Re: CMT 1A patients with low level of impairment have a higher energy cost

[Guest guest]

Barb,

It does. CMT is a peripheral neuropathy, which means anything not part of the

torso, brain and spinal cord.

Once outside the torso, really below the belly button, CMT sort of begins,

because it can also have transient CNS symptoms, with CNS being the central

nervous system.

If you have CMT, your hip flexors are probably doing work they should not be

doing in order to compensate for calf and quad muscles that do not work

correctly. Other muscles are pulled into a movement which normally would not

involve them. And since your calf and quad muscles are compromised, they are

straining to do the work, even if at a micro level.

I posit that it is this compensation mechanism which tires one out so much when

trying to walk.

On Nov 17, 2010, at 9:30 AM, Barb Bartz wrote:

> I know that

> sometimes my left leg feels a bit numb all the way up to the top of

> my leg, and don't think CMT affects the leg that far up.