Re: helping medical professionals know CMT

[Guest guest]

Thank you Donna. I could not agree with you more! I know that when I see

the amazing people at the Wayne State CMT Clinic, we are doing as much

for them as they are for us. It is a give and take situation. They give

us care, advice, and information about our condition, and if they use us

as subjects as they do it, it may be moving us one step closer to that

vision we all share - A WORLD WITHOUT CMT!

They can poke, prod, shock, push, pull, or what ever else they want to

do with me if it means I learn as I go and it may help someone else -

especially my son! I am in this for him, there is probably not a lot

that can happen for me at this point, but he is almost 17 and has WAY

too much ahead of him to let CMT be an obstacle for him.

Mark, CMT 1A, New Jersey

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> Knowledgeable? I don't think so.. In fact, most of the time I have

felt that I was paying these people for the privilege of running tests

on me to expand their (limited) knowledge of CMT.

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