Do any of you have this.....

[Guest guest]

Hello

Its late evening her in Denmark, it won't be that long before I'm going to bed.

My body needs it.

The last 3 days I have been so tired. It comes in periods. I am so tired that I

can't even sleep. It doesn't feels very good. I know it is the tiredness from

CMT.

Most of the day I have had this feeling of my body, that I don't know where it

is.....even I can see it, but I don't feel it very well. If feel that my left

side has the same weigth as a feather......I've learned not to panic when this

happens. It has taken me several years to learn that.

In my head it spins.

When I have gone to bed, my body starts to vibrate, inside of body. Often my

body falls a sleep before my head. It is a strange feeling. I often wake up in

the middle of the night, because my hands hurt very oftens. Often the pain goes

from my fingers to my alboe. I just have to lie down in my bed for max. 10

minutes before one of my hands are sleeping. It hurts when it wakes up again.

In the morning, my brain gets up before my body. Normally I have to begin making

exercises in the bed, so my body body wakes up.

Besides all of this I have problem with my stomach. It doesn't work very

well.......(this I will describe another time....:-)....

It would be nice to hear if any of you have the same sympt.....I have read a

thread about " balance in the dark " ....this were very nice to know that I'm not

alone....

Thank you very much for the best forum....

/Marika