Muscle pain

[Guest guest]

Hi,

I just joined the CMTA and received their Sept-Oct newsletter via

PDF. I was reading one of the stories and noticed that someone with

CMT- who had been out walking all day- had difficulty sleeping that

night because of the lower back, hip and leg pain he was experiencing

from overdoing it. This got me to thinking, because my neurologist

during my initial exam asked me if I had any pain. I thought she was

referring to my hands and feet, and I have no pain in those areas.

But I do experience lower back discomfort/pain and have off and on

for 30 years. I have always contributed it to my scoliosis which was

diagnosed when I was 22. I have found if I walk every day and

exercise it is better, but if I sit all the time it is worse. That

is one of the main reasons I got into exercise. In the past few

years, I have also started to feel lower back pain if I have to stand

for a period of time on a hard surface such as a concrete floor

(usually more than 30 minutes). My lower back muscles tighten up. I

thought this was due to growing older. And my right hip has hurt for

years- now my left hip is hurting in the past week or so. I saw an

orthopedic surgeon about the right hip 5 or 6 years ago. He said it

might be the beginnings or arthritis and that the Tae Bo I was doing

was only aggravating or even causing the problem (so I quit doing

that).

All of these aches and pains are manageable and the lower back pain

comes and goes. I do not need any pain killers- I just notice they

are there, but they do not really bother me. All of that to say,

after reading that article, I'm wondering if all of these aches and

pains are in fact due to the CMT and also scoliosis. I have read

some on hip dysplagia, which I understand can happen to people with

CMT, but do not fully understand it or its symptoms. Just wondering

what you think and if you have any suggestions.

Blessings,

Barb