Introduction

April 25, 2003

In a message dated 4/25/03 1:14:00 PM Eastern Daylight Time,

sfraleigh@... writes:

> I do wonder whether we should be looking at doing OT or social skills

> training outside school and home though or can one attempt those on

> our own? Any thoughts..

> Sorry this is longer than I planned.

>

> Gratefully Yours

>

If you find a good program, I'm sure it would only benefit. There are a few

books you can read for ideas to try on your own - " Teaching your child the

language of social success " is a good book, IMO. It goes through all the

various parts of language. " Relationship Development Intervention " <A

HREF= " http://www.connectionscenter.com/workshops/viewAssessment.asp?wid=27 " >RDI

Assessment Workshops @ Connections Center</A>

and " Teaching children with autism to Mind Read " is one I like also.

Welcome to our group and DON'T APOLOGIZE! It's not allowed!

Roxanna Ã¶Â¿Ã¶

" ...don't forget what happened to the man who suddenly got everything he'd

ever wished for...

He lived happily ever after. "

Willy Wonka

April 26, 2003

In a message dated 4/26/03 8:52:59 AM Eastern Daylight Time,

sfraleigh@... writes:

> Thanks Roxanna;

> Sorry no more apologies!lol (its a Canadian thing)

> I will look for the books and check the web add. Have you had personal

> experience with any of the programs?

>

Hi ,

The school is using, " Teaching children with autism to Mind Read " with my 6

yo as part of his ABA program. I think it's a very good book. It teaches

the child to look at other people and try to think about what they are

feeling. It has drawings without the face drawn in and they have to guess

what the person was feeling by the situation, for example. At school, they

did a lot of stories without words and my son had to decide what was

happening just by looking at the people and their expressions.

The Relationship development book - I just got and haven't even opened it

yet! I hear good things about this program. A friend borrowed one of the

books from me and she said it was fabulous. It has tons of games and

activities, each with a " lesson " that is being taught while playing. So it

would seem like a great resource. One book is for younger kids and one for

older.

The book " teaching your child the language of social success " is a good book.

I have it. I used it to outline a social skill program for my 14 yo at

school, however the teacher did not bother to implement it. I have no idea

how well it would work. The book outlines all the various ways of

communication from learning about how we hold our facial expression (for

instance, do we scowl as we walk down the street or smile?) to personal

space and how to tell how close to get to someone when talking. It also goes

through all kinds of body language as well as how to dress, etc.

Roxanna ô¿ô

Autism Happens...

April 30, 2003

In a message dated 4/30/2003 5:33:24 AM Pacific Daylight Time,

cccslp@... writes:

> wanted to introduce myself. I am a speech therapist in New Jersey. I am

> always interested in learning different kinds of therapies that families

> are exploring. I hope that I can learn from the listserves so that I can

> gain a better understanding of parents' concerns. Let me know if I can

> be of any help. Thank you again for starting this great support groups.

>

Hi and welcome!

I think its great that you are joining to gain a better understanding of

parents' concerns etc....wish you were in CA!

I think my son (4.5 yr old) may have Semantic-Pragmatic disorder as he fits

all the criteria that I have read. I was wondering if a Speech therapist can

determine if this is what is happening or does it have to come from a doctor

like a devel ped or a neuropsych?

Also, at what age should articulation be clear....th, l, r sounds?

Thank you!!

Johanna

April 30, 2003

Welcome to the group !!

MISSY

SAHM of MANY

April is Autism Awareness Month!!

Become aware of our special kids!!

Excuse Me While I Go

Raise Tomorrow's Future.

( ) introduction

Hello,

I wanted to introduce myself. I am a speech therapist in New Jersey. I am

always interested in learning different kinds of therapies that families are

exploring. I hope that I can learn from the listserves so that I can gain a

better understanding of parents' concerns. Let me know if I can be of any

help. Thank you again for starting this great support groups.

Cultrara Rodrigues

cccslp@...

http://steppingstonestocommunication.speech-languagepathologist.net

April 30, 2003

Hi ......What part of NJ are you in?

sjparvin@... wrote:In a message dated 4/30/2003 5:33:24 AM Pacific Daylight

Time,

cccslp@... writes:

> wanted to introduce myself. I am a speech therapist in New Jersey. I am

> always interested in learning different kinds of therapies that families

> are exploring. I hope that I can learn from the listserves so that I can

> gain a better understanding of parents' concerns. Let me know if I can

> be of any help. Thank you again for starting this great support groups.

>

Hi and welcome!

I think its great that you are joining to gain a better understanding of

parents' concerns etc....wish you were in CA!

I think my son (4.5 yr old) may have Semantic-Pragmatic disorder as he fits

all the criteria that I have read. I was wondering if a Speech therapist can

determine if this is what is happening or does it have to come from a doctor

like a devel ped or a neuropsych?

Also, at what age should articulation be clear....th, l, r sounds?

Thank you!!

Johanna

July 12, 2003

Hi Ozmee!

I'm glad you found us! Sounds like you have your hands full. Go to the

rheumatic.org site and read the info there. It will help alot. It's important

that you take care of yourself too.And yes, water, water, is so important. If

you must, flavor it with something without sugar but drop the diet soft drinks

if you can. I'm sure you'll get lots of feedback, so good luck and I'll be

thinking of you.

rheumatic Introduction

Hello Everyone, My name is Ozmee and I am not the sufferer, but wife to one.

Hubby was diagnosed with RA about two years ago and was given Celebrex, and

Vioxx but those didn't do a thing but hurt his stomach so he was switched to

Arthrotec. No tests have ever been done to check the effects of this and

the doctor, an idiot at best, never said a word about checkups or anything

else having to do with the RA.

Ozmoe has gotten worse and worse and worse, now he is in constant 24/7 pain,

finally succumbed to taking the pain pills prescribed by the doctor, and we

got arthritis strength tylenol but he is taking a lot of these. He takes

two Arthrotec a day and on some days even that doesn't help at all. He says

all of his bones hurt. He is not a complaining type, never has so much as

missed one day all of these years even when really not feeling well, but now

not one day goes by that he doesn't complain about the pain. So that tells

me that it must be pretty bad.

A while back his right arm started to hurt. He was at work talking to some

people and gestured with it and it felt like it was going to fall off,

excruciatingly painful. It has gotten worse and worse so that now whether

he reaches up or down it hurts a lot. I am doing all the heavy lifting,

mowing the lawn, etc etc so he doesn't try to. He just had an MRI

($1,038.00) which showed negative, so the dr figured it was nerve

impingement and has ordered physical therapy. But from reading some of the

histories at rheumatic.org page, I am wondering if this is not just a part

of his RA and PT would be nothing but a worthless expense? Opinions?

I know that this has been going on for two years and has caused a total

change in attitude. He suffers pain all day every day and I can't take it

any more. So I have been looking around and I found this group, did some

reading and I am desperate for help for him. In the mornings yes it is

worse as far as stiffness, but the pain is constant. He had a cataract

already, he is just 51 this year and now suffers from dryness of that eye so

that he has to use drops.

We both lost weight, switched to a low-fat, fat-free diet, we eat a lot of

veggies and chicken, hardly ever any fried foods, and we quit smoking this

past January. He smoked a pipe. He's had sores in his mouth, the dr called

them apthous ulcers, but this since he quit, months after. When he was

smoking he didn't feel good and he thought the smoking was causing it as

he'd have chest pain. All his life, he's suffered from leg pain and at

night even during his sleep, his legs will twitch, and he often keeps me

awake or wakes me up at night when he gets up to use the bathroom. My sleep

is suffering. We tried vitamins when we first started our weight loss

program but they hurt our stomachs. He takes only the arthrotec, the

tylenol as and sometimes those pain pills. He likes beer and he says that

the beer is the only thing that truely helps with his pain. But when he

gets a lot of that in him then he says things that tell me more truely how

bad the pain really is.

Dr's don't seem to be too concerned, to be honest with you. I got a job

because I had this feeling that his physical condition was poor and that

very soon he might not be able to work any more. He works at an auto parts

store as a manager and has cut down his physical activity there as much as

possible. I told him be a manager, let the young guys do the physical

activity. His ability to be physical has suffered, his arm still hurts and

he has constant, never-ending pain that none of these dumb pills seem to be

helping. I also started college so I could get a four-year degree so that I

could get a job that paid enough to support both of us, thinking ahead to

when he cannot work and am really getting worn out.

And the other thing that could be important although I don't know, is that

we don't drink much water. We drink diet coke mostly and we drink our

Folgers French Vanilla coffee.

If his story sounds like your story, would you please email me asap and give

me the facts on what you did? I went to find a doctor but the ones listed

are not on my PPO list. We live in Wilkesboro, North Carolina but we could

travel a ways off if it meant finding better medical care. He works six

days a week usually though so getting him away from work is kind of hard. I

read about the milk thistle and grape seed stuff. I have to go and get my

granddaughter's asthma medicine now but I will be back soon. I was hoping

to find something productive, not sure if I should buy this milk thistle

stuff or not. One doctors list of stuff to use was so long I don't think we

could afford it all

Thanks for your help. I know my hubby will be so happy if he could even

have one day without pain in his life.

Ozmee

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August 10, 2003

In a message dated 8/10/03 11:31:37 PM Eastern Daylight Time,

martym@... writes:

> Hi,

> My name is Martha--friends call me Marty. I'm a mom of 4 kids--18, 14,10

> & 8. The youngest was just diagnosed with Asperger's syndrome. I'm still

> trying to deal with it and am looking for as much info on the subject as I

> can. My oldest moved out recently. The 2 other kids started attending a

> private school run thru our church this year. I'm homeschooling Adam (the 8

> yr old) this year with the hope of getting him more caught up so he can

> attend as well. He's learning to read this year.

> In my spare time I do crafts and read. I do alot of crocheting in dr

> waiting rooms. Found that's a good way to help the time go along. Hope to

> get to know more people that are in my situation. It's good knowing I'm not

> alone in this.

> Marty

>

August 10, 2003

Hi Marty

I'm Debbie. I have 4 kids. Daughter,17, AS we think; Son, 16, ADHD; twins:

daughter no particular challenges except living with the others and son

8--clearly AS.

I homeschooled my older 2 for 3 years. I teach high school math at the

school where my older 2 attend. I used to teach in private schools--now public.

Debbie in NC

August 26, 2003

Welcome! You'll love it here. It's a great group of people.

a

> Sorry, I sent the below message without changing the subject.

Below is our introduction!

>

> Thanks,

> JoAnne

>

> Hello! My name is JoAnne LaGreca and my son ph is 8.

ph is diagnosed with high functioning autism, but he seems to

have more in common with Aspergers children as best I can tell. He

is fully mainstreamed with an aide. We held him back a year, so he

will be entering second grade. So far he is doing well

academically. He pretty much hates sports but has interests in

animals and science, although video games of late have taken over

most of his interest! His issues are by and large social in nature

and I think he will always be " different. " I just wanted to say

hello! We have a lot to learn!

>

> JoAnne

>

August 26, 2003

Welcome Joanne, my son is 8 also (Aspergers). Glad you're here!

Lori

(Mom of Jake 8 Aspergers, and Jess 3 H.T. (Holy Terror)

( ) Introduction

> Sorry, I sent the below message without changing the subject. Below is

our introduction!

>

> Thanks,

> JoAnne

>

> Hello! My name is JoAnne LaGreca and my son ph is 8. ph is

diagnosed with high functioning autism, but he seems to have more in common

with Aspergers children as best I can tell. He is fully mainstreamed with

an aide. We held him back a year, so he will be entering second grade. So

far he is doing well academically. He pretty much hates sports but has

interests in animals and science, although video games of late have taken

over most of his interest! His issues are by and large social in nature and

I think he will always be " different. " I just wanted to say hello! We have

a lot to learn!

>

> JoAnne

>

August 26, 2003

Thanks Lori! We live in northern Jersey.

JoAnne