Guest guest Posted March 7, 2011 Report Share Posted March 7, 2011 Thank you for your post Shayla! So glad you're doing better!! Kay Living On The Beautiful Oregon Coast, USA 59, Wow! I'm getting up there!!! 5 Family members With CMT1A Living alone, using wheel chair, splints, Bipap because of severe breathing problems at night. One family member who passed away because of CMT I believe it is, what it is... so living in a state of " LOVE " is what brings me joy, peace, healing, and more love! ;-) From: shayemuse <no_reply > Subject: oxygen stuff Date: Sunday, March 6, 2011, 11:26 PM  Kay, You are so right. I am on an oxygen concentrator all night & when exercising. It makes " so " much difference in the way I feel. I was on it 24/7 for about 16 months but have gradually weaned myself down. I can tell when I'm low even before hubby checks it with the oximeter. I get " fuzzy " in my head and a bit grumpy I'm told. :-) Hope you are doing well. Shayla Quote Link to comment Share on other sites More sharing options...
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