Guest guest Posted August 11, 2009 Report Share Posted August 11, 2009 I will be going to the one in Santa Clara. I guess they are the only one that has a plastic surgery department in the bay area? I will look to see if we have DME coverage. We are prepared that it will not be covered, but if it does, there will be no reason for us not to go through this process. Part of me keep wondering if it's really necessary to put her in a helmet. I don't know how much she'd hate it. I think mostly I don't know if I can handle the criticism, looks and stares from other people. I have a really flat head myself and I hate it, so this is why we're doing this. I'll be coming here a lot for support and questions!! Thanks a bunch Miriam > > Hi Miriam - > > Welcome to the group! Which Kaiser are you going to? We have Kaiser in > Northern California and our band was partially covered. What you need to > find out is what, if any, Durable Medical Equipment (DME) coverage you have. > The specific Kaiser plan we have covers DME at 80% so we paid for 20% of the > cost of the band. I have other friends with Kaiser insurance and their > plans covered 100% of the cost. The band is considered DME so if you have > DME coverage the band will be covered. > > Molly > Novato, California > Nicolas, 3.5, tort & plagio, STARband (CIRS Oakland) 4/24/06-9/12/06, > Graduate! > , 6.5 > , 9.5 > > Introduction > > Hi everyone, > > I will admit that I have not looked through any of the messages from the > group yet but I just want to come in and do a quick introduction. I just > joined this group after reading a blog regarding DOC bands. I'm taking my 8 > months old (today!) daughter to the plastic surgeon tomorrow to have her > head evaluated. > > My daughter's head is flat as a board on the back of her head. According to > the pedi there's no asymmetry. > > We have Kaiser for our insurance (I pay out of pocket for an individual plan > for her and myself). I've heard that this is most likely not going to be > covered by insurance, but does anyone have any luck? > > I hope to learn a lot from all of you! > > Miriam > > > > ------------------------------------ > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2009 Report Share Posted August 12, 2009 You must be going to see Dr. Menard in Santa Clara. He's a great guy and we really liked him! We also saw a plastic surgeon at the Kaiser in Richmond, Dr. Le. We didn't like him nearly as much as Dr. Menard. I think that Dr. Menard will give you a very honest assessment of your daughter's head. I know several people who saw the same doctor for an evaluation and in their cases he recommended not to get the band. This makes me feel that he doesn't automatically recommend banding every child with plagio. If he does recommend a band he will probably refer you to Centre for Independent Rehabilitative Services (CIRS) in Oakland or Palo Alto, depending upon where you live. We went to the Oakland office and had a great experience there and had good results. Most children don't mind wearing the band. It may take a couple of days to adjust to it but once over that period it gets easier. My son actually hated having his band off during our 1 hour break and couldn't wait to get it back on. As for the criticism, I can honestly say that no one ever criticised me or my son while he was in his band. Sure there were looks and stares, but all of it just seemed to be out of curiosity and nothing that was blatantly rude. When people did ask questions about the band I took the opportunity to educate them and explain what plagio was and how the band was helping it. Molly Novato, California Nicolas, 3.5, tort & plagio, STARband (CIRS Oakland) 4/24/06-9/12/06, Graduate! , 6.5 , 9.5 Introduction > > Hi everyone, > > I will admit that I have not looked through any of the messages from the > group yet but I just want to come in and do a quick introduction. I just > joined this group after reading a blog regarding DOC bands. I'm taking my 8 > months old (today!) daughter to the plastic surgeon tomorrow to have her > head evaluated. > > My daughter's head is flat as a board on the back of her head. According to > the pedi there's no asymmetry. > > We have Kaiser for our insurance (I pay out of pocket for an individual plan > for her and myself). I've heard that this is most likely not going to be > covered by insurance, but does anyone have any luck? > > I hope to learn a lot from all of you! > > Miriam > > > > ------------------------------------ > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2009 Report Share Posted August 12, 2009 We have our Starband through Bob at CIRS in Palo Alto. The place came highly recommended to us and we are very happy. Kathy, mom to 14.5 months, Starband since 12 months for plagio Foley, Molly wrote: You must be going to see Dr. Menard in Santa Clara. He's a great guy and we really liked him! We also saw a plastic surgeon at the Kaiser in Richmond, Dr. Le. We didn't like him nearly as much as Dr. Menard. I think that Dr. Menard will give you a very honest assessment of your daughter's head. I know several people who saw the same doctor for an evaluation and in their cases he recommended not to get the band. This makes me feel that he doesn't automatically recommend banding every child with plagio. If he does recommend a band he will probably refer you to Centre for Independent Rehabilitative Services (CIRS) in Oakland or Palo Alto, depending upon where you live. We went to the Oakland office and had a great experience there and had good results. Most children don't mind wearing the band. It may take a couple of days to adjust to it but once over that period it gets easier. My son actually hated having his band off during our 1 hour break and couldn't wait to get it back on. As for the criticism, I can honestly say that no one ever criticised me or my son while he was in his band. Sure there were looks and stares, but all of it just seemed to be out of curiosity and nothing that was blatantly rude. When people did ask questions about the band I took the opportunity to educate them and explain what plagio was and how the band was helping it. Molly Novato, California Nicolas, 3.5, tort & plagio, STARband (CIRS Oakland) 4/24/06-9/12/06, Graduate! , 6.5 , 9.5 Introduction > > Hi everyone, > > I will admit that I have not looked through any of the messages from the > group yet but I just want to come in and do a quick introduction. I just > joined this group after reading a blog regarding DOC bands. I'm taking my 8 > months old (today!) daughter to the plastic surgeon tomorrow to have her > head evaluated. > > My daughter's head is flat as a board on the back of her head. According to > the pedi there's no asymmetry. > > We have Kaiser for our insurance (I pay out of pocket for an individual plan > for her and myself). I've heard that this is most likely not going to be > covered by insurance, but does anyone have any luck? > > I hope to learn a lot from all of you! > > Miriam > > > > ------------------------------------ > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2009 Report Share Posted August 12, 2009 Hi Mirium, we had Kaiser in Northern Cal too and saw Dr Menard in Santa Clara, then got a starband at CIRS in Palo Alto. My daughter had brachy with very little asymmetry, and got a lot of correction from her band. You can see before and after pictures in the photos section uner Our Plagio Babies S/Sydney M if you're interested. Good luck and let us know how it goes. -christine sydney, 3.5 yrs, starband grad > > > > Hi Miriam - > > > > Welcome to the group! Which Kaiser are you going to? We have Kaiser in > > Northern California and our band was partially covered. What you need to > > find out is what, if any, Durable Medical Equipment (DME) coverage you have. > > The specific Kaiser plan we have covers DME at 80% so we paid for 20% of the > > cost of the band. I have other friends with Kaiser insurance and their > > plans covered 100% of the cost. The band is considered DME so if you have > > DME coverage the band will be covered. > > > > Molly > > Novato, California > > Nicolas, 3.5, tort & plagio, STARband (CIRS Oakland) 4/24/06-9/12/06, > > Graduate! > > , 6.5 > > , 9.5 > > > > Introduction > > > > Hi everyone, > > > > I will admit that I have not looked through any of the messages from the > > group yet but I just want to come in and do a quick introduction. I just > > joined this group after reading a blog regarding DOC bands. I'm taking my 8 > > months old (today!) daughter to the plastic surgeon tomorrow to have her > > head evaluated. > > > > My daughter's head is flat as a board on the back of her head. According to > > the pedi there's no asymmetry. > > > > We have Kaiser for our insurance (I pay out of pocket for an individual plan > > for her and myself). I've heard that this is most likely not going to be > > covered by insurance, but does anyone have any luck? > > > > I hope to learn a lot from all of you! > > > > Miriam > > > > > > > > ------------------------------------ > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2009 Report Share Posted August 12, 2009 Kathy, We had an initial scan with Bob 2 weeks ago. We will go back next week and see if we can get a better scan and make a final decision about the band. I like Bob and I'm glad to hear that you do too. By the way, our baby is too! Diane mom to - 6 months On Wednesday, August 12, 2009, at 09:35AM, "Kathy Jensen" <kathylorajensen@...> wrote: > We have our Starband through Bob at CIRS in Palo Alto. The place came highly recommended to us and we are very happy. Kathy, mom to 14.5 months, Starband since 12 months for plagio Foley, Molly wrote: You must be going to see Dr. Menard in Santa Clara. He's a great guy and we really liked him! We also saw a plastic surgeon at the Kaiser in Richmond, Dr. Le. We didn't like him nearly as much as Dr. Menard. I think that Dr. Menard will give you a very honest assessment of your daughter's head. I know several people who saw the same doctor for an evaluation and in their cases he recommended not to get the band. This makes me feel that he doesn't automatically recommend banding every child with plagio. If he does recommend a band he will probably refer you to Centre for Independent Rehabilitative Services (CIRS) in Oakland or Palo Alto, depending upon where you live. We went to the Oakland office and had a great experience there and had good results. Most children don't mind wearing the band. It may take a couple of days to adjust to it but once over that period it gets easier. My son actually hated having his band off during our 1 hour break and couldn't wait to get it back on. As for the criticism, I can honestly say that no one ever criticised me or my son while he was in his band. Sure there were looks and stares, but all of it just seemed to be out of curiosity and nothing that was blatantly rude. When people did ask questions about the band I took the opportunity to educate them and explain what plagio was and how the band was helping it. Molly Novato, California Nicolas, 3.5, tort & plagio, STARband (CIRS Oakland) 4/24/06-9/12/06, Graduate! , 6.5 , 9.5 Introduction > > Hi everyone, > > I will admit that I have not looked through any of the messages from the > group yet but I just want to come in and do a quick introduction. I just > joined this group after reading a blog regarding DOC bands. I'm taking my 8 > months old (today!) daughter to the plastic surgeon tomorrow to have her > head evaluated. > > My daughter's head is flat as a board on the back of her head. According to > the pedi there's no asymmetry. > > We have Kaiser for our insurance (I pay out of pocket for an individual plan > for her and myself). I've heard that this is most likely not going to be > covered by insurance, but does anyone have any luck? > > I hope to learn a lot from all of you! > > Miriam > > > > ------------------------------------ > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2009 Report Share Posted August 12, 2009 So we saw Dr. Menard today. He said Selina (my daughter) doesn't need a helmet. She has slight flattening on the left back side, but when he measured her (doing that criss cross measurement), she was only off by 5mm. I think he said in his lecture that helmet is needing when the difference is 15mm or more? So I was still concerned about her flat head, on the back of her head, but he just kept telling me the helmet won't make much of a difference. He measured her anyways, and the front to back measurement is about 2cm longer than the side to side, so he said there's definitely not need for a helmet. So what am I supposed to do with the flat head? He said to try and position her more on her right side so her left side doesn't get more flat, but what about the back? Every time I show someone they'll tell me " yeah that's pretty flat " . But all 3 of the doctors told me today that she's fine? Sigh... If Dr. Menard is already the expert, where do I go for a different opinion? > > > > > > Hi Miriam - > > > > > > Welcome to the group! Which Kaiser are you going to? We have Kaiser in > > > Northern California and our band was partially covered. What you need to > > > find out is what, if any, Durable Medical Equipment (DME) coverage you have. > > > The specific Kaiser plan we have covers DME at 80% so we paid for 20% of the > > > cost of the band. I have other friends with Kaiser insurance and their > > > plans covered 100% of the cost. The band is considered DME so if you have > > > DME coverage the band will be covered. > > > > > > Molly > > > Novato, California > > > Nicolas, 3.5, tort & plagio, STARband (CIRS Oakland) 4/24/06-9/12/06, > > > Graduate! > > > , 6.5 > > > , 9.5 > > > > > > Introduction > > > > > > Hi everyone, > > > > > > I will admit that I have not looked through any of the messages from the > > > group yet but I just want to come in and do a quick introduction. I just > > > joined this group after reading a blog regarding DOC bands. I'm taking my 8 > > > months old (today!) daughter to the plastic surgeon tomorrow to have her > > > head evaluated. > > > > > > My daughter's head is flat as a board on the back of her head. According to > > > the pedi there's no asymmetry. > > > > > > We have Kaiser for our insurance (I pay out of pocket for an individual plan > > > for her and myself). I've heard that this is most likely not going to be > > > covered by insurance, but does anyone have any luck? > > > > > > I hope to learn a lot from all of you! > > > > > > Miriam > > > > > > > > > > > > ------------------------------------ > > > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2009 Report Share Posted August 13, 2009 Miriam, If you are still worried about the shape of your daughter's head, then keep seeking answers. If there is a CT location near you, they do free evaluations. Also, the Orthomerica we went to to get Maysa measured did an initial eval for $75. It was all worth it. Have you thought about getting a sleepcurve mattress? There was a parent here not long ago who got that for her son as opposed to getting a band/helmet and whose son't head improved. I haven't heard from her in a while but you can do a search and find out more. Leila,Maysa, 18.5 mo, DOC band Grad 5.26.09 www.mymaysa.wordpress.com From: miriamsumner <miriamsumner@...>Subject: Re: IntroductionPlagiocephaly Date: Thursday, August 13, 2009, 1:06 AM So we saw Dr. Menard today. He said Selina (my daughter) doesn't need a helmet. She has slight flattening on the left back side, but when he measured her (doing that criss cross measurement) , she was only off by 5mm. I think he said in his lecture that helmet is needing when the difference is 15mm or more?So I was still concerned about her flat head, on the back of her head, but he just kept telling me the helmet won't make much of a difference. He measured her anyways, and the front to back measurement is about 2cm longer than the side to side, so he said there's definitely not need for a helmet.So what am I supposed to do with the flat head? He said to try and position her more on her right side so her left side doesn't get more flat, but what about the back? Every time I show someone they'll tell me "yeah that's pretty flat". But all 3 of the doctors told me today that she's fine? Sigh...If Dr. Menard is already the expert, where do I go for a different opinion?> > >> > > Hi Miriam -> > > > > > Welcome to the group! Which Kaiser are you going to? We have Kaiser in> > > Northern California and our band was partially covered. What you need to> > > find out is what, if any, Durable Medical Equipment (DME) coverage you have.> > > The specific Kaiser plan we have covers DME at 80% so we paid for 20% of the> > > cost of the band. I have other friends with Kaiser insurance and their> > > plans covered 100% of the cost. The band is considered DME so if you have> > > DME coverage the band will be covered.> > > > > > Molly> > > Novato, California> > > Nicolas, 3.5, tort & plagio, STARband (CIRS Oakland) 4/24/06-9/12/ 06,> > > Graduate!> > > , 6.5> > > , 9.5> > > > > > Introduction> > > > > > Hi everyone,> > > > > > I will admit that I have not looked through any of the messages from the> > > group yet but I just want to come in and do a quick introduction. I just> > > joined this group after reading a blog regarding DOC bands. I'm taking my 8> > > months old (today!) daughter to the plastic surgeon tomorrow to have her> > > head evaluated.> > > > > > My daughter's head is flat as a board on the back of her head. According to> > > the pedi there's no asymmetry.> > > > > > We have Kaiser for our insurance (I pay out of pocket for an individual plan> > > for her and myself). I've heard that this is most likely not going to be> > > covered by insurance, but does anyone have any luck?> > > > > > I hope to learn a lot from all of you!> > > > > > Miriam> > > > > > > > > > > > ------------ --------- --------- ------> > > > > > For more plagio info, go to www.plagiocephaly. org/support > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2009 Report Share Posted August 13, 2009 Hi Miriam, We also saw Dr. Menard not long ago (our daughter was 3 months old then). He measured 5mm asymmetry and advised against a helmet. However, he still gave us a prescription to visit CIRS for evaluation in a month (at the 4 month mark), and when we did they measured 12mm asymmetry and 88% CI via STARScanner. So we're going ahead with the helmet (actually have a fitting appointment for it today). Our case is complicated by torticollis, which makes sleep positioning practically impossible, so for us the helmet felt like the right choice. Torticollis (and her age) is probably why Dr. Menard gave us prescription to CIRS in the first place. For your daighter's age the chance of regression is probably small. But for your peace of mind, you can still try eMailing Dr. Menard and ask for evaluation at CIRS. If he refuses, I heard you can go to CIRS and do the eval out of your own pocket ($150?). Then at least you'll have hard data to talk to the doctors if you want to further pursue the helmet route. Good luck, Stan > > > > > > > > Hi Miriam - > > > > > > > > Welcome to the group! Which Kaiser are you going to? We have Kaiser in > > > > Northern California and our band was partially covered. What you need to > > > > find out is what, if any, Durable Medical Equipment (DME) coverage you have. > > > > The specific Kaiser plan we have covers DME at 80% so we paid for 20% of the > > > > cost of the band. I have other friends with Kaiser insurance and their > > > > plans covered 100% of the cost. The band is considered DME so if you have > > > > DME coverage the band will be covered. > > > > > > > > Molly > > > > Novato, California > > > > Nicolas, 3.5, tort & plagio, STARband (CIRS Oakland) 4/24/06-9/12/06, > > > > Graduate! > > > > , 6.5 > > > > , 9.5 > > > > > > > > Introduction > > > > > > > > Hi everyone, > > > > > > > > I will admit that I have not looked through any of the messages from the > > > > group yet but I just want to come in and do a quick introduction. I just > > > > joined this group after reading a blog regarding DOC bands. I'm taking my 8 > > > > months old (today!) daughter to the plastic surgeon tomorrow to have her > > > > head evaluated. > > > > > > > > My daughter's head is flat as a board on the back of her head. According to > > > > the pedi there's no asymmetry. > > > > > > > > We have Kaiser for our insurance (I pay out of pocket for an individual plan > > > > for her and myself). I've heard that this is most likely not going to be > > > > covered by insurance, but does anyone have any luck? > > > > > > > > I hope to learn a lot from all of you! > > > > > > > > Miriam > > > > > > > > > > > > > > > > ------------------------------------ > > > > > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2009 Report Share Posted August 13, 2009 That is correct, you can go to CIRS for an evaluation even if you don't have a prescription for the band and the cost is $150. If you decide to band the cost is waived. If the results are significant you can ask CIRS to send them to Dr. Menard and then you can follow up with him to ask for a prescription if you do decide you want to get a band. We went to CIRS for an evaluation before we saw Dr. Menard and he confirmed the recommendation that they gave us. Which CIRS will you be going to? Molly Novato, California Nicolas, 3.5, tort & plagio, STARband (CIRS Oakland) 4/24/06-9/12/06, Graduate! , 6 , 9.5 Introduction > > > > > > > > Hi everyone, > > > > > > > > I will admit that I have not looked through any of the messages from the > > > > group yet but I just want to come in and do a quick introduction. I just > > > > joined this group after reading a blog regarding DOC bands. I'm taking my 8 > > > > months old (today!) daughter to the plastic surgeon tomorrow to have her > > > > head evaluated. > > > > > > > > My daughter's head is flat as a board on the back of her head. According to > > > > the pedi there's no asymmetry. > > > > > > > > We have Kaiser for our insurance (I pay out of pocket for an individual plan > > > > for her and myself). I've heard that this is most likely not going to be > > > > covered by insurance, but does anyone have any luck? > > > > > > > > I hope to learn a lot from all of you! > > > > > > > > Miriam > > > > > > > > > > > > > > > > ------------------------------------ > > > > > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2009 Report Share Posted August 13, 2009 The bands will round the head all over. The scan or casting that you get of the head is what they use to make the helmet. Each band is custom made for your child's head. The areas of the head where they don't want anymore growth the helmet puts slight pressure on. There will be areas in the band that will be open to allow for the head to grow into those areas.The pressure redirects the growth to the areas that need to fill out. ie. the back of your daughters head. That's what my son has. He didn't have asymmetry, just the back of his head was very flat. This is called brachycephaly. go to www.cranialtech.com they have a lot of good info about head shape.I apologize if I gave you any information that you already know. From: miriamsumner <miriamsumner@...>Plagiocephaly Sent: Thursday, August 13, 2009 3:36:59 PMSubject: Re: Introduction I will probably go to the one in Oakland.If I have a script, can I go to CIRS and see if they recommend it? Can I go there and then decide to not get the band, no charge? Or I will have to pay the $150. I guess that's a question I should ask CIRS.Are the bands only good for rounding the head from the top view? Selina's head looks pretty round from the top view, but when you look at her from the side, it just drops straight down to the neck.Where can I post a picture? I'd love to show everyone for an informal "diagnostic" .> > > > >> > > > > Hi Miriam -> > > > > > > > > > Welcome to the group! Which Kaiser are you going to? We have> Kaiser in> > > > > Northern California and our band was partially covered. What you> need to> > > > > find out is what, if any, Durable Medical Equipment (DME) coverage> you have.> > > > > The specific Kaiser plan we have covers DME at 80% so we paid for> 20% of the> > > > > cost of the band. I have other friends with Kaiser insurance and> their> > > > > plans covered 100% of the cost. The band is considered DME so if> you have> > > > > DME coverage the band will be covered.> > > > > > > > > > Molly> > > > > Novato, California> > > > > Nicolas, 3.5, tort & plagio, STARband (CIRS Oakland)> 4/24/06-9/12/ 06,> > > > > Graduate!> > > > > , 6.5> > > > > , 9.5> > > > > > > > > > Introduction> > > > > > > > > > Hi everyone,> > > > > > > > > > I will admit that I have not looked through any of the messages from> the> > > > > group yet but I just want to come in and do a quick introduction. I> just> > > > > joined this group after reading a blog regarding DOC bands. I'm> taking my 8> > > > > months old (today!) daughter to the plastic surgeon tomorrow to have> her> > > > > head evaluated.> > > > > > > > > > My daughter's head is flat as a board on the back of her head.> According to> > > > > the pedi there's no asymmetry.> > > > > > > > > > We have Kaiser for our insurance (I pay out of pocket for an> individual plan> > > > > for her and myself). I've heard that this is most likely not going> to be> > > > > covered by insurance, but does anyone have any luck?> > > > > > > > > > I hope to learn a lot from all of you!> > > > > > > > > > Miriam> > > > > > > > > > > > > > > > > > > > ------------ --------- --------- ------> > > > > > > > > > For more plagio info, go to www.plagiocephaly. org/support > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2009 Report Share Posted August 14, 2009 I can't answer your first question but although Maysa didn't wear a STARband, the DOC bands she wore improved her profile significantly from the neck to the top of her head. You can look at her pictures here: http://mymaysa.wordpress.com/2009/05/28/maysas-right-profile/. I am sure most other bands work the same way. Leila,Maysa, 19 mo, DOC band Grad 5.26.09 www.mymaysa.wodpress.com From: miriamsumner <miriamsumner@...>Subject: Re: IntroductionPlagiocephaly Date: Thursday, August 13, 2009, 3:36 PM I will probably go to the one in Oakland.If I have a script, can I go to CIRS and see if they recommend it? Can I go there and then decide to not get the band, no charge? Or I will have to pay the $150. I guess that's a question I should ask CIRS.Are the bands only good for rounding the head from the top view? Selina's head looks pretty round from the top view, but when you look at her from the side, it just drops straight down to the neck.Where can I post a picture? I'd love to show everyone for an informal "diagnostic" .> > > > >> > > > > Hi Miriam -> > > > > > > > > > Welcome to the group! Which Kaiser are you going to? We have> Kaiser in> > > > > Northern California and our band was partially covered. What you> need to> > > > > find out is what, if any, Durable Medical Equipment (DME) coverage> you have.> > > > > The specific Kaiser plan we have covers DME at 80% so we paid for> 20% of the> > > > > cost of the band. I have other friends with Kaiser insurance and> their> > > > > plans covered 100% of the cost. The band is considered DME so if> you have> > > > > DME coverage the band will be covered.> > > > > > > > > > Molly> > > > > Novato, California> > > > > Nicolas, 3.5, tort & plagio, STARband (CIRS Oakland)> 4/24/06-9/12/ 06,> > > > > Graduate!> > > > > , 6.5> > > > > , 9.5> > > > > > > > > > Introduction> > > > > > > > > > Hi everyone,> > > > > > > > > > I will admit that I have not looked through any of the messages from> the> > > > > group yet but I just want to come in and do a quick introduction. I> just> > > > > joined this group after reading a blog regarding DOC bands. I'm> taking my 8> > > > > months old (today!) daughter to the plastic surgeon tomorrow to have> her> > > > > head evaluated.> > > > > > > > > > My daughter's head is flat as a board on the back of her head.> According to> > > > > the pedi there's no asymmetry.> > > > > > > > > > We have Kaiser for our insurance (I pay out of pocket for an> individual plan> > > > > for her and myself). I've heard that this is most likely not going> to be> > > > > covered by insurance, but does anyone have any luck?> > > > > > > > > > I hope to learn a lot from all of you!> > > > > > > > > > Miriam> > > > > > > > > > > > > > > > > > > > ------------ --------- --------- ------> > > > > > > > > > For more plagio info, go to www.plagiocephaly. org/support > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2009 Report Share Posted August 14, 2009 I am glad Maysa's Blog led you here. This group has been fabulous to me! I just looked at the pictures you posted and though I am not an expert and the angle is not perfect, I have no doubt that your daughter has brachycephaly. Her head should be round in the back, not flat and she seems to also have some posterior head height. Is she wide above the ears at her temples as well? A lot of people don't think that brachycephaly is as bad as plagio because the head is usually pretty symmetrical, but if left untreated it does give the impression of having a "big" head because all you see is how wide it is. I hope you find a way to get your daughter measured by the starscanner. In Maysa's case, I saw four or five peds who all told me that she was fine and didn't need a helmet. When I took her for measurements at Orthomerica, her CI was 98% (severe)... Good luck, Leila,Maysa, 19 mo, DOC band Grad 5.26.09 www.mymaysa.wordpress.com From: miriamsumner <miriamsumner@...>Subject: Re: IntroductionPlagiocephaly Date: Friday, August 14, 2009, 12:34 PM You are the reason why I'm here! I clicked on your group link and here I am!I just sent an email to Dr. Menard to see if I can still go to CIRS and have a second opinion (or more like 5th opinion since there were 3 docs in the room that day plus our own pediatrician) . My only worry is that CIRS will just want to sell me their product. I'm pretty sure my insurance doesn't cover it (altho I never called, but I have really crappy coverage).I don't know how to post pictures, but here are a couple links to the pictures I took about 2 months ago.http://i268. photobucket. com/albums/ jj23/meow78_ photos/P1060423. jpghttp://i268. photobucket. com/albums/ jj23/meow78_ photos/P1060443. jpg> > > > > >> > > > > > Hi Miriam -> > > > > > > > > > > > Welcome to the group! Which Kaiser are you going to? We have> > Kaiser in> > > > > > Northern California and our band was partially covered. What you> > need to> > > > > > find out is what, if any, Durable Medical Equipment (DME) coverage> > you have.> > > > > > The specific Kaiser plan we have covers DME at 80% so we paid for> > 20% of the> > > > > > cost of the band. I have other friends with Kaiser insurance and> > their> > > > > > plans covered 100% of the cost. The band is considered DME so if> > you have> > > > > > DME coverage the band will be covered.> > > > > > > > > > > > Molly> > > > > > Novato, California> > > > > > Nicolas, 3.5, tort & plagio, STARband (CIRS Oakland)> > 4/24/06-9/12/ 06,> > > > > > Graduate!> > > > > > , 6.5> > > > > > , 9.5> > > > > > > > > > > > Introduction> > > > > > > > > > > > Hi everyone,> > > > > > > > > > > > I will admit that I have not looked through any of the messages from> > the> > > > > > group yet but I just want to come in and do a quick introduction. I> > just> > > > > > joined this group after reading a blog regarding DOC bands. I'm> > taking my 8> > > > > > months old (today!) daughter to the plastic surgeon tomorrow to have> > her> > > > > > head evaluated.> > > > > > > > > > > > My daughter's head is flat as a board on the back of her head.> > According to> > > > > > the pedi there's no asymmetry.> > > > > > > > > > > > We have Kaiser for our insurance (I pay out of pocket for an> > individual plan> > > > > > for her and myself). I've heard that this is most likely not going> > to be> > > > > > covered by insurance, but does anyone have any luck?> > > > > > > > > > > > I hope to learn a lot from all of you!> > > > > > > > > > > > Miriam> > > > > > > > > > > > > > > > > > > > > > > > ------------ --------- --------- ------> > > > > > > > > > > > For more plagio info, go to www.plagiocephaly. org/support > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2009 Report Share Posted August 14, 2009 You may just have to set some limits with your mother. Is it possible to just avoid talking about it with her. You could still talk about other things and even visit while in the helmet. If she brings it up and is judgmental, maybe you could just say that you don't want to discuss it if she doesn't have anything positive to say. I know this is hard because we all want our parent's approval, but sometimes people just don't get it and aren't open to learning. Good luck. Don't let this stop you from getting treatment. , mom to , 23.5 monthsSTARband grad (6 months for brachy) May 2009 Currently in CST land Introduction> > > > > > > > > > > > > > Hi everyone,> > > > > > > > > > > > > > I will admit that I have not looked through any of the messages from> > > the> > > > > > > group yet but I just want to come in and do a quick introduction. I> > > just> > > > > > > joined this group after reading a blog regarding DOC bands. I'm> > > taking my 8> > > > > > > months old (today!) daughter to the plastic surgeon tomorrow to have> > > her> > > > > > > head evaluated.> > > > > > > > > > > > > > My daughter's head is flat as a board on the back of her head.> > > According to> > > > > > > the pedi there's no asymmetry.> > > > > > > > > > > > > > We have Kaiser for our insurance (I pay out of pocket for an> > > individual plan> > > > > > > for her and myself). I've heard that this is most likely not going> > > to be> > > > > > > covered by insurance, but does anyone have any luck?> > > > > > > > > > > > > > I hope to learn a lot from all of you!> > > > > > > > > > > > > > Miriam> > > > > > > > > > > > > > > > > > > > > > > > > > > > ------------ --------- --------- ------> > > > > > > > > > > > > > For more plagio info, go to www.plagiocephaly. org/support > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2009 Report Share Posted August 14, 2009 Alright, first of all, let me tell you that she is GORGEOUS!!! In this front view, she doesn't seem to have significant extra width in the front, so I think that if she gets in a helmet soon, the growth will be redirected completely to the back giving her head the chance to grow where it needs to and nowhere else. It is quite frustrating when people around you are not supportive. In my case, my husband was so against it we argued more than once over it and over a period of 11 months. Can you imagine that? This said at the end, the thanked me for going above and beyond in helping Maysa get a normal looking head. While I know that he is right in many instances, I couldn't help but trust my mommy instinct when it came to treating Maysa's plagio/brachy. He has the most perfect head ever, symmetrical and all and I really don't think that he could relate at all! At least, you do have the option of not visiting your mom for a little while I think that you already know what's best for your daughter. Just keep doing your research and make sure you make an informed decision. Once you get the helmet/band, it is not as overwhelming anymore. Leila,Maysa, 19 mo, DOC band Grad 5.26.09www.mymaysa.wordpress.com From: miriamsumner <miriamsumner@...>Subject: Re: IntroductionPlagiocephaly Date: Friday, August 14, 2009, 1:52 PM I have become obsessed with her head. I don't think I will be satisfied until I get her in a helmet. At least I'll know that I TRIED to do something about it. Whether it helped or not, at least I tried. I have a flat head, and I hate hate hate hate hate it. Can't wear a head band, can't find sunglasses that fit my wide face, can't even find a bike helmet that doesn't either squish the heck out of my skull or rock back and forth. My fear is already creeping up on me. I told my mother about this yesterday and she was shocked to hear about it. She has never heard of a helmet. I tried to educate her, but of couse, she won't listen. Keep telling me to get a pillow for her, and to just position her. She's blaming ME for not positioning her when she's younger. We tried! We'd put her on her side when she sleeps but w/in 10 min she'll roll right back to her back, even when propped by a pillow or rolled up blanket. She turns 90 degree in the crib!How do you deal with people who are not supportive? Should I just not visit my mother while Selina is in the helmet?Here's a picture of her from the front:http://i268. photobucket. com/albums/ jj23/meow78_ photos/selinamys pace.jpg> > > > > > >> > > > > > > Hi Miriam -> > > > > > > > > > > > > > Welcome to the group! Which Kaiser are you going to? We have> > > Kaiser in> > > > > > > Northern California and our band was partially covered. What you> > > need to> > > > > > > find out is what, if any, Durable Medical Equipment (DME) coverage> > > you have.> > > > > > > The specific Kaiser plan we have covers DME at 80% so we paid for> > > 20% of the> > > > > > > cost of the band. I have other friends with Kaiser insurance and> > > their> > > > > > > plans covered 100% of the cost. The band is considered DME so if> > > you have> > > > > > > DME coverage the band will be covered.> > > > > > > > > > > > > > Molly> > > > > > > Novato, California> > > > > > > Nicolas, 3.5, tort & plagio, STARband (CIRS Oakland)> > > 4/24/06-9/12/ 06,> > > > > > > Graduate!> > > > > > > , 6.5> > > > > > > , 9.5> > > > > > > > > > > > > > Introduction> > > > > > > > > > > > > > Hi everyone,> > > > > > > > > > > > > > I will admit that I have not looked through any of the messages from> > > the> > > > > > > group yet but I just want to come in and do a quick introduction. I> > > just> > > > > > > joined this group after reading a blog regarding DOC bands. I'm> > > taking my 8> > > > > > > months old (today!) daughter to the plastic surgeon tomorrow to have> > > her> > > > > > > head evaluated.> > > > > > > > > > > > > > My daughter's head is flat as a board on the back of her head.> > > According to> > > > > > > the pedi there's no asymmetry.> > > > > > > > > > > > > > We have Kaiser for our insurance (I pay out of pocket for an> > > individual plan> > > > > > > for her and myself). I've heard that this is most likely not going> > > to be> > > > > > > covered by insurance, but does anyone have any luck?> > > > > > > > > > > > > > I hope to learn a lot from all of you!> > > > > > > > > > > > > > Miriam> > > > > > > > > > > > > > > > > > > > > > > > > > > > ------------ --------- --------- ------> > > > > > > > > > > > > > For more plagio info, go to www.plagiocephaly. org/support > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2009 Report Share Posted August 15, 2009 It's quite possible that yours is a case where the numbers don't tell the whole story. With 2 cm longer from front to back, it doesn't sound like brachy, but 5 mm difference is a very mild plagio. So, there's a flat spot that isn't described well by the measurements. I think you ought to try and get an opinion based upon someone who can visually look at the head and describe what they see. Also, it might be worth getting a computer scan to make sure that the hand measurements were accurate. There's so much room for error in those. Good luck and keep us posted. , mom to , 23.5 months STARband grad Introduction> > > > > > Hi everyone,> > > > > > I will admit that I have not looked through any of the messages from the> > > group yet but I just want to come in and do a quick introduction. I just> > > joined this group after reading a blog regarding DOC bands. I'm taking my 8> > > months old (today!) daughter to the plastic surgeon tomorrow to have her> > > head evaluated.> > > > > > My daughter's head is flat as a board on the back of her head. According to> > > the pedi there's no asymmetry.> > > > > > We have Kaiser for our insurance (I pay out of pocket for an individual plan> > > for her and myself). I've heard that this is most likely not going to be> > > covered by insurance, but does anyone have any luck?> > > > > > I hope to learn a lot from all of you!> > > > > > Miriam> > > > > > > > > > > > ------------------------------------> > > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2009 Report Share Posted December 19, 2009 I live in Florida and may be able to help. What area of Florida are you in. I am in central Florida Sent from my Verizon Wireless BlackBerry [ ] Introduction Hello, I'm new to this group, and I wanted to introduce myself. I have two children , 4 years old and Elliana, 15 months old. My daughter Elli is at about a 6 month level for speech. She has been diagnosed with microcephaly, a neurological condition where her brain doesn't grow, which in turn means her head doesn't grow. As a 15 month old her head is the same size as my son's was when he was 2 months old (38 centimeters around). She is physically on target for her age (which has surprised ALL of us!). She is almost walking, but has been crawling and cruising since 6 months old. She can eat finger foods, but only soft stuff like bananas, and crackers. Now as for speech, this is her biggest issue. A lot of the kids on my microcephaly support group say their children didn't start speaking until almost 4-5 years old. But many of them can understand what you are telling them. My daughter regularly sees a physical therapist, occupational therapist and developmental therapist...however the speech therapy is SOOOO hard to come by around here (I'm in FL). All of the prime times of the day have been taken, and many places are so over booked and have waiting lists. So my question for all of you is...any suggestions for me that I can do to help her while I wait for speech therapy to begin? Her main problems are drooling, not saying any words (just ba-ba, da-da...baby noises), and pushing food out with her tongue (tongue thrusting like a young baby). I know that in speech they work on mouth muscle development, and I just wish I had some good ideas that I could incorporate into our day. I'm happy to have found this group, because already, I have taken advice from you all....I had been thinking about starting Elli on fish oil, and since joining the group last week, I have started giving her just a tiny amount in her food. I don't really know what the correct amount is to give her, so I just pour a few drops in. I bought the refrigerated bottle because I read that was the best way to go. Thanks, Mindy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2009 Report Share Posted December 19, 2009 Hey I'm in central florida as well but you need to go to an early intervention program they can def provide speech in your area my boys are over 3 and have about an are a week of speech in school which is not enough I have been tring to get private speech throuh my insurance and oh m goodness there are no openings I feel like going back to school and opening a huge speech center wit weekend hrs too!!!  Its crazy there's not enough help out here! -- Sent from my Palm Pre NotefrmSue@... wrote:  I live in Florida and may be able to help. What area of Florida are you in. I am in central Florida Sent from my Verizon Wireless BlackBerry [ ] Introduction Hello, I'm new to this group, and I wanted to introduce myself. I have two children , 4 years old and Elliana, 15 months old. My daughter Elli is at about a 6 month level for speech. She has been diagnosed with microcephaly, a neurological condition where her brain doesn't grow, which in turn means her head doesn't grow. As a 15 month old her head is the same size as my son's was when he was 2 months old (38 centimeters around). She is physically on target for her age (which has surprised ALL of us!). She is almost walking, but has been crawling and cruising since 6 months old. She can eat finger foods, but only soft stuff like bananas, and crackers. Now as for speech, this is her biggest issue. A lot of the kids on my microcephaly support group say their children didn't start speaking until almost 4-5 years old. But many of them can understand what you are telling them My daughter regularly sees a physical therapist, occupational therapist and developmental therapist...however the speech therapy is SOOOO hard to come by around here (I'm in FL). All of the prime times of the day have been taken, and many places are so over booked and have waiting lists. So my question for all of you is...any suggestions for me that I can do to help her while I wait for speech therapy to begin? Her main problems are drooling, not saying any words (just ba-ba, da-da...baby noises), and pushing food out with her tongue (tongue thrusting like a young baby). I know that in speech they work on mouth muscle development, and I just wish I had some good ideas that I could incorporate into our day. I'm happy to have found this group, because already, I have taken advice from you all....I had been thinking about starting Elli on fish oil, and since joining the group last week, I have started giving her just a tiny amount in her food. I don't really know what the correct amount is to give her, so I just pour a few drops in. I bought the refrigerated bottle because I read that was the best way to go. Thanks, Mindy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2009 Report Share Posted December 19, 2009 Bernice- I'm not sure what type of insurance you have. I have Blue Cross Blue Sheild and live in longwood. The speech therapist that comes to my home is awesome and just started being in network. Debra Beckman is wonderful as well and we go there. She is almost approved for BCBS (not yet but have gotten pretty far into the process and expect to hear in January). If you would like either of their numbers email me directly. I think I may have emailed you a while back but didn't hear back so hope you are donig well. Sue [ ] Introduction Hello, I'm new to this group, and I wanted to introduce myself. I have two children , 4 years old and Elliana, 15 months old. My daughter Elli is at about a 6 month level for speech. She has been diagnosed with microcephaly, a neurological condition where her brain doesn't grow, which in turn means her head doesn't grow. As a 15 month old her head is the same size as my son's was when he was 2 months old (38 centimeters around). She is physically on target for her age (which has surprised ALL of us!). She is almost walking, but has been crawling and cruising since 6 months old. She can eat finger foods, but only soft stuff like bananas, and crackers. Now as for speech, this is her biggest issue. A lot of the kids on my microcephaly support group say their children didn't start speaking until almost 4-5 years old. But many of them can understand what you are telling them My daughter regularly sees a physical therapist, occupational therapist and developmental therapist...however the speech therapy is SOOOO hard to come by around here (I'm in FL). All of the prime times of the day have been taken, and many places are so over booked and have waiting lists. So my question for all of you is...any suggestions for me that I can do to help her while I wait for speech therapy to begin? Her main problems are drooling, not saying any words (just ba-ba, da-da...baby noises), and pushing food out with her tongue (tongue thrusting like a young baby). I know that in speech they work on mouth muscle development, and I just wish I had some good ideas that I could incorporate into our day. I'm happy to have found this group, because already, I have taken advice from you all....I had been thinking about starting Elli on fish oil, and since joining the group last week, I have started giving her just a tiny amount in her food. I don't really know what the correct amount is to give her, so I just pour a few drops in. I bought the refrigerated bottle because I read that was the best way to go. Thanks, Mindy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2009 Report Share Posted December 19, 2009 I'm in NW Florida, up in the panhandle near Pensacola. So I'm actually pretty far, it takes us 6-7 hours to get to Disney. Yeah, my daughter has been in the Early Intervention Program since about 6 months. But still no speech therapy....it's the area, we are in a small town (about an hour from Pensacola) and there are only 2 pediatric speech therapists in this area (serving most of the northern county we live in). So needless to say, I'm stuck until they can either get more therapists or more openings with the ones they have. > > >  > > > > > > > > > > > I live in Florida and may be able to help. What area of Florida are you in. I am in central Florida > > Sent from my Verizon Wireless BlackBerry > > > > [ ] Introduction > > > > Hello, > > > > I'm new to this group, and I wanted to introduce myself. I have two children , 4 years old and Elliana, 15 months old. My daughter Elli is at about a 6 month level for speech. She has been diagnosed with microcephaly, a neurological condition where her brain doesn't grow, which in turn means her head doesn't grow. As a 15 month old her head is the same size as my son's was when he was 2 months old (38 centimeters around). She is physically on target for her age (which has surprised ALL of us!). She is almost walking, but has been crawling and cruising since 6 months old. She can eat finger foods, but only soft stuff like bananas, and crackers. > > > > Now as for speech, this is her biggest issue. A lot of the kids on my microcephaly support group say their children didn't start speaking until almost 4-5 years old. But many of them can understand what you are telling them My daughter regularly sees a physical therapist, occupational therapist and developmental therapist...however the speech therapy is SOOOO hard to come by around here (I'm in FL). All of the prime times of the day have been taken, and many places are so over booked and have waiting lists. So my question for all of you is...any suggestions for me that I can do to help her while I wait for speech therapy to begin? Her main problems are drooling, not saying any words (just ba-ba, da-da...baby noises), and pushing food out with her tongue (tongue thrusting like a young baby). I know that in speech they work on mouth muscle development, and I just wish I had some good ideas that I could incorporate into our day. > > > > I'm happy to have found this group, because already, I have taken advice from you all....I had been thinking about starting Elli on fish oil, and since joining the group last week, I have started giving her just a tiny amount in her food. I don't really know what the correct amount is to give her, so I just pour a few drops in. I bought the refrigerated bottle because I read that was the best way to go. > > > > Thanks, > > Mindy > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2010 Report Share Posted February 27, 2010 Hi Sulie. Welcome to our wonderful group. You joined the best support group, and we all know what you are dealing with each and everyday. You will find that family and friends have no idea how much we suffer from these diseases, and how it has impacted our lives. You have done such a good thing for yourself joining our group. We are all here for you.  Wishing you better, pain free days ahead.  Hugs,  Barbara From: Sulie Delarosa <ooyeababii14@...> Subject: [ ] introduction Date: Friday, February 26, 2010, 11:35 PM  hello everyone.. my names sulie.. im 23.. and i was diagnosed last year with having lupus laced with RA.. its pretty painful and most days i dont wanna climb out of bed.. but i have no other choice seeing as i have a 3 month old.. which in a way im glad i have her because it forces me to not give up.. i joined the group for support.. people around me dont seem to understand what im going through.. with the pain and stiffness and inflammation of muscles and joints.. anyways thanks for reading.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2010 Report Share Posted May 8, 2010 Hi , I am in the US and I have friends in England. Please email me at reneendegraff@... and I can see if my friends can help. Also, what part of England ate you in? From: annabholt@... <annabholt@...>Subject: ( ) Introduction Date: Saturday, May 8, 2010, 1:18 PM Hi,My name is and I'm a single mother to two boys, Sam who is 7 was diagnosed with Aspergers Syndrome last year and Aiden who is almost 3 and is neuro-typical (I hate that expression but saying he's 'normal' or 'not autistic' sounds worse and makes it sound like I don't think Sam is normal!).We live in England (I'm not sure if this group is mainly US based or not) and Sam attends mainstream school (he's in Year 2) where he has a Statement for full time help which is split between two teaching assistants.I'm just feeling in need of a bit of support at the moment with the back and forth with the school and how to help Sam to get through it all. He is having issues with making friends (of course!) and the 'right' and 'wrong' way to treat people. Often I find that the school slips into thinking of Sam as a naughty boy rather than an autistic boy and I feel like I am relied upon to find out information for them and to come up with ideas and solutions constantly to whatever issue he is having at the time.Anyway, I'm looking forward to reading through the archives and seeing what information I can glean, please forgive me if I ask something that's already been covered! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2010 Report Share Posted May 9, 2010 Hi , I am in the UK with an as yet officially undiagnosed 9 year old dd and self-diagnosed hubby. We home school so I can't help much on school issues, but I thought it might help to let you know you're not the only Brit on here. This site is great and the longer you stay a member on it the more you realise how many of the strange behaviours, little quirks and seemingly unrelated issues are all common to the Aspie world. This is the hands on part of living with Aspergers and living with those who have it and the wisdom here and the experiences people share are worth more than all the "experts" and books put together. Welcome! a From: annabholt@... Sent: Saturday, May 08, 2010 2:18 PM Subject: ( ) Introduction Hi,My name is and I'm a single mother to two boys, Sam who is 7 was diagnosed with Aspergers Syndrome last year and Aiden who is almost 3 and is neuro-typical (I hate that expression but saying he's 'normal' or 'not autistic' sounds worse and makes it sound like I don't think Sam is normal!).We live in England (I'm not sure if this group is mainly US based or not) and Sam attends mainstream school (he's in Year 2) where he has a Statement for full time help which is split between two teaching assistants.I'm just feeling in need of a bit of support at the moment with the back and forth with the school and how to help Sam to get through it all. He is having issues with making friends (of course!) and the 'right' and 'wrong' way to treat people. Often I find that the school slips into thinking of Sam as a naughty boy rather than an autistic boy and I feel like I am relied upon to find out information for them and to come up with ideas and solutions constantly to whatever issue he is having at the time.Anyway, I'm looking forward to reading through the archives and seeing what information I can glean, please forgive me if I ask something that's already been covered! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2010 Report Share Posted May 9, 2010 welcome, From: annabholt@...Date: Sat, 8 May 2010 13:18:21 +0000Subject: ( ) Introduction Hi,My name is and I'm a single mother to two boys, Sam who is 7 was diagnosed with Aspergers Syndrome last year and Aiden who is almost 3 and is neuro-typical (I hate that expression but saying he's 'normal' or 'not autistic' sounds worse and makes it sound like I don't think Sam is normal!).We live in England (I'm not sure if this group is mainly US based or not) and Sam attends mainstream school (he's in Year 2) where he has a Statement for full time help which is split between two teaching assistants.I'm just feeling in need of a bit of support at the moment with the back and forth with the school and how to help Sam to get through it all. He is having issues with making friends (of course!) and the 'right' and 'wrong' way to treat people. Often I find that the school slips into thinking of Sam as a naughty boy rather than an autistic boy and I feel like I am relied upon to find out information for them and to come up with ideas and solutions constantly to whatever issue he is having at the time.Anyway, I'm looking forward to reading through the archives and seeing what information I can glean, please forgive me if I ask something that's already been covered! The New Busy is not the too busy. Combine all your e-mail accounts with Hotmail. Get busy. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2010 Report Share Posted May 24, 2010 Welcome Lee! I'm from Melbourne (where are you?) and just joined this group last week. I have a daughter who'll be 3 in August. How long have you had RA for? Soni > > Hi, > > Just thought I would introduce myself as I've just joined this group. My name is Lee and I have RA. I live in Australia and I am on leflunomide and methotrexate. I am the mother of a full on 3 year old and a surfer dude 1 year old > > Thats it > > Lee;) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2010 Report Share Posted May 24, 2010 Welcome Lee.. I'm quite new to the group also.. You'll love this group ..every one is sooo nice. I've had RA for 2 years.. was a florist but my hands hurt to do flowers for now..but i'm hoping some day i'll go back to it.?? I live in the USA in the state of South Dakota.. & i'm a grandma of 3 little girls and 1 boy.. the boy Tim is in college... the girls are7,9 and 15.. the 15yr old is new in our family as our daughter and husband in Colorado adopted her from Thailand just a year ago.. What a blessing she is to all of us.. Again WELCOME!!! ________________________________ From: saulylee <saulylee@...> Sent: Mon, May 24, 2010 5:29:29 AM Subject: [ ] Introduction  Hi, Just thought I would introduce myself as I've just joined this group. My name is Lee and I have RA. I live in Australia and I am on leflunomide and methotrexate. I am the mother of a full on 3 year old and a surfer dude 1 year old Thats it Lee;) Quote Link to comment Share on other sites More sharing options...
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