Guest guest Posted December 27, 2005 Report Share Posted December 27, 2005 , Sorry it took so long the holidays have been crazy. How wonderful that Bug has shown no ill effects so far from his inutero life. I give you and patrick all the credit in the world for taking on this responsibility and truly hope that you will be able to adopt him. Now the plagio.....don't get too worried about having to wait till Jan, Bug is still young enough to recieve excellent correction. Most babies when caught young are banded between 3-5 months. Do you know what band provider this plastic surgeon refers to? You can always post to see what options are available in your area. If you would like to get an idea of how the whole process goes from start to finish you can look at my son's website www.mybandedbaby.typepad.com It has his story of treatment with the Doc band and has pictures of everything including progress pictures. It also has a bit of info on some of the associated risks(TMJ,vision problems,etc..) that can go hand in hand with plagio and tort. Hope this helps and good luck with everything. CAROLG > > Hi. My name is and my husband, , and I are foster > parents to the most adorable 3 month old who we call " Bug " . He was > brought into foster care because was born cocaine positive. Other > than being a preemie (born at 35 weeks) Bug has shown no affects > from the drug exposure. We brought him home from the hospital at 1 > week old and are very hopeful that we will be able to adopt him. > > I first noticed at his preference to turning his head to the right > when he was about 3 weeks old. I was looking through lots of > pictures and noticed that in just about all of them his head was > turned the same way. We discussed our concern with our pediatrician > at Bug's 1 month check up. He showed us some stretches to do because > he thought Bug had some neck tightening on the right side. He also > some repositioning techniques so we could keep him off the small > flat spot he had developed. At his 2 month check up we got the > referral for physical therapy for torticolis and plagiocephaly. Bug > has been going to therapy 2x a week since right before Thanksgiving. > His torticollis is SO much better, but he still has plagiocephaly. > His head has really rounded out a lot, but not as much as the PT > would like. Yesterday we got a referral to a pediatric plastic > surgeon and I'm sure we will most likely be getting Bug fitted for a > helmet. > > I found this group and was so excited to see such a wealth of > information. I'm a planner (urban planner) by profession and by > nature so I feel so much better know that there are so many other > parents going through this. I'm frustrated already because the next > available appointment isn't until the end of January!!! But > hopefully this group will help me become educated by then and I will > know what questions to ask and how to evaluate our options. > > Looking forward to reading everyone's advice and giving some in > return as I learn. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2006 Report Share Posted January 7, 2006 > > Hello all!... Welcome Kayla! B. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2006 Report Share Posted January 8, 2006 Kayla- >Hello all! I think that I have not yet introduced myself. Time has >gotten away from me, about a week anyway.(= My name is Kayla. I've >been changing to NT for the last year. This is a slow process when it's >4 sets of taste buds! I have a wonderful husband who supports me in >this change when it doesn't taste to sour........hummm when is that? >And I have 3 small children ages 4, 2, and 6 months. We live in Idaho >on 16 acres and hope to get our own cow and chickens soon. Right now I >get raw milk from my neighbor. I'm really just now starting to >experiment with kefir and soured milk products at home. I enjoy getting >all the information and support this group has to offer! Welcome to the list, and good luck with your journey towards better nutrition and health! It's fantastic that you have enough land for some livestock of your own. There's no better way to make sure that your family gets the best, tastiest and most nutritious food possible. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2006 Report Share Posted January 11, 2006 Hi ... Welcome...I have an 18 yr old high school senior who has AS...he was and is totally into the Weather Channel...even has autographed pics of some of the on-air people...lol! I think this has been a great place for support and information...hope you will find the same things. Looking forward to getting to know you and your family... Blessings, Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2006 Report Share Posted January 11, 2006 Gail, My son is 4 and just diagnosed...I posted a letter on here explaining all of the things he does, or doesn't do, I am totally new at all this...I worked with handicapped adults for years including autistic individuals...since your son is 18, I wonder what's in store for my son...can you explain to me what he's like now? what he was like in elementary school etc? I have no idea what to expect. thank you, > > Hi ... > > Welcome...I have an 18 yr old high school senior who has AS...he was and is > totally into the Weather Channel...even has autographed pics of some of the > on-air people...lol! I think this has been a great place for support and > information...hope you will find the same things. Looking forward to getting to > know you and your family... > Blessings, > Gail > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2006 Report Share Posted February 25, 2006 Welcome to the group Phil :-). You'll find lots of people to answer lots of questions. You'll also find lots of other people getting lives back too. Anita > > Im new to the list and just wanted to introduce myself. We do not have the issue of autism to deal but rather my lyme disease plus related co-infections and heavy metal toxicity.Joined this group as so many on other groups that I'm on recommended it. Am here to learn and pose questions to help me get a life back. > > Phil > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2006 Report Share Posted February 26, 2006 > Im new to the list and just wanted to introduce myself. We do not have the issue of autism to deal but rather my lyme disease plus related co-infections and heavy metal toxicity.Joined this group as so many on other groups that I'm on recommended it. Am here to learn and pose questions to help me get a life back. Welcome, Phil! I hope you find the information here useful. There is so much to read and learn about, sometimes can be overwhelming, but take it easy and let us know if you need any help. I know most people here are more than happy to help Good luck! Valentina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2006 Report Share Posted March 18, 2006 Hi and welcome! There are actually lots of us adults taking enzymes as well! Personally, I began taking them while pregnant with my last child (now 10 months) and continue for nursing as well. My daughter who will turn 4 in April (no ASD but all the biochemical markers and leaky gut - she walked and talked late and we got lucky and addressed insufficiencies biomedically and she is now developing normally except we have a cabinet full of supplements!) has done wonderfully well on the enzymes. I feel our family was very lucky that we found enzymes almost before any other supplement (besides EFAs and probiotics). Glad you are enjoying 's book. You have probably also found her website www.enzymestuff.com <http://www.enzymestuff.com/> ? It is another great resource; and you will find lots of people on the list to answer any questions you have along the way. Josie introduction Good morning to all of you, My name is Gray and I am just starting to experiment with enzymes for my 22 year old son, . I've been reading 's book and noted that there is little information anecdotally or research-wise regarding this approach to adults. Hopefully, we can contribute along the way. I have been where you parents of young children are now, although obviously, the newer philosophies were not as refined as they are now. was one of those typically developing toddlers who lost language, and other developmentally appropriate skills between 18 mos. and 24 mos. He also started spinning himself in circles - you know the rest. We tried the Feingold diet with good success around age 4 - he had chronic diarrhea since very early on, which cleared up with the FG diet. But, we didn't stick with it. Interestingly, the idea of cerebral allergy was around even in 1986, but wasn't given much credibility. Over the years we tried: B-6, Mg, DMG, sensory integration, cranial-sacral, speech therapy, pre-school, auditory-integration, facilitated communication, Son-Rise, Landau-Kleffner eval, and various meds. By age 9, had gotten very aggressive and was hospitalized in an attempt to find the right combination of meds to help him be able to cope. It seemed that he also had a cyclical biploar type of thing going on (i.e., he would have a 2-3 good weeks and then 5-7 really bad days). To make a 22 year long story short, he has had two really good years with the introduction of Depakote. The bad news is he had gained about 60-70 pounds, and has developed insulin resistance. My goal with diet and enzymes is to greatly decrease the amount of Depakote he is taking (currently 2000 mg), and just to have a happier, healthier person. He still lives at home and I don't see that changing for a while. I did some behavior consulting in group homes for a while (I have a couple of degrees in psychology) and I'm not comfortable with my nonverbal son being in that type of situation. Sorry for the mini-book, we will hopefully get to know each other better along the way. If there are any other parents of adults in the group, please let me know how your family is doing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2006 Report Share Posted March 19, 2006 Welcome to the group . I have a 3.5 yo son and have been doing biomedical for my son and some for my self as well. I believe I have Asperger's syndrome and am 43. I have also gone on GFCF diet and enzymes. The diet has been very important for me and my son. In addition I am taking multi-vitamin, multi-mineral, fish oil, 5-HTP, L.Glutathione, MSM, and extra zinc, extra magnesium as well as Methyl B 12 nasal spray. I feel so much better, more clear, no anxiety, no depression which was a very big issue for me. I have also bipolar type two (not as severe) and need no medication with my regime of supplements. But my husband who has type one bipolar used to be on Depekot and the loss of muscle tone, and weight gain were common side effects and besides, it never took the symptoms away but just tranqulized his system. He is now on Geodon only which is a neurolaptic (anti psychotic) drug but works far better than the mood stablizers for him. No weight gain either. On the biomedical note, I once heard Dr. Neudrander say (in 2005 Boston conference) that a 35 year old non-verbal autistic man was put on GFCF diet and Methyl B 12 shots and he became conversational. You can give your son Methyl B 12 in a oral form as it is turning out to be as effective as the shots. Ellimination of Milk products is so important. There is no contradiction that I know of on this and any psychiatric drugs as my husband is on it too. My son's only real language started after we started giving him Methyl B 12 in nasal spray form. Now we have doubled the dose and have even better result. Best, Haleh --- dianagray3309@... wrote: > Good morning to all of you, > > My name is Gray and I am just starting to experiment with enzymes for > my 22 year old son, . I've been reading 's book and noted that > there is little information anecdotally or research-wise regarding this > approach to adults. Hopefully, we can contribute along the way. I have > been where you parents of young children are now, although obviously, the > newer philosophies were not as refined as they are now. was one of > those typically developing toddlers who lost language, and other > developmentally appropriate skills between 18 mos. and 24 mos. He also > started spinning himself in circles - you know the rest. We tried the > Feingold diet with good success around age 4 - he had chronic diarrhea since > very early on, which cleared up with the FG diet. But, we didn't stick with > it. Interestingly, the idea of cerebral allergy was around even in 1986, > but wasn't given much credibility. Over the years we tried: B-6, Mg, DMG, > sensory integration, cranial-sacral, speech therapy, pre-school, > auditory-integration, facilitated communication, Son-Rise, Landau-Kleffner > eval, and various meds. By age 9, had gotten very aggressive and was > hospitalized in an attempt to find the right combination of meds to help him > be able to cope. It seemed that he also had a cyclical biploar type of > thing going on (i.e., he would have a 2-3 good weeks and then 5-7 really bad > days). To make a 22 year long story short, he has had two really good years > with the introduction of Depakote. The bad news is he had gained about > 60-70 pounds, and has developed insulin resistance. My goal with diet and > enzymes is to greatly decrease the amount of Depakote he is taking > (currently 2000 mg), and just to have a happier, healthier person. He still > lives at home and I don't see that changing for a while. I did some > behavior consulting in group homes for a while (I have a couple of degrees > in psychology) and I'm not comfortable with my nonverbal son being in that > type of situation. Sorry for the mini-book, we will hopefully get to know > each other better along the way. If there are any other parents of adults > in the group, please let me know how your family is doing. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2006 Report Share Posted March 19, 2006 This did not seem to go through the first time, I'll try again... ________________________________ From: Oakes, Sent: Saturday, March 18, 2006 10:56 AM ' ' Subject: Introduction Hi everyone! Although I have posted a few times already, I am new to the list and just realized that I never introduced myself ;-). So here goes ... My name is and our older daugher (2 years 10 months) was diagnosed with Developmental Verbal Dyspraxia back in October, when she was 29 months old. That is her only official diagnosis, but also has subtle oral-motor sensory issues and slight fine motor issues as well, not surprising. has been in Early Intervention for 8 months now (since 25 she was 25 months) and is beginning to make progress. She gets 4 x 30 speech therapy, 2 x 60 SEIT and 1 x 60 OT per week. When she was first evaluated at 25 months, she had 4 words. In mid-December she had 15. Now she has 105 words and is just starting to put 2 words together. We are THRILLED! just completed her CPSE evaluations (although she will be in Early Intervention through August 31) and with some effort on my part, we feel like she was given fair evaluations that were sensitive to her verbal abilties. She is a bright little girl with a speech disorder, according to the evals. We knew this already ;-) but are glad that the evals reflected this. We are hoping to enroll in a Speech-Language intensive preschool in the fall. Our initial IEP meeting is in April. Like many of you, we are supplementing with Pro-EFA. I just upped her dose to 2 capsules a day, now that her evals are completed ;-). Sorry this is so long. I look forward to learning from and sharing with the other on this list. Warm regards, ****************** (Rochester, NY) Mom to , 2.10 years, Developmental Verbal Dyspraxia & , 8 months Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2006 Report Share Posted March 20, 2006 > On the biomedical note, I once heard Dr. Neudrander say (in 2005 Boston conference) that a 35 year old non-verbal autistic man was put on GFCF diet and Methyl B 12 shots and he became conversational. You can give your son Methyl B 12 in a oral form as it is turning out to be as effective as the shots ======================================================================= Haleh, Reading that has really made my day My 10 yrsold nonverbal child lost his speech after his MMR and I believe in this treatment and in miracles both Iffat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2006 Report Share Posted March 20, 2006 HI, On the biomedical note, I once heard Dr. Neudrander say (in 2005 Boston conference) that a 35 year old non-verbal autistic man was put on GFCF diet and Methyl B 12 shots and he became conversational. You can give your son Methyl B 12 in a oral form as it is turning out to be as effective as the shots Is this true? I am thinking about getting B12s for my son, but I did not like the idea of giving him shots. Is the oral form as good? Do you have any more info on this? Thanks in advance --------------------------------- Use Photomail to share photos without annoying attachments. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2006 Report Share Posted March 20, 2006 Dear Iffat, I think for good think to happen, we must hold them in our imagination and visions. Nothing good ever happens without someone envisioning it. You are a right person for miracles because you trust they happen. Have you thought of chelation for your younger child? We can all stand to be chelated in this toxic world. The key is to do it gently. Best, Haleh P.S. Is your name Arabic? I am Iranian. --- private <mysweetangel786@...> wrote: > > > > On the biomedical note, I once heard Dr. Neudrander say (in 2005 Boston > conference) that a 35 year old non-verbal autistic man was put on GFCF > diet > and Methyl B 12 shots and he became conversational. You can give your > son > Methyl B 12 in a oral form as it is turning out to be as effective as > the > shots > ======================================================================= > Haleh, > Reading that has really made my day My 10 yrsold nonverbal > child lost his speech after his MMR and I believe in this treatment > and in miracles both > > Iffat > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2006 Report Share Posted March 20, 2006 Haleh' Yes I do need to have him chelated starting this summer.He has been on several supps for some time now and I am working on preparing him for chealtion .Will be getting several tests done before summer break to check all the important levels. I will discuss with his DAN which route to take for chealtion keeping in consideration that he is seizures prone and also his age.He will be 11 this summer.I wish I could get him ready for chelation much earlier. Thanks Haleh.I have always found you very helpful Iffat (yes .my name is arabic ) > > > > > On the biomedical note, I once heard Dr. Neudrander say (in 2005 Boston > > conference) that a 35 year old non-verbal autistic man was put on GFCF > > diet > > and Methyl B 12 shots and he became conversational. You can give your > > son > > Methyl B 12 in a oral form as it is turning out to be as effective as > > the > > shots > > ====================================================================== = > > Haleh, > > Reading that has really made my day My 10 yrsold nonverbal > > child lost his speech after his MMR and I believe in this treatment > > and in miracles both > > > > Iffat > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2006 Report Share Posted March 20, 2006 Iffat, My son was 10 when we started chelation. he is very high functioning Aspergers, but has responded really well to chelation. I, too, find Haleh helpful!! best wishes!! private <mysweetangel786@...> wrote: Haleh' Yes I do need to have him chelated starting this summer.He has been on several supps for some time now and I am working on preparing him for chealtion .Will be getting several tests done before summer break to check all the important levels. I will discuss with his DAN which route to take for chealtion keeping in consideration that he is seizures prone and also his age.He will be 11 this summer.I wish I could get him ready for chelation much earlier. Thanks Haleh.I have always found you very helpful Iffat (yes .my name is arabic ) > > > > > On the biomedical note, I once heard Dr. Neudrander say (in 2005 Boston > > conference) that a 35 year old non-verbal autistic man was put on GFCF > > diet > > and Methyl B 12 shots and he became conversational. You can give your > > son > > Methyl B 12 in a oral form as it is turning out to be as effective as > > the > > shots > > ====================================================================== = > > Haleh, > > Reading that has really made my day My 10 yrsold nonverbal > > child lost his speech after his MMR and I believe in this treatment > > and in miracles both > > > > Iffat > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2006 Report Share Posted March 20, 2006 I heard that Binstock, the infamous autism researcher recently wrote an article supporting this. Also a friend of mine who can't afford DAN has an ASD son who was verbal but talked very little and only with prompting. Little over two months ago, I gave a bottle of Jarrow's formula MB 12 5000 mcg to her to try for her son. She is giving a full pill to her 4.5 year old. In 5 weeks the mother told me that her son talks a lot now and is much more social. So I think they work very well. How well in comparison, I have no Idea but very well is good enough for me. Also in a post a listmate said that during a travel she put her 11 year old son on 10,000 mcg of MB 12 per day in place of shots which he had been on for a few years and she had far better result compared to the shots. So, she switched. My thought is that for some it is as effective and for others more and for some not quite as much. My son is on MB 12 nasal spray and we love it. He gets it twice per day. My vote is go for it and you can buy it at iherb.com at very good price. That is where I get the tablets for me and my husband. Best, Haleh --- <egerpatt@...> wrote: > HI, > > On the biomedical note, I once heard Dr. Neudrander say (in 2005 Boston > conference) that a 35 year old non-verbal autistic man was put on GFCF > diet > and Methyl B 12 shots and he became conversational. You can give your son > Methyl B 12 in a oral form as it is turning out to be as effective as the > shots > > Is this true? I am thinking about getting B12s for my son, but I did not > like the idea of giving him shots. Is the oral form as good? Do you have any > more info on this? > > Thanks in advance > > > > --------------------------------- > > Use Photomail to share photos without annoying attachments. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2006 Report Share Posted March 20, 2006 What I wonder about the sublingual though is timing. The thing about the shots is that they are very slowly absorbed. The thing about B12 in general is that it can also " use up " other Bs and mag and zinc.so you need to make sure you are balancing appropriately. After a few months of B12 supplementation our other B markers were actually worse than they had been before and we had to add a B complex. We have been using the shots for about 5 months. She had a frank deficiency. I know many people find they are no big deal and very easy to administer but I absolutely HATE to give them (I do it while she is sleeping). I'm not sure she would be thrilled at the idea of the lozenge (or a spray) but if I thought it would be as good I would switch in a second. Josie Re: introduction I heard that Binstock, the infamous autism researcher recently wrote an article supporting this. Also a friend of mine who can't afford DAN has an ASD son who was verbal but talked very little and only with prompting. Little over two months ago, I gave a bottle of Jarrow's formula MB 12 5000 mcg to her to try for her son. She is giving a full pill to her 4.5 year old. In 5 weeks the mother told me that her son talks a lot now and is much more social. So I think they work very well. How well in comparison, I have no Idea but very well is good enough for me. Also in a post a listmate said that during a travel she put her 11 year old son on 10,000 mcg of MB 12 per day in place of shots which he had been on for a few years and she had far better result compared to the shots. So, she switched. My thought is that for some it is as effective and for others more and for some not quite as much. My son is on MB 12 nasal spray and we love it. He gets it twice per day. My vote is go for it and you can buy it at iherb.com at very good price. That is where I get the tablets for me and my husband. Best, Haleh --- <egerpatt@...> wrote: > HI, > > On the biomedical note, I once heard Dr. Neudrander say (in 2005 Boston > conference) that a 35 year old non-verbal autistic man was put on GFCF > diet > and Methyl B 12 shots and he became conversational. You can give your son > Methyl B 12 in a oral form as it is turning out to be as effective as the > shots > > Is this true? I am thinking about getting B12s for my son, but I did not > like the idea of giving him shots. Is the oral form as good? Do you have any > more info on this? > > Thanks in advance > > > > --------------------------------- > > Use Photomail to share photos without annoying attachments. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2006 Report Share Posted March 20, 2006 Thats so encouraging Thank you for giving me more hope > > > > > > > On the biomedical note, I once heard Dr. Neudrander say (in 2005 > Boston > > > conference) that a 35 year old non-verbal autistic man was put on > GFCF > > > diet > > > and Methyl B 12 shots and he became conversational. You can give > your > > > son > > > Methyl B 12 in a oral form as it is turning out to be as > effective as > > > the > > > shots > > > > ====================================================================== > = > > > Haleh, > > > Reading that has really made my day My 10 yrsold > nonverbal > > > child lost his speech after his MMR and I believe in this > treatment > > > and in miracles both > > > > > > Iffat > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2006 Report Share Posted March 20, 2006 What I wonder about the sublingual though is timing. The thing about the shots is that they are very slowly absorbed. <<<B12 is stored in the liver, so there is no advantage in giving the shots or the spray, we give the amount through the day, works well, but you could give the whole amount in the AM and not worry that it will dissipate like the other B vitamins. The thing about B12 in general is that it can also " use up " other Bs and mag > and zinc.so you need to make sure you are balancing appropriately. After > a > few months of B12 supplementation our other B markers were actually worse > than they had been before and we had to add a B complex. <<<We already had a B complex in place and still needed extra B6, in the form P5P, and B2. We have been using the shots for about 5 months. She had a frank deficiency. I know many people find they are no big deal and very easy to administer but I absolutely HATE to give them (I do it while she is sleeping). I'm not sure she would be thrilled at the idea of the lozenge (or a spray) but if I thought it would be as good I would switch in a second. <<<We are needle phobic here, ours also, by blood testing, showed low B12 and it was indicated. But worry about the psychological effects (for her and I both, lol) of giving them shots, would if we absolutely had to, but definitely prefer not to and glad we got such good results with the oral. Btw, no difference in sublingual and oral supplementation, Theresa Binstock had a great report on a study about this, that I saved, but can't find. > > > > Josie > > > > Re: introduction > > > > I heard that Binstock, the infamous autism researcher recently > wrote > an > article supporting this. > Also a friend of mine who can't afford DAN has an ASD son who was verbal > but > talked very little and only with prompting. Little over two months ago, I > gave > a bottle of Jarrow's formula MB 12 5000 mcg to her to try for her son. She > is > giving a full pill to her 4.5 year old. In 5 weeks the mother told me that > her > son talks a lot now and is much more social. > > So I think they work very well. How well in comparison, I have no Idea but > very well is good enough for me. > Also in a post a listmate said that during a travel she put her 11 year > old > son on 10,000 mcg of MB 12 per day in place of shots which he had been on > for > a few years and she had far better result compared to the shots. So, she > switched. My thought is that for some it is as effective and for others > more > and for some not quite as much. > > My son is on MB 12 nasal spray and we love it. He gets it twice per day. > My vote is go for it and you can buy it at iherb.com at very good price. > That > is where I get the tablets for me and my husband. > Best, > Haleh > > --- <egerpatt@...> wrote: > >> HI, >> >> On the biomedical note, I once heard Dr. Neudrander say (in 2005 Boston >> conference) that a 35 year old non-verbal autistic man was put on GFCF >> diet >> and Methyl B 12 shots and he became conversational. You can give your son >> Methyl B 12 in a oral form as it is turning out to be as effective as the >> shots >> >> Is this true? I am thinking about getting B12s for my son, but I did >> not >> like the idea of giving him shots. Is the oral form as good? Do you have > any >> more info on this? >> >> Thanks in advance >> >> >> >> --------------------------------- >> >> Use Photomail to share photos without annoying attachments. >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2006 Report Share Posted March 20, 2006 Haleh: Any idea how your listmate/friend figured out how much sublingual would replace the shots she had been giving?? And also I wonder which method stirs up the yeast more. Certainly the shots are known for doing this and I would imagine the sublinguals would as well. I took the sublinguals myself briefly but then got worried I had better front load some other things first. Josie Little over two months ago, I > gave > a bottle of Jarrow's formula MB 12 5000 mcg to her to try for her son. She > is > giving a full pill to her 4.5 year old. In 5 weeks the mother told me that > her > son talks a lot now and is much more social. > > So I think they work very well. How well in comparison, I have no Idea but > very well is good enough for me. > Also in a post a listmate said that during a travel she put her 11 year > old > son on 10,000 mcg of MB 12 per day in place of shots which he had been on > for > a few years and she had far better result compared to the shots. So, she > switched. My thought is that for some it is as effective and for others > more > and for some not quite as much. > > My son is on MB 12 nasal spray and we love it. He gets it twice per day. > My vote is go for it and you can buy it at iherb.com at very good price. > That > is where I get the tablets for me and my husband. > Best, > Haleh > > --- <egerpatt@...> wrote: > >> HI, >> >> On the biomedical note, I once heard Dr. Neudrander say (in 2005 Boston >> conference) that a 35 year old non-verbal autistic man was put on GFCF >> diet >> and Methyl B 12 shots and he became conversational. You can give your son >> Methyl B 12 in a oral form as it is turning out to be as effective as the >> shots >> >> Is this true? I am thinking about getting B12s for my son, but I did >> not >> like the idea of giving him shots. Is the oral form as good? Do you have > any >> more info on this? >> >> Thanks in advance >> >> >> >> --------------------------------- >> >> Use Photomail to share photos without annoying attachments. >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2006 Report Share Posted March 20, 2006 What she said is what I relayed. MB 12 excess just goes down urine. Also the adventage to other forms over the shots is everyday administration. My friend, whose children have been Dr. Neubrander's patients were giving shots every day with better result. and recently she switched her youngest to nasal spray with no problem. Dr. N has significant data about the effectiveness of shots but no one has done a comparative study with oral or other forms. --- Josie Lecraw <josie.nelson@...> wrote: > Haleh: > > > > Any idea how your listmate/friend figured out how much sublingual would > replace the shots she had been giving?? > > > > And also I wonder which method stirs up the yeast more. Certainly the shots > are known for doing this and I would imagine the sublinguals would as well. > > > > > I took the sublinguals myself briefly but then got worried I had better > front load some other things first. > > > > Josie > > > > > > Little over two months ago, I > > gave > > a bottle of Jarrow's formula MB 12 5000 mcg to her to try for her son. She > > is > > giving a full pill to her 4.5 year old. In 5 weeks the mother told me that > > her > > son talks a lot now and is much more social. > > > > So I think they work very well. How well in comparison, I have no Idea but > > very well is good enough for me. > > Also in a post a listmate said that during a travel she put her 11 year > > old > > son on 10,000 mcg of MB 12 per day in place of shots which he had been on > > for > > a few years and she had far better result compared to the shots. So, she > > switched. My thought is that for some it is as effective and for others > > more > > and for some not quite as much. > > > > My son is on MB 12 nasal spray and we love it. He gets it twice per day. > > My vote is go for it and you can buy it at iherb.com at very good price. > > That > > is where I get the tablets for me and my husband. > > Best, > > Haleh > > > > --- <egerpatt@...> wrote: > > > >> HI, > >> > >> On the biomedical note, I once heard Dr. Neudrander say (in 2005 Boston > >> conference) that a 35 year old non-verbal autistic man was put on GFCF > >> diet > >> and Methyl B 12 shots and he became conversational. You can give your son > >> Methyl B 12 in a oral form as it is turning out to be as effective as the > >> shots > >> > >> Is this true? I am thinking about getting B12s for my son, but I did > >> not > >> like the idea of giving him shots. Is the oral form as good? Do you have > > any > >> more info on this? > >> > >> Thanks in advance > >> > >> > >> > >> --------------------------------- > >> > >> Use Photomail to share photos without annoying attachments. > >> > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2006 Report Share Posted March 22, 2006 For some of us, even though there are protests at shots, getting things into the kids' mouths is even harder. Not sure which way to go about this. Peace, Kathy E. On Mar 20, 2006, at 8:04 PM, haleh niazmand wrote: > I heard that Binstock, the infamous autism researcher > recently wrote an > article supporting this. > Also a friend of mine who can't afford DAN has an ASD son who was > verbal but > talked very little and only with prompting. Little over two months > ago, I gave > a bottle of Jarrow's formula MB 12 5000 mcg to her to try for her > son. She is > giving a full pill to her 4.5 year old. In 5 weeks the mother told > me that her > son talks a lot now and is much more social. > > So I think they work very well. How well in comparison, I have no > Idea but > very well is good enough for me. > Also in a post a listmate said that during a travel she put her 11 > year old > son on 10,000 mcg of MB 12 per day in place of shots which he had > been on for > a few years and she had far better result compared to the shots. > So, she > switched. My thought is that for some it is as effective and for > others more > and for some not quite as much. > > My son is on MB 12 nasal spray and we love it. He gets it twice per > day. > My vote is go for it and you can buy it at iherb.com at very good > price. That > is where I get the tablets for me and my husband. > Best, > Haleh > > --- <egerpatt@...> wrote: > > > HI, > > > > On the biomedical note, I once heard Dr. Neudrander say (in > 2005 Boston > > conference) that a 35 year old non-verbal autistic man was put on > GFCF > > diet > > and Methyl B 12 shots and he became conversational. You can give > your son > > Methyl B 12 in a oral form as it is turning out to be as > effective as the > > shots > > > > Is this true? I am thinking about getting B12s for my son, but > I did not > > like the idea of giving him shots. Is the oral form as good? Do > you have any > > more info on this? > > > > Thanks in advance > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2006 Report Share Posted March 22, 2006 >>You can give your son Methyl B 12 in a oral form as it is turning out to be as effective as the shots > > Is this true? I am thinking about getting B12s for my son, but I did not like the idea of giving him shots. Is the oral form as good? Do you have any more info on this? I used mB12 orally. I gave my kids sublinguals, altho they did not put them under the tongue, they just chewed them. But it worked very well for my kids. I did need to give it with folic acid, and keep the dose low, and increase the yeast protocol. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2006 Report Share Posted March 22, 2006 Kathy, My son is one of those. Everything goes to his juice and the juice taste has come down to an exact science with its formula on the fridge. The sublinguals from Jarrow formula are yummy, reddish color and perfectly round to Ben's liking (lol). My son gets the nasal spray and puts a little protest everyday. we are having less fight after over three months. The progress has been well worst this little fight. I have tested the spray on myself. No discomfort what so ever and one less things in the tummy. Works for me. Best, Haleh --- Kathleen Eickwort <Kathleen_E@...> wrote: > For some of us, even though there are protests at shots, getting > things into the kids' mouths is even harder. Not sure which way to go > about this. > > Peace, > Kathy E. > On Mar 20, 2006, at 8:04 PM, haleh niazmand wrote: > > > I heard that Binstock, the infamous autism researcher > > recently wrote an > > article supporting this. > > Also a friend of mine who can't afford DAN has an ASD son who was > > verbal but > > talked very little and only with prompting. Little over two months > > ago, I gave > > a bottle of Jarrow's formula MB 12 5000 mcg to her to try for her > > son. She is > > giving a full pill to her 4.5 year old. In 5 weeks the mother told > > me that her > > son talks a lot now and is much more social. > > > > So I think they work very well. How well in comparison, I have no > > Idea but > > very well is good enough for me. > > Also in a post a listmate said that during a travel she put her 11 > > year old > > son on 10,000 mcg of MB 12 per day in place of shots which he had > > been on for > > a few years and she had far better result compared to the shots. > > So, she > > switched. My thought is that for some it is as effective and for > > others more > > and for some not quite as much. > > > > My son is on MB 12 nasal spray and we love it. He gets it twice per > > day. > > My vote is go for it and you can buy it at iherb.com at very good > > price. That > > is where I get the tablets for me and my husband. > > Best, > > Haleh > > > > --- <egerpatt@...> wrote: > > > > > HI, > > > > > > On the biomedical note, I once heard Dr. Neudrander say (in > > 2005 Boston > > > conference) that a 35 year old non-verbal autistic man was put on > > GFCF > > > diet > > > and Methyl B 12 shots and he became conversational. You can give > > your son > > > Methyl B 12 in a oral form as it is turning out to be as > > effective as the > > > shots > > > > > > Is this true? I am thinking about getting B12s for my son, but > > I did not > > > like the idea of giving him shots. Is the oral form as good? Do > > you have any > > > more info on this? > > > > > > Thanks in advance > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2006 Report Share Posted March 22, 2006 I started giving my son the sublingual, switched to the time released pills but will be switching soon to the shots. I will update you to see which works best. My doctor at Pfeiffer said that they prefer shots because they have trouble absorbing B12. Not sure which works best but we have had great results with the b12 and enzymes. Re: introduction >>You can give your son Methyl B 12 in a oral form as it is turning out to be as effective as the shots > > Is this true? I am thinking about getting B12s for my son, but I did not like the idea of giving him shots. Is the oral form as good? Do you have any more info on this? I used mB12 orally. I gave my kids sublinguals, altho they did not put them under the tongue, they just chewed them. But it worked very well for my kids. I did need to give it with folic acid, and keep the dose low, and increase the yeast protocol. Dana Quote Link to comment Share on other sites More sharing options...
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