to count the tithes and offering after

church. I am not usually home until close to 2pm and then I have to feed my

family and be ready to leave again shortly after 5pm to be back at church.

We are home somewhere between 9 and 10 pm.

I have done taebo mon - tues - wed this week. So I guess I'm right with you

guys. What else do I need to do? I think I drink 1/2 gallon of water while

I'm doing thw advanced!

I have been trying to drink more water anyway and cut out my iced tea. I

drink decaf with a little sugar but I 'm trying to narrow it down to no

more than a few glasses a day.

Have a great day!

At 01:46 PM 4/19/00 -0000, you wrote:

>Oh, man, PA! We used to live in Carmichaels, Finleyville, and opolis.

We went to church in Uniontown. Where are you? We're in central TX now....

How I miss PA!! Please enjoy the beauty for me. And the weather! We're

already in the 90s here, and had 95 degrees in March! Uncle! You'll love it

here, and yes, we hold ourselves accountable to each other. If you care to,

join us on our 21 Day Challenge (21 DC); doing TB 21 days in a row (is

supposed to make it a habit). We're on Day 3, but you can just start now.

There are various challenges: water (drink 1/2 gallon at least a day for 21

days), etc. Feel free to comment on any and all you read, your experiences,

whatever. Tell us about PA! You'll feel right at home right away, I do

believe. Welcome! Yours and His, Vivian, who stays amazed at the neat

people here (and is no longer jealous because she can't post on the TB

board [WebTV; the page is always too big]), because HERE is the best place

to be, and besides, they have this Groundhog Day thing going, which is

driving me BARMY!

>

>

>------------------------------------------------------------------------

>Win $1000 at eGroups!

>Click here to find out how:

>1/2861/1/_/21226/_/956152221/

>------------------------------------------------------------------------

>

>As Deb has said: " Fitness is a journey and it begins with the first step. "

>

>Visit our new vault site http://taeboon.isportsdot.com/

>

>

[Guest guest]

In a message dated 5/28/100 11:52:59 AM EST, jmedlen@... writes:

<< >hi, my name is keith. i am excited that i was informed about this list.

i

>know that i will learn more about my son's condition. my wife and i have

>three children. kyle our second child is ten. he is self abusive and very

>hard to maintain. he has received very little services from our great

>goverment. i guess we just " fall into the cracks on this issue " . i guess

it

>does not always pay to try an be a productive citizen LOL. i am new to

this

>computer thing in front of me. i proably only know enough to get me in

>trouble. look forward to possible new ideas etc, an getting to know you

guys

>and gals. sincerely keith

>>

Welcome aboard !!

Take care,

Judy

[Guest guest]

Hi ,

We also have a 10 year old son,Brook who we have had to struggle with over

behavior issues and services etc. By the way my husband or DH is also named

. Hope to hear more from you soon.

Marisa

Mom to Miles 13, Brook 10, Gennie, 2 and Wife to

[Guest guest]

Hi KEith,

Welcome to this list.

My name is S and I have 5 children.

Matt is our youngest. He is 9, and had Down Syndrome and Autism. He is

quite a handful.

We look forward to hearing more from you.

S

________________________________________________________________

YOU'RE PAYING TOO MUCH FOR THE INTERNET!

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Try it today - there's no risk! For your FREE software, visit:

http://dl.www.juno.com/get/tagj.

[Guest guest]

Hi Toni,

We have ostrich meat in Ontario. I have a friend in Carlisle, just outside of Burlington, whose husband used to raise ostrich and emus for sale. I have never tried them and don't plan to, but they are available around here. He doesn't raise them anymore because the prices dropped and it wasn't worthwhile. They are funny looking things, especially when they are first born. The emus have beautiful emerald green eggs and often they are sold for crafts after the babies are born. They are about as big as a grapefruit only egg-shaped.

Sharon, Ontario, Canada

[Guest guest]

Hope one thing to let you know is that having

thyroid problems makes you constipated. Thats one of the

signs of having that problem. I hate it myself, I'm not

overweight but I have gained weight recently since my

thyroid is acting up and I had my levels checked and they

were normal to. I hate it. So are you on medication

right now? Do you go to an Endocrinologist? Well just

wondering. Talk to you soon.

[Guest guest]

Hi ,

Welcome to the List! I think we can all relate to your frustration! I

can't imagine

WHY the school staff would stop signing with when he was using sign to

communicate successfully! Our is 14 and has Down Syndrome, autism,

seizure disorder, and pseudo-obstruction of the small bowel. He recently had

surgery for hip dysplasia. He started saying words when he was about 12-15

months and lost all language by the time he was three. He is non-verbal now

and does not sign. He is severely developmentally delayed and has some

signifcant negative behaviors. I guess my advice to you would be to

concentrate on communication and behaviors. They are so closely linked that

if you can find a successful method of communication for him, I'll bet the

behavior will improve. The younger you can do this the better as the

behavior will only get worse as he gets older (and bigger) if he is

frustrated. 's behaviors really started a downward spiral at about

age 6. After about a year, he was finally diagnosed with a seizure disorder

that was adding to the behavior problem. The seizure meds did help to stop

some of the severe behaviors, but not altogether. Is he getting speech at

school? Have you (they) tried any kind of augmentative communication aides

(PECS, switches, etc)? Are the teachers recognizing the autism now? Our

is in a self-contained Special Day Class because a general ed

classroom is too overwhelming to him probably due to the combination of the

severity of his developmental delay and his lack of communication and social

skills. The general ed setting tends to exacerbate his behaviors. There are

several kids on this List with the dual dx of ds-asd who are included in

general ed classes and do well. I guess only you know your kid well enough

to make that call. Good luck and let us know how things progress for you and

!

Terry

[Guest guest]

Hi ,

I think it's very important to take an active part in your own

health care. After all, it's your liver, and who is going to care

more about you than you! HCV is a 'new' disease, just meaning that a

lot of doctors still don't know very much about it. The more you

know, the better.

Judging from the medications he has you on it sounds like you've

had problems with ascites and portal hypertension/esophageal varices.

Is that correct? Those are usually seen in more advanced cirrhosis.

And yet the transplant team says your condition has improved enough

that you don't need one now. That is a good sign. There is quite a

bit of new evidence that even people with cirrhosis can see a

reversal in the fibrosis in their livers - or at least slow or even

stop progression. (This is a totally new concept to almost all

doctors who have always been taught that cirrhosis is irreversible.)

Are you sure how up-to-date your doctor is on HCV and treatment? If

he is not an absolute expert than find one! A hepatologist is best,

but keep in mind that some specialists just don't like to treat HCV

and therefore don't stay informed about it. It is possible for

someone with cirrhosis to go on treatment, but once signs of

decompensation appear it can be tricky, even dangerous. But the

transplant team says your condition has improved? That would really

make me sit down and go over my condition if I were you, and start to

really look at your options - and it's possible treatment MIGHT be

something to consider, if for no other reason than to try and improve

the condition of your liver. A transplant is not a cure, and should

never be thought of as one - it is a last resort, and one you want to

avoid if possible. There is always the chance a liver won't even be

available when you need one. The ideal thing is to not ever reach

that point! You must already be doing something right if your

condition has improved. Some things I would recommend that you look

into are (and I know you've seen me recommend some of these in just

the past couple of days): vitamin E, selineum, alpha-lipoic acid,

NAC, reishi mushrooms, lactoferrin, bupleurum (ONLY if you do not use

interferon).... there are probably some other things I'm forgetting

right now, and I'm sure others will have some suggestions too. And

keep on with the milk thistle and C. Also, a good well balanced

multi-vitamin with NO iron. (No iron in any processed foods either!

Read the labels!) Be sure and check doses of various things, like the

selineum, so you are not taking too much. Also avoid large amounts of

vitamin A and D. I'm just guessing, but I suspect that finding a more

progressive and aggressive doctor might be the most important thing

you can do for yourself. You could probably benefit from very

cautious treatment, maybe starting at a very low dose of interferon,

and very gradually increasing the dose as your body tolerates it.

Interferon (I know you will read lots of horror stories about it!) is

proving to be very effective at reversing fibrosis and right now that

should be more of a concern than the HCV. The better shape you can

get your liver in the more you can begin to aggressively fight the

virus. These are all just some things that I would recommend that you

look into, learn about, and consider. Make informed choices. I will

try to post some articles or studies on some of the things I

mentioned. I don't want to overwhelm the group with a bunch of into

they may have already seen, so if there if you see something you

would like more info on let me know. I can always send it to you

privately.

Good luck - and THINK POSITIVE!!!!

Claudine

PS: where in Texas are you from? I am very near San .

__________________________________________________

[Guest guest]

Yes, welcome ! I think it's great you are doing BFL with your

Mom. I wish I had found this program when I was 19. My self image

would have been so much better. So at 26, I finally have the

confidence in myself that I should. Hope it brings you the same plus

all the other great benefits! (Not to say that you think lowly of

yourself. Hope that didn't come across that way.)

Anyway, I wanted to also add that Splenda is made from real sugar,

whereas other sweetners are usually made w/ aspartame. Aspartame has

received some bad press and (I've heard) can even make you crave more

of whatever it is you're having. Like diet sodas w/ aspartame

actually make you want more. I also think (correct me if I'm wrong

ladies) that other sweetners do have calories and Splenda has

no/trace calories.

Congratulations on taking the challenge and for posting. Love to

hear from new " faces. " (Woot woot for Avan for coming out of lurkdom

too!)

Good luck & stay strong!

> I am so glad you decided to take the plunge and dive into our great

> BFL pool! Your mother speaks so highly of you (and we all think so

> highly of her), that I for one couldn't wait to hear from you. It

is

> wonderful that a mother and daughter can provide support and

guidance

> for one another along their journey of self-improvenment and

> enlightenment. Best of luck to you both. Now, about the splenda

> thing, I believe (I may be wrong, so anyone feel free to correct

me)

> that Splenda is often called for in recipes because it can stand up

> to the heat of baking and cooking better than say sweet-n-low or

> equal. Personally, I think it tastes more like real sugar no matter

> what I put it in, plus it is easy to measure b/c you simply use the

> same amount as you would sugar. HTH!

>

> Sincerely,

> Donna

[Guest guest]

In a message dated 4/28/03 2:07:46 PM Eastern Daylight Time,

heather@... writes:

> http://martinsville.has.it

>

Hi , and welcome!! you'll love this group-very friendly and like

family!

Love the graphic on your website, and I really enjoyed your tutorial-very

helpful with the pics. I haven't tried that method of soapmaking yet, but it

looks interesting!

Carol J

[Guest guest]

Welcome to and to all of our new members! We have very few

rules on our list, just be polite & don't bash other soapers. Other

than that, feel free to post about anything from soap to how your day

is going.

I'm Colleen, co-list mom with Shaye & Terri. I've been making mp for

about 3 years & I also do a bunch of other toiletries. I live in

Baldwinsville.

Hope you all have a great stay here!

Colleen

Country Meadow Creations

http://www.countrymeadowcreations.com

[Guest guest]

Hi , and welcome! This is a great group-you'll love it here! I'm in

Liverpool, and having been soapin' for about 6 mos now and am still addicted!

There is such a variety, and so many aspects to this hobby, from creating,

scenting, packaging etc...

Enjoy!

:-)

Carol J

[Guest guest]

Thanks for the welcome, .

To everyone - Let me know if there's anything I can do for you (in an

internet kind of way, of course).

> - so glad to see that you've relocated! Welcome aboard. Your

> knowledge and insightful input will no doubt be a delightful

addition

> to the group.

> Smiles........~~

[Guest guest]

> - Welcome to the group! Carol is such a sweetheart & has

> invited you to one of the best groups on the web!

>

> To find supplies you can check out our Database on the group

> site, click on Member Supplier Info, and you'll find some great

> suppliers. Also, go to .org, click on Plans for 2005

> Gathering & you'll find a large list of very generous suppliers who

> donated to our last gathering.

>

> We also have a member here in Canastota, Deb S, owner of The

Country

> Artist. She pops in here from time to time!

>

> Please feel free to post anytime. We're a very relaxed group, just

> no bashing other soapers.

>

> Thank you very much Colleen, I already see this is a great group!

> Colleen

> Handcrafted & Decorative Soaps

> http://www.countrymeadowcreations.com

> Kat's Coffees & More Consultant #0892

[Guest guest]

Welcome to our group, ! I'm nne, almost 30 years old [shudder!], and

living in Columbia County with my husband, Jeff, and our five-month-old son,

Lucas. Nice to have you here!

~nne in Columbia County

My blog: http://bathtubjunkie.net/

[Guest guest]

> Welcome to our group, ! I'm nne, almost 30 years old

[shudder!], and

> living in Columbia County with my husband, Jeff, and our five-month-

old son,

> Lucas. Nice to have you here!

>

> ~nne in Columbia County

> My blog: http://bathtubjunkie.net/

>

>

>

[Guest guest]

welcome to the group. i am sorry about your diagnosis of

fibro and that you are having such a tough time with lack of support

and all. That's terrible about the job situation also. So

emotionally you have a lot to deal with as well as physically, but it

can be done.

As for family, I don't think it's possible for the human brain to

comprehend the type of pain you are in or so it seems. I don't think

there are words adequate enough to describe the pain. It's like

trying to describe what it's like to give birth to someone who has

never given birth. They have an idea but can't really know until

they go through it. With the case of fibro or in my case RA and

other conditions, the pain is constant. People really don't get

that. How can a human being go through so much pain constantly? It

just gets too depressing for them. It's just so incomprehensible and

mind boggling for them. However, some are better with at least

trying to grasp the whole chronic pain thing. I hope for your sake

there is at least someone to help out with the kids even if they

don't understand the condition. Like suggested, it can't hurt to

inform them with literature or a detailed letter. In the meantime,

turn to support groups for help with coping and not the family.

Maybe hire a baby-sitter or a helper to come in once in awhile. Some

have counselors who help them cope as well. Sometimes we have to

create our own support system when the one we have in place

is " clueless. "

As for work, is it maybe possible to go back to school to learn a new

trade or profession, one that isn't so demanding or that you can do

from home, although, I am not sure if it is just the appts for you

that get in the way of work or the job is too demanding. Maybe going

back part-time would work for you too.

I look forward to hearing your experiences.

peace and healing,

Ebony

RA -- 11 years, degenerative changes with hips, hands, feet,

shoulders.

Dry eye syndrome

other conditions

[Guest guest]

sounds like an angel!

Welcome !

I, like , have been blessed to have Corby help in our journey to recovery. In November of 2005, a rescue angel sent us to The Autism Solution Center in Cordova & I met for the 1st. time. saved my sanity, and has been by my side every step of the way in the recovery of my son. Her Center goes way beyond anything I've ever witnessed in my life. From working with parents of newly diagnosed kids to providing workshops, attending IEP's, holding the hands & helping to heal the hearts of grief stricken families. understands these kids, her approach to behavior just makes sense. I don't know if anyone here has ever been to the ASC, but is a one woman show & is a force like no other. She dedicates her time, talent, blood sweat & tears, at no charge to families in need.While I support research, no doubt, it is needed, dedicates her life to the kids that are here & in need NOW. Her vision, dedication, & stamina are worthy of this communities support. Though I'll never know how she does it, I am forever grateful.Thank you , Judy

[Guest guest]

WOW! I've never been talked about this wonderfully before! Quite

humbling! I'm usually the one in the middle of the flame throwing and

the names that usually accompany me are nothing close to angel!!

LOL!! Thank you for such a warm welcome. I only hope I can maintian

the time to stay active in this group. Now that I'm back from

A1 and in the throws of ASC, I don't have time to pee! I want to stay

current though, so I'll have to find the time somehow! I'm quite

blessed to have been introduced to such an incredible group of people.

>

> I, like , have been blessed to have Corby help in our

journey

> to recovery. In November of 2005, a rescue angel sent us to The

Autism

> Solution Center in Cordova & I met for the 1st. time.

saved

> my sanity, and has been by my side every step of the way in the

> recovery of my son. Her Center goes way beyond anything I've ever

> witnessed in my life. From working with parents of newly diagnosed

kids

> to providing workshops, attending IEP's, holding the hands &

helping to

> heal the hearts of grief stricken families.

> understands these kids, her approach to behavior just makes

> sense. I don't know if anyone here has ever been to the ASC, but

> is a one woman show & is a force like no other. She dedicates her

time,

> talent, blood sweat & tears, at no charge to families in need.

> While I support research, no doubt, it is needed, dedicates

her

> life to the kids that are here & in need NOW. Her vision,

dedication, &

> stamina are worthy of this communities support. Though I'll never

know

> how she does it, I am forever grateful.

> Thank you ,

> Judy

>

[Guest guest]

Actually, I meant that literally. She's covered with infectious boils and lives

under constant

quarantine. We had to interview her through tempered glass whilst wearing

biohazard

suits. Poor girl. ;-P

Seriously, though... she's got some VERY cool stuff planned. If I had the time

and money,

I'd be taking my daughter to her Autism Solutions Center in Tennessee.

>

> Not to be confused with the X-drug resistant parallel thread kind of

infectious.

>

>

[Guest guest]

-

You were at the grantwriting workshop,

right?

I am terrible at remembering names, but

what I do remember are great projects. Please be sure to keep in touch with the

great work you are doing. I will keep my eye out on possible grants. Feel free

to call on me anytime.

Becky

Re: Welcome

!

WOW! I've never been talked about this wonderfully

before! Quite

humbling! I'm usually the one in the middle of the flame throwing and

the names that usually accompany me are nothing close to angel!!

LOL!! Thank you for such a warm welcome. I only hope I can maintian

the time to stay active in this group. Now that I'm back from

A1 and in the throws of ASC, I don't have time to pee! I want to stay

current though, so I'll have to find the time somehow! I'm quite

blessed to have been introduced to such an incredible group of people.

>

> I, like , have been blessed to have Corby help in our

journey

> to recovery. In November of 2005, a rescue angel sent us to The

Autism

> Solution Center in Cordova & I met for the 1st. time.

saved

> my sanity, and has been by my side every step of the way in the

> recovery of my son. Her Center goes way beyond anything I've ever

> witnessed in my life. From working with parents of newly diagnosed

kids

> to providing workshops, attending IEP's, holding the hands &

helping to

> heal the hearts of grief stricken families.

> understands these kids, her approach to behavior just makes

> sense. I don't know if anyone here has ever been to the ASC, but

> is a one woman show & is a force like no other. She dedicates her

time,

> talent, blood sweat & tears, at no charge to families in need.

> While I support research, no doubt, it is needed, dedicates

her

> life to the kids that are here & in need NOW. Her vision,

dedication, &

> stamina are worthy of this communities support. Though I'll never

know

> how she does it, I am forever grateful.

> Thank you ,

> Judy

>

[Guest guest]

Hi Becky!

Yep... That's me! Thanks for the encouragement and I will likely take

you up on your offer to call on you. My biggest difficulty right now

is time, as I'm spending so much time working with families, and it

leaves little for business planning and grant seeking. The families

need help NOW though, and there are very few in my area that have the

skills to provide it. Actually, almost none!

Please keep us in your prayers and anyone interested in helping is

always most welcome!

> >

> > I, like , have been blessed to have Corby help in our

> journey

> > to recovery. In November of 2005, a rescue angel sent us to The

> Autism

> > Solution Center in Cordova & I met for the 1st. time.

> saved

> > my sanity, and has been by my side every step of the way in the

> > recovery of my son. Her Center goes way beyond anything I've ever

> > witnessed in my life. From working with parents of newly

diagnosed

> kids

> > to providing workshops, attending IEP's, holding the hands &

> helping to

> > heal the hearts of grief stricken families.

> > understands these kids, her approach to behavior just makes

> > sense. I don't know if anyone here has ever been to the ASC, but

>

> > is a one woman show & is a force like no other. She dedicates her

> time,

> > talent, blood sweat & tears, at no charge to families in need.

> > While I support research, no doubt, it is needed, dedicates

> her

> > life to the kids that are here & in need NOW. Her vision,

> dedication, &

> > stamina are worthy of this communities support. Though I'll never

> know

> > how she does it, I am forever grateful.

> > Thank you ,

> > Judy

> >

>

[Guest guest]

Hi - ! Wait - I heard there's a large autism organization,

some people even call it a charity, with something like $60,000,000.

So, isn't there plenty of money for families affected by autism?

What? What? Stop laughing darn it! LOL!!!!!

God bless the National Autism Association for their work for

families.

Kim Stagliano

kimstagliano.blogspot.com

KIM

> > >

> > > I, like , have been blessed to have Corby help in our

> > journey

> > > to recovery. In November of 2005, a rescue angel sent us to The

> > Autism

> > > Solution Center in Cordova & I met for the 1st. time.

> > saved

> > > my sanity, and has been by my side every step of the way in the

> > > recovery of my son. Her Center goes way beyond anything I've

ever

> > > witnessed in my life. From working with parents of newly

> diagnosed

> > kids

> > > to providing workshops, attending IEP's, holding the hands &

> > helping to

> > > heal the hearts of grief stricken families.

> > > understands these kids, her approach to behavior just

makes

> > > sense. I don't know if anyone here has ever been to the ASC,

but

> >

> > > is a one woman show & is a force like no other. She dedicates

her

> > time,

> > > talent, blood sweat & tears, at no charge to families in need.

> > > While I support research, no doubt, it is needed,

dedicates

> > her

> > > life to the kids that are here & in need NOW. Her vision,

> > dedication, &

> > > stamina are worthy of this communities support. Though I'll

never

> > know

> > > how she does it, I am forever grateful.

> > > Thank you ,

> > > Judy

> > >

> >

>

[Guest guest]

Hello and welcome !

It was so nice to see your request to join after so many years! (12 or 13

now?) I got really interested in research and the genetics of it all, so alot is

here - no, I still don't everything I read, often have to read it a few times

and let it soak. But things are ever changing so fast with CMT research news, I

look forward to what's next (i.e., the first USA Ascorbic Acid Trials results

coming up this spring) The years to come offer so much promise!

Thanks for jumping it to introduce yourself, especially for those members who

are new to CMT and don't know of your great work prior.

Gretchen