Re: Biobank Collecting Blood Samples for Neuromuscular Disease Resear

[Guest guest]

Mr. Willis,

Thanks for sharing and finding out the " particulars " . As for the cost, I was

supposing one's medical insurance might pay for the blood draw, as I had done

for the CMT 2 research program in Miami. Fiorella gave me a

'kit' at the 2008 Conference with specific instructions for the blood draw and

mailing. Just called the hospital lab and had it done, although the lab staff

were a bit " baffled " on why this was being done. What they were questioning was

" the kit " . I had to give them time to read over how to draw and how to package.

I said " for research purposes " , OK and then I had to give them my crash course

in CMT and Awareness, lol

I am pleased to hear you are participating in this research with Biobank.

Gretchen

[Guest guest]

Gretchen,

Mr. Willis? Really? I'm your NJ SAG brother!

Mark

>

> Mr. Willis,

>

> Thanks for sharing and finding out the " particulars " . As for the cost, I was

supposing one's medical insurance might pay for the blood draw, as I had done

for the CMT 2 research program in Miami. Fiorella gave me a

> 'kit' at the 2008 Conference with specific instructions for the blood draw and

mailing. Just called the hospital lab and had it done, although the lab staff

were a bit " baffled " on why this was being done. What they were questioning was

" the kit " . I had to give them time to read over how to draw and how to package.

I said " for research purposes " , OK and then I had to give them my crash course

in CMT and Awareness, lol

>

> I am pleased to hear you are participating in this research with Biobank.

>

> Gretchen

>