Re: Abnormal MRI

[Guest guest]

Hi

sorry to hear your pain

i have only feeling muscle weakness. no pain

might you need to stand for a long time, due to your work, thus cause so

much pain?

On Wed, Dec 29, 2010 at 3:42 PM, <macheadma@...> wrote:

>

>

> Hi All,

> I have been away from the group for a while, and It's been about 7 years

> since I had anything change in my CMT. I'm a nursing student, medical

> assistant, wear bilateral AFOs for foot drop. I was diagnosed at 16, started

> wearing AFOs for work at 31, and now at 38, I feel like I'm falling apart! I

> have been out of work for over a month because of what started as a stabbing

> pain in my right leg, but in the front, about 2 inches above the knee. Now

> that leg is numb, tingling, shoots with pain, and is weak. I had an xray of

> my back that looked normal after it started hurting too, normal. Next came

> an MRI of my low back, and it was abnormal, showing enlargement of the cauda

> equina. Another MRI shows multiple neuropathy. Next step, go to see a new

> neuro. Fun times! My plan in that if they want to do an NCV/EMG I'll tell

> them that I will tell them what they want to know without torture, but

> thanks just the same!!

>

> I've tried lots of meds that don't seem to work for this pain, other than

> narcotics, and muscle relaxers help some, but I hate that they cloud my

> thinking. I have a new med to try, that some on this group have had luck

> with, neurontin (gabapentin) I've wanted to try it for my foot pain, which I

> have pretty much all the time but yet didn't motivate me by itself. It's

> like I hit my breaking point, and I can't take any more pain.

>

> Has anyone else had symptoms like this with CMT?

>

>

>

--

May you be well and happy

Caroline

[Guest guest]

I had alot of back pain all of a sudden at one time, radiating into my hip. An

orthopedist specializing in backs had me try PT, TENs and ice. When those

failed, and Xrays and MRI showed a ruptured disk, I had a successful surgery or

it would have only gotten worse and I was sick of the pain.

Seven years later, after a routine exercise program, loosing 30 lbs, change in

diet, had a different kind of back pain. Nerves being compressed.Another

successful surgery. Diagosis: Arthritis.

No EMG/NCVs needed. The 1st surgery was due to a gardening mishap, the second,

age related. So my experience is somewhat different.

Perhaps you might want to meet with an orthopedist who specializes in backs. I

would hold off on a new neuro until you see an orthopedist. The Neurontin may

help, so may ice and PT in the meantime.

Gretchen

> Has anyone else had symptoms like this with CMT?

>

[Guest guest]

-

I don't know if your insurance would cover it, but I take both my girls to the

chiropractor as they were complaining that their legs hurt.  Since we've started

going there, I've not heard one complaint. Some people don't believe in

Chiropractors, but its always worth a try. 

JMO

 

Mother to Ashlee Rayne & Aimee Renae

[Guest guest]

Sounds like what my Mom has. My Mom dosen't have cmt. She has a pinched

sciatic nerve and trouble with disk 5 I think.

The neurologist was able to find the damage with a single test. No pain

involved.

Hope that this is an easy fix for you.

In a message dated 12/29/2010 8:06:46 A.M. Pacific Standard Time,

macheadma@... writes:

Hi All,

I have been away from the group for a while, and It's been about 7 years

since I had anything change in my CMT. I'm a nursing student, medical

assistant, wear bilateral AFOs for foot drop. I was diagnosed at 16, started

wearing AFOs for work at 31, and now at 38, I feel like I'm falling apart! I

have been out of work for over a month because of what started as a stabbing

pain in my right leg, but in the front, about 2 inches above the knee. Now

that leg is numb, tingling, shoots with pain, and is weak. I had an xray of

my back that looked normal after it started hurting too, normal. Next came

an MRI of my low back, and it was abnormal, showing enlargement of the

cauda equina. Another MRI shows multiple neuropathy. Next step, go to see a new

neuro. Fun times! My plan in that if they want to do an NCV/EMG I'll tell

them that I will tell them what they want to know without torture, but

thanks just the same!!

I've tried lots of meds that don't seem to work for this pain, other than

narcotics, and muscle relaxers help some, but I hate that they cloud my

thinking. I have a new med to try, that some on this group have had luck with,

neurontin (gabapentin) I've wanted to try it for my foot pain, which I

have pretty much all the time but yet didn't motivate me by itself. It's like

I hit my breaking point, and I can't take any more pain.

Has anyone else had symptoms like this with CMT?

[Guest guest]

I LOVE the chiropractor!

In a message dated 12/29/2010 10:16:22 A.M. Pacific Standard Time,

lorena_g_martin@... writes:

I've not heard one complaint. Some people don't believe in Chiropractors,

but itsalways worth a try.

[Guest guest]

Hi ,

I recently had back surgery (not CMT related) with symptoms like you

described.  The neurosurgeon didn't perform EMG/NCV.  He was able to do other

manual tests to confirm the diagnosis.  Same with a friend of mine (not CMT

related) who had surgery last year for a ruptured disk.

The doctor did tell me that sitting is really bad for the back.  I not supposed

to sit longer than 45 minutes.  Need to switch positions every 30-45 minutes. 

I also ice my back.  Kind of funny thing to do in the winter...under my

electric blanket, but it helps after activity, to reduce pain/swelling.  I also

take neurontin and use lidocaine patches.  Also, took PT sessions to refresh on

proper movement.

The cauda equina is an important area to protect.  (I'm sure you know that

already.)  I'd consult with a neurosurgeon as well as an orthopedist

specializing in lumbar area, to get opinions from both about treatment/care of

this area.

From: <macheadma@...>

Subject: Abnormal MRI

Date: Tuesday, December 28, 2010, 11:42 PM

 

Hi All,

I have been away from the group for a while, and It's been about 7 years since I

had anything change in my CMT. I'm a nursing student, medical assistant, wear

bilateral AFOs for foot drop. I was diagnosed at 16, started wearing AFOs for

work at 31, and now at 38, I feel like I'm falling apart! I have been out of

work for over a month because of what started as a stabbing pain in my right

leg, but in the front, about 2 inches above the knee. Now that leg is numb,

tingling, shoots with pain, and is weak. I had an xray of my back that looked

normal after it started hurting too, normal. Next came an MRI of my low back,

and it was abnormal, showing enlargement of the cauda equina. Another MRI shows

multiple neuropathy. Next step, go to see a new neuro. Fun times! My plan in

that if they want to do an NCV/EMG I'll tell them that I will tell them what

they want to know without torture, but thanks just the same!!

I've tried lots of meds that don't seem to work for this pain, other than

narcotics, and muscle relaxers help some, but I hate that they cloud my

thinking. I have a new med to try, that some on this group have had luck with,

neurontin (gabapentin) I've wanted to try it for my foot pain, which I have

pretty much all the time but yet didn't motivate me by itself. It's like I hit

my breaking point, and I can't take any more pain.

Has anyone else had symptoms like this with CMT?

[Guest guest]

I have been using a chiropractor for years, if it was not for him I would be in

major pain almost all of the time. Just last week while visiting family in PA

for the holiday I was in major pain, went to the chiropractor and he said my hip

was out almost a 1/2 inch. I was to the point I could barely walk.

Diane

>

> >

> >

> > Hi All,

> > I have been away from the group for a while, and It's been about 7 years

> > since I had anything change in my CMT. I'm a nursing student, medical

> > assistant, wear bilateral AFOs for foot drop. I was diagnosed at 16, started

> > wearing AFOs for work at 31, and now at 38, I feel like I'm falling apart! I

> > have been out of work for over a month because of what started as a stabbing

> > pain in my right leg, but in the front, about 2 inches above the knee. Now

> > that leg is numb, tingling, shoots with pain, and is weak. I had an xray of

> > my back that looked normal after it started hurting too, normal. Next came

> > an MRI of my low back, and it was abnormal, showing enlargement of the cauda

> > equina. Another MRI shows multiple neuropathy. Next step, go to see a new

> > neuro. Fun times! My plan in that if they want to do an NCV/EMG I'll tell

> > them that I will tell them what they want to know without torture, but

> > thanks just the same!!

> >

> > I've tried lots of meds that don't seem to work for this pain, other than

> > narcotics, and muscle relaxers help some, but I hate that they cloud my

> > thinking. I have a new med to try, that some on this group have had luck

> > with, neurontin (gabapentin) I've wanted to try it for my foot pain, which I

> > have pretty much all the time but yet didn't motivate me by itself. It's

> > like I hit my breaking point, and I can't take any more pain.

> >

> > Has anyone else had symptoms like this with CMT?

> >

> >

> >

>

>

>

> --

> May you be well and happy

> Caroline

>

>

>

[Guest guest]

So did I and helped me more then anyone,wish I had the money and ins. to go

again.......

Geri

I LOVE the chiropractor!

In a message dated 12/29/2010 10:16:22 A.M. Pacific Standard Time,

lorena_g_martin@... writes:

I've not heard one complaint. Some people don't believe in Chiropractors,

but itsalways worth a try.