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I haven't been keeping up with this topic, but after I had my LR in '96, I

couldn't figure out why my vastus lateralis would never build up & look normal.

Finally in '03 a new OS told me that when they do a LR, they cut part of the VL.

I wish my first OS had told me that. I might have objected. It seems to me

that when they do a LR, they should also tighten the medial retinaculum, or if

the LR doesn't work, go back & tighten the MR. But then I'm just an armchair

doctor.

Ann(WA -- formerly CA)

Re: Muscle Pain

Thanks Connie

I thought something like this might be happening. I had a lateral

release done in May 2003 and while it aligned one of my knees it also

left it unstable and in much worse condition then before. Something

went wrong during the surgery and it seems no one can tell me what

happened. The other knee is still not aligned but after the last

one, not in a big hurry to let them back in there. <g> Obviously,

though the LR did not help with the pain as they are both bad now and

have the same pain, so I have come to believe that my original pain

was not because they weren't aligned but because of the loss of

cartledge.

> > I, of course, have CP but also have a lot of pain in the muscles

> in my

> > legs. Does anyone else have this. Any ideas why.

> >

> >

> > Help fight Dachshund Disc Disease

> > www.dodgerslist.com

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,

i just had a lateral release done a month ago. well, im pretty much back to

normal, just a tiny biy of swelling, but im not sure when ill know if it

worked. did yours do anything good for you. i have a very shallow trochlear

groove,

do you have the same?

iris

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Iris, they told me my pain in the knees was caused by them not being

lined up and that the LR would help. Somehow something went wrong.

The Drs. either don't know or won't tell me. After about 6 weeks I

knew things were not right. The DR. did an MRI and found that my

tendon was inflamed. He put me in a full leg brace and then all of

my muscles atropyed. I couldn't even lift my leg. After therapy I

could lift it but not well. I still cannot extend it straight out

from the knee. It feels like it goes so far and then seizes up.

Also, it is wobbly all the time and I have lost strength in it. I

cannot run. Of course, while all of this was going on and I was

depending on my other one more, it got steadily worse. After about a

year the DR finally said you have CP. This was the first I had heard

of that. Probably what was the matter all the time as now both of my

knees are hurting all the time. So the LR did nothing to correct any

pain. Have tried water therapy, acupuncture, and kineasology.

Nothing works for long. The only thing I have found is generic

Vicoden which my Dr gives me if I don't take it often, which I don't.

Maybe one a week at the most when I do a lot of shopping.

I really wish I just knew what was happening.

> ,

> i just had a lateral release done a month ago. well, im pretty much

back to

> normal, just a tiny biy of swelling, but im not sure when ill know

if it

> worked. did yours do anything good for you. i have a very shallow

trochlear groove,

> do you have the same?

> iris

>

>

>

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wow, im so sorry. thats really horrible. i hope you find some relief soon. im

hoping the lr works for me, but i havnt really heard anyone that had a LR

that worked out well, so im skeptical. right now im pretty much where i was

before, but luckily thats not too bad. ive been taking naproxyn for about 6

months,

which helps, but not completely. i wish i could get vicoden, but my doc would

never give it to me.

maybe you should go to another doctor and tell him everything.

feel better,

iris

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Sounds like you need a new OS.

Ann

Re: Muscle Pain

Iris, they told me my pain in the knees was caused by them not being

lined up and that the LR would help. Somehow something went wrong.

The Drs. either don't know or won't tell me. After about 6 weeks I

knew things were not right. The DR. did an MRI and found that my

tendon was inflamed. He put me in a full leg brace and then all of

my muscles atropyed. I couldn't even lift my leg. After therapy I

could lift it but not well. I still cannot extend it straight out

from the knee. It feels like it goes so far and then seizes up.

Also, it is wobbly all the time and I have lost strength in it. I

cannot run. Of course, while all of this was going on and I was

depending on my other one more, it got steadily worse. After about a

year the DR finally said you have CP. This was the first I had heard

of that. Probably what was the matter all the time as now both of my

knees are hurting all the time. So the LR did nothing to correct any

pain. Have tried water therapy, acupuncture, and kineasology.

Nothing works for long. The only thing I have found is generic

Vicoden which my Dr gives me if I don't take it often, which I don't.

Maybe one a week at the most when I do a lot of shopping.

I really wish I just knew what was happening.

> ,

> i just had a lateral release done a month ago. well, im pretty much

back to

> normal, just a tiny biy of swelling, but im not sure when ill know

if it

> worked. did yours do anything good for you. i have a very shallow

trochlear groove,

> do you have the same?

> iris

>

>

>

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Sounds like RSD. I had a lot of the same things as you do. I have CP with

RSD due to surgeries, with scraping, de burring, and scar tissue clean up. I

have locking, numbing, discoloration , amongst other things. If you have any

questions feel free to ask. I have been on a crutch and a full length brace for

4 years.

Krisstina King

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Ann, have already been to 5. At least with my insurance they are

very good about referrals. I have given up with that though. My

general MD really wants to help and he keeps suggesting things and

trying to help but I'm, like most of you, just tired of trying things

and them only working for awhile. I just told him the Vicoden worked

and he said okay as long as you don't take too many. I don't use

very many of them. I met a man this past week who takes 4 per day to

keep his knee pain under control. That is really scary. He is

going to have surgery in a few more weeks. Its my muscle pain too

that really hurts. When I bend over and it stretches them is almost

as bad as the knee pain.

Like someone else said just getting old is no fun. But, then there

are many who are far worse so I try to keep that in mind.

> > ,

> > i just had a lateral release done a month ago. well, im pretty

much

> back to

> > normal, just a tiny biy of swelling, but im not sure when ill

know

> if it

> > worked. did yours do anything good for you. i have a very

shallow

> trochlear groove,

> > do you have the same?

> > iris

> >

> >

> >

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What's RSD?

Re: Re: Muscle Pain

Sounds like RSD. I had a lot of the same things as you do. I have CP with

RSD due to surgeries, with scraping, de burring, and scar tissue clean up. I

have locking, numbing, discoloration , amongst other things. If you have any

questions feel free to ask. I have been on a crutch and a full length brace

for

4 years.

Krisstina King

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Guest guest

I am pretty new at this. What is RSD.

LInda

> Sounds like RSD. I had a lot of the same things as you do. I have CP

with

> RSD due to surgeries, with scraping, de burring, and scar tissue

clean up. I

> have locking, numbing, discoloration , amongst other things. If you

have any

> questions feel free to ask. I have been on a crutch and a full

length brace for

> 4 years.

>

> Krisstina King

>

>

>

>

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A couple other things that might help. Make sure your geting enough

calcium and magnesium. When I added a calcium pill with magnesium in

it, I have less pain in my muscles. Just be careful to not add to

much magnesium all at once it can cause the runs. When I ran out of

my regular cal/mag pill, and was just taking the citrical version of

cal/mag, totally noticed the muscle pain was a lot worse. The

citrical cal/mag didn't have as much magnesium as the other suppliment

i was taking.

My regular doc, thinks that I might have fibromyalgia (fibro) another

reason for my muscle pain. I take something to help me sleep, and I

actually feel better, since i get more than 5-6 hours of sleep.

Fibro pain is pain in all four quadrants of your body plus some other

stuff too. There are some fibro groups, with . Also, if you

search for the trigger point map of where the pain spots are to see if

you have it. I'm not a 100% sure if i actually have fibro, but me

getting a 7-8 hours sleep will make anyone feel better.

You might have something like restless leg syndrome (RLS), or a

problem with the muscle in your legs because things have just been in

pain, and out of balance for a while. Like what another member posted.

As I mentioned before a massage thereapist can help you out, and then

using the tennis ball, foam rollar, or stick, other things may make

taking care of those muscles easier.

Connie

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I was surfing the Web the other night trying to figure out why I was sleeping 10

hrs and then needing a 2-3 hr nap, and came across info about magnesium

deficiency. Even megamulti's only give you about 3% of the RDA of Mg. The site

I was at recommended 500-700 chelated Mg split into 3 doses a day. The list of

problems (on this site) low Mg is associated with is really long and includes

depression, fatigue, and muscle pain. It's been implicated in fibromyalgia, at

least according to this site (which isn't medical, but the author is a

nutritionist). Here's the site: http://www.krispin.com/magnes.html She says

it can take up to 6 months for you to feel results. She does say that only a

certain laboratory is making the proper chelated Mg (chelated = bound to another

compound, and in this case reduces the likelihood of diarrhea), but she says she

has no affiliation with the lab. Apparently the lab's Mg is used by different

companies, which she lists to make the pills.

I don't go for cure-all things, but if Mg merely helps keep bones, muscles, and

teeth healthy, and helps release energy, then it could be as widely helpful as

this person claims.

Ann

Re: Muscle Pain

A couple other things that might help. Make sure your geting enough

calcium and magnesium. When I added a calcium pill with magnesium in

it, I have less pain in my muscles. Just be careful to not add to

much magnesium all at once it can cause the runs. When I ran out of

my regular cal/mag pill, and was just taking the citrical version of

cal/mag, totally noticed the muscle pain was a lot worse. The

citrical cal/mag didn't have as much magnesium as the other suppliment

i was taking.

My regular doc, thinks that I might have fibromyalgia (fibro) another

reason for my muscle pain. I take something to help me sleep, and I

actually feel better, since i get more than 5-6 hours of sleep.

Fibro pain is pain in all four quadrants of your body plus some other

stuff too. There are some fibro groups, with . Also, if you

search for the trigger point map of where the pain spots are to see if

you have it. I'm not a 100% sure if i actually have fibro, but me

getting a 7-8 hours sleep will make anyone feel better.

You might have something like restless leg syndrome (RLS), or a

problem with the muscle in your legs because things have just been in

pain, and out of balance for a while. Like what another member posted.

As I mentioned before a massage thereapist can help you out, and then

using the tennis ball, foam rollar, or stick, other things may make

taking care of those muscles easier.

Connie

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  • 8 months later...

From: " kathryn carlson " <lookin4funnhouston@...>

Sent: Friday, February 03, 2006 5:19 PM

> Hi, I recently started hurting mainly in the backs of my arms, knees, neck

> and shoulder areas. It feels like a type of burning and I have some

> weakness in my arms,

> can't lift heavy things anymore or move my arms in a certain direction.

> The only thing I can think of that I did was exercise one night with my

> daughter and maybe I was too inactive before the workout. It has been

> four weeks now, and my upper arms are still killing me. The burning

> sensation is driving me crazy. I also took some pain medication about two

> weeks ago and thought maybe I was too acidic or toxic from that. Any

> ideas? Can I alkalize my body more? Would a detox help? I'm clueless...

> K.

,

The only " help " I can offer at the moment is sympathy and understanding,

since I've been dealing with this *%^ pain in my legs for 2 yrs now.

I'll be getting an EMG in about 10 days, to see if it's some form of

neuropathy.

In your case, the first thought that comes to mind would be Fibromyalgia,

which isn't such great help just to have a name. But, you might want to

start a search on that (probably a million sites on the net!) and see if it

sounds like what you're dealing with.

Until you have some idea of what this is, stick with the obvious helpers

such as the best nutrition, quality rest and sleep (Ha!--I've forgotten what

quality sleep feels like).

I wouldn't just detox or alkalize until you know more about the problem. For

instance, many people with fibromyalgia are already too alkaline!

If you can find a natural practitioner who specializes in Metabolic

Balancing, that might be the best help of all. Unfortunately, there are none

of those anywhere near me.

If I learn any more, I'll try and remember to post it here

Sharon

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Have you considered acupuncture, acupressure and/or chiropractic? Diet's

important, of course, but it might be a pinched nerve/s involved if it started

after exercise.

Bill

Re: muscle pain

From: " kathryn carlson " <lookin4funnhouston@...>

Sent: Friday, February 03, 2006 5:19 PM

> Hi, I recently started hurting mainly in the backs of my arms, knees, neck

> and shoulder areas. It feels like a type of burning and I have some

> weakness in my arms,

> can't lift heavy things anymore or move my arms in a certain direction.

> The only thing I can think of that I did was exercise one night with my

> daughter and maybe I was too inactive before the workout. It has been

> four weeks now, and my upper arms are still killing me. The burning

> sensation is driving me crazy. I also took some pain medication about two

> weeks ago and thought maybe I was too acidic or toxic from that. Any

> ideas? Can I alkalize my body more? Would a detox help? I'm clueless...

> K.

,

The only " help " I can offer at the moment is sympathy and understanding,

since I've been dealing with this *%^ pain in my legs for 2 yrs now.

I'll be getting an EMG in about 10 days, to see if it's some form of

neuropathy.

In your case, the first thought that comes to mind would be Fibromyalgia,

which isn't such great help just to have a name. But, you might want to

start a search on that (probably a million sites on the net!) and see if it

sounds like what you're dealing with.

Until you have some idea of what this is, stick with the obvious helpers

such as the best nutrition, quality rest and sleep (Ha!--I've forgotten what

quality sleep feels like).

I wouldn't just detox or alkalize until you know more about the problem. For

instance, many people with fibromyalgia are already too alkaline!

If you can find a natural practitioner who specializes in Metabolic

Balancing, that might be the best help of all. Unfortunately, there are none

of those anywhere near me.

If I learn any more, I'll try and remember to post it here

Sharon

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  • 8 months later...

>

> hi all....been doing the diet & coconut oil, very good.

> my muscle aches & joint pain flaare up time to time..anything

> for this? also that lovely brainfog too. i know i'm heavy metal

toxic too. thanx all, janey

==>Hi Janey. Your muscle aches and joint pains and brain fog are

caused by candida toxins being released into your system = die-off

symptoms. Candida puts out over 79 different kinds of toxins but

most of them are alcohol in nature. This diet plus supplements also

gets rid of heavy metals very very effectively. The body does a very

good job of getting rid of heavy metals when you provide it with the

right nutrients, particularly good fats, oil soluble vitamins A, D &

E, omega 3 essential fatty acids, minerals contained in ocean sea

salt and liquid cholorphyll. The diet and supplements work together

to help your body do its job!! Isn't that wonderful?

==>To help alleviate your symptoms do the things recommended in my

article which help your body detoxify, i.e. dry skin brushing, coffee

enemas, Epsom salt baths, lemon & ocean sea salt drink, clove or Pau

D'Arco tea, etc. If the symptoms are too severe for you to handle

cut back on coconut oil and only gradually increase it every 4-5 days.

Luv, Bee

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thanx bee...and this can happen 2 weeks after taking coconut oil?

cause those first 2 weeks i felt sooo good, the oil got my nervousness under

control

and muscle pain was gone. it was amazing.

just got scared it came back cause my body got used to the coconut oil. but

that doesn't make sense, or does it?

janey

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>

> thanx bee...and this can happen 2 weeks after taking coconut oil?

> cause those first 2 weeks i felt sooo good, the oil got my

nervousness under control and muscle pain was gone. it was amazing.

> just got scared it came back cause my body got used to the coconut

oil. but that doesn't make sense, or does it? janey

Janey each time your body gets stronger you will get healing symptoms

until you are completely healthy. Your symptoms came back but you are

at higher level than before you started. Your body will cycle through

getting rid of toxins and then rebuilding every area that needs

healing. Of course your body doesn't " get used " to good foods like

coconut oil; it keeps using it to heal and heal and heal some more.

Unfortunately healing, or die-off symptoms are not easy to go through.

But as time goes on your good days will increase and your bad days will

decrease. Hang in there girl! What you are feeling is perfectly

normal.

Lotsa hugs for healing, Bee

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  • 6 months later...
Guest guest

I am on week 12 of tx and have experienced joint pain, fatigue and nausea. At

the begining the nausea and joint pain were the main issues. Now fatigue is

more of an issue due to anemia from the tx. For the nausea I have used ginger.

As well as ginger capsules I had ginger in green tea with honey. Every morning

I make myself a large fresh juice out of whatever ie beetroot, celery, apple,

carrot, spinach. I also have a diet high in fresh fruit and veges. I eat dark

grapes and orange and green fruits and veges. When the joint pain was severe I

took 1 glucosamine sulfate with celery and grapeseed (see your dr to make sure

this is OK). I go back to the dr next Wednesday to see how my tx is going and

to se if my viral load has dropped

.

pattyhardy1954 <pattyhardy1954@...> wrote:

I am new to this group. I was diagnosed in 1994 after routine blood

work post pregnancy

and delivery. I have no idea how I contracted the virus. I assume I contracted

in 1974 when

my roomate and I were both diagnosed with non A/B hepatitis. I have genotype

1AB.

I underwent a Phase III trial in 1996 with Peg Interferon/Ribovarin for 48

weeks. The virus

cleared during treatment, but returned shortly thereafter. I have been sympton

free until

recently.

I'm experiencing extreme fatigue, nausea, weight loss and really severe muscle

pain. I had

a liver biopsy 4 weeks ago while having my gallbladder removed. It came back

Stage 4 and

Level 3 inflammation. Previous biopsies had showed Level 2 and no inflammation.

I see my

gastro this week to determine what's next.

I've done a good job of being in denial, but now must face facts. Where is a

good place to

get diet info? Also, I've read about my other symptoms, but what's up with the

muscle

pain? Does anyone else experience this?

Thanks for your help. I'm glad to be a part of the group.

Send instant messages to your online friends http://au.messenger.

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Guest guest

I am on week 12 of tx and have experienced joint pain, fatigue and nausea. At

the begining the nausea and joint pain were the main issues. Now fatigue is

more of an issue due to anemia from the tx. For the nausea I have used ginger.

As well as ginger capsules I had ginger in green tea with honey. Every morning

I make myself a large fresh juice out of whatever ie beetroot, celery, apple,

carrot, spinach. I also have a diet high in fresh fruit and veges. I eat dark

grapes and orange and green fruits and veges. When the joint pain was severe I

took 1 glucosamine sulfate with celery and grapeseed (see your dr to make sure

this is OK). I go back to the dr next Wednesday to see how my tx is going and

to se if my viral load has dropped

.

pattyhardy1954 <pattyhardy1954@...> wrote:

I am new to this group. I was diagnosed in 1994 after routine blood

work post pregnancy

and delivery. I have no idea how I contracted the virus. I assume I contracted

in 1974 when

my roomate and I were both diagnosed with non A/B hepatitis. I have genotype

1AB.

I underwent a Phase III trial in 1996 with Peg Interferon/Ribovarin for 48

weeks. The virus

cleared during treatment, but returned shortly thereafter. I have been sympton

free until

recently.

I'm experiencing extreme fatigue, nausea, weight loss and really severe muscle

pain. I had

a liver biopsy 4 weeks ago while having my gallbladder removed. It came back

Stage 4 and

Level 3 inflammation. Previous biopsies had showed Level 2 and no inflammation.

I see my

gastro this week to determine what's next.

I've done a good job of being in denial, but now must face facts. Where is a

good place to

get diet info? Also, I've read about my other symptoms, but what's up with the

muscle

pain? Does anyone else experience this?

Thanks for your help. I'm glad to be a part of the group.

Send instant messages to your online friends http://au.messenger.

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  • 1 month later...
Guest guest

Hi there patty,i am mrs betty, i have muscle pain really bad at times,chills

fever the works. I also was dianoised with nonAnonB Hep in the 70's i think, I

also is type 1A I think, I can't afford treatment, one of the clinic I go to

refuse to treat it ,because it is so expensive, so for now I trust in the

ultimate healer My Lord And Savior Jesus Christ,.But I do have an appointment

coming up later on this month with a liver doctor,the musle pain is bad also the

extreme fatigue, and itching among other things . God bless I will be praying

for everyone on the group. Hang in there, and remember Keep God first in your

lifes,and trust him those you know him ,or anything about him. Along with my

HepC, I also have Chronic Kidney Failure,less than 25% kidney function. God

Bless Mrs. Betty

pattyhardy1954 <pattyhardy1954@...> wrote: I am new to this

group. I was diagnosed in 1994 after routine blood work post pregnancy

and delivery. I have no idea how I contracted the virus. I assume I contracted

in 1974 when

my roomate and I were both diagnosed with non A/B hepatitis. I have genotype

1AB.

I underwent a Phase III trial in 1996 with Peg Interferon/Ribovarin for 48

weeks. The virus

cleared during treatment, but returned shortly thereafter. I have been sympton

free until

recently.

I'm experiencing extreme fatigue, nausea, weight loss and really severe muscle

pain. I had

a liver biopsy 4 weeks ago while having my gallbladder removed. It came back

Stage 4 and

Level 3 inflammation. Previous biopsies had showed Level 2 and no inflammation.

I see my

gastro this week to determine what's next.

I've done a good job of being in denial, but now must face facts. Where is a

good place to

get diet info? Also, I've read about my other symptoms, but what's up with the

muscle

pain? Does anyone else experience this?

Thanks for your help. I'm glad to be a part of the group.

Acts 2;38, Then said unto them,Repent, and be baptized every one of you in

the name of Jesus Christ for the remission of sins, and ye shall recieve the

gift of the Holy Ghost.

---------------------------------

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Guest guest

Betty you can get the drug free through one of the company's that make it. You

just need to qualify mine is through Roche. Ph. is 1-877-734-2797 don't know if

you are in an area like me that needs to dial 1 but it is a toll free number.

Website is www.pegassist.com they should be able to help. I am 61 and have 1-b

and on week 9 of treatment. I get alot of muscle pain and very tired etc. Good

luck. Pat in Ca.

betty cammon <jesus4200020002000@...> wrote: Hi there patty,i am

mrs betty, i have muscle pain really bad at times,chills fever the works. I also

was dianoised with nonAnonB Hep in the 70's i think, I also is type 1A I think,

I can't afford treatment, one of the clinic I go to refuse to treat it ,because

it is so expensive, so for now I trust in the ultimate healer My Lord And Savior

Jesus Christ,.But I do have an appointment coming up later on this month with a

liver doctor,the musle pain is bad also the extreme fatigue, and itching among

other things . God bless I will be praying for everyone on the group. Hang in

there, and remember Keep God first in your lifes,and trust him those you know

him ,or anything about him. Along with my HepC, I also have Chronic Kidney

Failure,less than 25% kidney function. God Bless Mrs. Betty

pattyhardy1954 <pattyhardy1954@...> wrote: I am new to this group. I was

diagnosed in 1994 after routine blood work post pregnancy

and delivery. I have no idea how I contracted the virus. I assume I contracted

in 1974 when

my roomate and I were both diagnosed with non A/B hepatitis. I have genotype

1AB.

I underwent a Phase III trial in 1996 with Peg Interferon/Ribovarin for 48

weeks. The virus

cleared during treatment, but returned shortly thereafter. I have been sympton

free until

recently.

I'm experiencing extreme fatigue, nausea, weight loss and really severe muscle

pain. I had

a liver biopsy 4 weeks ago while having my gallbladder removed. It came back

Stage 4 and

Level 3 inflammation. Previous biopsies had showed Level 2 and no inflammation.

I see my

gastro this week to determine what's next.

I've done a good job of being in denial, but now must face facts. Where is a

good place to

get diet info? Also, I've read about my other symptoms, but what's up with the

muscle

pain? Does anyone else experience this?

Thanks for your help. I'm glad to be a part of the group.

Acts 2;38, Then said unto them,Repent, and be baptized every one of you in

the name of Jesus Christ for the remission of sins, and ye shall recieve the

gift of the Holy Ghost.

---------------------------------

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  • 7 months later...

Hi ,

I'm not completely sure what you are experiencing, but PA can also

affect tendons, etc, and it can feel like muscle pain.

I know I sometimes get intense pain/soreness in the back of my neck. I

talked to my rheumy about it and he explained that it is most likely PA

affecting the tendons there. When I get it, it really feels like a

pulled muscle, like I had been doing something too strenuously.

I don't have a " cure " but typically if I add some Voltaren (NSAID) for

a couple of days, it goes away. I also am taking 10mg of MTX per week.

I have had the same feeling a couple of times in my elbow and forearm,

unfortunately, at those times a flare followed with much swelling of my

elbow.

Stay Well,

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hello sandra , I think i have heard that having PA csn cause you to

get other problems and i think fibromyalgia is one of them that you

can get. and that causes muscle pain and the tenderness. I have the

same symptoms and i am also wondering if its from pa or if i have

fibromyalgia. I know what u are going through, something maybe we

should bring up to our rhemy doctor.

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