Wanted: Your Input for the New National CMT Resource Center!

[Guest guest]

Wanted: Your Input for the New National CMT Resource Center!

As part of setting up the new CDC funded National CMT Resource Center, we want

the community's input! In the next two months, we will be conducting various

focus groups, mostly over the telephone, with people diagnosed with CMT and

their caregivers.

These will be informal discussions guided by a set of questions that will help

us determine what resources and information you think is needed to help people

living with CMT and their caregivers. No one knows this better than you! You can

attend a focus group as a person with CMT, or as a caregiver to a person with

CMT. Two more focus groups for people with CMT patients their caregivers will be

conducted, and each will last for 1.5 hours. All of them will be via

telephone/internet and take place between now to Dec. 17th. Specific dates will

be picked based on selected participants' schedules. Here is an overview:

Group 1: For adults with CMT.

Group 2: For adolescent who have CMT.

Caregiver Group 1: For parents (who may or may not have CMT) with children (aged

0-18) diagnosed with CMT.

Caregiver Group 2: For spouses and other caregivers.

If you are interested in joining a focus group discussion, please follow the

links below. Note we can only accommodate a limited number of people, so please

sign up soon! Our staff will contact you in the coming days once your sign-up

form is received. If you have any question about participating in a focus group,

please email Li (nicole@...)

Click here to participate in the CMT Focus Groups:

http://duke.qualtrics.com/SE/?SID=SV_4JcyZv2Zna6IGS8

Click here to participate in the Caregiver Focus Groups:

http://duke.qualtrics.com/SE/?SID=SV_eQjcN8dGR17zmks