Introduction

December 11, 2006

Welcome Tina, I had to respond because you have many of the same things I

do. I fall the same way you mentioned with the leg buckling. I think part

of the problem is the pain I know I will feel if I jam my foot down to save

myself. Or my brain is too slow to react. It is good to hear other's

stories. I feel somewhat normal now. I suffered for many years before I

finally found a doc to manage the pain.

Wishing everyone a pain-less night!

Joanne

[ ] Re: Introduction

>I would also like to introduce myself to the group. I have been sitting on

>the side lines for a few months now.

> My name is Tina from Florida and I have Fibromyalgia, dx 6 yrs, though I

> started having symptoms over 21 yrs ago. My docs say I have classic

> textbook Fibro -- all 18 trigger points, acute chronic pain, chronic

> fatigue syndrome, irritable bowel syndrome, restless leg syndrome,

> swelling, etc, etc. I was lucky to find a good pain management Dr (after 2

> years of jerks).

> Doc has me on meds for sleeping, swelling, muscle spasms, depression &

> the constant pain (methadone). I should buy stock in the company that

> makes the ThermaCare wraps LOL!

>

> I have been reading lately on the list about people falling, something

> that I started doing about 4 years ago. No one has related this to the

> fibro, from my GP to PM. Has other Fibro sufferers in this group found

> themselves falling? I have gone from falling off a ladder into a glass

> showcase (luckily I only got a few cuts - a dagger shape piece of glass

> was within 1in from me) to simply getting up from my recliner and tripping

> over my own foot (and ended up braking my foot). When I fall it is because

> I simply do not feel my leg and it just buckles!

>

> I will jump in more often now that the intro is over, sometimes I just

> hate even thinking let alone talking about everything that is wrong with

> me, (that is why it took so long to introduce myself)

> Tina

>

> ---------------------------------

> Check out the all-new beta - Fire up a more powerful email and

> get things done faster.

>

December 29, 2006

Hi ,

you are welcome to contact me at my email at tvs@... anytime

when you need someone to talk with or a friend at any time. I hope to

hear from you and about your precious daughter

Take care, Tina

>

> Hello, I am a parent of two children. I live in Corsicana, Texas near

> Dallas. I have a daughter that was born with hydrocephalus and

> developmental delays. She needs therapy for speech delays ,

> occupational and physical delays and visual impairments. I

homeschool

> and she is 10 functions like she is 5.Currently she is in first

grade

> and probably will get to the 6th grade and not beyond that. Please

> feel free to leave me a message . My name is . Thank You.

>

December 29, 2006

Hi ,

you are welcome to contact me at my email at tvs@... anytime

when you need someone to talk with or a friend at any time. I hope to

hear from you and about your precious daughter

Take care, Tina

>

> Hello, I am a parent of two children. I live in Corsicana, Texas near

> Dallas. I have a daughter that was born with hydrocephalus and

> developmental delays. She needs therapy for speech delays ,

> occupational and physical delays and visual impairments. I

homeschool

> and she is 10 functions like she is 5.Currently she is in first

grade

> and probably will get to the 6th grade and not beyond that. Please

> feel free to leave me a message . My name is . Thank You.

>

January 13, 2007

Drea,

Welcome to the group! I am here also! I just wanted to comment on your

child's skin issue. Have you ever tried evening primrose oil in addition to the

fish

oil? All of the omega fats are very important and epo is well known in

helping children and adults alike with skin issues. Good luck with the enzymes!

I

just started the enzymes with my daughter who is 6 and has mild autism. So far,

so good. )

Ginger

January 13, 2007

Hello Drea! Yes, I have tried it and am currently taking it myself. I guess

dosing would be up to you, depending on how you or your child tolerates it. I

take anywhere from 3 to 6 gel caps a day. Since my daughter has been sick, I

haven't given her any, however, she is feeling better so we will start back up

soon. The evening primrose helps me with Pms and also makes my skin softer. Dr.

Kane recommends taking it every day and also the body bio balance

oil. I take the balance oil and I can tell a difference with that also. (give it

to my daugher too) She recommends the fat ration of 4:1 HTH

Ginger

P.s. I will let you know how the oral flo cup works out. Keeping my fingers

crossed!

January 13, 2007

Oh! I totally forgot about primrose! It was something I looked for a couple

of times but I couldn't find, and then it faded in to the backround and I

completly forgot about it. Yes, I would like to try evening primrose oil, as

it is supposedly good for AD(H)D as well. Have you tried it? Do you know

anything about dosing?

Drea

_____

From:

[mailto: ] On Behalf Of

ginger587@...

Sent: Saturday, January 13, 2007 10:39 AM

Subject: Re: Introduction

Drea,

Welcome to the group! I am here also! I just wanted to comment on your

child's skin issue. Have you ever tried evening primrose oil in addition to

the fish

oil? All of the omega fats are very important and epo is well known in

helping children and adults alike with skin issues. Good luck with the

enzymes! I

just started the enzymes with my daughter who is 6 and has mild autism. So

far,

so good. )

Ginger

January 14, 2007

> Now I'm trying to figure out which route to go with enzymes. I would

like to

> order some this weekend, so it looks like i have some homework to do!

This site is good

http://www.enzymestuff.com/

>> I have

> not noticed a reaction to anything specifically, much less wheat and

dairy.

> I just know what the test results were. I was thinking about

starting with

> Peptizyde from Housten Nutraceuticals.

This would be good, or AFP Peptizyde if he has problems with

papain/bromelain.

>> Since his problem seems to be wheat

> and dairy, this looks like enough, though I'm wondering if No-Fenol

would be

> a good addition due to his ADD-ish behavior.

You might find good results with adding Zyme Prime and/or No-Fenol also.

Dana

January 14, 2007

Thanks Dana. As I have read through posts and some mention of black circles

under eyes meaning yeast or phenol (alergy or food sensetivity is another

one I've heard that causes the dark circles), I decided it can't hurt to go

with all 3 of the ones you suggested, and add one at at time and slowly.

The AFP comes in a chewable tablet, so this is the one I ordered.

BTW, the link you offered is how I found this group! It's a very good web

site!

Drea

_____

From:

[mailto: ] On Behalf Of danasview

Sent: Sunday, January 14, 2007 9:04 AM

Subject: Re: Introduction

> Now I'm trying to figure out which route to go with enzymes. I would

like to

> order some this weekend, so it looks like i have some homework to do!

This site is good

http://www.enzymest <http://www.enzymestuff.com/> uff.com/

>> I have

> not noticed a reaction to anything specifically, much less wheat and

dairy.

> I just know what the test results were. I was thinking about

starting with

> Peptizyde from Housten Nutraceuticals.

This would be good, or AFP Peptizyde if he has problems with

papain/bromelain.

>> Since his problem seems to be wheat

> and dairy, this looks like enough, though I'm wondering if No-Fenol

would be

> a good addition due to his ADD-ish behavior.

You might find good results with adding Zyme Prime and/or No-Fenol also.

Dana

February 7, 2007

>

> Hello, I am a parent of two children. I live in Corsicana, Texas

near

> Dallas. I have a daughter that was born with hydrocephalus and

> developmental delays. She needs therapy for speech delays ,

> occupational and physical delays and visual impairments. I

homeschool

> and she is 10 functions like she is 5.Currently she is in first

grade

> and probably will get to the 6th grade and not beyond that. Please

> feel free to leave me a message . My name is . Thank You.

>

Hello, I am from Pakistan, Peshawar. I have a daughter she was also

born with hydrocephalus, she is now eight years old and the problem is

that she is not toilet train.also have problems with speech. kindly

help me to make my daughter toilet train.we in Peshawar do not have

trained staff in special education school and she was refused

admission in special education school due to this reason that she not

toilet train.

best regards

hamid jan

February 22, 2007

I would have him read a book about it. He needs to find out everything there is

to know about aspergers. If he don't want to invest the time, I wouldn't invest

yours.

Educate him! lol

tanna

( ) Introduction

Hello,

My name is Jackie and I live in the Pensacola, FL area. I signed on to this

ASSN this morning. I am single mother of 3 boys ages 20, 19 and 13. The older 2

boys are now in college and I live alone with my 13 year old, Connor. He has

been diagnosed with Asperger's Syndrome with ODD. My ex husband lives in

Memphis,TN, so I am pretty much on my own with handling my 13 year old.

I have a boyfriend and he is having a hard time understanding how to handle

Connor on occasions. Any help or suggestions out there would be greatly

appreciated.

Jacque

---------------------------------

Don't pick lemons.

See all the new 2007 cars at Autos.

February 22, 2007

Hi Jackie & welcome.

There are enough sites on here to pull up anything about Asperger

Syndrome. I would do that & see if the boyfriend could deal with it then. If not

I would say worry about your son not the boyfriend.

Betty

Jacque McMillon <jotyco86@...> wrote:

Hello,

My name is Jackie and I live in the Pensacola, FL area. I signed on to this ASSN

this morning. I am single mother of 3 boys ages 20, 19 and 13. The older 2 boys

are now in college and I live alone with my 13 year old, Connor. He has been

diagnosed with Asperger's Syndrome with ODD. My ex husband lives in Memphis,TN,

so I am pretty much on my own with handling my 13 year old.

I have a boyfriend and he is having a hard time understanding how to handle

Connor on occasions. Any help or suggestions out there would be greatly

appreciated.

Jacque

---------------------------------

Don't pick lemons.

See all the new 2007 cars at Autos.

February 26, 2007

Hi :

Check out www.tacanow.com it is a support group ( " Talk About Curing

Autism " ) for ASD/Biomedical Therapy based in So Ca. There is tons of

support, even a new parent orientation. Check out the website, it is

awesome. Also the group autisminterventionsocal would be good

for you, lots of info there.

Welcome to the war.

Jen

>

> Hi all,

> This is a big group i see. I'm new to dealing with ASD as my son

was

> diagnosed a couple of months ago. We are seeing a specialist and

are

> going to get his blood levels tested in a few months. I'm starting

to

> learn about chelation and it's benefits. I'm not completely

schooled

> yet so bare with me. My son is 3 yrs and 10 months. We started

> noticing things after he had febrile seizures from vaccines at 18

> months and I came to the conclusion that things just weren't

getting

> any better so i took him to our school district to have him

> evaluated. That led us to the UCI program For O.C. Kids as we live

in

> Orange County, CA and now we're on the right path I feel. I want to

> look into finding a DAN doctor but don't know where to start. I've

> taken casein out of his diet(he was a major junkie) and will start

> with the gluten next. We've absolutely stopped vaxing him and my

> daughter who's 6. She doesn't have any symtoms and hasn't had any

> reactions. We are due with our 3rd child in May and it's a girl.

This

> has been a stressful pregnancy with finding out all of the

> information and diagnosis for my son but other than that the doctor

> said there is a 1 in 85 chance this baby might have ASD as well.

> Any thoughts/links/info for a mother new to this whole thing i

would

> appreciate it.

> Thanks so much and take care,

> in California

>

February 27, 2007

Welcome to the list. Comments interspersed.

S S

Hi all,

This is a big group i see. I'm new to dealing with ASD as my son was

diagnosed a couple of months ago. We are seeing a specialist and are

going to get his blood levels tested in a few months.

*Blood levels of what?

I'm starting to

learn about chelation and it's benefits. I'm not completely schooled

yet so bare with me. My son is 3 yrs and 10 months. We started

noticing things after he had febrile seizures from vaccines at 18

months and I came to the conclusion that things just weren't getting

any better so i took him to our school district to have him

evaluated. That led us to the UCI program For O.C. Kids as we live in

Orange County, CA and now we're on the right path I feel. I want to

look into finding a DAN doctor but don't know where to start.

* The Autism Research Institute website has a list of DAN! doctors.

I've

taken casein out of his diet(he was a major junkie) and will start

with the gluten next. We've absolutely stopped vaxing him and my

daughter who's 6.

*Good, good.

She doesn't have any symtoms and hasn't had any

reactions. We are due with our 3rd child in May and it's a girl. This

has been a stressful pregnancy with finding out all of the

information and diagnosis for my son but other than that the doctor

said there is a 1 in 85 chance this baby might have ASD as well.

*My nephew who has autism has two younger siblings who don't.

Any thoughts/links/info for a mother new to this whole thing i would

appreciate it.

Thanks so much and take care,

in California

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February 27, 2007

> Orange County, CA and now we're on the right path I feel. I want to

> look into finding a DAN doctor but don't know where to start. I've

This site is good

http://www.tacanow.com

>>We are due with our 3rd child in May and it's a girl. This

> has been a stressful pregnancy with finding out all of the

> information and diagnosis for my son but other than that the doctor

> said there is a 1 in 85 chance this baby might have ASD as well.

> Any thoughts/links/info for a mother new to this whole thing i would

> appreciate it.

This page is good

http://www.danasview.net/newbaby.htm

Dana

February 27, 2007

Hi ,

I can recommend some books to you.

" Facing Autism " by Lynn Hamilton

" Children with Starving Brains " 3rd edition just released by Dr. J

McCandless

" What Your Doctor May NOT Tell You about Childhood Immunizations " by Dr. S

Cave.

The Generation Rescue website has a lot of great info. You can look for a

Rescue Angel in your area. www.generationrescue.org

<http://www.generationrescue.org/> You may also be interested in another

group chelatingkids2. Another great site is the National Vaccine

Information Center. www.nvic.org <http://www.nvic.org/>

Pamela

" Courage is doing what you're afraid to do. There can be no courage unless

you're scared. "

Eddie Rickenbacker, top US fighter ace, WWI

_____

From: [mailto: ]

On Behalf Of Haynes

Sent: Monday, February 26, 2007 9:18 PM

Subject: [ ] Introduction

Hi all,

This is a big group i see. I'm new to dealing with ASD as my son was

diagnosed a couple of months ago. We are seeing a specialist and are

going to get his blood levels tested in a few months. I'm starting to

learn about chelation and it's benefits. I'm not completely schooled

yet so bare with me. My son is 3 yrs and 10 months. We started

noticing things after he had febrile seizures from vaccines at 18

months and I came to the conclusion that things just weren't getting

any better so i took him to our school district to have him

evaluated. That led us to the UCI program For O.C. Kids as we live in

Orange County, CA and now we're on the right path I feel. I want to

look into finding a DAN doctor but don't know where to start. I've

taken casein out of his diet(he was a major junkie) and will start

with the gluten next. We've absolutely stopped vaxing him and my

daughter who's 6. She doesn't have any symtoms and hasn't had any

reactions. We are due with our 3rd child in May and it's a girl. This

has been a stressful pregnancy with finding out all of the

information and diagnosis for my son but other than that the doctor

said there is a 1 in 85 chance this baby might have ASD as well.

Any thoughts/links/info for a mother new to this whole thing i would

appreciate it.

Thanks so much and take care,

in California

March 7, 2007

Hi:

Welcome to the group

I also live in Ohio.

Shared parent of a 5 & 1/2 yr old son with AS and step-dad of a NT 11 yr old

(going on 30) daughter, (for the record son's mom left me and took son with 10

months before dx, he was 26 months old then). All of us, my wife, my ex and

myself are committed to doing what's best for DS. I think that ultimately he

might do better residing with me for school purposes, but am still more

interested in focusing on him rather than fighting his mom tooth and nail.

Very truly yours;

Todd B. Kotler

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( ) Introduction

Hi everyone!

I'm a new member so I thought I'd introduce myself a little (don't want to

bore everyone lol)

My name is Jenn I'm almost 34 and live in Ohio with my husband of 14 years,

Jerry. We have three children; Cory Albert who just turned 14, h Dawn

who is 12 and Jerry Lee ( " Trey " ) who is nine. Trey was diagnosed with

Aspergers about a year ago along with bi-polar disorder and he also has ADHD

I'm looking forward to meeting and getting to know everyone.

-Jenn

Proud Momma of Cory Albert (14yrs ADHD), h Dawn (12yrs Anxiety)

and Jerry Lee " Trey " (9yrs ADHD, Bi-Polar, Asperger's)

March 7, 2007

Welcome!!

Hope you enjoy this site!!

Robin

Jenn <wyledbunch@...> wrote:

Hi everyone!

I'm a new member so I thought I'd introduce myself a little (don't want to

bore everyone lol)

My name is Jenn I'm almost 34 and live in Ohio with my husband of 14 years,

Jerry. We have three children; Cory Albert who just turned 14, h Dawn

who is 12 and Jerry Lee ( " Trey " ) who is nine. Trey was diagnosed with

Aspergers about a year ago along with bi-polar disorder and he also has ADHD

I'm looking forward to meeting and getting to know everyone.

-Jenn

Proud Momma of Cory Albert (14yrs ADHD), h Dawn (12yrs Anxiety)

and Jerry Lee " Trey " (9yrs ADHD, Bi-Polar, Asperger's)

March 7, 2007

Welcome to the group!

- C.

Mom to Cassie 15 PCOS, Austin 13 ADHD and a 3 HFA/AS & SPD/SID

( ) Introduction

Hi everyone!

I'm a new member so I thought I'd introduce myself a little (don't want to

bore everyone lol)

My name is Jenn I'm almost 34 and live in Ohio with my husband of 14 years,

Jerry. We have three children; Cory Albert who just turned 14, h Dawn

who is 12 and Jerry Lee ( " Trey " ) who is nine. Trey was diagnosed with

Aspergers about a year ago along with bi-polar disorder and he also has ADHD

I'm looking forward to meeting and getting to know everyone.

-Jenn

Proud Momma of Cory Albert (14yrs ADHD), h Dawn (12yrs Anxiety)

and Jerry Lee " Trey " (9yrs ADHD, Bi-Polar, Asperger's)

March 7, 2007

Thank you so much, Robin! I'm enjoying it very much already.

-Jenn

Proud Momma of Cory Albert (14yrs ADHD), h Dawn (12yrs Anxiety)

and Jerry Lee " Trey " (9yrs ADHD, Bi-Polar, Asperger's)

-- Re: ( ) Introduction

Welcome!!

Hope you enjoy this site!!

Robin

Jenn <wyledbunch@...> wrote:

Hi everyone!

I'm a new member so I thought I'd introduce myself a little (don't want to

bore everyone lol)

My name is Jenn I'm almost 34 and live in Ohio with my husband of 14 years,

Jerry. We have three children; Cory Albert who just turned 14, h Dawn

who is 12 and Jerry Lee ( " Trey " ) who is nine. Trey was diagnosed with

Aspergers about a year ago along with bi-polar disorder and he also has ADHD

I'm looking forward to meeting and getting to know everyone.

-Jenn

Proud Momma of Cory Albert (14yrs ADHD), h Dawn (12yrs Anxiety)

and Jerry Lee " Trey " (9yrs ADHD, Bi-Polar, Asperger's)

March 7, 2007

Hi Todd, thank you for the welcome!

Your 11 yr old daughter sounds like my 12 yr old daughter...she's going on

30 too! lol

I think it's so wonderful that you're all more focused on your son instead

of fighting his mom. That's such a very wise and mature thing to do. I wish

more were like that.

It's very nice to meet you!

-Jenn

Proud Momma of Cory Albert (14yrs ADHD), h Dawn (12yrs Anxiety)

and Jerry Lee " Trey " (9yrs ADHD, Bi-Polar, Asperger's)

-- ( ) Introduction

Hi everyone!

I'm a new member so I thought I'd introduce myself a little (don't want to

bore everyone lol)

My name is Jenn I'm almost 34 and live in Ohio with my husband of 14 years,

Jerry. We have three children; Cory Albert who just turned 14, h Dawn

who is 12 and Jerry Lee ( " Trey " ) who is nine. Trey was diagnosed with

Aspergers about a year ago along with bi-polar disorder and he also has ADHD

I'm looking forward to meeting and getting to know everyone.

-Jenn

Proud Momma of Cory Albert (14yrs ADHD), h Dawn (12yrs Anxiety)

and Jerry Lee " Trey " (9yrs ADHD, Bi-Polar, Asperger's)

March 7, 2007

Hi, welcome...I " m new too.

have you gone for a private evaluation?

- In , " Elaine " <creek129@...>

wrote:

>

> Hi, I just want to take a few minutes to introduce myself. I had

> joined this group yesterday and apologize for my tardy

introduction.

>

> My name is , I have three children ages 6 (going to be 7 this

> month) 8 (going to be 9 this month) and one who just turned five.

> The oldest two are girls and the baby is a boy. My oldest daughter

> (who is the 8 yr old) has been ruled by the school as autistic, and

> diagnosed by a psychiatrist as moderately mentally retarded. I

> question the diagnosis because the tests they gave her I know she

> can do the material but she was in a bad mood (she hates doctors of

> all sizes, shapes and forms) and they took her non participation as

> she didn't know. She has been in school since she was 3, she has a

> speech delay. She is just now putting sentences together, but to

> hear her talk her speech level is that of a three or four year old.

> She was born premature @ 33 wks gestation, due to (possibly) an

> infection I had that was in the placenta and possibly constricted

> her nutrient supply in the womb. This is an off base " diagnosis "

> from my own searching.

>

> As I have stated she talks more now than she has ever had. For a

> long time I thought she would go through her whole life quiet. She

> didn't start putting two words together until she was four, and she

> does a lot of repeating what one says, such as I will say " I love

> Liz " and she will say " I love Liz'

>

> Thank you for having me here, and I hope to come to know each one

of

> you very well, as parents of children who have delays/disabilities

> these times can be hard and trying. We all need a net of support to

> fall into sometimes. I hope I can be one who jumps as well as

> catches.

>

> Thank you

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March 7, 2007

Thank you so much, ! It's great to be here and it's very nice to meet

you!

-Jenn

Proud Momma of Cory Albert (14yrs ADHD), h Dawn (12yrs Anxiety)

and Jerry Lee " Trey " (9yrs ADHD, Bi-Polar, Asperger's)

-- Re: ( ) Introduction

Welcome to the group!

- C.

Mom to Cassie 15 PCOS, Austin 13 ADHD and a 3 HFA/AS & SPD/SID

( ) Introduction

Hi everyone!

I'm a new member so I thought I'd introduce myself a little (don't want to

bore everyone lol)

My name is Jenn I'm almost 34 and live in Ohio with my husband of 14 years

Jerry. We have three children; Cory Albert who just turned 14, h

Dawn

who is 12 and Jerry Lee ( " Trey " ) who is nine. Trey was diagnosed with

Aspergers about a year ago along with bi-polar disorder and he also has

ADHD

I'm looking forward to meeting and getting to know everyone.

-Jenn

Proud Momma of Cory Albert (14yrs ADHD), h Dawn (12yrs Anxiety)

and Jerry Lee " Trey " (9yrs ADHD, Bi-Polar, Asperger's)

March 7, 2007

Thank you for the kind compliment Jenn, but I am not allways so magnanimous! I

DO keep a lot of notes on DS's Mom as does my DW (she's smarter than me)

Where in OHio are you? I am in Massilon DS's Mom is in Twinsburg.

Todd