Guest guest Posted February 14, 2011 Report Share Posted February 14, 2011 Hello again.... I have before been told that Dr. Shy in Detroit, is very good. In Denmark doctors and the center where the should know much about cmt, they absolut don't know enough about cmt. When I have an appointment at my neurol.... is just always say; You have the desease, you're the expert. It have really had problems with explaining to them how CMT really is. They say the CMT has got to me, and CMT makes my life very hard. But as you know, CMT is our invisble friend and we feel it more than it is showned, sometimes. It has been very hard to explain my doctors and the socialworker (whom I contact to get help in the house) and the center for CMT. That is why I will try to contact Dr. Shy, and tell him about my situatuion and how the CMT with me. Thank you so much for all help in here.....I feel pretty alone here in Denmark.....They seem as they beleave that CMT is only a food that won't move, or a arm that don't want to move..... I talked to a doctor today, from the center that should know much about cmt, and he really said serious that people with CMT wouldn't get any problems with breathing...then I told him about people that has CMT and gets oxygen at night. Love from Marika, 40, CMT1b Quote Link to comment Share on other sites More sharing options...
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