Re: Thanks for writing Dawn!

[Guest guest]

We really do feel fortunate that we live in the school district we do. It

is very small. I'm not sure all of Iowa is so accomodating. The

administrators and I had to battle a few times until they understood that I

would not back down. They did insist that Haylee try the early special

needs classroom for her ABA first. She was the only autistic child and the

only one doing ABA. There were too many distractions so they let us move

her program home. They will also pay for ABA through the summer. It's

pretty hard to get summer services around here. It doesn't hurt that my

husband is an attorney. He isn't very involved but the administrators know

his position. We also have great support from our Area Education Agency's

autism team. Our school has done everything they recommend, and they're on

my side.

Supplements:

Haylee was not able to tolerate the super-nu thera for a long time. If it is

bothering Bridget, start off very slow. 1/4 tsp first, then work up. I take

Haylee to a lady at a health food store that does " muscle testing " to

determine which vitamins to use/introduce and when. This lady used to be an

RN and when the medical field failed to help her with her fibromyalgia she

sought out more natural therapies. I didn't find any help through doctors

or nutritionists and by some act of God I stumbled upon this lady

(Rosemary). At first I thought it was all pretty strange until I researched

the " Sunderland Protocal " for treating autism. Most of the things suggested

in this program were things Rosemary had already suggested for Haylee. We

had to get Haylee's body healthy first before she could tolerate some of the

supplements, SNT, cod liver oil, yeast treatments. Haylee's body was full

of toxins from undergoing chemotherapy and vaccines so we had to detox

first.

Haylee whines all the time too and does a lot of echoing. It takes a lot of

patience as you are well aware. Sounds like you have a neat family. My 6

year old son is beginning to get really resentful of Haylee. We try to give

him lots of his " own " time with us but its just hard to have a sister with

Autism. Haylee tries really hard to interact with him but if I'm not

directing their play then he will have no part. You're so lucky to have

Errin to help teach Bridget social skills. Will Bridget be in the regular

classroom all day when she starts Kindergarten?

Dawn

Camden, Haylee, 's mom

>From: dbe3452@...

>Reply-To: Autism_in_Girls

>To: Autism_in_Girls

>Subject: Thanks for writing Dawn!

>Date: Tue, 27 Mar 2001 03:17:12 -0000

>

>Wow Dawn-Iowa is way beyond Oregon in treating Autism, that's great!

>All they would say to me was that they look towards the childs next

>environment when planning their ECSE programs. My feeling is that if

>their initial environment isn't running smoothly than they shouldn't

>have to leave it for a new environment. I mean, success builds on

>success. You didn't say wether or not you had to fight and/or sue

>them for Haylee's placement? I did consult a lawyer who also happens

>to have an autistic child but did not go the distance with it. It may

>happen yet, but I felt I could put together a decent program without

>putting our family through even more turmoil. My husband was kind of

>in shock and I was flying the plane alone for awhile. Did the

>SuperNuThera make your daughter hyper? Did you give all the

>supplements their own trials or did you kind of do it all at the same

>time? I've heard of it being done both ways. Does your daughter

>have a low tolerance for frustration? Bridgie can be such a sweetpea

>but the whining sometimes drives me nuts. Lately she's been into

>singing the planet song and experimenting with magnets. I also have

>a two year old daughter named . She is developing wonderfully.

>they are best buds-it's kind of what I imagine it would be like to

>have two kids 12-18 mths apart instead of what they actually are,

>which is three years. Lots of wanting to be around each other and

>then driving each other nuts. What do your kids like to do? I'm

>glad your daughter has another year before kindergarten. Depending

>how this year goes I may have Bridget repeat kindergarten. Guess i

>shouldn't get to ahead of myself-do you have that problem? Thanks for

>writing, Deanna-Bridget and 's mom.

>

_________________________________________________________________

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[Guest guest]

Hi. I used to be a part of an egroup called aut2behome. They have lots of

information about homeschooling programs to use. Families of people that

homeschool their autistic children. ABA has done marvelous things for my

daughter. Where do you live? Our Area Education Agency paid for a Lovaas

consultant to come and train everyone involved with our daughter in ABA.

She comes 4 times a year to help us update her program. We live in a small

town too, 1500 people, in Iowa. I have found most of my info off the

internet and have read lots of books on the gfcf diet and ABA. You can do

it. Read the book " Let me hear Your Voice " for inspiration. For ABA

direction I have used 2 books " Behavioral Interventions for the Young Child

with Autism " and " A Work in Progress " . Both books have programs written out

for you. I have never found a doctor to help me. I've learned that it's all

up to you. Noone has the same incentive to make your daughter better. Good

Luck.

Dawn

>

>Reply-To: Autism_in_Girls

>To: Autism_in_Girls

>Subject: Re: Thanks for writing Dawn!

>Date: Mon, 26 Mar 2001 19:59:25 -0800 (PST)

>

>HELLO,

> IS THERE ANYONE THAT CAN GIVE ME SOME

>INFORMATION

>ABOUT HOMESHOOLING MY 2YR AUTISTIC DAUGHTER?IS THERE

>ANY FUNDS AVAILABLE FOR HOMESHOOLING A AUTISTIC

>CHILD?

>I WOULD LOVE TO TALK TO SOMEONE WHO IS HOMESCHOOLING

>THERE CHILD.I WANT TO GET HER STARTED ON A DIET PLAN

>I HAVE BEEN HEARING ABOUT.I LIVE IN A SMALL TOWN AND

>THEY ARE NOT EDUCATED ENOUGH ABOUT AUTISM. I THINK ALL

>PLACES SHOULD BE NO MATTER HOW SMALL A COMMUNITY IS!

>EVEN IN THE DOC.OFFICES THERE ARE NO POSTERS OR

>HANDOUTS ABOUT AUTISM.SOME FOLKS THINK THEY HAVE JUST

>A STUBBORN CHILD WHEN THATS NOT THE CASE.MY HUSBAND

>IS ALSO AUTISTIC AND YOU JUST KNOW.THANKS FOR ANYONES

>TIME FOR READING THIS! angelcatspirit@... and

> I HAVE MSN MESSENGER AND YAHOO MESSENGER IF ANYONE

>WOULD LIKE TO CHAT. angelcatspirit@...

>--- dbe3452@... wrote:

> > Wow Dawn-Iowa is way beyond Oregon in treating

> > Autism, that's great!

> > All they would say to me was that they look towards

> > the childs next

> > environment when planning their ECSE programs. My

> > feeling is that if

> > their initial environment isn't running smoothly

> > than they shouldn't

> > have to leave it for a new environment. I mean,

> > success builds on

> > success. You didn't say wether or not you had to

> > fight and/or sue

> > them for Haylee's placement? I did consult a lawyer

> > who also happens

> > to have an autistic child but did not go the

> > distance with it. It may

> > happen yet, but I felt I could put together a decent

> > program without

> > putting our family through even more turmoil. My

> > husband was kind of

> > in shock and I was flying the plane alone for

> > awhile. Did the

> > SuperNuThera make your daughter hyper? Did you give

> > all the

> > supplements their own trials or did you kind of do

> > it all at the same

> > time? I've heard of it being done both ways. Does

> > your daughter

> > have a low tolerance for frustration? Bridgie can

> > be such a sweetpea

> > but the whining sometimes drives me nuts. Lately

> > she's been into

> > singing the planet song and experimenting with

> > magnets. I also have

> > a two year old daughter named . She is

> > developing wonderfully.

> > they are best buds-it's kind of what I imagine it

> > would be like to

> > have two kids 12-18 mths apart instead of what they

> > actually are,

> > which is three years. Lots of wanting to be around

> > each other and

> > then driving each other nuts. What do your kids

> > like to do? I'm

> > glad your daughter has another year before

> > kindergarten. Depending

> > how this year goes I may have Bridget repeat

> > kindergarten. Guess i

> > shouldn't get to ahead of myself-do you have that

> > problem? Thanks for

> > writing, Deanna-Bridget and 's mom.

> >

> >

>

>

>__________________________________________________

>