Guest guest Posted January 14, 2011 Report Share Posted January 14, 2011 Hi Diane,  I have something similar - one foot is relatively 'normal' in appearance. The other foot is very deformed. This difference developed about the age of 7-10 yrs. In my family, my dad and his mom had severely deformed feet, so we just thought it was working it's way out of the family, since I just had one deformed foot. That's was before we had CMT!  Now, I realize that appearance isn't everything. According to nerve conduction studies, both feet are equally affected with zero responses in all nerves on both sides. I also have had no reflexes on either side, for my entire life. The CMT just manifested itself differently in each foot. Crazy, but true!  From: hmm_md <hmm_md@...> Subject: Assymetric deficits Date: Thursday, January 13, 2011, 1:53 PM  Hi Diane, In my personal experience (and this may not acutally be fact) I have noticed that the places where I get serious injury tend to exhibit the typical signs and symptoms of CMT much more so than the same body part on the opposite side. For example, I've had 3 ankle surgeries on the left, herniated a disc affecting the sciatic nerve on the left and have had numerous sprains and breaks in the left ankle. I've mostly recovered from all of that, but my left leg is weaker, more atrophied and I have poor sensation in my foot and lower leg. The right leg is relatively normal, just a touch of numbness and that hot feet/cold feet problem. Same in the shoulders. Right shoulder has a torn rotator cuff from a bicycle injury. I have more weakness and numbness in my right arm than my left. My theory is that our CMT nerves don't bounce back well from injury so our problem is exacerbated with each injury in the location of that injury. Holli > > It truly amazes me how CMT can be so different from person to person. My youngest sister who is 42 years old does not have it as bad as I do. Only her one foot has been affected really bad. > > Why not the other one too? Sometimes this disease really confuses me. > > Diane Gracely > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2011 Report Share Posted January 14, 2011 Oops...typing too fast. I said, " That's was before we had CMT! "  Obviously, we've had CMT our entire lives. What I meant was, " That was before we KNEW we had CMT. "  So sorry! AG From: hmm_md <hmm_md@...> Subject: Assymetric deficits Date: Thursday, January 13, 2011, 1:53 PM  Hi Diane, In my personal experience (and this may not acutally be fact) I have noticed that the places where I get serious injury tend to exhibit the typical signs and symptoms of CMT much more so than the same body part on the opposite side. For example, I've had 3 ankle surgeries on the left, herniated a disc affecting the sciatic nerve on the left and have had numerous sprains and breaks in the left ankle. I've mostly recovered from all of that, but my left leg is weaker, more atrophied and I have poor sensation in my foot and lower leg. The right leg is relatively normal, just a touch of numbness and that hot feet/cold feet problem. Same in the shoulders. Right shoulder has a torn rotator cuff from a bicycle injury. I have more weakness and numbness in my right arm than my left. My theory is that our CMT nerves don't bounce back well from injury so our problem is exacerbated with each injury in the location of that injury. Holli > > It truly amazes me how CMT can be so different from person to person. My youngest sister who is 42 years old does not have it as bad as I do. Only her one foot has been affected really bad. > > Why not the other one too? Sometimes this disease really confuses me. > > Diane Gracely > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.