Introduction

[Guest guest]

Hi Todd,

We are not too far apart! I am in Medina.

Roxanna

( ) Introduction

Hi everyone!

I'm a new member so I thought I'd introduce myself a little (don't want to

bore everyone lol)

My name is Jenn I'm almost 34 and live in Ohio with my husband of 14 years,

Jerry. We have three children; Cory Albert who just turned 14, h Dawn

who is 12 and Jerry Lee ( " Trey " ) who is nine. Trey was diagnosed with

Aspergers about a year ago along with bi-polar disorder and he also has ADHD

I'm looking forward to meeting and getting to know everyone.

-Jenn

Proud Momma of Cory Albert (14yrs ADHD), h Dawn (12yrs Anxiety)

and Jerry Lee " Trey " (9yrs ADHD, Bi-Polar, Asperger's)

[Guest guest]

Thank you so much Roxanna! It's so wonderful to be here!

-Jenn

Proud Momma of Cory Albert (14yrs ADHD), h Dawn (12yrs Anxiety)

and Jerry Lee " Trey " (9yrs ADHD, Bi-Polar, Asperger's)

-- Re: ( ) Introduction

Hi Jenn!

I am in Ohio too. Welcome to our group and feel free to join in whenever

you like!

Roxanna

( ) Introduction

Hi everyone!

I'm a new member so I thought I'd introduce myself a little (don't want to

bore everyone lol)

My name is Jenn I'm almost 34 and live in Ohio with my husband of 14 years

Jerry. We have three children; Cory Albert who just turned 14, h

Dawn

who is 12 and Jerry Lee ( " Trey " ) who is nine. Trey was diagnosed with

Aspergers about a year ago along with bi-polar disorder and he also has

ADHD

I'm looking forward to meeting and getting to know everyone.

-Jenn

Proud Momma of Cory Albert (14yrs ADHD), h Dawn (12yrs Anxiety)

and Jerry Lee " Trey " (9yrs ADHD, Bi-Polar, Asperger's)

[Guest guest]

We've taken her to a psychologist and a psychiatrist. The psychologist ruled

her as moderately mentally retarded. When she was able to draw SSD and had

Medicaid we were able to take her to the Autistic specialist in MS,

however due to a mix up she (the specialist) was not there, but a doc told

me there that the psychologist that we took her to in Biloxi was not

certified in child psychology. (My head was spinning by then)

She has been ruled by the school as autistic and her IEP rotates around that

ruling. When the diagnosis came in with her being mentally retarded I took

the booklet of papers to her SE teacher and she told me that " He is a quack "

(referring to the doctor) Liz can do work on a 3rd grade level now (first

grade then) She can add and subtract, contrary to the diagnosis which said

that she had the mental capacity of that of a three year old. I believe he

came to that conclusion because she refused to participate in the testing.

Her problems stem on a language delay, for some reason things don't process

for her as fast as the " normal " (like anyone is normal, lol) person. She is

repetitive, will repeat (parrot) what other say. She runs a lot, and likes

to have everything patterned and ordered compulsively.

Re: Introduction

Posted by: " kayce_the_nut " kayce_the_nut@... kayce_the_nut

Wed Mar 7, 2007 12:36 PM (PST)

Hi, welcome...I " m new too.

Have you gone for a private evaluation?

[Guest guest]

Hi , welcome. I too just recently came back into the group and

they are amazingly supportive. I think you'll find alot of diverse

information thatnwill be helpful. best regards--Cheryl--

- In , " Elaine " <creek129@...>

wrote:

>

> Hi, I just want to take a few minutes to introduce myself. I had

> joined this group yesterday and apologize for my tardy

introduction.

>

> My name is , I have three children ages 6 (going to be 7 this

> month) 8 (going to be 9 this month) and one who just turned five.

> The oldest two are girls and the baby is a boy. My oldest daughter

> (who is the 8 yr old) has been ruled by the school as autistic, and

> diagnosed by a psychiatrist as moderately mentally retarded. I

> question the diagnosis because the tests they gave her I know she

> can do the material but she was in a bad mood (she hates doctors of

> all sizes, shapes and forms) and they took her non participation as

> she didn't know. She has been in school since she was 3, she has a

> speech delay. She is just now putting sentences together, but to

> hear her talk her speech level is that of a three or four year old.

> She was born premature @ 33 wks gestation, due to (possibly) an

> infection I had that was in the placenta and possibly constricted

> her nutrient supply in the womb. This is an off base " diagnosis "

> from my own searching.

>

> As I have stated she talks more now than she has ever had. For a

> long time I thought she would go through her whole life quiet. She

> didn't start putting two words together until she was four, and she

> does a lot of repeating what one says, such as I will say " I love

> Liz " and she will say " I love Liz'

>

> Thank you for having me here, and I hope to come to know each one

of

> you very well, as parents of children who have delays/disabilities

> these times can be hard and trying. We all need a net of support to

> fall into sometimes. I hope I can be one who jumps as well as

> catches.

>

> Thank you

>

[Guest guest]

Hi Amie!

Welcome to the group! It's very nice to meet you! =) I'm sure you'll enjoy

this group, everyone is so kind and very helpful.

-Jenn

Proud Momma of Cory Albert (14yrs ADHD), h Dawn (12yrs Anxiety)

and Jerry Lee " Trey " (9yrs ADHD, Bi-Polar, Asperger's)

-- ( ) Introduction

Hello all!

It looks like this is a new group. I am joining as my daughter is

currently being evaluated for autistic spectrum disorder/Asperger

Syndrome. I am just learning about this disorder, and hoped to gain

some insight as to what may be ahead for us.

Bethany will be 3 in June, was born 12 weeks premature and has been in

Speech Therapy since January for language delay - both through our

medical insurance provider and through Early Intervention. Both

therapists have brought up autistic spectum disorder/Asberger Syndrome

this past week, and she is has been referred to another therapist in a

few weeks regarding this.

Any information will be greatly appreciated, as I am feeling a bit like

a fish out of water at this time.

Amie

[Guest guest]

Welcome to the group! I am Chris.... Mom to Chase who has autism. He also

has SEVERAL siblings LOL

Its a wild wonderful world when you live life on the spectrum.

You will love the group!

For awesome autism gear look HERE!

http://www.cafepress.com/autismawarenes

For fantastic pet gear

http://www.cafepress.com/petloversrus

For Fun Fashion gear look HERE!

http://www.cafepress.com/stronggear

For Fun Animal Activist Gear go HERE!

http://www.cafepress.com/vegetarianrus

and don't forget Ribbons of hope! Show your support

and show your ribbon.

http://www.cafepress.com/ribbonsofhope

-- ( ) Introduction

Hello all!

It looks like this is a new group. I am joining as my daughter is

currently being evaluated for autistic spectrum disorder/Asperger

Syndrome. I am just learning about this disorder, and hoped to gain

some insight as to what may be ahead for us.

Bethany will be 3 in June, was born 12 weeks premature and has been in

Speech Therapy since January for language delay - both through our

medical insurance provider and through Early Intervention. Both

therapists have brought up autistic spectum disorder/Asberger Syndrome

this past week, and she is has been referred to another therapist in a

few weeks regarding this.

Any information will be greatly appreciated, as I am feeling a bit like

a fish out of water at this time.

Amie

[Guest guest]

Welcome Staci!

You will se there are a few parents w/ babies who were banded after 12 months.

There are also a few Nor Cal mommies here too! (I'm So. Cal)

Post pics if you can!

Jen and Luli (15mo)

Left Tort - Right Plagio - Hanger Band Grad - CA

Tallulah Jayne

http://www.babiesonline.com/babies/j/jens5th/

Introduction

Hi there,

My name is Staci and my dd Kaylee just started wearing a starband

yesterday. She is 12 mths old and has a twin brother. Our

pediatrician all along as told us that since her soft spot was soft

that she felt her head would reshape itself. Well it hasn't. We

pressed finally and were sent to a neurological ped in Oakland, CA.

She said it's affecting Kaylee's face as well and wasn't just

cosmetic and felt it required helmet therapy. I've since found out

that we should have done this 6 mths ago when we were told not to

worry about it. Now she will supposedly where it longer and with

less results. We're still willing to try of course. So far she's

responding well to wearing it of course it's only day two and she

hasn't had to sleep in it.

She also has a benign hygroma on the front of her brain and the ped

said this is causing her to have a large off the charts sized head.

Looking at her I just don't see it. But I'm still not 100% what

this is or what it means.

I haven't had a chance to read any of the other threads. I wanted

to introduce myself. I think I rambled some of this I hope it makes

sense.

I also have a 2 year old son who is going for a ctscan on the 9th

because he's always had a large head. So we'll see what they say

about him. Kaylee's twin brother seems to be okay.

Does anyone have a child that is starting or doing the therapy that

is one year like Kaylee?

Thanks for your time,

Staci (Northern California)

Kaylee 3/22/06

AOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com.

[Guest guest]

Welcome Staci!

You will se there are a few parents w/ babies who were banded after 12 months.

There are also a few Nor Cal mommies here too! (I'm So. Cal)

Post pics if you can!

Jen and Luli (15mo)

Left Tort - Right Plagio - Hanger Band Grad - CA

Tallulah Jayne

http://www.babiesonline.com/babies/j/jens5th/

Introduction

Hi there,

My name is Staci and my dd Kaylee just started wearing a starband

yesterday. She is 12 mths old and has a twin brother. Our

pediatrician all along as told us that since her soft spot was soft

that she felt her head would reshape itself. Well it hasn't. We

pressed finally and were sent to a neurological ped in Oakland, CA.

She said it's affecting Kaylee's face as well and wasn't just

cosmetic and felt it required helmet therapy. I've since found out

that we should have done this 6 mths ago when we were told not to

worry about it. Now she will supposedly where it longer and with

less results. We're still willing to try of course. So far she's

responding well to wearing it of course it's only day two and she

hasn't had to sleep in it.

She also has a benign hygroma on the front of her brain and the ped

said this is causing her to have a large off the charts sized head.

Looking at her I just don't see it. But I'm still not 100% what

this is or what it means.

I haven't had a chance to read any of the other threads. I wanted

to introduce myself. I think I rambled some of this I hope it makes

sense.

I also have a 2 year old son who is going for a ctscan on the 9th

because he's always had a large head. So we'll see what they say

about him. Kaylee's twin brother seems to be okay.

Does anyone have a child that is starting or doing the therapy that

is one year like Kaylee?

Thanks for your time,

Staci (Northern California)

Kaylee 3/22/06

AOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com.

[Guest guest]

hi there, my son started his second docband at 12.5 months and had

great correction. i think he got more correction from the second

band than the first. dont be discouraged. you still have time for

correction. good luck.

kelly

>

> Hi there,

>

> My name is Staci and my dd Kaylee just started wearing a starband

> yesterday. She is 12 mths old and has a twin brother. Our

> pediatrician all along as told us that since her soft spot was soft

> that she felt her head would reshape itself. Well it hasn't. We

> pressed finally and were sent to a neurological ped in Oakland,

CA.

> She said it's affecting Kaylee's face as well and wasn't just

> cosmetic and felt it required helmet therapy. I've since found out

> that we should have done this 6 mths ago when we were told not to

> worry about it. Now she will supposedly where it longer and with

> less results. We're still willing to try of course. So far she's

> responding well to wearing it of course it's only day two and she

> hasn't had to sleep in it.

>

> She also has a benign hygroma on the front of her brain and the ped

> said this is causing her to have a large off the charts sized

head.

> Looking at her I just don't see it. But I'm still not 100% what

> this is or what it means.

>

> I haven't had a chance to read any of the other threads. I wanted

> to introduce myself. I think I rambled some of this I hope it

makes

> sense.

>

> I also have a 2 year old son who is going for a ctscan on the 9th

> because he's always had a large head. So we'll see what they say

> about him. Kaylee's twin brother seems to be okay.

>

> Does anyone have a child that is starting or doing the therapy that

> is one year like Kaylee?

>

> Thanks for your time,

> Staci (Northern California)

> Kaylee 3/22/06

>

[Guest guest]

Hi Staci, We are also in Northern California and go to CIRS in Palo Alto.....good luck with the starband, it is a little akward at first, but it does get better. Welcome to the board Mother to , 8 mths, Starbanded 1/11/07, plagio "In the depths of winter, I finally found there was in me an invincible summer."

[Guest guest]

Welcome! Don't worry so much about starting late. My son got his

second band at 12 months and he's still improved considerably - you

just have to wear it longer which is the main downside. (You can

check out the head growth charts in the files section to see the

difference in the rates of growth as they age.) Just don't be

discouraged by all the babies that graduate in 10 or 12 weeks, there

are a few of us 'long timers' out there. My son started off

severe with a very small slow growing head, but we'll finally be

graduating in 5 weeks - after a total of 13.5 months! It seems like

forever that he's been in the band, but it's been well worth it.

Sheila, mom to , 18 months

> >

> > Hi there,

> >

> > My name is Staci and my dd Kaylee just started wearing a

starband

> > yesterday. She is 12 mths old and has a twin brother. Our

> > pediatrician all along as told us that since her soft spot was

soft

> > that she felt her head would reshape itself. Well it hasn't. We

> > pressed finally and were sent to a neurological ped in Oakland,

> CA.

> > She said it's affecting Kaylee's face as well and wasn't just

> > cosmetic and felt it required helmet therapy. I've since found

out

> > that we should have done this 6 mths ago when we were told not

to

> > worry about it. Now she will supposedly where it longer and

with

> > less results. We're still willing to try of course. So far

she's

> > responding well to wearing it of course it's only day two and

she

> > hasn't had to sleep in it.

> >

> > She also has a benign hygroma on the front of her brain and the

ped

> > said this is causing her to have a large off the charts sized

> head.

> > Looking at her I just don't see it. But I'm still not 100% what

> > this is or what it means.

> >

> > I haven't had a chance to read any of the other threads. I

wanted

> > to introduce myself. I think I rambled some of this I hope it

> makes

> > sense.

> >

> > I also have a 2 year old son who is going for a ctscan on the

9th

> > because he's always had a large head. So we'll see what they

say

> > about him. Kaylee's twin brother seems to be okay.

> >

> > Does anyone have a child that is starting or doing the therapy

that

> > is one year like Kaylee?

> >

> > Thanks for your time,

> > Staci (Northern California)

> > Kaylee 3/22/06

> >

>

[Guest guest]

Hi Staci -

Welcome to the group :>) While 12 months is on the older side of getting a

band you can still get some good correction. Don't beat yourself up about

it; just be glad that you're still able to do something about it. I imagine

you are going to CIRS in Oakland for your band? That is where my son got

his band and we had great results.

Molly

Novato, California

Nicolas, 17.5 months, tort & plagio, STARband 4/25/06-9/12/06, Graduate!

, 4

, 7

Introduction

Hi there,

My name is Staci and my dd Kaylee just started wearing a starband

yesterday. She is 12 mths old and has a twin brother. Our

pediatrician all along as told us that since her soft spot was soft

that she felt her head would reshape itself. Well it hasn't. We

pressed finally and were sent to a neurological ped in Oakland, CA.

She said it's affecting Kaylee's face as well and wasn't just

cosmetic and felt it required helmet therapy. I've since found out

that we should have done this 6 mths ago when we were told not to

worry about it. Now she will supposedly where it longer and with

less results. We're still willing to try of course. So far she's

responding well to wearing it of course it's only day two and she

hasn't had to sleep in it.

She also has a benign hygroma on the front of her brain and the ped

said this is causing her to have a large off the charts sized head.

Looking at her I just don't see it. But I'm still not 100% what

this is or what it means.

I haven't had a chance to read any of the other threads. I wanted

to introduce myself. I think I rambled some of this I hope it makes

sense.

I also have a 2 year old son who is going for a ctscan on the 9th

because he's always had a large head. So we'll see what they say

about him. Kaylee's twin brother seems to be okay.

Does anyone have a child that is starting or doing the therapy that

is one year like Kaylee?

Thanks for your time,

Staci (Northern California)

Kaylee 3/22/06

For more plagio info

[Guest guest]

Hi All,

Thanks so much for the welcomes and making me feel better about

Kaylee starting so late. I need to do a lot of reading posts and

checking things out. I appreciate you all allowing me to be a part

of your group.

we go to CIRS in Oakland. We're from are you close at

all???

Thanks Again,

Staci (Northern California)

Kaylee 3/22/06 starband started 3/26/07

3/22/06

Seth 12/7/04

>

> Hi Staci,

>

> We are also in Northern California and go to CIRS in Palo

Alto.....good luck with the starband, it is a little akward at

first, but it does get better.

>

> Welcome to the board

>

> Mother to , 8 mths, Starbanded 1/11/07, plagio

>

>

>

>

> " In the depths of winter, I finally found there was in

me an invincible summer. "

>

[Guest guest]

Hi All,

Thanks so much for the welcomes and making me feel better about

Kaylee starting so late. I need to do a lot of reading posts and

checking things out. I appreciate you all allowing me to be a part

of your group.

we go to CIRS in Oakland. We're from are you close at

all???

Thanks Again,

Staci (Northern California)

Kaylee 3/22/06 starband started 3/26/07

3/22/06

Seth 12/7/04

>

> Hi Staci,

>

> We are also in Northern California and go to CIRS in Palo

Alto.....good luck with the starband, it is a little akward at

first, but it does get better.

>

> Welcome to the board

>

> Mother to , 8 mths, Starbanded 1/11/07, plagio

>

>

>

>

> " In the depths of winter, I finally found there was in

me an invincible summer. "

>

[Guest guest]

Hi All,

Thanks so much for the welcomes and making me feel better about

Kaylee starting so late. I need to do a lot of reading posts and

checking things out. I appreciate you all allowing me to be a part

of your group.

we go to CIRS in Oakland. We're from are you close at

all???

Thanks Again,

Staci (Northern California)

Kaylee 3/22/06 starband started 3/26/07

3/22/06

Seth 12/7/04

>

> Hi Staci,

>

> We are also in Northern California and go to CIRS in Palo

Alto.....good luck with the starband, it is a little akward at

first, but it does get better.

>

> Welcome to the board

>

> Mother to , 8 mths, Starbanded 1/11/07, plagio

>

>

>

>

> " In the depths of winter, I finally found there was in

me an invincible summer. "

>

[Guest guest]

Hi All,

Thanks so much for the welcomes and making me feel better about

Kaylee starting so late. I need to do a lot of reading posts and

checking things out. I appreciate you all allowing me to be a part

of your group.

we go to CIRS in Oakland. We're from are you close at

all???

Thanks Again,

Staci (Northern California)

Kaylee 3/22/06 starband started 3/26/07

3/22/06

Seth 12/7/04

>

> Hi Staci,

>

> We are also in Northern California and go to CIRS in Palo

Alto.....good luck with the starband, it is a little akward at

first, but it does get better.

>

> Welcome to the board

>

> Mother to , 8 mths, Starbanded 1/11/07, plagio

>

>

>

>

> " In the depths of winter, I finally found there was in

me an invincible summer. "

>

[Guest guest]

Hi All,

Thanks so much for the welcomes and making me feel better about

Kaylee starting so late. I need to do a lot of reading posts and

checking things out. I appreciate you all allowing me to be a part

of your group.

we go to CIRS in Oakland. We're from are you close at

all???

Thanks Again,

Staci (Northern California)

Kaylee 3/22/06 starband started 3/26/07

3/22/06

Seth 12/7/04

>

> Hi Staci,

>

> We are also in Northern California and go to CIRS in Palo

Alto.....good luck with the starband, it is a little akward at

first, but it does get better.

>

> Welcome to the board

>

> Mother to , 8 mths, Starbanded 1/11/07, plagio

>

>

>

>

> " In the depths of winter, I finally found there was in

me an invincible summer. "

>

[Guest guest]

Hi All,

Thanks so much for the welcomes and making me feel better about

Kaylee starting so late. I need to do a lot of reading posts and

checking things out. I appreciate you all allowing me to be a part

of your group.

we go to CIRS in Oakland. We're from are you close at

all???

Thanks Again,

Staci (Northern California)

Kaylee 3/22/06 starband started 3/26/07

3/22/06

Seth 12/7/04

>

> Hi Staci,

>

> We are also in Northern California and go to CIRS in Palo

Alto.....good luck with the starband, it is a little akward at

first, but it does get better.

>

> Welcome to the board

>

> Mother to , 8 mths, Starbanded 1/11/07, plagio

>

>

>

>

> " In the depths of winter, I finally found there was in

me an invincible summer. "

>

[Guest guest]

Hi All,

Thanks so much for the welcomes and making me feel better about

Kaylee starting so late. I need to do a lot of reading posts and

checking things out. I appreciate you all allowing me to be a part

of your group.

we go to CIRS in Oakland. We're from are you close at

all???

Thanks Again,

Staci (Northern California)

Kaylee 3/22/06 starband started 3/26/07

3/22/06

Seth 12/7/04

>

> Hi Staci,

>

> We are also in Northern California and go to CIRS in Palo

Alto.....good luck with the starband, it is a little akward at

first, but it does get better.

>

> Welcome to the board

>

> Mother to , 8 mths, Starbanded 1/11/07, plagio

>

>

>

>

> " In the depths of winter, I finally found there was in

me an invincible summer. "

>

[Guest guest]

Hi All,

Thanks so much for the welcomes and making me feel better about

Kaylee starting so late. I need to do a lot of reading posts and

checking things out. I appreciate you all allowing me to be a part

of your group.

we go to CIRS in Oakland. We're from are you close at

all???

Thanks Again,

Staci (Northern California)

Kaylee 3/22/06 starband started 3/26/07

3/22/06

Seth 12/7/04

>

> Hi Staci,

>

> We are also in Northern California and go to CIRS in Palo

Alto.....good luck with the starband, it is a little akward at

first, but it does get better.

>

> Welcome to the board

>

> Mother to , 8 mths, Starbanded 1/11/07, plagio

>

>

>

>

> " In the depths of winter, I finally found there was in

me an invincible summer. "

>

[Guest guest]

Hi All,

Thanks so much for the welcomes and making me feel better about

Kaylee starting so late. I need to do a lot of reading posts and

checking things out. I appreciate you all allowing me to be a part

of your group.

we go to CIRS in Oakland. We're from are you close at

all???

Thanks Again,

Staci (Northern California)

Kaylee 3/22/06 starband started 3/26/07

3/22/06

Seth 12/7/04

>

> Hi Staci,

>

> We are also in Northern California and go to CIRS in Palo

Alto.....good luck with the starband, it is a little akward at

first, but it does get better.

>

> Welcome to the board

>

> Mother to , 8 mths, Starbanded 1/11/07, plagio

>

>

>

>

> " In the depths of winter, I finally found there was in

me an invincible summer. "

>

[Guest guest]

Hi All,

Thanks so much for the welcomes and making me feel better about

Kaylee starting so late. I need to do a lot of reading posts and

checking things out. I appreciate you all allowing me to be a part

of your group.

we go to CIRS in Oakland. We're from are you close at

all???

Thanks Again,

Staci (Northern California)

Kaylee 3/22/06 starband started 3/26/07

3/22/06

Seth 12/7/04

>

> Hi Staci,

>

> We are also in Northern California and go to CIRS in Palo

Alto.....good luck with the starband, it is a little akward at

first, but it does get better.

>

> Welcome to the board

>

> Mother to , 8 mths, Starbanded 1/11/07, plagio

>

>

>

>

> " In the depths of winter, I finally found there was in

me an invincible summer. "

>

[Guest guest]

--- I live near Athens,Texas. My son is being sent to Childrens in

Dallas for hydrocephalus. Any ideas on what I'm going to face? He's

already had a CT scan showing enlarged 3rd and lateral ventricles.

Thanks

Misty

[Guest guest]

Hi P,

Welcome aboard.

S S

<p>Hi,<br>

<br>

I'm a sahm to 12yog, 17yob, 20yog, 22yog (the eldest are out of the<br>

house now and living on their own). We are lifelong homeschoolers and<br>

natural health advocates. We have no family members with autism,<br>

autism spectrum or any ND. <br>

<br>

I stumbled upon your group while doing research to send a complaint to<br>

ABC about their Nightline segment on the Autism/Mercury and current<br>

court procedings segment. I was looking for the lcoation of the info<br>

about Thermerosol in vaccines and found some great articles. I also<br>

found the info for which I was looking, but stumbled upon this message<br>

board on the way. <br>

<br>

I've been interested in autism since the late 1970s when I did a<br>

reserach paper about autism for a high school class. I don't recall<br>

how I stumbled across autism for the topic of the paper, but have been<br>

interested ever since. There is so much more, and more reliable,<br>

information now than was available to me in the 70s. I met a family<br>

with an autisitc child while my children were in pre-school with the<br>

child. It seems to have always been in my path, and moreso now with<br>

the exploding number of cases. I'm happy to have found this board<br>

since there was so much new, including the use of chelation, that I<br>

hadn't heard about. Though I don't expect to post much, I hope to be<br>

kept up to date on the latest news and info so I can help in any way<br>

with the cause (letters to editors, politicians, etc.). <br>

<br>

I do beleive that vaccinations are a large contributing factor if not<br>

sole source of autism. We did vaccinate our children incompletely,<br>

and stopped at a point when our youngest was receiving routine<br>

childhood vax. The advent of the internet made accessing information<br>

so much easier, and what we learned was so contrary to what our<br>

doctors had told us that now we refuse all vaccines on many grounds.<br>

<br>

I look forward to my stay and the information here.<br>

P. <br>

<br>

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Kids can have an IEP without being behind in school. You need to request a complete educational evaluation and then have a meeting to qualify him for an IEP. They should be helping to address the CAPD and the pragamatic language. They should be helping him with the organizational skills as well.

RoxannaAutism Happens

( ) Introduction

Hi,

My name is Terri and I joined this group for help and support with my son, , age 11 (6th grade - still elementary school here).

The thing is that doesn't officially have a dx of AS. About 5 years ago, a friend of mine with a Masters in social work suggested that he may have AS. A year later after watching him, I agreed and took him in for evaluations. So, at age 7, this lady (who never talked to my friend or his teachers or anyone really) "decided" that he didn't have AS and that he had AD/HD and tried to explain away all of his aspie behaviors AND in her report even had the DSM-IV criteria wrong. But, there wasn't much I could do. So, I kind of ignored it and went on trying to deal with each behavior as it occured.

Fast forward to 4th grade - they do an IEP eval on him, but can't help him because he's not behind in school. We do a auditory processing evaluation on him and it comes up positive. So, now we have CAPD and AD/HD. Then, last yr in 5th, he was just having so many problems. He wasn't listening during class time - he spent many days drawing comics during class time. He often had no idea what was even going on or what he was even supposed to be doing. So, I take him to an nurse practitioner at his peds office who has experience with devel/behavior issues. She thinks is ADHD too and we try focalin - it helps but depresses him. Then we try adderal - it's okay - but after he gets weaned off seizure meds (over 2 years seizure free - yippee!), it causes anger problems. Then, we go back and she decides to have me do the AS dx scale worksheet. We talk for a while and she thinks he has AS, but doesn't write it on his health impairment form for the school district. So, I can't adjust his 504 to be address more AS issues than ADHD ones. They want to treat it like garden variety ADHD and that is just not the case. (Oh and the prag lang test came out significantly delayed this time)

But here is where it gets even stickier - I'm worried that we may be blowing things out of proportion and he doesn't really have AS, but is just aspergerISH. I go back and forth on this a lot.

First, he has all of the cognitive characteristics of AS, most of the social, but not as many in language. He does take things literally at times, but understands cliches and idioms and even sarcasm sometimes (but you have to be obvious about it). He speaks very quietly and will sometimes have long conversations about a topic, but he just isn't like that...he won't tell people at length about dinosaurs or stick arena or whatever - he's more the type that will just walk away and not say anything.

Also, he was obsessed with dinosaurs most of his childhood, but is now growing out of them. He plays either Stick Arena or Line Rider on his computer ALL the time if allowed. Is that the new obsession? It isn't something he amasses info about. Although, he does still love to read non-fiction books about gross stuff mostly. So that problem has waned a bit. Another thing he's doing great with is that he is actually playing football at recess. This is HUGE for him. But this is helped by the fact that he has been with the same kids in class since Kindy and they know him and have helped teach him the game this year.

OTOH, he's still has trouble with organization (he doesn't have any), a rigid adherence to his agenda - very linear thinking, total frustration with himself if he makes a little mistake, eye contact problems, personal space issues, other boundry issues, like not taking your pants off in the living room when we have company. Rote memory is a huge strength for him.

So, am I in the right place here? I'm mostly concerned about next year in 7th grade (first year of ms for us) and I'm not sure what kind of accomodations to put in his 504. I know some I want already:

1) extra time for passing without being counted tardy and getting detentions

2) pod or team that has all homework assignments available online so that if he does forget to write down homework or does it wrong, I'll have the assignment.

3) Placement in the study skills class for the first semester of 7th.

4) Preferential seating near the front of the class.

I am not sure if I should ask for less homework or not. His provider suggested it.

What else?

I should also tell you that is a triplet - he has 2 sisters his age. One of them will be attending a school of dyslexic kids next year and the other will be in the same middle school, but she will likely be in gifted classes, so this will be the first time he's "on his own" without his sisters there to make sure the homework is written down or them to make sure he has everything, etc. (Not that they always do - but there are times that having two sisters has saved him.)

Thanks for reading

Terri, mom of (CAPD, possible AS AD/HD), Grace (NT, over-acheiver) and Emma (moderately dyslexic) age 11.5