Request for help with hand affected 12 year old daughter

[Guest guest]

Hello

I am a CMT 1A affected parent with 5 daughters. Two daughters are CMT affected

also. Unfortunately I was not diagnosed until after the girls were born or

adopted.

Gradually over the last 6 mos. my 12 year old daughter has developed hand

issues. Weakness, pain, inability to write legibly for more than several

minutes.

We approached the school and quickly realized that they have never dealt with

this problem before. It is a midsized parochial school.

The computer teacher is compassionate and helpful.

We find ourselves in uncharted waters.

If anyone in the group has experience with these issues please contact me if

possible. At this point the only thing I want for Christmas this year (or any

year ) is support for this sweet little girl.

Tammy