Guest guest Posted December 29, 2010 Report Share Posted December 29, 2010 Hi All, I have been away from the group for a while, and It's been about 7 years since I had anything change in my CMT. I'm a nursing student, medical assistant, wear bilateral AFOs for foot drop. I was diagnosed at 16, started wearing AFOs for work at 31, and now at 38, I feel like I'm falling apart! I have been out of work for over a month because of what started as a stabbing pain in my right leg, but in the front, about 2 inches above the knee. Now that leg is numb, tingling, shoots with pain, and is weak. I had an xray of my back that looked normal after it started hurting too, normal. Next came an MRI of my low back, and it was abnormal, showing enlargement of the cauda equina. Another MRI shows multiple neuropathy. Next step, go to see a new neuro. Fun times! My plan in that if they want to do an NCV/EMG I'll tell them that I will tell them what they want to know without torture, but thanks just the same!! I've tried lots of meds that don't seem to work for this pain, other than narcotics, and muscle relaxers help some, but I hate that they cloud my thinking. I have a new med to try, that some on this group have had luck with, neurontin (gabapentin) I've wanted to try it for my foot pain, which I have pretty much all the time but yet didn't motivate me by itself. It's like I hit my breaking point, and I can't take any more pain. Has anyone else had symptoms like this with CMT? Quote Link to comment Share on other sites More sharing options...
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