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Re: strange feelings

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Geri,

Yes!!! I've felt it often and wondered if others did, but just wrote it off as

another strange CMT thing. I had it in my thigh the other day while I was

sitting in the car and thought my cell phone must be sitting on my lap, but when

I reached for it I realized it wasn't. It was just, apparently, my strange

nerves doing strange things. It usually comes and goes a few times in the same

day and sometimes quits when I move positions. And, I'll go sometimes months

without the feeling and then in one day have it ten times. It's just random...

like everything else with CMT. :)

Angie H

>

> We have CMT 14..my daughter say she sometimes get a feeling that her body is

vibrating and wondered if anyone one else had this strange feelings or if it is

CMT related. I have never had that happen, but wondered also if it has happed to

others.

>

> Thanks Geri

>

>

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Thank you......my daughter will be relieved that it isn't just her!

Another crazy thing........

Geri

Geri,

Yes!!! I've felt it often and wondered if others did, but just wrote it off as

another strange CMT thing. I had it in my thigh the other day while I was

sitting in the car and thought my cell phone must be sitting on my lap, but when

I reached for it I realized it wasn't. It was just, apparently, my strange

nerves doing strange things. It usually comes and goes a few times in the same

day and sometimes quits when I move positions. And, I'll go sometimes months

without the feeling and then in one day have it ten times. It's just random...

like everything else with CMT. :)

Angie H

>

> We have CMT 14..my daughter say she sometimes get a feeling that her body is

vibrating and wondered if anyone one else had this strange feelings or if it is

CMT related. I have never had that happen, but wondered also if it has happed to

others.

>

> Thanks Geri

>

>

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i get knumb down the left or right side of my body from head to toes from time

to time, i wouldnt call it vibrating though

>

> We have CMT 14..my daughter say she sometimes get a feeling that her body is

vibrating and wondered if anyone one else had this strange feelings or if it is

CMT related. I have never had that happen, but wondered also if it has happed to

others.

>

> Thanks Geri

>

>

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At night. Sometimes I feel something like vibrating. My wife says that I twitch.

>

> We have CMT 14..my daughter say she sometimes get a feeling that her body is

vibrating and wondered if anyone one else had this strange feelings or if it is

CMT related. I have never had that happen, but wondered also if it has happed to

others.

>

> Thanks Geri

>

>

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thanks for letting us know

geri

At night. Sometimes I feel something like vibrating. My wife says that I

twitch.

>

> We have CMT 14..my daughter say she sometimes get a feeling that her body is

vibrating and wondered if anyone one else had this strange feelings or if it is

CMT related. I have never had that happen, but wondered also if it has happed to

others.

>

> Thanks Geri

>

>

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June here....I get those twitching feelings ....almost always after I am in

bed.....usually under my left shoulderblade, sometimes under the right and

sometimes in either thigh. It is like a fluttering and goes on for a minute

or so then subsides. Had these for years now.

On Fri, Dec 17, 2010 at 3:38 PM, defman <defman555@...> wrote:

>

>

> At night. Sometimes I feel something like vibrating. My wife says that I

> twitch.

>

>

>

> >

> > We have CMT 14..my daughter say she sometimes get a feeling that her body

> is vibrating and wondered if anyone one else had this strange feelings or if

> it is CMT related. I have never had that happen, but wondered also if it has

> happed to others.

> >

> > Thanks Geri

> >

> >

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I have 1A and I feel the tremors at times, and my right thumb is very effected

by them. It makes texting or using my BlackBerry fun! I end up using my left

thumb and right index finger.

Mark

>

> Thanks Rashid,

>

> We are CMT1A.....what are you?

>

> Geri

>

>

>

> > >

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Thanks Mark.........My thumbs no longer work they just kind of hang

there...useless......

Geri

Re: strange feelings

I have 1A and I feel the tremors at times, and my right thumb is very effected

by them. It makes texting or using my BlackBerry fun! I end up using my left

thumb and right index finger.

Mark

>

> Thanks Rashid,

>

> We are CMT1A.....what are you?

>

> Geri

>

>

>

> > >

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i have axonal (probably a form of CMT2) and i also have lot of tremors. Legs,

shoulders, hands and now i have pain in my third finger and in both thumb areas.

Getting weaker and more and more fascillations.

Re: strange feelings

 

I have 1A and I feel the tremors at times, and my right thumb is very effected

by them. It makes texting or using my BlackBerry fun! I end up using my left

thumb and right index finger.

Mark

>

> Thanks Rashid,

>

> We are CMT1A.....what are you?

>

> Geri

>

>

>

> > >

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Yes, this has happened to me on several occasions lately.

Piersimoni

In a message dated 12/8/2010 10:33:06 P.M. Eastern Standard Time,

hotwheels@... writes:

We have CMT 14..my daughter say she sometimes get a feeling that her body

is vibrating and wondered if anyone one else had this strange feelings or if

it is CMT related. I have never had that happen, but wondered also if it

has happed to others.

Thanks Geri

[Non-text portions of this message have been removed]

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