Introduction

[Guest guest]

Hi Amy,Welcome to the group. It sounds like Alyssa is well on ehr way to a rounder noggin I would love to see a picture of her. If you would like to jump right in to our plagio world join us in chat tonight at 10 PM EST (so that would be 7 or 8 your time). Keirsten, 4 months Repo & tortna, 2 yrs DOC Grad Feb 04 and Tort Resolvedwww.thefilyaws.com/plagio.html>> Hi, > > I'm Amy Meyers. My daughter, Alyssa (14 mths), was banded a week ago > this past Thursday. She is doing great with the Docband, much to my > husband and my relief. And she looks absolutely adorable in the band! > Alyssa has really adjusted well to the band. We haven't had any red > or pink spots on her head. She had some trouble sleeping in the band > the first couple of nights but she's fine now. Alyssa has taken off > the band by herself only once and doesn't even fiddle with the strap > anymore. Since we live in Houston I was concerned about perspiration > with the band but it hasn't been as bad as I expected. > > My husband and I (and son) adopted our daughter from China in June > and noticed the first time we gave her a bath that the back of her > head was flat on one side and tilted off to the right, classic case > of plagiocephaly. It took us until the end of August before we were > able to see a specialist here in Houston who immediately sent us to > OPA in the Woodlands. I didn't find this group until last week - > wish I'd known sooner - I've spent a lot of time reading through the > files and really appreciate all the info. It's affirmed our decision > to go ahead with the band. > > Our orthotist, Bob Cook, is estimating that Alyssa will be in the > DocBand for 3 to 4 mths given her age but has also said we'll have to > see. I'm hoping and praying that one band will do. Alyssa screamed > and cried during the entire molding process. It shook me up a lot and > Bob as well! He felt so bad for Alyssa and me. I really don't want to > put her through another molding process. > > I was stressing out about the helmet decorating process and was glad > to read the decorating tips. I had it in my head the decoration had > to last the whole time Alyssa wore the helmet but it sounds like, no. > So, I can have some fun with it now. > > Amy Meyers> Houston, TX>

[Guest guest]

Hi Amy,Welcome to the group. It sounds like Alyssa is well on ehr way to a rounder noggin I would love to see a picture of her. If you would like to jump right in to our plagio world join us in chat tonight at 10 PM EST (so that would be 7 or 8 your time). Keirsten, 4 months Repo & tortna, 2 yrs DOC Grad Feb 04 and Tort Resolvedwww.thefilyaws.com/plagio.html>> Hi, > > I'm Amy Meyers. My daughter, Alyssa (14 mths), was banded a week ago > this past Thursday. She is doing great with the Docband, much to my > husband and my relief. And she looks absolutely adorable in the band! > Alyssa has really adjusted well to the band. We haven't had any red > or pink spots on her head. She had some trouble sleeping in the band > the first couple of nights but she's fine now. Alyssa has taken off > the band by herself only once and doesn't even fiddle with the strap > anymore. Since we live in Houston I was concerned about perspiration > with the band but it hasn't been as bad as I expected. > > My husband and I (and son) adopted our daughter from China in June > and noticed the first time we gave her a bath that the back of her > head was flat on one side and tilted off to the right, classic case > of plagiocephaly. It took us until the end of August before we were > able to see a specialist here in Houston who immediately sent us to > OPA in the Woodlands. I didn't find this group until last week - > wish I'd known sooner - I've spent a lot of time reading through the > files and really appreciate all the info. It's affirmed our decision > to go ahead with the band. > > Our orthotist, Bob Cook, is estimating that Alyssa will be in the > DocBand for 3 to 4 mths given her age but has also said we'll have to > see. I'm hoping and praying that one band will do. Alyssa screamed > and cried during the entire molding process. It shook me up a lot and > Bob as well! He felt so bad for Alyssa and me. I really don't want to > put her through another molding process. > > I was stressing out about the helmet decorating process and was glad > to read the decorating tips. I had it in my head the decoration had > to last the whole time Alyssa wore the helmet but it sounds like, no. > So, I can have some fun with it now. > > Amy Meyers> Houston, TX>

[Guest guest]

Hi Amy,Welcome to the group! I'm glad your daughter is doing so well in her band. They really do look cute in them! Have fun with the decorating. I usually changed my daughter's decorations every two weeks or so. She wore her third DOCband from 15.5-19.5mos old and did receive excellent correction in her shape and ears with that band as well. You can see that "older baby" third band correction and some of her decorated helmet designs on her website below. Me and My Big Ideas makes a really cute set of Thanksgiving stickers! I always ordered from www.scrapbookbargain.com . Keep us posted on Alyssa's progress!, mom to Hannah, DOCgradCape Cod, Mahttp://hannahsnoggin.typepad.com >> Hi, > > I'm Amy Meyers. My daughter, Alyssa (14 mths), was banded a week ago > this past Thursday. She is doing great with the Docband, much to my > husband and my relief. And she looks absolutely adorable in the band! > Alyssa has really adjusted well to the band. We haven't had any red > or pink spots on her head. She had some trouble sleeping in the band > the first couple of nights but she's fine now. Alyssa has taken off > the band by herself only once and doesn't even fiddle with the strap > anymore. Since we live in Houston I was concerned about perspiration > with the band but it hasn't been as bad as I expected. > > My husband and I (and son) adopted our daughter from China in June > and noticed the first time we gave her a bath that the back of her > head was flat on one side and tilted off to the right, classic case > of plagiocephaly. It took us until the end of August before we were > able to see a specialist here in Houston who immediately sent us to > OPA in the Woodlands. I didn't find this group until last week - > wish I'd known sooner - I've spent a lot of time reading through the > files and really appreciate all the info. It's affirmed our decision > to go ahead with the band. > > Our orthotist, Bob Cook, is estimating that Alyssa will be in the > DocBand for 3 to 4 mths given her age but has also said we'll have to > see. I'm hoping and praying that one band will do. Alyssa screamed > and cried during the entire molding process. It shook me up a lot and > Bob as well! He felt so bad for Alyssa and me. I really don't want to > put her through another molding process. > > I was stressing out about the helmet decorating process and was glad > to read the decorating tips. I had it in my head the decoration had > to last the whole time Alyssa wore the helmet but it sounds like, no. > So, I can have some fun with it now. > > Amy Meyers> Houston, TX>

[Guest guest]

Hi Amy,Welcome to the group! I'm glad your daughter is doing so well in her band. They really do look cute in them! Have fun with the decorating. I usually changed my daughter's decorations every two weeks or so. She wore her third DOCband from 15.5-19.5mos old and did receive excellent correction in her shape and ears with that band as well. You can see that "older baby" third band correction and some of her decorated helmet designs on her website below. Me and My Big Ideas makes a really cute set of Thanksgiving stickers! I always ordered from www.scrapbookbargain.com . Keep us posted on Alyssa's progress!, mom to Hannah, DOCgradCape Cod, Mahttp://hannahsnoggin.typepad.com >> Hi, > > I'm Amy Meyers. My daughter, Alyssa (14 mths), was banded a week ago > this past Thursday. She is doing great with the Docband, much to my > husband and my relief. And she looks absolutely adorable in the band! > Alyssa has really adjusted well to the band. We haven't had any red > or pink spots on her head. She had some trouble sleeping in the band > the first couple of nights but she's fine now. Alyssa has taken off > the band by herself only once and doesn't even fiddle with the strap > anymore. Since we live in Houston I was concerned about perspiration > with the band but it hasn't been as bad as I expected. > > My husband and I (and son) adopted our daughter from China in June > and noticed the first time we gave her a bath that the back of her > head was flat on one side and tilted off to the right, classic case > of plagiocephaly. It took us until the end of August before we were > able to see a specialist here in Houston who immediately sent us to > OPA in the Woodlands. I didn't find this group until last week - > wish I'd known sooner - I've spent a lot of time reading through the > files and really appreciate all the info. It's affirmed our decision > to go ahead with the band. > > Our orthotist, Bob Cook, is estimating that Alyssa will be in the > DocBand for 3 to 4 mths given her age but has also said we'll have to > see. I'm hoping and praying that one band will do. Alyssa screamed > and cried during the entire molding process. It shook me up a lot and > Bob as well! He felt so bad for Alyssa and me. I really don't want to > put her through another molding process. > > I was stressing out about the helmet decorating process and was glad > to read the decorating tips. I had it in my head the decoration had > to last the whole time Alyssa wore the helmet but it sounds like, no. > So, I can have some fun with it now. > > Amy Meyers> Houston, TX>

[Guest guest]

Welcome Amy,

Congratulations on your new daughter. I am so happy that you have

had such a good experience so far getting Alyssa treated. We used

Cranial Technologies as well and had excellent correction and care.

You can look at my sons' website to see his progress pictures.

www.mybandedbaby.typepad.com Keep us posted on how she does.

CAROLG

>

> Hi,

>

> I'm Amy Meyers. My daughter, Alyssa (14 mths), was banded a week

ago

> this past Thursday. She is doing great with the Docband, much to

my

> husband and my relief. And she looks absolutely adorable in the

band!

> Alyssa has really adjusted well to the band. We haven't had any red

> or pink spots on her head. She had some trouble sleeping in the

band

> the first couple of nights but she's fine now. Alyssa has taken off

> the band by herself only once and doesn't even fiddle with the

strap

> anymore. Since we live in Houston I was concerned about

perspiration

> with the band but it hasn't been as bad as I expected.

>

> My husband and I (and son) adopted our daughter from China in June

> and noticed the first time we gave her a bath that the back of her

> head was flat on one side and tilted off to the right, classic case

> of plagiocephaly. It took us until the end of August before we were

> able to see a specialist here in Houston who immediately sent us to

> OPA in the Woodlands. I didn't find this group until last week -

> wish I'd known sooner - I've spent a lot of time reading through

the

> files and really appreciate all the info. It's affirmed our

decision

> to go ahead with the band.

>

> Our orthotist, Bob Cook, is estimating that Alyssa will be in the

> DocBand for 3 to 4 mths given her age but has also said we'll have

to

> see. I'm hoping and praying that one band will do. Alyssa screamed

> and cried during the entire molding process. It shook me up a lot

and

> Bob as well! He felt so bad for Alyssa and me. I really don't want

to

> put her through another molding process.

>

> I was stressing out about the helmet decorating process and was

glad

> to read the decorating tips. I had it in my head the decoration

had

> to last the whole time Alyssa wore the helmet but it sounds like,

no.

> So, I can have some fun with it now.

>

> Amy Meyers

> Houston, TX

>

[Guest guest]

Welcome Amy,

Congratulations on your new daughter. I am so happy that you have

had such a good experience so far getting Alyssa treated. We used

Cranial Technologies as well and had excellent correction and care.

You can look at my sons' website to see his progress pictures.

www.mybandedbaby.typepad.com Keep us posted on how she does.

CAROLG

>

> Hi,

>

> I'm Amy Meyers. My daughter, Alyssa (14 mths), was banded a week

ago

> this past Thursday. She is doing great with the Docband, much to

my

> husband and my relief. And she looks absolutely adorable in the

band!

> Alyssa has really adjusted well to the band. We haven't had any red

> or pink spots on her head. She had some trouble sleeping in the

band

> the first couple of nights but she's fine now. Alyssa has taken off

> the band by herself only once and doesn't even fiddle with the

strap

> anymore. Since we live in Houston I was concerned about

perspiration

> with the band but it hasn't been as bad as I expected.

>

> My husband and I (and son) adopted our daughter from China in June

> and noticed the first time we gave her a bath that the back of her

> head was flat on one side and tilted off to the right, classic case

> of plagiocephaly. It took us until the end of August before we were

> able to see a specialist here in Houston who immediately sent us to

> OPA in the Woodlands. I didn't find this group until last week -

> wish I'd known sooner - I've spent a lot of time reading through

the

> files and really appreciate all the info. It's affirmed our

decision

> to go ahead with the band.

>

> Our orthotist, Bob Cook, is estimating that Alyssa will be in the

> DocBand for 3 to 4 mths given her age but has also said we'll have

to

> see. I'm hoping and praying that one band will do. Alyssa screamed

> and cried during the entire molding process. It shook me up a lot

and

> Bob as well! He felt so bad for Alyssa and me. I really don't want

to

> put her through another molding process.

>

> I was stressing out about the helmet decorating process and was

glad

> to read the decorating tips. I had it in my head the decoration

had

> to last the whole time Alyssa wore the helmet but it sounds like,

no.

> So, I can have some fun with it now.

>

> Amy Meyers

> Houston, TX

>

[Guest guest]

Hello,

I'm still here - October has been a crazy month. I started back to

work part time this month and volunteered to help coordinate my son's

school carnival. The carnival was last weekend so this week I

actually have some free time! Alyssa has now had her docband three

weeks and is doing great with it. Our next appt with her orthotist

is next Friday. My husband and I think that we can tell a difference

with the back of her head - it looks like it's more rounded; however,

the slant is still there. I have the measurements from our orthotist

but they make very little sense to me. Hope someone can help me out

with interpreting the numbers. All I know is that her head shape is

noticeably out of whack. Alyssa does not have tort nor does she have

any visible facial alignment issues.

EU-EU 125

G-OP 140

FZ R-EU L 130

FZ L-EU R 145

EX-T R 60

EX-T L 55

SN-T R 80

SN-T L 75

I'll try and post pics but we have a digital camera and my husband is

holding all the pics hostage on his laptop. Something about he has

to reformat them before I can send them off to someone else and our

home PC is too old and isn't robust enough to handle the pics. It's

an ongoing discussion :-). So, one of these days I'll post pics.

Amy

> >

>

> Hi

>

> I'm glad you found this group. THey have been helping me alot.

I've been dealing with fibro. so I don't think I've been able to

help many yet, eventually that will change. So far I just encourage

moms face to face that I see, and tell them to join this group.

Keeps the good folks here really buzy.

> My son started treatment 4/7/05 at 12.5 adjusted months of age, or

13.25 actual

> His measurements were 13mm cranial vault ass. 9 mm ears and 5

eyes. They changed only a little while in the 1st band for 2.75

months(he did not out grow this, band but was encouraged to get 2nd)

at that time his measurements went to 9mm cranial vault, 5 ears and 4

eyes mm assy. At this time his circumferance grew 11mm. I'm not

sure my band was good, and I'm still curious about the 2nd one he's

currently in for 3.5 months at age 19 mo. adjusted, or 20 actually.

I'm going to be going to a new ct at the cranial tech in Az. And am

hoping to get a good fitted band. My PT would not give me any hope

when I got the band 1st on if he would get much correction, or the

number of bands he would need. Is your childs head not to severe

compared to mine, that the PT was comfortable telling you 3-4 months

in 1 band. Just trying to get more info. And also want you to be

very very sure you have a great fit. There are files on the site. I

think my childs bump on the right side (plagio) caused the band to

push up on that side, making all the pressure points be off. Not

trying to cause you any stress, but I sure wish I would of know to

really watch this. She if you can get them to measure at 1st

fittings, and see if the growth is being redirected as it should be.

Mine Pt. was against measuring more than 2 months into band. Alot of

time went by -lots of lost correction potential. (I have to say I did

watch for not good fittings, but the pt said the band was find - even

when it sat crooked. I don't understand, now I can see that his head

was straight and the cast was attempted to be cast just as he was,

not crooked.

>

> I hope I helped some, Please let me know what you childs

measurements are, at keep us posted.

>

> Jantjie

> 19 month - 2 bands, changing for 3rd

>

>

> > Hi,

> >

> > I'm Amy Meyers. My daughter, Alyssa (14 mths), was banded a week

ago

> > this past Thursday. She is doing great with the Docband, much to

my

> > husband and my relief. And she looks absolutely adorable in the

band!

> > Alyssa has really adjusted well to the band. We haven't had any

red

> > or pink spots on her head. She had some trouble sleeping in the

band

> > the first couple of nights but she's fine now. Alyssa has taken

off

> > the band by herself only once and doesn't even fiddle with the

strap

> > anymore. Since we live in Houston I was concerned about

perspiration

> > with the band but it hasn't been as bad as I expected.

> >

> > My husband and I (and son) adopted our daughter from China in

June

> > and noticed the first time we gave her a bath that the back of

her

> > head was flat on one side and tilted off to the right, classic

case

> > of plagiocephaly. It took us until the end of August before we

were

> > able to see a specialist here in Houston who immediately sent us

to

> > OPA in the Woodlands. I didn't find this group until last week -

> > wish I'd known sooner - I've spent a lot of time reading through

the

> > files and really appreciate all the info. It's affirmed our

decision

> > to go ahead with the band.

> >

> > Our orthotist, Bob Cook, is estimating that Alyssa will be in the

> > DocBand for 3 to 4 mths given her age but has also said we'll

have to

> > see. I'm hoping and praying that one band will do. Alyssa

screamed

> > and cried during the entire molding process. It shook me up a lot

and

> > Bob as well! He felt so bad for Alyssa and me. I really don't

want to

> > put her through another molding process.

> >

> > I was stressing out about the helmet decorating process and was

glad

> > to read the decorating tips. I had it in my head the decoration

had

> > to last the whole time Alyssa wore the helmet but it sounds like,

no.

> > So, I can have some fun with it now.

> >

> > Amy Meyers

> > Houston, TX

> >

>

[Guest guest]

Hello,

I'm still here - October has been a crazy month. I started back to

work part time this month and volunteered to help coordinate my son's

school carnival. The carnival was last weekend so this week I

actually have some free time! Alyssa has now had her docband three

weeks and is doing great with it. Our next appt with her orthotist

is next Friday. My husband and I think that we can tell a difference

with the back of her head - it looks like it's more rounded; however,

the slant is still there. I have the measurements from our orthotist

but they make very little sense to me. Hope someone can help me out

with interpreting the numbers. All I know is that her head shape is

noticeably out of whack. Alyssa does not have tort nor does she have

any visible facial alignment issues.

EU-EU 125

G-OP 140

FZ R-EU L 130

FZ L-EU R 145

EX-T R 60

EX-T L 55

SN-T R 80

SN-T L 75

I'll try and post pics but we have a digital camera and my husband is

holding all the pics hostage on his laptop. Something about he has

to reformat them before I can send them off to someone else and our

home PC is too old and isn't robust enough to handle the pics. It's

an ongoing discussion :-). So, one of these days I'll post pics.

Amy

> >

>

> Hi

>

> I'm glad you found this group. THey have been helping me alot.

I've been dealing with fibro. so I don't think I've been able to

help many yet, eventually that will change. So far I just encourage

moms face to face that I see, and tell them to join this group.

Keeps the good folks here really buzy.

> My son started treatment 4/7/05 at 12.5 adjusted months of age, or

13.25 actual

> His measurements were 13mm cranial vault ass. 9 mm ears and 5

eyes. They changed only a little while in the 1st band for 2.75

months(he did not out grow this, band but was encouraged to get 2nd)

at that time his measurements went to 9mm cranial vault, 5 ears and 4

eyes mm assy. At this time his circumferance grew 11mm. I'm not

sure my band was good, and I'm still curious about the 2nd one he's

currently in for 3.5 months at age 19 mo. adjusted, or 20 actually.

I'm going to be going to a new ct at the cranial tech in Az. And am

hoping to get a good fitted band. My PT would not give me any hope

when I got the band 1st on if he would get much correction, or the

number of bands he would need. Is your childs head not to severe

compared to mine, that the PT was comfortable telling you 3-4 months

in 1 band. Just trying to get more info. And also want you to be

very very sure you have a great fit. There are files on the site. I

think my childs bump on the right side (plagio) caused the band to

push up on that side, making all the pressure points be off. Not

trying to cause you any stress, but I sure wish I would of know to

really watch this. She if you can get them to measure at 1st

fittings, and see if the growth is being redirected as it should be.

Mine Pt. was against measuring more than 2 months into band. Alot of

time went by -lots of lost correction potential. (I have to say I did

watch for not good fittings, but the pt said the band was find - even

when it sat crooked. I don't understand, now I can see that his head

was straight and the cast was attempted to be cast just as he was,

not crooked.

>

> I hope I helped some, Please let me know what you childs

measurements are, at keep us posted.

>

> Jantjie

> 19 month - 2 bands, changing for 3rd

>

>

> > Hi,

> >

> > I'm Amy Meyers. My daughter, Alyssa (14 mths), was banded a week

ago

> > this past Thursday. She is doing great with the Docband, much to

my

> > husband and my relief. And she looks absolutely adorable in the

band!

> > Alyssa has really adjusted well to the band. We haven't had any

red

> > or pink spots on her head. She had some trouble sleeping in the

band

> > the first couple of nights but she's fine now. Alyssa has taken

off

> > the band by herself only once and doesn't even fiddle with the

strap

> > anymore. Since we live in Houston I was concerned about

perspiration

> > with the band but it hasn't been as bad as I expected.

> >

> > My husband and I (and son) adopted our daughter from China in

June

> > and noticed the first time we gave her a bath that the back of

her

> > head was flat on one side and tilted off to the right, classic

case

> > of plagiocephaly. It took us until the end of August before we

were

> > able to see a specialist here in Houston who immediately sent us

to

> > OPA in the Woodlands. I didn't find this group until last week -

> > wish I'd known sooner - I've spent a lot of time reading through

the

> > files and really appreciate all the info. It's affirmed our

decision

> > to go ahead with the band.

> >

> > Our orthotist, Bob Cook, is estimating that Alyssa will be in the

> > DocBand for 3 to 4 mths given her age but has also said we'll

have to

> > see. I'm hoping and praying that one band will do. Alyssa

screamed

> > and cried during the entire molding process. It shook me up a lot

and

> > Bob as well! He felt so bad for Alyssa and me. I really don't

want to

> > put her through another molding process.

> >

> > I was stressing out about the helmet decorating process and was

glad

> > to read the decorating tips. I had it in my head the decoration

had

> > to last the whole time Alyssa wore the helmet but it sounds like,

no.

> > So, I can have some fun with it now.

> >

> > Amy Meyers

> > Houston, TX

> >

>

[Guest guest]

Hello.I am also new to the group and to RA.As of now all I know

is that I have tested positive for the Rheumatoid Factor and I

have suffered with joint and muscle pain for years.My knees are

a mess.I have my first appointment with a rheumatologist

Nov.22nd.

I am 50 years old and live in Indiana.I have been married for

27 years and we have 2 sons.I am eager to get to know everyone

and to learn about this disease.

Many thanks,

[Guest guest]

Hello.I am also new to the group and to RA.As of now all I know

is that I have tested positive for the Rheumatoid Factor and I

have suffered with joint and muscle pain for years.My knees are

a mess.I have my first appointment with a rheumatologist

Nov.22nd.

I am 50 years old and live in Indiana.I have been married for

27 years and we have 2 sons.I am eager to get to know everyone

and to learn about this disease.

Many thanks,

[Guest guest]

Welcome ,

You have come to the right place. I'm sorry about your diagnose, it

is so overwhelming when first diagnosed. There are great people here,

and wonderful moderators who will hold your hand, and help you find

information that you need. I am looking forward to get to know you.

God bless, Tawny

>

> Hello.I am also new to the group and to RA.As of now all I know

> is that I have tested positive for the Rheumatoid Factor and I

> have suffered with joint and muscle pain for years.My knees are

> a mess.I have my first appointment with a rheumatologist

> Nov.22nd.

> I am 50 years old and live in Indiana.I have been married for

> 27 years and we have 2 sons.I am eager to get to know everyone

> and to learn about this disease.

> Many thanks,

>

>

[Guest guest]

Welcome ,

You have come to the right place. I'm sorry about your diagnose, it

is so overwhelming when first diagnosed. There are great people here,

and wonderful moderators who will hold your hand, and help you find

information that you need. I am looking forward to get to know you.

God bless, Tawny

>

> Hello.I am also new to the group and to RA.As of now all I know

> is that I have tested positive for the Rheumatoid Factor and I

> have suffered with joint and muscle pain for years.My knees are

> a mess.I have my first appointment with a rheumatologist

> Nov.22nd.

> I am 50 years old and live in Indiana.I have been married for

> 27 years and we have 2 sons.I am eager to get to know everyone

> and to learn about this disease.

> Many thanks,

>

>

[Guest guest]

,

I believe I can safely say that we've all been where you are. I am fairly

new to this and still am dealing with some of the same emotions as you

described. My daughter is in the moderate to severe category and a DOC band

was recommended. We have gone through two evaluations, to check

measurements, and are going to get one more. We think, based on the last

two, that we will need a band. I finally feel okay about it. I sobbed at our

first appointment and then felt downright rebellious about it. Fortunately

that didn't last long. This groups has helped me. It is nice to know it is

not as rare as it feels (I had never heard of, seen or been warned about

plagiocephaly). I have already read quite a few stories that paralleled my

own and people graciously answered my nervous mom questions... i.e., did

anyone regret it? What problems can I expect? Etc. All this to say, you are

in the right group. Welcome. And begin to tell yourself each time you feel

guilty the slow mantra that it is not your fault... You are a fabulous,

supportive parent (I know this because you are taking pains to fix her

little head and to ask for help).

Take care,

, mom of Ashlyn, 6 mo., pondering DOC band

Introduction

Hi, my name is and my 4-month-old daughter Caitlyn has just been

diagnosed with plagiocephaly and torticollis. We are scheduled to go to

Cranial Tech on Monday, Nov. 7th. I'm really scared and just learning about

this problem. Her head is flattened somewhat on the right side. I'm not

sure yet how severe. I'll have to take some pictures and post them here.

Right now, I feel like I'm going to need a lot of support and someone to

talk to that has " been there. " I am feeling guilty, like this is my fault.

Somehow I didn't do something that I should've done. I feel really bad that

Caitlyn most likely will need to wear a DOC band.

Anyway, I'm excited to get to know even more about plagiocephaly and getting

to know everyone!

(Caitlyn--34.4 weeks gestation; now 4 months old)

[Guest guest]

,

I believe I can safely say that we've all been where you are. I am fairly

new to this and still am dealing with some of the same emotions as you

described. My daughter is in the moderate to severe category and a DOC band

was recommended. We have gone through two evaluations, to check

measurements, and are going to get one more. We think, based on the last

two, that we will need a band. I finally feel okay about it. I sobbed at our

first appointment and then felt downright rebellious about it. Fortunately

that didn't last long. This groups has helped me. It is nice to know it is

not as rare as it feels (I had never heard of, seen or been warned about

plagiocephaly). I have already read quite a few stories that paralleled my

own and people graciously answered my nervous mom questions... i.e., did

anyone regret it? What problems can I expect? Etc. All this to say, you are

in the right group. Welcome. And begin to tell yourself each time you feel

guilty the slow mantra that it is not your fault... You are a fabulous,

supportive parent (I know this because you are taking pains to fix her

little head and to ask for help).

Take care,

, mom of Ashlyn, 6 mo., pondering DOC band

Introduction

Hi, my name is and my 4-month-old daughter Caitlyn has just been

diagnosed with plagiocephaly and torticollis. We are scheduled to go to

Cranial Tech on Monday, Nov. 7th. I'm really scared and just learning about

this problem. Her head is flattened somewhat on the right side. I'm not

sure yet how severe. I'll have to take some pictures and post them here.

Right now, I feel like I'm going to need a lot of support and someone to

talk to that has " been there. " I am feeling guilty, like this is my fault.

Somehow I didn't do something that I should've done. I feel really bad that

Caitlyn most likely will need to wear a DOC band.

Anyway, I'm excited to get to know even more about plagiocephaly and getting

to know everyone!

(Caitlyn--34.4 weeks gestation; now 4 months old)

[Guest guest]

Yu know, wearing the band is really not that awful. I had the same concerns as everybody else. I took my son for two consults in June and we didn't get the band until Sept. I procrastinated. Actually once he started rolling and sleeping onthe stomach his head rounded out some.

My point really is that it really doesn't bother most kids and i think that they look really cute with the band. It makes them even more special. Besides i am going to miss the band b/c we have a tile floor in the kitchen and he likes to band the helmet on the floor and when i take it off he forgets that he doesn't have it on.

It really isn't your fault. You concern and feeling show what a great parent you are. You will see how many people are in the same situation that you are. Whatever you decide to do our thoughts are with you.

Good Luck,

Carolyn Freeman <freejulie@...> wrote:

, I believe I can safely say that we've all been where you are. I am fairlynew to this and still am dealing with some of the same emotions as youdescribed. My daughter is in the moderate to severe category and a DOC bandwas recommended. We have gone through two evaluations, to checkmeasurements, and are going to get one more. We think, based on the lasttwo, that we will need a band. I finally feel okay about it. I sobbed at ourfirst appointment and then felt downright rebellious about it. Fortunatelythat didn't last long. This groups has helped me. It is nice to know it isnot as rare as it feels (I had never heard of, seen or been warned aboutplagiocephaly). I have already read quite a few stories that paralleled myown and people graciously answered my nervous mom questions... i.e., didanyone regret it? What problems can I

expect? Etc. All this to say, you arein the right group. Welcome. And begin to tell yourself each time you feelguilty the slow mantra that it is not your fault... You are a fabulous,supportive parent (I know this because you are taking pains to fix herlittle head and to ask for help). Take care, , mom of Ashlyn, 6 mo., pondering DOC band-----Original Message-----From: Plagiocephaly [mailto:Plagiocephaly ]On Behalf Of Sent: Monday, October 31, 2005 7:08 PMPlagiocephaly Subject: IntroductionHi, my name is and my 4-month-old daughter Caitlyn has just beendiagnosed with plagiocephaly and torticollis. We are scheduled to go toCranial Tech on Monday, Nov. 7th. I'm really scared and just learning aboutthis problem. Her head is flattened somewhat on the right side. I'm notsure yet how severe. I'll have to take

some pictures and post them here. Right now, I feel like I'm going to need a lot of support and someone totalk to that has "been there." I am feeling guilty, like this is my fault.Somehow I didn't do something that I should've done. I feel really bad thatCaitlyn most likely will need to wear a DOC band. Anyway, I'm excited to get to know even more about plagiocephaly and gettingto know everyone!(Caitlyn--34.4 weeks gestation; now 4 months old)

[Guest guest]

Yu know, wearing the band is really not that awful. I had the same concerns as everybody else. I took my son for two consults in June and we didn't get the band until Sept. I procrastinated. Actually once he started rolling and sleeping onthe stomach his head rounded out some.

My point really is that it really doesn't bother most kids and i think that they look really cute with the band. It makes them even more special. Besides i am going to miss the band b/c we have a tile floor in the kitchen and he likes to band the helmet on the floor and when i take it off he forgets that he doesn't have it on.

It really isn't your fault. You concern and feeling show what a great parent you are. You will see how many people are in the same situation that you are. Whatever you decide to do our thoughts are with you.

Good Luck,

Carolyn Freeman <freejulie@...> wrote:

, I believe I can safely say that we've all been where you are. I am fairlynew to this and still am dealing with some of the same emotions as youdescribed. My daughter is in the moderate to severe category and a DOC bandwas recommended. We have gone through two evaluations, to checkmeasurements, and are going to get one more. We think, based on the lasttwo, that we will need a band. I finally feel okay about it. I sobbed at ourfirst appointment and then felt downright rebellious about it. Fortunatelythat didn't last long. This groups has helped me. It is nice to know it isnot as rare as it feels (I had never heard of, seen or been warned aboutplagiocephaly). I have already read quite a few stories that paralleled myown and people graciously answered my nervous mom questions... i.e., didanyone regret it? What problems can I

expect? Etc. All this to say, you arein the right group. Welcome. And begin to tell yourself each time you feelguilty the slow mantra that it is not your fault... You are a fabulous,supportive parent (I know this because you are taking pains to fix herlittle head and to ask for help). Take care, , mom of Ashlyn, 6 mo., pondering DOC band-----Original Message-----From: Plagiocephaly [mailto:Plagiocephaly ]On Behalf Of Sent: Monday, October 31, 2005 7:08 PMPlagiocephaly Subject: IntroductionHi, my name is and my 4-month-old daughter Caitlyn has just beendiagnosed with plagiocephaly and torticollis. We are scheduled to go toCranial Tech on Monday, Nov. 7th. I'm really scared and just learning aboutthis problem. Her head is flattened somewhat on the right side. I'm notsure yet how severe. I'll have to take

some pictures and post them here. Right now, I feel like I'm going to need a lot of support and someone totalk to that has "been there." I am feeling guilty, like this is my fault.Somehow I didn't do something that I should've done. I feel really bad thatCaitlyn most likely will need to wear a DOC band. Anyway, I'm excited to get to know even more about plagiocephaly and gettingto know everyone!(Caitlyn--34.4 weeks gestation; now 4 months old)

[Guest guest]

Hello and Welcome! Glad you found this site, it's going to be very helpful! I know what you're going through, feeling like somehow this is your fault, but IT'S NOT!! Don't feel that way, how could you have prevented something you didn't know anything about?! I felt that exact same way, but soon realized that I had never heard of this before, and no one mentions it at the hospital or any of the classes that I took before I had Waydon. Is Caitlyn getting PT for her tort? How is that going? I'm glad to hear that you have an appt already for an eval at CT. At her age she'll hit a big growth spurt in her band (if she needs one) and she more than likely won't be in it very long!Good luck and let us know how it goes!LacyWaydon 1 yearDOC Gradhttp://waydonsnoodle.com>> Hi, my name is and my 4-month-old daughter Caitlyn has just been > diagnosed with plagiocephaly and torticollis. We are scheduled to go > to Cranial Tech on Monday, Nov. 7th. I'm really scared and just > learning about this problem. Her head is flattened somewhat on the > right side. I'm not sure yet how severe. I'll have to take some > pictures and post them here. > > Right now, I feel like I'm going to need a lot of support and someone > to talk to that has "been there." I am feeling guilty, like this is > my fault. Somehow I didn't do something that I should've done. I > feel really bad that Caitlyn most likely will need to wear a DOC > band. > > Anyway, I'm excited to get to know even more about plagiocephaly and > getting to know everyone!> > > (Caitlyn--34.4 weeks gestation; now 4 months old)>

[Guest guest]

Hello and Welcome! Glad you found this site, it's going to be very helpful! I know what you're going through, feeling like somehow this is your fault, but IT'S NOT!! Don't feel that way, how could you have prevented something you didn't know anything about?! I felt that exact same way, but soon realized that I had never heard of this before, and no one mentions it at the hospital or any of the classes that I took before I had Waydon. Is Caitlyn getting PT for her tort? How is that going? I'm glad to hear that you have an appt already for an eval at CT. At her age she'll hit a big growth spurt in her band (if she needs one) and she more than likely won't be in it very long!Good luck and let us know how it goes!LacyWaydon 1 yearDOC Gradhttp://waydonsnoodle.com>> Hi, my name is and my 4-month-old daughter Caitlyn has just been > diagnosed with plagiocephaly and torticollis. We are scheduled to go > to Cranial Tech on Monday, Nov. 7th. I'm really scared and just > learning about this problem. Her head is flattened somewhat on the > right side. I'm not sure yet how severe. I'll have to take some > pictures and post them here. > > Right now, I feel like I'm going to need a lot of support and someone > to talk to that has "been there." I am feeling guilty, like this is > my fault. Somehow I didn't do something that I should've done. I > feel really bad that Caitlyn most likely will need to wear a DOC > band. > > Anyway, I'm excited to get to know even more about plagiocephaly and > getting to know everyone!> > > (Caitlyn--34.4 weeks gestation; now 4 months old)>

[Guest guest]

,Welcome to our group. You should find everything you need right here. We have a great bunch of parents on here all going through the same thing as you. First off let me say, don't blame yourself. I see that Caitlyn was a preemie and that predisposes her to plagiocephaly. Also if you were never told about plagiocephaly,like most of us, then you couldn't have known to prevent it or even look for it. I will tell you, you're in great hands with CT. They have been treating my son Dominick and have been awesome. The babies adjust quickly to the bands and then don't even care that they are on. The wearing of a Doc Band is just a small part of her life now with huge benefits for later. Would you put braces on a child if thier teeth were crooked? Plagiocephaly is not just a cosmetic problem, there are associated risks that can go along with it. They include TMJ,vision problems,feeding problems,ear infections,speech delays, developemental delays and early school age delays. I know this all so overwhelming right now, but before long you will know it all and settle in to a routine. Take a look at my son's website My Banded Baby . It will take you through the Doc Band process from start to finish and all the stuff in between. Also if you go to the Cranial Tech website they have assessment charts that will give you an idea of how severe she is, so you won't go into the appt. not knowing what to expect. You just keep asking questions and venting your fears and frustrations here and you will do ok. Good Luck to you and Caitlyn on the 7th, let us know how it goes. CAROLG >> Hi, my name is and my 4-month-old daughter Caitlyn has just been > diagnosed with plagiocephaly and torticollis. We are scheduled to go > to Cranial Tech on Monday, Nov. 7th. I'm really scared and just > learning about this problem. Her head is flattened somewhat on the > right side. I'm not sure yet how severe. I'll have to take some > pictures and post them here. > > Right now, I feel like I'm going to need a lot of support and someone > to talk to that has "been there." I am feeling guilty, like this is > my fault. Somehow I didn't do something that I should've done. I > feel really bad that Caitlyn most likely will need to wear a DOC > band. > > Anyway, I'm excited to get to know even more about plagiocephaly and > getting to know everyone!> > > (Caitlyn--34.4 weeks gestation; now 4 months old)>

[Guest guest]

,Welcome to our group. You should find everything you need right here. We have a great bunch of parents on here all going through the same thing as you. First off let me say, don't blame yourself. I see that Caitlyn was a preemie and that predisposes her to plagiocephaly. Also if you were never told about plagiocephaly,like most of us, then you couldn't have known to prevent it or even look for it. I will tell you, you're in great hands with CT. They have been treating my son Dominick and have been awesome. The babies adjust quickly to the bands and then don't even care that they are on. The wearing of a Doc Band is just a small part of her life now with huge benefits for later. Would you put braces on a child if thier teeth were crooked? Plagiocephaly is not just a cosmetic problem, there are associated risks that can go along with it. They include TMJ,vision problems,feeding problems,ear infections,speech delays, developemental delays and early school age delays. I know this all so overwhelming right now, but before long you will know it all and settle in to a routine. Take a look at my son's website My Banded Baby . It will take you through the Doc Band process from start to finish and all the stuff in between. Also if you go to the Cranial Tech website they have assessment charts that will give you an idea of how severe she is, so you won't go into the appt. not knowing what to expect. You just keep asking questions and venting your fears and frustrations here and you will do ok. Good Luck to you and Caitlyn on the 7th, let us know how it goes. CAROLG >> Hi, my name is and my 4-month-old daughter Caitlyn has just been > diagnosed with plagiocephaly and torticollis. We are scheduled to go > to Cranial Tech on Monday, Nov. 7th. I'm really scared and just > learning about this problem. Her head is flattened somewhat on the > right side. I'm not sure yet how severe. I'll have to take some > pictures and post them here. > > Right now, I feel like I'm going to need a lot of support and someone > to talk to that has "been there." I am feeling guilty, like this is > my fault. Somehow I didn't do something that I should've done. I > feel really bad that Caitlyn most likely will need to wear a DOC > band. > > Anyway, I'm excited to get to know even more about plagiocephaly and > getting to know everyone!> > > (Caitlyn--34.4 weeks gestation; now 4 months old)>

[Guest guest]

Hi !

You have found a great group here! There are so many people out

there that have similiar stories. I am still new here, but it is

amazing how much you learn pretty quickly. My son Ian is 5 mo old

and he has been in a DOC band for 2 weeks. I cried @ CT when they

said that he was a candidate for the band. I went through feeling

bad for Ian that we didn't recognize the flatness earlier. (Kept

hoping that it would round out on its own...actually got worse b/t 2

mo and 4 mo).

Anyway, this is a great board with lots of people who have been

there. Its reassuring to read their stories. After all the time

you put into your decision, I am sure that you will make the right

one for Caitlyn. It is scary making a decision for your child like

wearing the band. Ian doesn't mind having his on at all now. We

had a little bumpy start the first week, but we're good now.

Good Luck! Looking forward to hearing how you appointment goes!

Mom to 2 yrs & Ian 5 mo DOC 10/18

>

> Hi, my name is and my 4-month-old daughter Caitlyn has just

been

> diagnosed with plagiocephaly and torticollis. We are scheduled to

go

> to Cranial Tech on Monday, Nov. 7th. I'm really scared and just

> learning about this problem. Her head is flattened somewhat on

the

> right side. I'm not sure yet how severe. I'll have to take some

> pictures and post them here.

>

> Right now, I feel like I'm going to need a lot of support and

someone

> to talk to that has " been there. " I am feeling guilty, like this

is

> my fault. Somehow I didn't do something that I should've done. I

> feel really bad that Caitlyn most likely will need to wear a DOC

> band.

>

> Anyway, I'm excited to get to know even more about plagiocephaly

and

> getting to know everyone!

>

>

> (Caitlyn--34.4 weeks gestation; now 4 months old)

>

[Guest guest]

Hi !

You have found a great group here! There are so many people out

there that have similiar stories. I am still new here, but it is

amazing how much you learn pretty quickly. My son Ian is 5 mo old

and he has been in a DOC band for 2 weeks. I cried @ CT when they

said that he was a candidate for the band. I went through feeling

bad for Ian that we didn't recognize the flatness earlier. (Kept

hoping that it would round out on its own...actually got worse b/t 2

mo and 4 mo).

Anyway, this is a great board with lots of people who have been

there. Its reassuring to read their stories. After all the time

you put into your decision, I am sure that you will make the right

one for Caitlyn. It is scary making a decision for your child like

wearing the band. Ian doesn't mind having his on at all now. We

had a little bumpy start the first week, but we're good now.

Good Luck! Looking forward to hearing how you appointment goes!

Mom to 2 yrs & Ian 5 mo DOC 10/18

>

> Hi, my name is and my 4-month-old daughter Caitlyn has just

been

> diagnosed with plagiocephaly and torticollis. We are scheduled to

go

> to Cranial Tech on Monday, Nov. 7th. I'm really scared and just

> learning about this problem. Her head is flattened somewhat on

the

> right side. I'm not sure yet how severe. I'll have to take some

> pictures and post them here.

>

> Right now, I feel like I'm going to need a lot of support and

someone

> to talk to that has " been there. " I am feeling guilty, like this

is

> my fault. Somehow I didn't do something that I should've done. I

> feel really bad that Caitlyn most likely will need to wear a DOC

> band.

>

> Anyway, I'm excited to get to know even more about plagiocephaly

and

> getting to know everyone!

>

>

> (Caitlyn--34.4 weeks gestation; now 4 months old)

>

[Guest guest]

Hi - and welcome to this site, i'm sure you're going to get a

lot of great responses. Everyone here has been where you are right

now, and struggled with guilt, anxiety and wonder over what choice

to make ~ then once you make it ~ some second guessing here and

there!

I just wanted to say that you will make the decision that is best

for your daughter, no matter what that is. My twins were diagnosed

with plagiocephaly and brachyephaly (flatness across the back)

around 4.5 mos (we had been monitoring it since birth and trying

repositioning since like 2 mos). We saw specialists at Cranial

Technologies at the end of september, and we made the decision to

get the bands for both girls. For us, even though both girls were

in the mild range, we knew we would see good correction with the

band since the girls are so young ~ and we were not having great

success with repositioning. While you are contemplating what to do,

however, you should do the repositioning techniques listed int he

database and files here.

the casting was not pleasant (times two) but the girls have now been

in their bands for a week, and we are ALREADY seeing changes to

Olivia, our plagio baby. It's amazing, and we are more and more

certain every day that we've done the right thing for our girls.

Good luck with your decision, and welcome to this board!

Mom to Ava (brachy) and Olivia (plagio)

banded 10/25

>

> Hi, my name is and my 4-month-old daughter Caitlyn has just

been

> diagnosed with plagiocephaly and torticollis. We are scheduled to

go

> to Cranial Tech on Monday, Nov. 7th. I'm really scared and just

> learning about this problem. Her head is flattened somewhat on

the

> right side. I'm not sure yet how severe. I'll have to take some

> pictures and post them here.

>

> Right now, I feel like I'm going to need a lot of support and

someone

> to talk to that has " been there. " I am feeling guilty, like this

is

> my fault. Somehow I didn't do something that I should've done. I

> feel really bad that Caitlyn most likely will need to wear a DOC

> band.

>

> Anyway, I'm excited to get to know even more about plagiocephaly

and

> getting to know everyone!

>

>

> (Caitlyn--34.4 weeks gestation; now 4 months old)

>

[Guest guest]

Hi - and welcome to this site, i'm sure you're going to get a

lot of great responses. Everyone here has been where you are right

now, and struggled with guilt, anxiety and wonder over what choice

to make ~ then once you make it ~ some second guessing here and

there!

I just wanted to say that you will make the decision that is best

for your daughter, no matter what that is. My twins were diagnosed

with plagiocephaly and brachyephaly (flatness across the back)

around 4.5 mos (we had been monitoring it since birth and trying

repositioning since like 2 mos). We saw specialists at Cranial

Technologies at the end of september, and we made the decision to

get the bands for both girls. For us, even though both girls were

in the mild range, we knew we would see good correction with the

band since the girls are so young ~ and we were not having great

success with repositioning. While you are contemplating what to do,

however, you should do the repositioning techniques listed int he

database and files here.

the casting was not pleasant (times two) but the girls have now been

in their bands for a week, and we are ALREADY seeing changes to

Olivia, our plagio baby. It's amazing, and we are more and more

certain every day that we've done the right thing for our girls.

Good luck with your decision, and welcome to this board!

Mom to Ava (brachy) and Olivia (plagio)

banded 10/25

>

> Hi, my name is and my 4-month-old daughter Caitlyn has just

been

> diagnosed with plagiocephaly and torticollis. We are scheduled to

go

> to Cranial Tech on Monday, Nov. 7th. I'm really scared and just

> learning about this problem. Her head is flattened somewhat on

the

> right side. I'm not sure yet how severe. I'll have to take some

> pictures and post them here.

>

> Right now, I feel like I'm going to need a lot of support and

someone

> to talk to that has " been there. " I am feeling guilty, like this

is

> my fault. Somehow I didn't do something that I should've done. I

> feel really bad that Caitlyn most likely will need to wear a DOC

> band.

>

> Anyway, I'm excited to get to know even more about plagiocephaly

and

> getting to know everyone!

>

>

> (Caitlyn--34.4 weeks gestation; now 4 months old)

>

[Guest guest]

,

Welcome to the group!

I know we all feel your pain. Guilt is pretty common, but it is

unwarranted. Instead of feeling guilty just think of what a great

mommy you are for being so proactive. Caitlyn is at a great age for

treatment if it's necessary.

My son had a lot of facial and ear asymmetry. He wore a DOC Band from

5-8 months and his head looks awesome. He is 4 today with no signs of

plagio!

Our baby is currently in a band. As much as I learned with our son

she still ended up getting flat. I guess my kids heads are pretty

pliable! Must have gotten that from DH I would have banded her

at a younger age, but she didn't start getting flat until this summer.

Good luck at the appointment. Look into your heart and you will know

what's best.

Mom to Dane 4yo (DOC Grad) and Cece 10 mo (DOC 9/05)