Guest guest Posted December 9, 2010 Report Share Posted December 9, 2010 Geri, Yes!!! I've felt it often and wondered if others did, but just wrote it off as another strange CMT thing. I had it in my thigh the other day while I was sitting in the car and thought my cell phone must be sitting on my lap, but when I reached for it I realized it wasn't. It was just, apparently, my strange nerves doing strange things. It usually comes and goes a few times in the same day and sometimes quits when I move positions. And, I'll go sometimes months without the feeling and then in one day have it ten times. It's just random... like everything else with CMT. Angie H > > We have CMT 14..my daughter say she sometimes get a feeling that her body is vibrating and wondered if anyone one else had this strange feelings or if it is CMT related. I have never had that happen, but wondered also if it has happed to others. > > Thanks Geri > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2010 Report Share Posted December 9, 2010 Thank you......my daughter will be relieved that it isn't just her! Another crazy thing........ Geri Geri, Yes!!! I've felt it often and wondered if others did, but just wrote it off as another strange CMT thing. I had it in my thigh the other day while I was sitting in the car and thought my cell phone must be sitting on my lap, but when I reached for it I realized it wasn't. It was just, apparently, my strange nerves doing strange things. It usually comes and goes a few times in the same day and sometimes quits when I move positions. And, I'll go sometimes months without the feeling and then in one day have it ten times. It's just random... like everything else with CMT. Angie H > > We have CMT 14..my daughter say she sometimes get a feeling that her body is vibrating and wondered if anyone one else had this strange feelings or if it is CMT related. I have never had that happen, but wondered also if it has happed to others. > > Thanks Geri > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2010 Report Share Posted December 9, 2010 Hi Geri, I am wondering if maybe this is fascuiculation or tremors? http://en.wikipedia.org/wiki/Fasciculation http://en.wikipedia.org/wiki/Tremor Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2010 Report Share Posted December 9, 2010 You may have a point there! Thanks Geri Re: strange feelings Hi Geri, I am wondering if maybe this is fascuiculation or tremors? http://en.wikipedia.org/wiki/Fasciculation http://en.wikipedia.org/wiki/Tremor Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2010 Report Share Posted December 17, 2010 i get knumb down the left or right side of my body from head to toes from time to time, i wouldnt call it vibrating though > > We have CMT 14..my daughter say she sometimes get a feeling that her body is vibrating and wondered if anyone one else had this strange feelings or if it is CMT related. I have never had that happen, but wondered also if it has happed to others. > > Thanks Geri > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2010 Report Share Posted December 17, 2010 At night. Sometimes I feel something like vibrating. My wife says that I twitch. > > We have CMT 14..my daughter say she sometimes get a feeling that her body is vibrating and wondered if anyone one else had this strange feelings or if it is CMT related. I have never had that happen, but wondered also if it has happed to others. > > Thanks Geri > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2010 Report Share Posted December 18, 2010 thanks for letting us know geri At night. Sometimes I feel something like vibrating. My wife says that I twitch. > > We have CMT 14..my daughter say she sometimes get a feeling that her body is vibrating and wondered if anyone one else had this strange feelings or if it is CMT related. I have never had that happen, but wondered also if it has happed to others. > > Thanks Geri > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2010 Report Share Posted December 18, 2010 June here....I get those twitching feelings ....almost always after I am in bed.....usually under my left shoulderblade, sometimes under the right and sometimes in either thigh. It is like a fluttering and goes on for a minute or so then subsides. Had these for years now. On Fri, Dec 17, 2010 at 3:38 PM, defman <defman555@...> wrote: > > > At night. Sometimes I feel something like vibrating. My wife says that I > twitch. > > > > > > > We have CMT 14..my daughter say she sometimes get a feeling that her body > is vibrating and wondered if anyone one else had this strange feelings or if > it is CMT related. I have never had that happen, but wondered also if it has > happed to others. > > > > Thanks Geri > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2010 Report Share Posted December 18, 2010 I to get the " flutters " but they come and go. They are not consistent in location or time span between. Rashid > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2010 Report Share Posted December 18, 2010 Yes my sons doctor says that Tremors are related to CMT. Anita -text portions of this message have been removed] >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2010 Report Share Posted December 18, 2010 Thanks Rashid, We are CMT1A.....what are you? Geri > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2010 Report Share Posted December 18, 2010 Is that for all types of CMT? Thanks Geri Yes my sons doctor says that Tremors are related to CMT. Anita -text portions of this message have been removed] >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2010 Report Share Posted December 19, 2010 I have 1A and I feel the tremors at times, and my right thumb is very effected by them. It makes texting or using my BlackBerry fun! I end up using my left thumb and right index finger. Mark > > Thanks Rashid, > > We are CMT1A.....what are you? > > Geri > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2010 Report Share Posted December 19, 2010 Thanks Mark.........My thumbs no longer work they just kind of hang there...useless...... Geri Re: strange feelings I have 1A and I feel the tremors at times, and my right thumb is very effected by them. It makes texting or using my BlackBerry fun! I end up using my left thumb and right index finger. Mark > > Thanks Rashid, > > We are CMT1A.....what are you? > > Geri > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2010 Report Share Posted December 20, 2010 i have axonal (probably a form of CMT2) and i also have lot of tremors. Legs, shoulders, hands and now i have pain in my third finger and in both thumb areas. Getting weaker and more and more fascillations. Re: strange feelings  I have 1A and I feel the tremors at times, and my right thumb is very effected by them. It makes texting or using my BlackBerry fun! I end up using my left thumb and right index finger. Mark > > Thanks Rashid, > > We are CMT1A.....what are you? > > Geri > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2010 Report Share Posted December 21, 2010 Yes, this has happened to me on several occasions lately. Piersimoni In a message dated 12/8/2010 10:33:06 P.M. Eastern Standard Time, hotwheels@... writes: We have CMT 14..my daughter say she sometimes get a feeling that her body is vibrating and wondered if anyone one else had this strange feelings or if it is CMT related. I have never had that happen, but wondered also if it has happed to others. Thanks Geri [Non-text portions of this message have been removed] Quote Link to comment Share on other sites More sharing options...
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