Re: I highly recommend using toes to grab the floor

[Guest guest]

Hi Caroline,

I'm interested in hearing more. Is this as simple as just sitting and grabbing

the floor with the toes? Glad you have seen so much progress!

Lynna

From: @...

Date: Sat, 16 Oct 2010 12:44:26 +0000

Subject: I highly recommend using toes to grab the floor

Hello,

I highly recommend using toes to grab the floor. USC physical therapy program

ranks 1st in the US. The director of the PhD program, an associate professor,

especially designed this exercise for me at the end of 2007.

When I first tried this exercise, my toes can't move, not to mention grabbing

the floors.

After doing this exercise for two years, whenever I feel I want to do this

exercise, e.g, sitting, walking, and so on---- Now, I see the difference.

I get a lot of strength to stand and walk stable. This exercise can help train

the calf muscle in both legs.

I believe I will be able to stop wearing plastic AFO sooner or later.

please take care

Caroline

[Guest guest]

Please give more details?  this exercise was and has been recommended to me by

most of my PT's.  But it causes more pain and nueropathy symtoms.  So how did

you start? 2 toe curls around a towell or toes pressing down to floor?

From: @... <@...>

Subject: I highly recommend using toes to grab the floor

Date: Saturday, October 16, 2010, 7:44 AM

 

Hello,

I highly recommend using toes to grab the floor. USC physical therapy program

ranks 1st in the US. The director of the PhD program, an associate professor,

especially designed this exercise for me at the end of 2007.

When I first tried this exercise, my toes can't move, not to mention grabbing

the floors.

After doing this exercise for two years, whenever I feel I want to do this

exercise, e.g, sitting, walking, and so on---- Now, I see the difference.

I get a lot of strength to stand and walk stable. This exercise can help train

the calf muscle in both legs.

I believe I will be able to stop wearing plastic AFO sooner or later.

please take care

Caroline

[Guest guest]

Well leaves me out and most everyone I know with CMT.

[Guest guest]

Why is this??

Well leaves me out and most everyone I know with CMT.

[Guest guest]

Dear Lori,

I can only speak from my experience and being a diligent patient.  I haven't

been able to do even a modest number for at least 8 years.  It stirs up my

pain.  I live pain free from my neuropathy, untill i do something stupit like

doing toe curls, paint the house, move etc.  it's crazy a little thing like toe

curls can cause so much pain.  That's where i learned the lesson if its broke

leave it alone and strenghen the next higher muscle that does work.

Still let me know how you started.  I am assuming most CMT'ers are like me and

just can not do them because of pain generation.

Kim     

From: Lori Mattheiss <mattheiss137@...>

Subject: Re: I highly recommend using toes to grab the floor

Date: Saturday, October 16, 2010, 6:03 PM

 

Why is this??

Well leaves me out and most everyone I know with CMT.

[Guest guest]

My toes can't move and I feel no strength in my toes while trying to press

down or push against the floor, before I do this exercise.

I use my toes to press down or push against the floor, when I sit, stand,

and walk.

I started this exercise when I sit, put the two feets flat on the floor

while sit, use the five toes to press down or push against the floor

then, I feel more strength, I do this exercise when I stand

then, I feel more strength, I do this exercise when I walk

I suggest to start this exercise when sitting on the chair eating, reading,

working, and so on. Thus, few harms might be caused when the leg muscles are

not strong enough.

I do this exercise all almost 15 hours a day. I don't do this exercise only

when I am sleeping.

After several months, or one year, my toes can move more and more.

I plan to use toes to walk without plastic AFO. I think replying on AFO

makes me exercise my legs less and thus lose the muscle strength more.

Make sure you don't get hurt before you decide to try any kind of exercise.

I try to keep my muscle strength before CMT treatments come out. I believe

the treatment is coming.

This exercise works for me. I highly recommend.

On Sun, Oct 17, 2010 at 2:30 AM, Kessing <kkes@...> wrote:

>

>

> Please give more details? this exercise was and has been recommended to me

> by most of my PT's. But it causes more pain and nueropathy symtoms. So how

> did you start? 2 toe curls around a towell or toes pressing down to floor?

>

>

> From: @... <%40gmail.com> <

> @... <%40gmail.com>>

> Subject: I highly recommend using toes to grab the floor

> <%40>

> Date: Saturday, October 16, 2010, 7:44 AM

>

>

>

>

> Hello,

>

> I highly recommend using toes to grab the floor. USC physical therapy

> program ranks 1st in the US. The director of the PhD program, an associate

> professor, especially designed this exercise for me at the end of 2007.

>

> When I first tried this exercise, my toes can't move, not to mention

> grabbing the floors.

>

> After doing this exercise for two years, whenever I feel I want to do this

> exercise, e.g, sitting, walking, and so on---- Now, I see the difference.

>

> I get a lot of strength to stand and walk stable. This exercise can help

> train the calf muscle in both legs.

>

> I believe I will be able to stop wearing plastic AFO sooner or later.

>

> please take care

>

> Caroline

>

>

[Guest guest]

If I over do in anything I have to rest up the next day and I'm so sore.

I cant do them because my toes are to short...and my feet are a size one a

half....

Try to find shoes, my feet are as wide as they are long.

Still in slippers and in a wheel chair.

Geri

Dear Lori,

I can only speak from my experience and being a diligent patient. I haven't

been able to do even a modest number for at least 8 years. It stirs up my pain.

I live pain free from my neuropathy, untill i do something stupit like doing toe

curls, paint the house, move etc. it's crazy a little thing like toe curls can

cause so much pain. That's where i learned the lesson if its broke leave it

alone and strenghen the next higher muscle that does work.

Still let me know how you started. I am assuming most CMT'ers are like me and

just can not do them because of pain generation.

Kim

From: Lori Mattheiss <mattheiss137@...>

Subject: Re: I highly recommend using toes to grab the floor

Date: Saturday, October 16, 2010, 6:03 PM

Why is this??

Well leaves me out and most everyone I know with CMT.

[Guest guest]

Donna,

I would LOVE to see video blogging of your PT!!! I think it would be enormously

beneficial. Maybe consider posting on Youtube?

Great Idea!

Lynna

From: donna.dewick@...

Date: Sun, 17 Oct 2010 14:50:14 +0100

Subject: Re:I highly recommend using toes to grab the floor

Oh Caroline! I just did a paratriathlon session yesterday with British Triathlon

and this is what they recommended for ALL of us! It is a way to work total foot

muscles.

They were in the sand pit doing this (reminds me of Gretchen's sand walking

advice!) - but the PT advice is the same as the athlete advice.

Take a towel under your foot. Using your toes scrunch it up moving it under your

foot. Then the reverse - use your toes to push it away. Everyone I met did this.

Even just thinking about moving - if you can't today imagine it - can apparently

help stimulate re-enervation!

Thanks for sharing. I've been thinking of getting a Flip to start video blogs of

my PT. Would anyone value that?

Donna

~~~~~~~~~~~~~~~~~

I TRI because I CAN!

www.myfitnessyear.com

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