Guest guest Posted January 25, 2011 Report Share Posted January 25, 2011 Hi Nina, I wish I had a better answer for you, but what is with Dr's! That is ridiculous, you might be able to talk to someone (lawyer types) about a privacy issue since they are missing you knows who has them. My thoughts, Matt Help!!! Need advice Back in Sept. my neurologist retired and made all his patients records available to them. I requested that his office give them me personally rather than send to a new neurologist, at the advice of my PCP. I got a letter today from old neurologist saying the warehouse in So. CA where his records were going to be stored lost my records. Has this happened to anyone else? If so, what did you do about it? I am at the end of my rope. These records were the only way to prove that I have CMT. Thanks, Nina in Stockton, CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2011 Report Share Posted January 25, 2011 Nina, Dr. Gorin, U.C. , is world-known and specializes in CMT. He works out of Sacramento. I drive 2 hours to see him and he is very cool, smart and makes you feel welcome. Fredric Gorin: (916)734-3588 Toll Free (800)770-9288 Take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2011 Report Share Posted January 25, 2011 Not quite the same, but an internist who I had seen for years had ALL my records, from childhood to the present. When I moved to a different city, I asked for a copy of my file. (pretty large file) The Dr. said No, his staff is not going to stand at a xerox machine and copy them. So I said I would copy all at Kinko's (across the street) and have them back by 4 pm the same day. Dr. said No. These files had all childhood diagnosis, testing, immunization history, illness and other stuff. So one day I sat at my computer and reconstructed my medical history for new docs. Only remembered tests, office visits, illnesses by year and place (clinic, hospital, etc) but got a pretty good 40 year medical history from that. Then I edited that down to a one page " medical brief " and took it to my new Internist and Neurologist. The Internist still had me fill out " forms " , but the Neurologist was so pleased to see a one page brief of everything he commented " I wish all my patients would do this " . If you are receiving SSDI, the SSA has ALL your medical files, but it may take an attorney's help to get copies. Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2011 Report Share Posted January 25, 2011 Federal law (HIPAA) guarantees our right to obtain a copy of our medical records under ost circumstances.  Providers are obligated to allow patients to see their records and to obtain copies, it doesn't matter how big the file is. Providers can charge reasonable fees for copies.  For more details, as well as rules on exceptions and denials, refer to the HIPAA rules, Section 164.524 © - Provision of Access http://www.hhs.gov/ocr/privacy/hipaa/administrative/privacyrule/prdecember2000al\ l8parts.pdf  In Nina's case, where the records have been lost, I would ask them to take a better look around or you will be forced to file a complaint with the US Department of Health and Services for mishandling of your medical records. http://www.hhs.gov/ocr/privacy/hipaa/complaints/index.html  You may also be able to file a complaint with the California's Department of Insurance or Department of Managed Care.  Department of Insurance for PPO plans: http://www.insurance.ca.gov/contact-us/0200-file-complaint/  Department of Managed Care for HMO plans: http://www.hmohelp.ca.gov/dmhc_consumer/pc/pc_problems.aspx  A complaint may also be filed against a provider, specifically, with the medical board.  As a compromise, you may want to suggest that they recreate your medical record file the best they can, pulling records from their electronic files, obtaining copies of lab results from other providers at their own cost, etc. They have done you harm and they need to make a reasonable effort to rectify it.  From: rayannina <rayannina@...> Subject: Help!!! Need advice Date: Monday, January 24, 2011, 8:13 PM  Back in Sept. my neurologist retired and made all his patients records available to them. I requested that his office give them me personally rather than send to a new neurologist, at the advice of my PCP. I got a letter today from old neurologist saying the warehouse in So. CA where his records were going to be stored lost my records. Has this happened to anyone else? If so, what did you do about it? I am at the end of my rope. These records were the only way to prove that I have CMT. Thanks, Nina in Stockton, CA Quote Link to comment Share on other sites More sharing options...
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