Guest guest Posted October 18, 2006 Report Share Posted October 18, 2006 Hi Hilery: We just got done our third round of Neuro psych testing; our only cost was $15 for office visit for 3-4 hours of testing split to 2 days. The price quoted doea sound accurate-variety of testing more details is more $$$. Start at your insurance company -specifically the Mental health benefit area. A Neuropsychologist or neurology practice with Psychologist should be able to do the testing. Ask for benefit or provider information for Cognitive skills evaluation-would stay away from PDD & Autism labels for now. In the mean time, a BIG change for my son (5 also)in his behaviors happened when we went Gluten-free; he would have these emotional rollarcoaster days where one tiny thing would set tone for subsequent events-wrong chair at lunch=no lunch eaten. Funny now that he's " balanced " we get the AS diagnosis. -Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2006 Report Share Posted October 18, 2006 I am a speech therapist in the states and actually prefer the term dyspraxia myself, but mostly see apraxia used here. My preference would be for the terms verbal apraxia and oral apraxia. I dislike the term developmental apraxia. Developmental gives off the feeling that invidividuals with dyspraxia are experiencing typical motor speech development patterns, thus confusing others including insurance companies and giving them reasons to say they will not pay for very much needed services. Katina > > Hi > I'm just wondering if you are in Australia as you use the name 'dyspraxia' rather than 'apraxia'? > I have little information for you as I am very new to this myself (my almost 3yo son has only just been diagnosed with verbal dyspraxia) but I have found these posts very helpfull. I have started my son on the Omega's and Vitamin E as discussed here and have had a little bit of improvement so far so I intend to continue with them as from what I read, they cannot hurt to try. I have also put my eldest son (6 with no dyspraxia) on the Omegas & E and have found it has improved his reading and writing dramatically. It may be worth your reading through previous posts to decide if you want to go this way too. Although we have not started yet, I am told that my son will require intense speech therapy (3-4 sessions a week) with a specialised " Dyspraxia " therapist. Is your private therapist trained in this area as this is quite important? Are you able to increase your sessions perhaps? > Sorry I'm not much help to you but I'm sure someone else here will be - keep reading the posts as they can be quite helpful and if you have any questions, I'd be pleased to try and help! > Katrina > > > > Re: [ ] Introduction > > > > Hi my name is and mu DH is . We have a 7 year old with speech > dyspraxia and would like any good advice we can get. She has speech at school > (but not really trained in dyspraxia ) and a private speech therapist she sees > once a week.What else can we do to help her? She say's less than 20 words and > so want to help her out. Thank you > > L. R. PA > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2006 Report Share Posted October 18, 2006 Just wondering if anyone has a child with Down Syndrome and Apraxia My little guy will be 4 yrs old tomorrow. He is healthy as a horse but does have apraxia I just started him last Friday on the Proefa Dawn In Daytona beach Dawn P. Uhlein Inside Sales Piedmont Plastics 2175 Mason Ave. Daytona Beach, Fl 32117 800-874-7512 extension #219 Re: [ ] Introduction Hi I'm just wondering if you are in Australia as you use the name 'dyspraxia' rather than 'apraxia'? I have little information for you as I am very new to this myself (my almost 3yo son has only just been diagnosed with verbal dyspraxia) but I have found these posts very helpfull. I have started my son on the Omega's and Vitamin E as discussed here and have had a little bit of improvement so far so I intend to continue with them as from what I read, they cannot hurt to try. I have also put my eldest son (6 with no dyspraxia) on the Omegas & E and have found it has improved his reading and writing dramatically. It may be worth your reading through previous posts to decide if you want to go this way too. Although we have not started yet, I am told that my son will require intense speech therapy (3-4 sessions a week) with a specialised " Dyspraxia " therapist. Is your private therapist trained in this area as this is quite important? Are you able to increase your sessions perhaps? Sorry I'm not much help to you but I'm sure someone else here will be - keep reading the posts as they can be quite helpful and if you have any questions, I'd be pleased to try and help! Katrina Re: [ ] Introduction Hi my name is and mu DH is . We have a 7 year old with speech dyspraxia and would like any good advice we can get. She has speech at school (but not really trained in dyspraxia ) and a private speech therapist she sees once a week.What else can we do to help her? She say's less than 20 words and so want to help her out. Thank you L. R. PA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2006 Report Share Posted October 18, 2006 I looked up mental health coverage under our insurance and found a MD in the area. It had an autism clinic and my daughter had an extensive evaluation. It cost me $300 due to some CPT codes not being covered. In the end she did not receive a diagnosis though. The school psychologist evaluated her earier in the year and changed her placement from speech delay to autism. We have services covered but no official diagnosis. Personally I had better luck when I took my 22 month old son to the Regional Center. He received a diagnosis but not autism. I was considering taking my daughter there too to get a diagnosis and maybe to get services through because I don't think I want to stay with the public school system when her special ed ends. She also goes to a private kindergarden in the afternoon and the ratio is much better. > > Hi, I have been reading posts for about a week now and you all have > already helped me. > > I have a 5 year old son . We had him evaluated last fall by > Regional Center for AS and they said no he is fine and sent us on > our way. Of course we knew he wasn't fine but most of his behavior > only became obvious at home not school. He has been on Abilify for > over a year because of violent meltdowns. > > This fall he started K and things are not going well at all. He has > been sent home several times already and we have barely made it > through the first month of school. He is in private school though > so Regional Center doesn't want anything to do with him. > > We want to have him evaluated by someone else because we really feel > he is AS plus it runs heavily in dh's family. DS has two cousins > diagnosed with AS plus numerous undiagnosed relatives. > > We found out that a Neuropsyche eval. would cost between $2500 and > $5000. That is a lot of money plus they told us that more than > likely it would not be covered by our insurance. Can anyone tell me > if that is a ok price range for an eval.? Did anyone else's > insurance cover the eval? > > Part of me is so convinced he is AS that I think maybe we don't need > an eval but then after them saying he wasn't AS last year there is > always that doubt in my mind. For awhile I was looking at > possibility of Bi-Polar but it doesn't really run in our family and > he can be hyper but not really manic I don't think. > > Any thoughts would be appreciated, > Hilery > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2006 Report Share Posted October 18, 2006 I am a speech therapist in the states and actually prefer the term dyspraxia myself, but mostly see apraxia used here. My preference would be for the terms verbal apraxia and oral apraxia. I dislike the term developmental apraxia. Developmental gives off the feeling that invidividuals with dyspraxia are experiencing typical motor speech development patterns, thus confusing others including insurance companies and giving them reasons to say they will not pay for very much needed services. Katina > > Hi > I'm just wondering if you are in Australia as you use the name 'dyspraxia' rather than 'apraxia'? > I have little information for you as I am very new to this myself (my almost 3yo son has only just been diagnosed with verbal dyspraxia) but I have found these posts very helpfull. I have started my son on the Omega's and Vitamin E as discussed here and have had a little bit of improvement so far so I intend to continue with them as from what I read, they cannot hurt to try. I have also put my eldest son (6 with no dyspraxia) on the Omegas & E and have found it has improved his reading and writing dramatically. It may be worth your reading through previous posts to decide if you want to go this way too. Although we have not started yet, I am told that my son will require intense speech therapy (3-4 sessions a week) with a specialised " Dyspraxia " therapist. Is your private therapist trained in this area as this is quite important? Are you able to increase your sessions perhaps? > Sorry I'm not much help to you but I'm sure someone else here will be - keep reading the posts as they can be quite helpful and if you have any questions, I'd be pleased to try and help! > Katrina > > > > Re: [ ] Introduction > > > > Hi my name is and mu DH is . We have a 7 year old with speech > dyspraxia and would like any good advice we can get. She has speech at school > (but not really trained in dyspraxia ) and a private speech therapist she sees > once a week.What else can we do to help her? She say's less than 20 words and > so want to help her out. Thank you > > L. R. PA > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2006 Report Share Posted October 18, 2006 Just wondering if anyone has a child with Down Syndrome and Apraxia My little guy will be 4 yrs old tomorrow. He is healthy as a horse but does have apraxia I just started him last Friday on the Proefa Dawn In Daytona beach Dawn P. Uhlein Inside Sales Piedmont Plastics 2175 Mason Ave. Daytona Beach, Fl 32117 800-874-7512 extension #219 Re: [ ] Introduction Hi I'm just wondering if you are in Australia as you use the name 'dyspraxia' rather than 'apraxia'? I have little information for you as I am very new to this myself (my almost 3yo son has only just been diagnosed with verbal dyspraxia) but I have found these posts very helpfull. I have started my son on the Omega's and Vitamin E as discussed here and have had a little bit of improvement so far so I intend to continue with them as from what I read, they cannot hurt to try. I have also put my eldest son (6 with no dyspraxia) on the Omegas & E and have found it has improved his reading and writing dramatically. It may be worth your reading through previous posts to decide if you want to go this way too. Although we have not started yet, I am told that my son will require intense speech therapy (3-4 sessions a week) with a specialised " Dyspraxia " therapist. Is your private therapist trained in this area as this is quite important? Are you able to increase your sessions perhaps? Sorry I'm not much help to you but I'm sure someone else here will be - keep reading the posts as they can be quite helpful and if you have any questions, I'd be pleased to try and help! Katrina Re: [ ] Introduction Hi my name is and mu DH is . We have a 7 year old with speech dyspraxia and would like any good advice we can get. She has speech at school (but not really trained in dyspraxia ) and a private speech therapist she sees once a week.What else can we do to help her? She say's less than 20 words and so want to help her out. Thank you L. R. PA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2006 Report Share Posted October 19, 2006 Hilery, where in California do you live? Liz On Oct 17, 2006, at 11:46 PM, Hilery wrote: > Hi, I have been reading posts for about a week now and you all have > already helped me. > > I have a 5 year old son . We had him evaluated last fall by > Regional Center for AS and they said no he is fine and sent us on > our way. Of course we knew he wasn't fine but most of his behavior > only became obvious at home not school. He has been on Abilify for > over a year because of violent meltdowns. > > This fall he started K and things are not going well at all. He has > been sent home several times already and we have barely made it > through the first month of school. He is in private school though > so Regional Center doesn't want anything to do with him. > > We want to have him evaluated by someone else because we really feel > he is AS plus it runs heavily in dh's family. DS has two cousins > diagnosed with AS plus numerous undiagnosed relatives. > > We found out that a Neuropsyche eval. would cost between $2500 and > $5000. That is a lot of money plus they told us that more than > likely it would not be covered by our insurance. Can anyone tell me > if that is a ok price range for an eval.? Did anyone else's > insurance cover the eval? > > Part of me is so convinced he is AS that I think maybe we don't need > an eval but then after them saying he wasn't AS last year there is > always that doubt in my mind. For awhile I was looking at > possibility of Bi-Polar but it doesn't really run in our family and > he can be hyper but not really manic I don't think. > > Any thoughts would be appreciated, > Hilery > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2006 Report Share Posted October 19, 2006 Hi Dawn, I'm just a lurker here but saw your post and wanted to reply. I have a little guy with DS who will be 5 in Feb. He too has apraxia. I just started him on the proefa 1 week ago. My guy too is extremely healthy. Hoping the proefa helps! Patty - In , " DAWN UHLEIN " <duhlein@...> wrote: > > Just wondering if anyone has a child with Down Syndrome and Apraxia > My little guy will be 4 yrs old tomorrow. He is healthy as a horse but > does have apraxia > I just started him last Friday on the Proefa > Dawn In Daytona beach > > > Dawn P. Uhlein > Inside Sales > Piedmont Plastics > 2175 Mason Ave. > Daytona Beach, Fl 32117 > 800-874-7512 extension #219 > > Re: [ ] Introduction > > Hi > I'm just wondering if you are in Australia as you use the name > 'dyspraxia' rather than 'apraxia'? > I have little information for you as I am very new to this myself (my > almost 3yo son has only just been diagnosed with verbal dyspraxia) but I > have found these posts very helpfull. I have started my son on the > Omega's and Vitamin E as discussed here and have had a little bit of > improvement so far so I intend to continue with them as from what I > read, they cannot hurt to try. I have also put my eldest son (6 with no > dyspraxia) on the Omegas & E and have found it has improved his reading > and writing dramatically. It may be worth your reading through previous > posts to decide if you want to go this way too. Although we have not > started yet, I am told that my son will require intense speech therapy > (3-4 sessions a week) with a specialised " Dyspraxia " therapist. Is your > private therapist trained in this area as this is quite important? Are > you able to increase your sessions perhaps? > Sorry I'm not much help to you but I'm sure someone else here will be - > keep reading the posts as they can be quite helpful and if you have any > questions, I'd be pleased to try and help! > Katrina > > > > Re: [ ] Introduction > > > > Hi my name is and mu DH is . We have a 7 year old with speech > dyspraxia and would like any good advice we can get. She has speech at > school (but not really trained in dyspraxia ) and a private speech > therapist she sees once a week.What else can we do to help her? She > say's less than 20 words and so want to help her out. Thank you > > L. R. PA > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2006 Report Share Posted October 19, 2006 My goodness, welcome to the club! In terms of my advice- first off trust your instincts as parents. SEcond, keep trying, reaching out and learning. Third, give yourself and your partner a rest and refresh your marriage. My 8 year old son has had speech since he was 2 so here's what i know.... *PROMPT therapy works very well with apraxic kids. TRy, insist, force the school therapist trained and find a private therapist who knows it. *Read to your child- especially nursery rhymes, poems, and anything that she likes. Take her finger and have her follow along with the words as you say them. *Even though she is not saying much, don't assume she is not taking any information in. My son likes the LEAP Frog products- which are all auditory learning. The character books where you hit a symbol and the book says the word are also helpful. * TRy labeling things- this is a cup, etc. Then when she wants a cup of milk, make her say c-u-p. *Any good SLP will give you (the parents) some homework. IF not change therapists. Pump the therapists for exercises and hints. She should give your child homework too. Thats's enough for now. Good luck- Liz Cherub4032@... wrote: Hi my name is and mu DH is . We have a 7 year old with speech dyspraxia and would like any good advice we can get. She has speech at school (but not really trained in dyspraxia ) and a private speech therapist she sees once a week.What else can we do to help her? She say's less than 20 words and so want to help her out. Thank you L. R. PA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2006 Report Share Posted October 19, 2006 Hi Dawn, I'm just a lurker here but saw your post and wanted to reply. I have a little guy with DS who will be 5 in Feb. He too has apraxia. I just started him on the proefa 1 week ago. My guy too is extremely healthy. Hoping the proefa helps! Patty - In , " DAWN UHLEIN " <duhlein@...> wrote: > > Just wondering if anyone has a child with Down Syndrome and Apraxia > My little guy will be 4 yrs old tomorrow. He is healthy as a horse but > does have apraxia > I just started him last Friday on the Proefa > Dawn In Daytona beach > > > Dawn P. Uhlein > Inside Sales > Piedmont Plastics > 2175 Mason Ave. > Daytona Beach, Fl 32117 > 800-874-7512 extension #219 > > Re: [ ] Introduction > > Hi > I'm just wondering if you are in Australia as you use the name > 'dyspraxia' rather than 'apraxia'? > I have little information for you as I am very new to this myself (my > almost 3yo son has only just been diagnosed with verbal dyspraxia) but I > have found these posts very helpfull. I have started my son on the > Omega's and Vitamin E as discussed here and have had a little bit of > improvement so far so I intend to continue with them as from what I > read, they cannot hurt to try. I have also put my eldest son (6 with no > dyspraxia) on the Omegas & E and have found it has improved his reading > and writing dramatically. It may be worth your reading through previous > posts to decide if you want to go this way too. Although we have not > started yet, I am told that my son will require intense speech therapy > (3-4 sessions a week) with a specialised " Dyspraxia " therapist. Is your > private therapist trained in this area as this is quite important? Are > you able to increase your sessions perhaps? > Sorry I'm not much help to you but I'm sure someone else here will be - > keep reading the posts as they can be quite helpful and if you have any > questions, I'd be pleased to try and help! > Katrina > > > > Re: [ ] Introduction > > > > Hi my name is and mu DH is . We have a 7 year old with speech > dyspraxia and would like any good advice we can get. She has speech at > school (but not really trained in dyspraxia ) and a private speech > therapist she sees once a week.What else can we do to help her? She > say's less than 20 words and so want to help her out. Thank you > > L. R. PA > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2006 Report Share Posted October 19, 2006 My goodness, welcome to the club! In terms of my advice- first off trust your instincts as parents. SEcond, keep trying, reaching out and learning. Third, give yourself and your partner a rest and refresh your marriage. My 8 year old son has had speech since he was 2 so here's what i know.... *PROMPT therapy works very well with apraxic kids. TRy, insist, force the school therapist trained and find a private therapist who knows it. *Read to your child- especially nursery rhymes, poems, and anything that she likes. Take her finger and have her follow along with the words as you say them. *Even though she is not saying much, don't assume she is not taking any information in. My son likes the LEAP Frog products- which are all auditory learning. The character books where you hit a symbol and the book says the word are also helpful. * TRy labeling things- this is a cup, etc. Then when she wants a cup of milk, make her say c-u-p. *Any good SLP will give you (the parents) some homework. IF not change therapists. Pump the therapists for exercises and hints. She should give your child homework too. Thats's enough for now. Good luck- Liz Cherub4032@... wrote: Hi my name is and mu DH is . We have a 7 year old with speech dyspraxia and would like any good advice we can get. She has speech at school (but not really trained in dyspraxia ) and a private speech therapist she sees once a week.What else can we do to help her? She say's less than 20 words and so want to help her out. Thank you L. R. PA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2006 Report Share Posted October 20, 2006 Let me know how he is doing. I have not noticed much of diff. He has only been on it 1 week though.. Dawn Dawn P. Uhlein Inside Sales Piedmont Plastics 2175 Mason Ave. Daytona Beach, Fl 32117 800-874-7512 extension #219 Re: [ ] Introduction > > Hi > I'm just wondering if you are in Australia as you use the name > 'dyspraxia' rather than 'apraxia'? > I have little information for you as I am very new to this myself (my > almost 3yo son has only just been diagnosed with verbal dyspraxia) but I > have found these posts very helpfull. I have started my son on the > Omega's and Vitamin E as discussed here and have had a little bit of > improvement so far so I intend to continue with them as from what I > read, they cannot hurt to try. I have also put my eldest son (6 with no > dyspraxia) on the Omegas & E and have found it has improved his reading > and writing dramatically. It may be worth your reading through previous > posts to decide if you want to go this way too. Although we have not > started yet, I am told that my son will require intense speech therapy > (3-4 sessions a week) with a specialised " Dyspraxia " therapist. Is your > private therapist trained in this area as this is quite important? Are > you able to increase your sessions perhaps? > Sorry I'm not much help to you but I'm sure someone else here will be - > keep reading the posts as they can be quite helpful and if you have any > questions, I'd be pleased to try and help! > Katrina > > > > Re: [ ] Introduction > > > > Hi my name is and mu DH is . We have a 7 year old with speech > dyspraxia and would like any good advice we can get. She has speech at > school (but not really trained in dyspraxia ) and a private speech > therapist she sees once a week.What else can we do to help her? She > say's less than 20 words and so want to help her out. Thank you > > L. R. PA > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2006 Report Share Posted October 20, 2006 Let me know how he is doing. I have not noticed much of diff. He has only been on it 1 week though.. Dawn Dawn P. Uhlein Inside Sales Piedmont Plastics 2175 Mason Ave. Daytona Beach, Fl 32117 800-874-7512 extension #219 Re: [ ] Introduction > > Hi > I'm just wondering if you are in Australia as you use the name > 'dyspraxia' rather than 'apraxia'? > I have little information for you as I am very new to this myself (my > almost 3yo son has only just been diagnosed with verbal dyspraxia) but I > have found these posts very helpfull. I have started my son on the > Omega's and Vitamin E as discussed here and have had a little bit of > improvement so far so I intend to continue with them as from what I > read, they cannot hurt to try. I have also put my eldest son (6 with no > dyspraxia) on the Omegas & E and have found it has improved his reading > and writing dramatically. It may be worth your reading through previous > posts to decide if you want to go this way too. Although we have not > started yet, I am told that my son will require intense speech therapy > (3-4 sessions a week) with a specialised " Dyspraxia " therapist. Is your > private therapist trained in this area as this is quite important? Are > you able to increase your sessions perhaps? > Sorry I'm not much help to you but I'm sure someone else here will be - > keep reading the posts as they can be quite helpful and if you have any > questions, I'd be pleased to try and help! > Katrina > > > > Re: [ ] Introduction > > > > Hi my name is and mu DH is . We have a 7 year old with speech > dyspraxia and would like any good advice we can get. She has speech at > school (but not really trained in dyspraxia ) and a private speech > therapist she sees once a week.What else can we do to help her? She > say's less than 20 words and so want to help her out. Thank you > > L. R. PA > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2006 Report Share Posted October 20, 2006 We live in Far Northern Ca. (north of San Francisco ) Hilery > > > Hi, I have been reading posts for about a week now and you all have > > already helped me. > > > > I have a 5 year old son . We had him evaluated last fall by > > Regional Center for AS and they said no he is fine and sent us on > > our way. Of course we knew he wasn't fine but most of his behavior > > only became obvious at home not school. He has been on Abilify for > > over a year because of violent meltdowns. > > > > This fall he started K and things are not going well at all. He has > > been sent home several times already and we have barely made it > > through the first month of school. He is in private school though > > so Regional Center doesn't want anything to do with him. > > > > We want to have him evaluated by someone else because we really feel > > he is AS plus it runs heavily in dh's family. DS has two cousins > > diagnosed with AS plus numerous undiagnosed relatives. > > > > We found out that a Neuropsyche eval. would cost between $2500 and > > $5000. That is a lot of money plus they told us that more than > > likely it would not be covered by our insurance. Can anyone tell me > > if that is a ok price range for an eval.? Did anyone else's > > insurance cover the eval? > > > > Part of me is so convinced he is AS that I think maybe we don't need > > an eval but then after them saying he wasn't AS last year there is > > always that doubt in my mind. For awhile I was looking at > > possibility of Bi-Polar but it doesn't really run in our family and > > he can be hyper but not really manic I don't think. > > > > Any thoughts would be appreciated, > > Hilery > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2006 Report Share Posted October 21, 2006 Hilery: Did they look at him in all areas including the 5th category? If you want more information I might be able to help. Why don't you email me privately at _Belt3@..._ (mailto:Belt3@...) so we don't fill up the list with back and forth questions. Connie Ajay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2006 Report Share Posted October 21, 2006 Hi Dawn, He's been on the proefa for 10 days now and I think I am seeing some small changes. He's got more approximations and he's making new sounds. Keeping my fingers crossed... Patty > > Let me know how he is doing. I have not noticed much of diff. > He has only been on it 1 week though.. > Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2006 Report Share Posted October 21, 2006 The fifth category is the category that most HFA and Aspergers children must apply thru. This category is the category of " disability similar to mental retardation. " This sounds awful in that most parents think...well my child is smart he is not retarded, however, when properly diagnosed in language pragmatics and social cognition the scores most often reflect a child that is so profoundly delayed in social areas such as pragmatics and cognition that they are in fact similar to mental retardation. I would suggest that if you feel your child was not properly assessed that you read up on the Lanterman Act at the link below and recontact the Regional Center. _http://www.dds.ca.gov/statutes/Statutes_Main.cfm_ (http://www.dds.ca.gov/statutes/Statutes_Main.cfm) Connie Ajay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2006 Report Share Posted October 21, 2006 Hi Dawn, He's been on the proefa for 10 days now and I think I am seeing some small changes. He's got more approximations and he's making new sounds. Keeping my fingers crossed... Patty > > Let me know how he is doing. I have not noticed much of diff. > He has only been on it 1 week though.. > Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2006 Report Share Posted October 21, 2006 I tried to reply via email but I got a bounce back because of unknown email or something. Regional Center did not do a thorough eval. They used ADOS and said he wasn't Aspergers and that he was a well adjusted bright little boy. What is the fifth category? Hilery > > Hilery: > > Did they look at him in all areas including the 5th category? If you want > more information I might be able to help. Why don't you email me privately at > _Belt3@..._ (mailto:Belt3@...) so we don't fill up the list with > back and forth questions. > > Connie Ajay > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2006 Report Share Posted November 21, 2006 My boys never asked these questions. If they did, I would probably just say, " Everyone has areas where they are gifted and areas where they need help. This is one area where you need to improve and need help. " Roxanna ( ) Introduction Hi my name is Alisha and my 10 year old son was recently rediagnosed from ADHD to Asperger's.I have done alot of studying about it and have always been very open with him about his diagnosis,what it means,meds etc.But what do I do when my son says " What's wrong with me why can't I control myself? " He was upset about having to leave school during intersession. Does anybody have advice. ------------------------------------------------------------------------------ No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.1.409 / Virus Database: 268.14.7/537 - Release Date: 11/17/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2006 Report Share Posted December 9, 2006 Hi Rhonda My name is Joy. I was allergic to both plaquenil and relafin (sp?) and I am on arava, prednisone and humira but off all because a sinus infection right now. BTW, I used to live on Rhonda Drive It's great that you are working out in the water too that should help you. Joy Rhonda <rhonda5003@...> wrote: Hi all. I'm new to the group and wanted to take a minute to introduce myself. My name is Rhonda and I was diagnosed as being in the developing stages of RA in August of this year. It's a bit confusing to me as I'm often in pain and am fatigued so much that sometimes I can barely think straight how I can be " developing " . I can't imagine what will happen as the disease progresses. I'm trying to be proactive in learning about this disease and have joined a couple of groups to learn and share as much as I can. Medication-wise I'm on plaquenil, prednesone and relafen with the occasional vicodin thrown in when nothing else works. Recently I started physical therapy in the water and I'm hoping to be able to work out soon. Being in pain as often as I am makes it difficult for me to be willing to work out but I'm hoping to build enough muscle to avoid the prednesone entirely. I've also developed a cyst that popped up on my wrist, similar to a ganglion cyst - what else can I develop from this disease (sigh and LOL at the same time). On top of having RA, I'm recently married (about a year now) and trying to blend families, I work full time and I go to school full time. Life is incredibly busy, stressful and I'm doing my best to keep up but sometimes, with the advent of RA, I feel completely overwhelmed. I feel as if I'm always complaining about not feeling well or being in pain (sometimes I'm sick of my own self). I feel insecure about complaining to my new husband so often. I'm happy to have found a group that I hope to be able to share information and encouragement with as well as to vent when I need to. Blessings, Rhonda Joy ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Visit Joy's Homepage and Reading Room! http://jhoormann-ivil.tripod.com Come see My Dog Salsa! http://www.geocities.com/jhoorm01/Salsa.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2006 Report Share Posted December 9, 2006 hi Rhonda -- it is a relief to have this chat group! I don't feel quite as scared after coming here and talking with all of you. I have been so freaked out with the fatigue and being so spaced out feeling. Just doing dumb things and sort of 'floating' through the day not remembering what I did or where I put something. My sister teases me that it's old age but I'm only 51. I know it's the R.A. -- or at least the autoimmune disease part of it. So don't feel alone, I've only been posting and reading here for a week or so and everyone here is great! [ ] Introduction Hi all. I'm new to the group and wanted to take a minute to introduce myself. My name is Rhonda and I was diagnosed as being in the developing stages of RA in August of this year. It's a bit confusing to me as I'm often in pain and am fatigued so much that sometimes I can barely think straight how I can be " developing " . I can't imagine what will happen as the disease progresses. I'm trying to be proactive in learning about this disease and have joined a couple of groups to learn and share as much as I can. Medication-wise I'm on plaquenil, prednesone and relafen with the occasional vicodin thrown in when nothing else works. Recently I started physical therapy in the water and I'm hoping to be able to work out soon. Being in pain as often as I am makes it difficult for me to be willing to work out but I'm hoping to build enough muscle to avoid the prednesone entirely. I've also developed a cyst that popped up on my wrist, similar to a ganglion cyst - what else can I develop from this disease (sigh and LOL at the same time). On top of having RA, I'm recently married (about a year now) and trying to blend families, I work full time and I go to school full time. Life is incredibly busy, stressful and I'm doing my best to keep up but sometimes, with the advent of RA, I feel completely overwhelmed. I feel as if I'm always complaining about not feeling well or being in pain (sometimes I'm sick of my own self). I feel insecure about complaining to my new husband so often. I'm happy to have found a group that I hope to be able to share information and encouragement with as well as to vent when I need to. Blessings, Rhonda __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2006 Report Share Posted December 10, 2006 Welcome Rhonda, This is Steph in VA. I'm 29 and was diagnosed with RA when I was 22. My meds are: Prednisone, Azulfidine, Ibuprofen, Folic Acid, Flexerill, Methotrexate & Remicade. My RA developed rapidly -- from onset to worst symptoms took a mere 3 weeks. RA progresses/develops differently in each patient. Also medications work differently for each patient as well. I was diagnosed in 1999. In 2000 I began taking Remicade, which was the strongest drug available. It immediately worked for me & I have been on it ever since without any side effects. The bump on your wrist is probably a rheumatoid nodule. This website briefly describes them: http://www.arthritis.org/conditions/diseasecenter/ra/ra_symptoms.asp. I just got married in May myself, although I can't imagine blending a family! As a complaining to your husband, I guess I was fortunate in that I had to get my husband to understand about my RA while we were dating. I must admit, my husband does way more than I ever imagined he would -- he cooks, cleans, walks the dog, holds my hair back when I throw up & and he comes to every rheumatologist appointment. When we were dating, I knew he was a " keeper " when I threw up on him and he just washed my hair and my clothes. We laugh about it now. Anyway, here is a great website: http://www.butyoudontlooksick.com/2006/02/the_spoon_theory.php#more. It has helped me explain what RA is like to my friends & family. Take care, Steph in VA ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ " Never underestimate the power of a small, dedicated group of people to change the world -- indeed, it's the only thing that ever has. " (Margaret Mead) AmeriCorps Alums -- We're Still Getting Things Done --------------------------------- Need a quick answer? Get one in minutes from people who know. Ask your question on Answers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2006 Report Share Posted December 11, 2006 I would also like to introduce myself to the group. I have been sitting on the side lines for a few months now. My name is Tina from Florida and I have Fibromyalgia, dx 6 yrs, though I started having symptoms over 21 yrs ago. My docs say I have classic textbook Fibro -- all 18 trigger points, acute chronic pain, chronic fatigue syndrome, irritable bowel syndrome, restless leg syndrome, swelling, etc, etc. I was lucky to find a good pain management Dr (after 2 years of jerks). Doc has me on meds for sleeping, swelling, muscle spasms, depression & the constant pain (methadone). I should buy stock in the company that makes the ThermaCare wraps LOL! I have been reading lately on the list about people falling, something that I started doing about 4 years ago. No one has related this to the fibro, from my GP to PM. Has other Fibro sufferers in this group found themselves falling? I have gone from falling off a ladder into a glass showcase (luckily I only got a few cuts - a dagger shape piece of glass was within 1in from me) to simply getting up from my recliner and tripping over my own foot (and ended up braking my foot). When I fall it is because I simply do not feel my leg and it just buckles! I will jump in more often now that the intro is over, sometimes I just hate even thinking let alone talking about everything that is wrong with me, (that is why it took so long to introduce myself) Tina --------------------------------- Check out the all-new beta - Fire up a more powerful email and get things done faster. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2006 Report Share Posted December 11, 2006 LOL - I'm laughing but thinking your hubby really is a keeper! Thanks for the website. I had such a rough night last night and my husband finally made the comment that I've been thinking myself: this seems to be coming on much too fast. One day I was in a little pain, the next I'm crying the blues. I'm trying to feel better today so I can communicate intelligently. ----Original Message Follows---- From: DeNicola- <stephdenicola@...> Reply- Subject: [ ] Re:Introduction Date: Sun, 10 Dec 2006 08:10:17 -0800 (PST) Welcome Rhonda, This is Steph in VA. I'm 29 and was diagnosed with RA when I was 22. My meds are: Prednisone, Azulfidine, Ibuprofen, Folic Acid, Flexerill, Methotrexate & Remicade. My RA developed rapidly -- from onset to worst symptoms took a mere 3 weeks. RA progresses/develops differently in each patient. Also medications work differently for each patient as well. I was diagnosed in 1999. In 2000 I began taking Remicade, which was the strongest drug available. It immediately worked for me & I have been on it ever since without any side effects. The bump on your wrist is probably a rheumatoid nodule. This website briefly describes them: http://www.arthritis.org/conditions/diseasecenter/ra/ra_symptoms.asp. I just got married in May myself, although I can't imagine blending a family! As a complaining to your husband, I guess I was fortunate in that I had to get my husband to understand about my RA while we were dating. I must admit, my husband does way more than I ever imagined he would -- he cooks, cleans, walks the dog, holds my hair back when I throw up & and he comes to every rheumatologist appointment. When we were dating, I knew he was a " keeper " when I threw up on him and he just washed my hair and my clothes. We laugh about it now. Anyway, here is a great website: http://www.butyoudontlooksick.com/2006/02/the_spoon_theory.php#more. It has helped me explain what RA is like to my friends & family. Take care, Steph in VA ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ " Never underestimate the power of a small, dedicated group of people to change the world -- indeed, it's the only thing that ever has. " (Margaret Mead) AmeriCorps Alums -- We're Still Getting Things Done --------------------------------- Need a quick answer? Get one in minutes from people who know. Ask your question on Answers. Quote Link to comment Share on other sites More sharing options...
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