Guest guest Posted February 16, 2011 Report Share Posted February 16, 2011 Hi , Thank you for this email. Please do keep following the posts on this site, because over time, you will see - as I have seen - just how connected community awareness is to policy change. As an example, you could research Gretchen's post today regarding the need to write to our congressmen and women to preserve the funding for CMT. The resources for research are not infinite, they are finite. Community awareness helps others to understand why WE need this money for CMT research projects, rather than spending those dollars elsewhere. Some people may view CMT as a minor illness that may cause 'funny feet' but nothing more. Community awareness helps others understand how serious and disabling this disease can be and why we need the help.  I'm not sure what your connection is to this community, but 'thank you' in advance for whatever you are able to do to advance the issues of the CMT community. in So Calif (40's, CMT 1A) Quote Link to comment Share on other sites More sharing options...
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