Guest guest Posted November 20, 2010 Report Share Posted November 20, 2010 I agree, I can tell you from experience that it is practically impossible to work and raise an aspie child. I tried! Talk about the guilt! I used to work PT for many years from the time when my ds was about 6 until he was 11. I had a hard time keeping up with the housework, w/appts. dealing with his meltdowns. He was diagnosed ADHD & OCD @ 5, PDD-NOS @ 8, ASD, AD,HFA, OCD, ODD @ 16. Right now I'm not working, ..:~Anita W~:. From: chris Dunn <christineshello@...>Subject: ( ) Introduction Date: Saturday, November 6, 2010, 8:54 PM It is very interesting what you are saying, because I find myself in the same situation my son is 8 he is HFA but still has meltdowns and I have to help him with the school homework, and clean the house, take care of my son, cook take him to the appointments (OT, swimming, doctors, etc) and I want to work because I feel guilty that my husband holds 3 jobs to support everybody and I don't work, but to be honest I don't have the stamina, the energy to work, my days are long and tiring. I think we should take a poll and ask if the mothers of the asperger's children work outside the home or not. If other mother can please come forward and say if they work or not, that would be great, also I would realize that may be is physically impossible to do both things (take care of a special needs child and work outside), may be I am wrong and it is possible. I am exhausted most of the time, I don't have in laws or parents to support me, I don't have sisters or brothers so it is just my husbands and myself going through all this in life. Please let's answer this questions are you working outside? full time? is it possible? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2010 Report Share Posted November 21, 2010 My son has Aspergers, ADHD, OCD, and tactile issues. I worked until he turned 2, but only 2 days a week. Then I taught piano for 12 years, which I did from my own home so I didn’t have to leave him or get child care. (I only had 10 students.) Now he is 18 and graduated last June. Since then, and some months before that, I’ve been doing a lot of research trying to figure out how to handle an aspie as a young adult. He refuses to work; he’s taking one class at Edmonds CC but he’s not very motivated. All he wants to do is play computer games. He went through a period of time where he saw a counselor at DVR, and then I was able to get him eligible for the Division of Developmental Disabilities. I have talked with his case worker several times and she has been very helpful. Next week we have an appointment for a DDD assessment, which will possibly get us a little money to get therapy at the UW Care Clinic, where they do not accept insurance. Then I got him on SSI, and we are charging him rent and having him pay for his cell phone plan, part of his tuition, and bus transportation. I am his representative payee; otherwise he would spend it all right after getting it. I am trying to teach him how to budget his money. Anyway, I can’t really explain what I’ve been doing all these months – it’s kind of a muddle in my head. All I know is that I have been so busy with research on the internet, emailing, and phone calls. There’s no way I could work outside the home right now! He needs so much monitoring and supervision, and on top of that, he has a very oppositional and argumentative temperament. I always feel like I’m stressed out about something. What makes it more difficult is that my husband and I often do not agree on how we should interact with him. - Kay From: [mailto: ] On Behalf Of anita wagnerSent: Saturday, November 20, 2010 8:49 PM Subject: Re: ( ) Introduction I agree, I can tell you from experience that it is practically impossible to work and raise an aspie child. I tried! Talk about the guilt! I used to work PT for many years from the time when my ds was about 6 until he was 11. I had a hard time keeping up with the housework, w/appts. dealing with his meltdowns. He was diagnosed ADHD & OCD @ 5, PDD-NOS @ 8, ASD, AD,HFA, OCD, ODD @ 16. Right now I'm not working, .:~Anita W~:. From: chris Dunn <christineshello@...>Subject: ( ) Introduction Date: Saturday, November 6, 2010, 8:54 PMIt is very interesting what you are saying, because I find myself in the same situation my son is 8 he is HFA but still has meltdowns and I have to help him with the school homework, and clean the house, take care of my son, cook take him to the appointments (OT, swimming, doctors, etc) and I want to work because I feel guilty that my husband holds 3 jobs to support everybody and I don't work, but to be honest I don't have the stamina, the energy to work, my days are long and tiring. I think we should take a poll and ask if the mothers of the asperger's children work outside the home or not. If other mother can please come forward and say if they work or not, that would be great, also I would realize that may be is physically impossible to do both things (take care of a special needs child and work outside), may be I am wrong and it is possible. I am exhausted most of the time, I don't have in laws or parents to support me, I don't have sisters or brothers so it is just my husbands and myself going through all this in life. Please let's answer this questions are you working outside? full time? is it possible? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2010 Report Share Posted November 21, 2010 Well, I'm a stay at home dad and not a mother, but yeah, I'm in the same boat. We currently homeschool, but even when I wasn't, there was enough on the table to keep me busy (add car repair, home maintenance, and IEPs to the list). Aside from the fact that I have a long list of things that need to get gone, I also need to be level headed when dealing with my son's behavior, and I've got enough stress already. - > > > From: chris Dunn <christineshello@...> > Subject: ( ) Introduction > > Date: Saturday, November 6, 2010, 8:54 PM > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > It is very interesting what you are saying, because I find myself in the same situation my son is 8 he is HFA but still has meltdowns and I have to help him with the school homework, and clean the house, take care of my son, cook take him to the appointments (OT, swimming, doctors, etc) and I want to work because I feel guilty that my husband holds 3 jobs to support everybody and I don't work, but to be honest I don't have the stamina, the energy to work, my days are long and tiring. I think we should take a poll and ask if the mothers of the asperger's children work outside the home or not. If other mother can please come forward and say if they work or not, that would be great, also I would realize that may be is physically impossible to do both things (take care of a special needs child and work outside), may be I am wrong and it is possible. I am exhausted most of the time, I don't have in laws or parents to support me, I don't have sisters or > brothers so it is just my husbands and myself going through all this in life. > > > Please let's answer this questions are you working outside? full time? is it possible? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2010 Report Share Posted November 22, 2010 Try being a single parent with a supposedly " co parent " in denial. You can do anything you want without money. Be creative. Use every State avenue. Burn your phone up. Have low expectations for everyone but you and your child. in NJ > > > From: chris Dunn <christineshello@...> > Subject: ( ) Introduction > > Date: Saturday, November 6, 2010, 8:54 PM > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > It is very interesting what you are saying, because I find myself in the same situation my son is 8 he is HFA but still has meltdowns and I have to help him with the school homework, and clean the house, take care of my son, cook take him to the appointments (OT, swimming, doctors, etc) and I want to work because I feel guilty that my husband holds 3 jobs to support everybody and I don't work, but to be honest I don't have the stamina, the energy to work, my days are long and tiring. I think we should take a poll and ask if the mothers of the asperger's children work outside the home or not. If other mother can please come forward and say if they work or not, that would be great, also I would realize that may be is physically impossible to do both things (take care of a special needs child and work outside), may be I am wrong and it is possible. I am exhausted most of the time, I don't have in laws or parents to support me, I don't have sisters or > brothers so it is just my husbands and myself going through all this in life. > > > Please let's answer this questions are you working outside? full time? is it possible? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2010 Report Share Posted December 15, 2010 Dear , Please look into SSI, your child could be entitled to receive benefits. Also look under your loacl MRDD, for summer programs. Hope this helps. Let me know. Edna Big_momma_2324@... From: craftmasterk <craftmasterk@...>Subject: Re: ( ) Introduction Date: Sunday, November 7, 2010, 1:43 PM I also have a son w/AS and work outside the home-not by choice either. I would love to be able to stay home with him, but I cannot for financial reasons. In fact, I work 2 jobs but I recently decided that I have to cut down on my hours for the sake of my entire family. There are many appointments and meetings, not to mention homework and projects that I need to be there to help him with. I don't know what we will do with him in the summer while we work. It is very tiring and frustruating, but we keep on going......Hang in there!! I know I am trying to also-and I do "get it"! >> Hi your not rambling we all go through same things on here. Welcome were all friends here> Sent via BlackBerry from T-Mobile> > -----Original Message-----> From: "thehenrichs3" <thehenrichs3@...>> Sender: > Date: Sat, 06 Nov 2010 19:53:08 > < >> Reply- > Subject: ( ) Introduction> > Hi, I am new to the group. My 13 year old daughter was recently diagnosed with asperger's. It is a relief finally knowing what was different that we just couldn't understand. I personally am going through a tough time right now, I am very overwhelmed with everything that is going on for me right now. We moved to a different state about three weeks ago. My daughter was diagnosed right before we left the other state. I have been a stay at home, homeschooling mom for the past 6 years and my husband is wanting me to go back to work. I don't know how I am supposed to school my daughter, take her to all of her appointments, deal with her meltdowns and still have the time or energy to work. I am just physically, mentally, and emotionally tired and I want a break from it all which of course makes me feel guilty. I'm sorry I rambled on I just needed somebody that would "get" the situation to vent to. If anybody has any advice I would love to hear it. Thanks.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2011 Report Share Posted February 13, 2011 Hi everybody My name is Marika. I'm 40 years old, live in Denmark with my kids, both 6 years old. My sympt. startet in 04, right before I gave birth to my kids. I have had many problems with my illness. Until I got my diagnose the doctors thought I had " stress " or CIDP. In '08 the genetest showed a undergroup to CMT 1B. I have a lot of problem with my CMT, I don't work any longer. I have been a member of the other group, and after have had a long break, I have now returned to this group. In Denmark CMT is not well knownd, and the doctors have difficulties finding out why I have so many symptoms. They say my CMT is the worse they have seen in this country:-(. The CMT is more sensory than motor. I have read many of the messages. It looks as if you are more active than danish people. I think it is very important to talk to others about CMT and I think it is easier to learn to live with CMT. I have for a long time been reading www.lindacrabtree.com/cmtnews. This wewebpage has helped me a lot. I'm looking forward to get to know you all in here. I'm sorry for my writing, it has a long time since I have been writing in english. Marika Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2011 Report Share Posted March 4, 2011 > > > From: Astrid astrid@... > Subject: ( ) Introduction > Aspergers Treatment > Date: Sunday, February 27, 2011, 9:42 AM > > > Â > Yes welcome Astrid. I don't post often. I have an almost 19 year old daughter with Asperger's. Ina. > > > > Hi, > I am new to the group and thought I'd introduce myself. I am Astrid, aged 24 and I live in the Netherlands. I have ASD or Asperger's depending on which profession you ask. I am also blind and have several mental health problems. I hope to be able to provide support to parents whose children are going through the same I've gone through. I also might ask for support sometimes. Sorry if I'm not welcome to this list. I couldn't find an active list for adults with Asperger's or autism. > Astrid > astrid@... > http://www.astridvanwoerkom.com/ > http://astridvanwoerkom.wordpress.com/ > Quote Link to comment Share on other sites More sharing options...
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