Re: MDA Clinic co-payments

[Guest guest]

Has anyone else come across when you go to the MDA clinics that you have to pay

for your own co-payments now? That MDA block grant they give them is not

picking them up anymore.

Please let me know asap. Putting together a letter to be sent to National MDA.

More letters that they recieve the more they can do.

Mark Farruggia

[Guest guest]

Has anyone else come across when you go to the MDA clinics that you have to pay

for your own co-payments now? That MDA block grant they give them  is not

picking our co-payments up anymore.

 Also we are having more taken away from us again in the new year.

Please let me know asap.

Putting together a letter to be sent to National MDA.

More letters that they recieve the more they can do.

Mark Farruggia

farruggia1@...

[Guest guest]

That is sad if they are doing that.Mda is not very good and I feel they do not

care anymore.

>

> Has anyone else come across when you go to the MDA clinics that you have to

pay

> for your own co-payments now? That MDA block grant they give them  is not

> picking our co-payments up anymore.

>  Also we are having more taken away from us again in the new year.

> Please let me know asap.

> Putting together a letter to be sent to National MDA.

> More letters that they recieve the more they can do.

>

> Mark Farruggia

> farruggia1@...

>

>

>

>

>

[Guest guest]

Donations are way down. MDA has laid off people too.

________________________________

From: fittness35 <no_reply >

Sent: Mon, October 25, 2010 8:00:32 PM

Subject: Re: MDA Clinic co-payments

That is sad if they are doing that.Mda is not very good and I feel they do not

care anymore.

>

> Has anyone else come across when you go to the MDA clinics that you have to

pay

>

> for your own co-payments now? That MDA block grant they give them is not

> picking our co-payments up anymore.

> Also we are having more taken away from us again in the new year.

> Please let me know asap.

> Putting together a letter to be sent to National MDA.

> More letters that they recieve the more they can do.

>

> Mark Farruggia

> farruggia1@...

>

>

>

>

>

[Guest guest]

Each clinic is different. I have had wonderful experience with my MDA clinic,

mine does not charge any co-pay. The clinic my grandson goes to also picked up

the cost of his genetic testing this year, after contacting our local MDA rep.

If you don't like MDA clinics don't use them. I hear alot of people complain

about what they no longer get for free from MDA, I am glad they provide me with

mdeical services I can't get anywhere esle in my area

> >

> > Has anyone else come across when you go to the MDA clinics that you have to

pay

> > for your own co-payments now? That MDA block grant they give them  is not

> > picking our co-payments up anymore.

> >  Also we are having more taken away from us again in the new year.

> > Please let me know asap.

> > Putting together a letter to be sent to National MDA.

> > More letters that they recieve the more they can do.

> >

> > Mark Farruggia

> > farruggia1@

> >

> >

> >

> >

> >

[Guest guest]

I've been to the MDA Clinic twice this year, once last April, and once last

week. I never received a bill from the April visit (over and above what my

health insurance paid) and I was not asked to make a copayment last week when I

went. I think what some of you are finding may be regional variations, and I

don't understand why unless there are local grants paying for services. I also

asked my doctor to send me to a mobility specialist (a physical therapist)last

year for an evaluation to get an electric scooter. My health insurance would not

pay for the scooter. MDA did pay for it. I don't perceive any differentiation

between diseases for MDA. There are forty or so diseases that they try to cover,

and not many are muscular dystrophy. My recent experiences have been good. Sorry

others have had trouble.

Sherry

> > >

> > > Has anyone else come across when you go to the MDA clinics that you have

to pay

> > > for your own co-payments now? That MDA block grant they give them  is not

> > > picking our co-payments up anymore.

> > >  Also we are having more taken away from us again in the new year.

> > > Please let me know asap.

> > > Putting together a letter to be sent to National MDA.

> > > More letters that they recieve the more they can do.

> > >

> > > Mark Farruggia

> > > farruggia1@

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Joann

What clinic do you go to?

Mark

________________________________

From: Joann <finetuned65@...>

Sent: Tue, October 26, 2010 10:05:00 AM

Subject: Re: MDA Clinic co-payments

Each clinic is different. I have had wonderful experience with my MDA clinic,

mine does not charge any co-pay. The clinic my grandson goes to also picked up

the cost of his genetic testing this year, after contacting our local MDA rep.

If you don't like MDA clinics don't use them. I hear alot of people complain

about what they no longer get for free from MDA, I am glad they provide me with

mdeical services I can't get anywhere esle in my area

> >

> > Has anyone else come across when you go to the MDA clinics that you have to

>pay

>

> > for your own co-payments now? That MDA block grant they give them  is not

> > picking our co-payments up anymore.

> >  Also we are having more taken away from us again in the new year.

> > Please let me know asap.

> > Putting together a letter to be sent to National MDA.

> > More letters that they recieve the more they can do.

> >

> > Mark Farruggia

> > farruggia1@

> >

> >

> >

> >

> >

[Guest guest]

Sherry

What clinic do you go to?

Mark

________________________________

From: sherry37919 <sherry37919@...>

Sent: Tue, October 26, 2010 2:32:58 PM

Subject: Re: MDA Clinic co-payments

 

I've been to the MDA Clinic twice this year, once last April, and once last

week. I never received a bill from the April visit (over and above what my

health insurance paid) and I was not asked to make a copayment last week when I

went. I think what some of you are finding may be regional variations, and I

don't understand why unless there are local grants paying for services. I also

asked my doctor to send me to a mobility specialist (a physical therapist)last

year for an evaluation to get an electric scooter. My health insurance would not

pay for the scooter. MDA did pay for it. I don't perceive any differentiation

between diseases for MDA. There are forty or so diseases that they try to cover,

and not many are muscular dystrophy. My recent experiences have been good. Sorry

others have had trouble.

Sherry

> > >

> > > Has anyone else come across when you go to the MDA clinics that you have

to

>pay

>

> > > for your own co-payments now? That MDA block grant they give them  is

not

> > > picking our co-payments up anymore.

> > >  Also we are having more taken away from us again in the new year.

> > > Please let me know asap.

> > > Putting together a letter to be sent to National MDA.

> > > More letters that they recieve the more they can do.

> > >

> > > Mark Farruggia

> > > farruggia1@

> > >

> > >

> > >

> > >

> > >

[Guest guest]

I haven't been back to a an MDA clinic since I started on my surgeries but when

I did go I always paid a co-pay and a portion of my braces. I can tell you that

the MDA chapter in NH sucks. They don't even know that much about my CMT. What a

waste of time.

Hope

>

[Guest guest]

i haven't ever used the MDA, although i am thinking of contacting them to see

where the closest one to me is,and just what they do cover. i do think that

maybe they might have local offices that may not have the grant money..i don't

really know, maybe you can get something done,best of luck to you....tracey

From: mark farruggia <farruggia1@...>

Subject: Re: MDA Clinic co-payments

Date: Tuesday, October 26, 2010, 5:12 PM

 

Sherry

What clinic do you go to?

Mark

________________________________

From: sherry37919 <sherry37919@...>

Sent: Tue, October 26, 2010 2:32:58 PM

Subject: Re: MDA Clinic co-payments

 

I've been to the MDA Clinic twice this year, once last April, and once last

week. I never received a bill from the April visit (over and above what my

health insurance paid) and I was not asked to make a copayment last week when I

went. I think what some of you are finding may be regional variations, and I

don't understand why unless there are local grants paying for services. I also

asked my doctor to send me to a mobility specialist (a physical therapist)last

year for an evaluation to get an electric scooter. My health insurance would not

pay for the scooter. MDA did pay for it. I don't perceive any differentiation

between diseases for MDA. There are forty or so diseases that they try to cover,

and not many are muscular dystrophy. My recent experiences have been good. Sorry

others have had trouble.

Sherry

> > >

> > > Has anyone else come across when you go to the MDA clinics that you have

to

>pay

>

> > > for your own co-payments now? That MDA block grant they give them  is

not

> > > picking our co-payments up anymore.

> > >  Also we are having more taken away from us again in the new year.

> > > Please let me know asap.

> > > Putting together a letter to be sent to National MDA.

> > > More letters that they recieve the more they can do.

> > >

> > > Mark Farruggia

> > > farruggia1@

> > >

> > >

> > >

> > >

> > >

[Guest guest]

I go to Nothwestern Untiversity in Chicago, my grandon goes to the pediatric

clinic at Ru9sh University in Chicago. Have you contacted your local MDA rep?

> > >

> > > Has anyone else come across when you go to the MDA clinics that you have

to

> >pay

> >

> > > for your own co-payments now? That MDA block grant they give them  is

not

> > > picking our co-payments up anymore.

> > >  Also we are having more taken away from us again in the new year.

> > > Please let me know asap.

> > > Putting together a letter to be sent to National MDA.

> > > More letters that they recieve the more they can do.

> > >

> > > Mark Farruggia

> > > farruggia1@

> > >

> > >

> > >

> > >

> > >

[Guest guest]

I go to the MDA clinic in East Tennesse, in Knoxville. I don't see any evidence

that MDA has " dumped diseases. " I get their Quest Magazine which is still

featuring articles covering CMT; some of their research is addressed to CMT, and

they do send letters out saying when and why they need to cut back on some

coverage (like AFO's and mobility equipment, I think for 2010). MDA seems pretty

open about what it is doing as a charitable agency. I do send them

contributions, regularly, because they obviously use the funds responsibly.

Sherry

> > > >

> > > > Has anyone else come across when you go to the MDA clinics that you have

to

> > >pay

> > >

> > > > for your own co-payments now? That MDA block grant they give them  is

not

> > > > picking our co-payments up anymore.

> > > >  Also we are having more taken away from us again in the new year.

> > > > Please let me know asap.

> > > > Putting together a letter to be sent to National MDA.

> > > > More letters that they recieve the more they can do.

> > > >

> > > > Mark Farruggia

> > > > farruggia1@

> > > >

> > > >

> > > >

> > > >

> > > >

[Guest guest]

I wonder if the co-payment procedure has something to do with whatever insurance

carrier you have. I know each time we go to the MDA clinic they bill our

insurance first, then pick up the cost of whatever is not covered.

Just a thought...

On Oct 27, 2010, at 10:05 AM, sherry37919 wrote:

> I go to the MDA clinic in East Tennesse, in Knoxville. I don't see any

evidence that MDA has " dumped diseases. " I get their Quest Magazine which is

still featuring articles covering CMT; some of their research is addressed to

CMT, and they do send letters out saying when and why they need to cut back on

some coverage (like AFO's and mobility equipment, I think for 2010). MDA seems

pretty open about what it is doing as a charitable agency. I do send them

contributions, regularly, because they obviously use the funds responsibly.

> Sherry

>

>

> > > > >

> > > > > Has anyone else come across when you go to the MDA clinics that you

have to

> > > >pay

> > > >

> > > > > for your own co-payments now? That MDA block grant they give them Â

is not

> > > > > picking our co-payments up anymore.

> > > > > Â Also we are having more taken away from us again in the new year.

> > > > > Please let me know asap.

> > > > > Putting together a letter to be sent to National MDA.

> > > > > More letters that they recieve the more they can do.

> > > > >

> > > > > Mark Farruggia

> > > > > farruggia1@

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

[Guest guest]

Hi Mark,

I went to my local MDA clinic earlier this month and was not asked to pay a

co-pay. They could still always bill me, I suppose.

Last year I saw more people, including the nutritionist, and they billed me for

seeing her. However, when I called to inquire, the billing person said that my

insurance should have paid for that part, too. They resubmitted it and it was

taken care of. No co-pay last year either.

>

> Has anyone else come across when you go to the MDA clinics that you have to

pay

> for your own co-payments now? That MDA block grant they give them  is not

> picking our co-payments up anymore.

>  Also we are having more taken away from us again in the new year.

> Please let me know asap.

> Putting together a letter to be sent to National MDA.

> More letters that they recieve the more they can do.

>

> Mark Farruggia

> farruggia1@...

>

>

>

>

>