Re: Mobility devices in snow/ice

[Guest guest]

Ah, snow. It is usually plowed or shoveled everywhere we'd want to go.

I have no problems unless I have to park way out in the boonies

because some jack-ass has parked in the only disabled spot left

because he/she doesn't want to get his or her shoes wet. Snow can be

a problem if it isn't shoveled because the scooter wheels won't dig

in, they just spin most of the time, but I really have no real

problems as the snow is plowed before I go out on my scooter in the

winter.

Our downtown vendors often shovel the snow to the curb. It builds up and makes a

big pile where people open their passenger side doors or I let down my side van

lift. I'm working with the city as much as possible to have them clear those

piles so everyone can get out of their cars downtown. The cost of hauling away

the snow is the problem.

Fortunately, there isn't much downtown that anyone needs.

It's all at our many plazas that are cleared at night before the

public arrives. I use common sense though and don't set myself up.

Believe me, we are adept at getting things cleared quickly after a

snowfall. If you want customers/clients you learn to clean things up

fast. My husband shovels the driveway.

If I go somewhere and it snows when I'm in there, I have to ask someone to clean

off my windshields for me but other than that it's only the cold that does me

in. I feel as if all the energy has been sucked out of me, it takes so much to

keep my body even partially warm.

After a night out at a meeting, it took me two days to get myself strong enough

to work again. I notice every breath, it takes so much to breathe when I'm weak

like that. Does anyone else get very weak when they get really cold?

L.

On 25-Mar-11, at 11:32 AM, S wrote:

> I'm curious - how do those of you in the snow-globe part of the

> world deal with the snow/ice if you are in a wheelchair, scooter,

> braces/crutches, etc.?

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http://www.vsarts.org/documents/resources/general/creativespirit/CS-14.4-2010Web\

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[Guest guest]

Hi,

I have not used this adaptive piece of equipment yet but I should be getting one

in two weeks with the delivery of my new wheelchair. This is a very cool piece

of equipment that hooks up to a rigid frame wheelchair called a freewheel. It

can handle terrain including gravel, sand, grass, snow etc... The link to their

website is http://www.gofreewheel.com/. It has an awesome video showing how it

works including in the snow. It is $500 and can be a challenge getting it paid

for by insurance but not impossible to get it paid through insurance.

I just got my secondary insurance through the state of CA to buy me a new

wheelchair and freewheel. My secondary insurance is called GHPP - which is

similar to Medicaid for people with certain conditions and CMT is one of the

conditions they include!!

PS - for anyone who lives in CA, you should check out this insurance program

called GHPP (Genetically Handicapped Persons Program). Their website is

http://www.dhcs.ca.gov/services/ghpp/Pages/default.aspx. It is similar to CCS

but for adults (CCS is California Children's Services). The Genetically

Handicapped Persons Program (GHPP) is a health care program for adults with

certain genetic diseases. CMT is one of the genetic diseases allowed under this

program. You have an annual premium and sometimes that premium maybe $0. Then

they pay all expenses at 100% (with prior approval). It can be a headache to

work with but overall it is a great insurance option for people who have CMT and

live in the state of CA.

If you don't live in CA...You may want to do a bit of internet searching to find

out if a similar program is available in your state.

All states are required to have a Children's Healthcare program like CCS. Here

is some information below on Programs for Children with Special Healthcare

Needs:

In 1988, then surgeon-general, Dr. C. Everett Koop, introduced a National Agenda

for Children with Special Health Care Needs (CSHCN). In 1989, this agenda was

translated into legislation through Title V of the Social Security Act, which

requires state CSHCN programs to provide and promote family-centered,

community-based, coordinated care for children with special healthcare needs and

to facilitate the development of community-based systems of services for such

children and their families.

Each state has a Title V CSHCN program administered through the Department of

Health and Human Services by agencies called Children's Special Needs Services,

Children's Medical Services, or similar names. Under the Title V legislation,

children with special healthcare needs include all children who have or are at

increased risk for chronic physical, developmental, behavioral, or emotional

conditions, and who also require health and related services of a type or amount

beyond that generally required by children.

Hopefully some of this information will help out a few people.

Take care,

Cheryl Sherman, CMT1B, 34 years old in Sacramento, CA

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[Guest guest]

That's incredible!

Thanks for sharing both web sites.

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