Guest guest Posted November 9, 2004 Report Share Posted November 9, 2004 In a message dated 11/8/04 2:15:49 AM GMT Standard Time, jerredawson@... writes: At 49 my previous md said the pain was just because I was getting old and I would have to live with it! She got mad when I told her a friend (also her patient) had recommended I see my current rhuemy. Thank goodness for once I didn't listen to Authority! Hi Jerre and welcome, When they say things like that, wouldn't it be great if we could just wave a magic wand and say, " Here...........you live with it! " lol That would teach them to be so dismissive. Do you still try to do some exercise or is it too much now? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2004 Report Share Posted November 9, 2004 > > > In a message dated 11/8/04 2:15:49 AM GMT Standard Time, jerredawson@m... > writes: > > At 49 my previous md said the pain was just because I > was getting old and I would have to live with it! She got mad when I told > her a friend (also > her patient) had recommended I see my current rhuemy. Thank goodness for > once I didn't > listen to Authority! > > > > Hi Jerre and welcome, > > When they say things like that, wouldn't it be great if we could just wave a > magic wand and say, " Here...........you live with it! " lol That would teach > them to be so dismissive. > Do you still try to do some exercise or is it too much now? > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2004 Report Share Posted November 10, 2004 Thanks Jerre, I will have a look at that site. I used to run competitively. Do you think these shoes would get me back to that? lol. I wish! Its hard doing without these things isn't it? Are you in the UK? Hope your surgery will have worked out well and gets you on to the golf course again. I know what you mean about getting up from a lying down position. My wife and daughter have a right good laugh at my attempts on the occasional times I have had to get up from the floor. (no I wasn't drunk. lol) Good luck, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2004 Report Share Posted November 10, 2004 In a message dated 11/10/2004 6:18:26 AM Eastern Standard Time, jerredawson@... writes: I have found shoes that let me wlk without that pain though called Masi Balance Technology (MBT). They have a UK site MBT-uk.com and were written up in " the Scotsman " , " the times " and the " daily mail " . Supposed to help with knee and back problems as well. Pricy but being able to be out and about is priceless to me. Hi Jerre...I got those shoes too, they are the best $230 I ever spent! They take all the pressure off my knees and ankles when I walk... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2004 Report Share Posted November 11, 2004 I know. Before I got these my back would ache after walking and standing and they also help with my sciatica because they correct my posture. I also don't have to wear my orthotics with them, the idea being they correct your foot position so you don't need them. I don't know what I did without them. jerre > > > In a message dated 11/10/2004 6:18:26 AM Eastern Standard Time, > jerredawson@m... writes: > > I have found shoes that let me wlk without > that pain though called Masi Balance Technology (MBT). They have a UK site > MBT-uk.com > and were written up in " the Scotsman " , " the times " and the " daily mail " . > Supposed to help > with knee and back problems as well. Pricy but being able to be out and > about is priceless > to me. > > > Hi Jerre...I got those shoes too, they are the best $230 I ever spent! They > take all the pressure off my knees and ankles when I walk... > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2006 Report Share Posted October 17, 2006 Hello to All, My daughter Caitlyn is 11 now and has been having high fevers upto 104.8. She has been doing this for 5+ years. Every time we have taken her to the Dr. we get standard answer number one. She has a VIRUS. She gets the " fevers " every 6 weeks and is out of school for 4-5 days. She has only had one mouth sore, but does complain of a stomach ache. We finally switched PCPs and all the blood work has been done and everything came back normal. This was while she was sick. My other two kids do not get sick. I can not even remember the last time I took them. Caitlyn has been twice in the past 5 weeks with the same symptoms. Have you ever heard of an older child having this syndrome? I seem to notice that most everyone is talking about toddlers. I am just really frustrated at this point and am not sure what to do. Any advice would be helpful. Thanks Michele Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2006 Report Share Posted October 18, 2006 Michele, I am new to all this myself but we believe my son has been fevering for about 10 months and his fevers did not begin until he was 5 1/2 years old and his fevers are between 101 -104 they come every 4 weeks except one month he had the stomach flu and his cycle came 5 weeks instead. He complains of leg aches and does not want to eat but we have not seen any ulcers in the month at his last cycle the doctor on call found white puss on the back of his throat we are waiting for two more cycles and the Rheumatologist wants to see him again for more genetic testing. Just wanted you to know your not alone there are older kids too!!! Good Luck. Kim Tyler 6 ??? le 12 Keri 10 Fredericksurg Va mmsawyer2001 <mmsawyer2001@...> wrote: Hello to All, My daughter Caitlyn is 11 now and has been having high fevers upto 104.8. She has been doing this for 5+ years. Every time we have taken her to the Dr. we get standard answer number one. She has a VIRUS. She gets the " fevers " every 6 weeks and is out of school for 4-5 days. She has only had one mouth sore, but does complain of a stomach ache. We finally switched PCPs and all the blood work has been done and everything came back normal. This was while she was sick. My other two kids do not get sick. I can not even remember the last time I took them. Caitlyn has been twice in the past 5 weeks with the same symptoms. Have you ever heard of an older child having this syndrome? I seem to notice that most everyone is talking about toddlers. I am just really frustrated at this point and am not sure what to do. Any advice would be helpful. Thanks Michele --------------------------------- Get your own web address for just $1.99/1st yr. We'll help. Small Business. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2006 Report Share Posted October 24, 2006 In a message dated 10/17/2006 10:41:53 P.M. Eastern Standard Time, mmsawyer2001@... writes: Have you ever heard of an older child having this syndrome? I seem to notice that most everyone is talking about toddlers. Yes. My son started at age 7. His rheumatologist says she has quiet a few kids she sees who started later in age when I asked her about it. mom to ( 9) , (7)-, (5) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2006 Report Share Posted October 30, 2006 Hi, I was in my mid-40s when diagnosed and my oncologist doesn't seem to think that's SO unusual, though not the norm. He also said the same thing to me about BMT. But he started me on fludarabine and rituxan. This group has since told me -- and please correct me if I'm wrong everyone -- that it's best to defer fludarabine if possible in deference to chlorambucil. So far, 4 years later, I am stil lholding fairly strong on that therapy. Good luck! Marietta Marietta Brill cell: 718-938-8712 From: "pdstroup" <pdstroup@...>Reply- To: Subject: AgeDate: Sun, 29 Oct 2006 22:02:37 -0000 Hi all--Is anyone else out there in their 40's or under? My friend is newly diagnosed. He is on watchful waiting. But, he is only 40, which I understand is unusually young for this. Do treatment options change because of his age? It seems like I've read every single thing about SLL/CLL on the web, but I cannot find anything about impact of age. Only thing so far is our doctor's saying he may becomes be a candidate for a BMT because he is so young. --Patty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2006 Report Share Posted October 30, 2006 Hi! Yes, I am 45 now, I was 44 when diagnosed. I am stage 0 the last I knew. My oncologist has not said anything about being a candidate for BMT. It is a question I should ask the next time I am there, even though my counts are still very good. > > Hi all--Is anyone else out there in their 40's or under? My friend > is newly diagnosed. He is on watchful waiting. But, he is only > 40, which I understand is unusually young for this. Do treatment > options change because of his age? It seems like I've read every > single thing about SLL/CLL on the web, but I cannot find anything > about impact of age. Only thing so far is our doctor's saying he may > becomes be a candidate for a BMT because he is so young. --Patty > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2006 Report Share Posted October 30, 2006 My husband was 47 when he was diagnosed and is on watch and wait status as well. He goes to oncologist in November and his regular doctor as well. LAst blood count was 106,000. --- M_Hauenstein <m_hauenstein@...> wrote: > Hi! Yes, I am 45 now, I was 44 when diagnosed. I am > stage 0 the last > I knew. My oncologist has not said anything about > being a candidate > for BMT. It is a question I should ask the next > time I am there, even > though my counts are still very good. > > > > > > > Hi all--Is anyone else out there in their 40's or > under? My friend > > is newly diagnosed. He is on watchful > waiting. But, he is only > > 40, which I understand is unusually young for > this. Do treatment > > options change because of his age? It seems like > I've read every > > single thing about SLL/CLL on the web, but I > cannot find anything > > about impact of age. Only thing so far is our > doctor's saying he may > > becomes be a candidate for a BMT because he is so > young. --Patty > > > > > > Mom ________________________________________________________________________________\ ____ Low, Low, Low Rates! Check out Messenger's cheap PC-to-Phone call rates (http://voice.) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2006 Report Share Posted November 3, 2006 > > Hi all--Is anyone else out there in their 40's or under? My friend > is newly diagnosed. He is on watchful waiting. But, he is only > 40, which I understand is unusually young for this. Do treatment > options change because of his age? It seems like I've read every > single thing about SLL/CLL on the web, but I cannot find anything > about impact of age. Only thing so far is our doctor's saying he may > becomes be a candidate for a BMT because he is so young. --Patty > Hey, I am a newbie to the group. I too am in my 40's. I was diagnosed with CLL in March of this year. I too am in Wait and Watch. However my numbers are changing for the worse with each blood work (slowly, but surely). I also understand that this is young for CLL. I am still trying to learn all that I can. I study each of my labs and watch them carefully. Tammy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2006 Report Share Posted November 3, 2006 my husband was dx at 44. He is 46 now and has atypical CLL/SLL. Small cleaved cells with cd79b. tri 12 +, high cd38 but zap 70 positive so a real mixed bag. He is sick a lot of the time and yes, his dr has said the same about a BMT but says the risks are very high at about 25% mortality for 90 days so that is a great deal to consider....he is on watch and wait as well other than IVIG monthly. Re: Age > > Hi all--Is anyone else out there in their 40's or under? My friend > is newly diagnosed. He is on watchful waiting. But, he is only > 40, which I understand is unusually young for this. Do treatment > options change because of his age? It seems like I've read every > single thing about SLL/CLL on the web, but I cannot find anything > about impact of age. Only thing so far is our doctor's saying he may > becomes be a candidate for a BMT because he is so young. --Patty > Hey, I am a newbie to the group. I too am in my 40's. I was diagnosed with CLL in March of this year. I too am in Wait and Watch. However my numbers are changing for the worse with each blood work (slowly, but surely). I also understand that this is young for CLL. I am still trying to learn all that I can. I study each of my labs and watch them carefully. Tammy Check Out the new free AIM® Mail -- 2 GB of storage and industry-leading spam and email virus protection. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2006 Report Share Posted November 4, 2006 Tammy -welcome, glad you joined - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2006 Report Share Posted December 3, 2006 Here is a link to levels by age. http://www.natural-hrt.com/andropause04.html I just try to keep my Total and Free T up into the upper 1/3 of any labs range. And my E2 down about 20 some do Ok at 40 or less you need to find the Zone that you feel good at and have good working moring wood. Phil jo702ba <jo702ba@...> wrote: Iam 47 years old what if say I was a normal male what should my testosterone level be on the scale off 0 to 1000 also my free testosterone an what about my estergen levels be too keep a hard on please hope someone here can help me out please --------------------------------- Everyone is raving about the all-new beta. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2008 Report Share Posted April 3, 2008 I can't comment specifically on knees but joint replacement is done whenever a person's quality of life is adversely impacted so that the alternative to surgery would be to live life unable to participate fully. At one time, there was a recommendation that people wait as long as possible because the materials weren't as durable -- at least in hip replacements but that is no longer the case -- at least for hip replacement. I don't know anyone who has undergone joint replacement surgery without a great deal of thought and once they had reached the point where the pain and limitations from that pain made the choice simple. If any doctor had told me to wait until I reached an arbitrary age, I would have limped out of that office and hobbled over to another OS as fast as my pain and bum hip would allow LOL. On Apr 3, 2008, at 2:33 AM, bab19502000 wrote: > I'm suprised how many people are in thier fortys and early fifty's > that > are haveing knee replacements. Are Dr.'s really recomending surgery at > this early age. I'm in my late fifty's and just had my knees replaced. > When I was seen at Mayo Clinic in 2001 I was told they would not > consider surgery until you were sixty. Can someone comment on this. > > Bev > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2008 Report Share Posted April 3, 2008 I had my TKR at 43, last year. My OS here in Arkansas kept saying I should wait but I was in so much pain and so crippled by it that I went to my OS that I had as a teenager in my hometown and he agreed it was time. I'm thrilled that I've done it. Sure, I might need it revised in 20 years but they could have made major advances in that time so I won't worry about it. I just wanted to be able to walk Disney World with my six-year-old. Age I'm suprised how many people are in thier fortys and early fifty's that are haveing knee replacements. Are Dr.'s really recomending surgery at this early age. I'm in my late fifty's and just had my knees replaced. When I was seen at Mayo Clinic in 2001 I was told they would not consider surgery until you were sixty. Can someone comment on this. Bev ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2008 Report Share Posted April 3, 2008 The mentality has changed somewhat. I had my right hip replacement at 53, left at 54, and the OS was surprised I had waited that long. Formerly, the materials didn't last as long, but now the average hip replacement life is about 15 years with present materials. That means if you have your replacement at 50, you can expect a revison around 65, and another at 80, if you live that long. Quality of life (and returning younger patients to a productive life) is more important to them now than an arbitrary figure. I know someone who has a hip replacement at 29, and it wasn't because of trauma. RTHR-2003, LTHR-2004 _____ From: Joint Replacement [mailto:Joint Replacement ] On Behalf Of bab19502000 Sent: ä 03 à ôøéì 2008 12:34 Joint Replacement Subject: Age <http://geo./serv?s=97359714/grpId=7780446/grpspId=1705061104/msgId =28632/stime=1207240934/nc1=5191950/nc2=5191951/nc3=4025338> I'm suprised how many people are in thier fortys and early fifty's that are haveing knee replacements. Are Dr.'s really recomending surgery at this early age. I'm in my late fifty's and just had my knees replaced. When I was seen at Mayo Clinic in 2001 I was told they would not consider surgery until you were sixty. Can someone comment on this. Bev _,_._,___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2008 Report Share Posted April 3, 2008 I had my right hip replaced last year at age 40 and I will be having my left hip replaced in August at age 41. My surgeon estimates that I will not need to have revisions for 25-30 years. (I really hope he is right!!) As previously stated, it has to do with quality of life. I have 3 children who need an active mom who is not in constant pain. If my new hips don't last 25-30 years then I will take the 10-15 which would allow my children to be grown and not so dependent on me. Putting a specific age as a qualifier makes no sense. Would a doctor with hold say Blood pressure medication if a 20 year old needed it and tell them they are too young for blood pressure medication? I think not. Find a new doctor..... on <mdavison@...> wrote: The mentality has changed somewhat. I had my right hip replacement at 53, left at 54, and the OS was surprised I had waited that long. Formerly, the materials didn't last as long, but now the average hip replacement life is about 15 years with present materials. That means if you have your replacement at 50, you can expect a revison around 65, and another at 80, if you live that long. Quality of life (and returning younger patients to a productive life) is more important to them now than an arbitrary figure. I know someone who has a hip replacement at 29, and it wasn't because of trauma. RTHR-2003, LTHR-2004 _____ From: Joint Replacement [mailto:Joint Replacement ] On Behalf Of bab19502000 Sent: ä 03 à ôøéì 2008 12:34 Joint Replacement Subject: Age =28632/stime=1207240934/nc1=5191950/nc2=5191951/nc3=4025338> I'm suprised how many people are in thier fortys and early fifty's that are haveing knee replacements. Are Dr.'s really recomending surgery at this early age. I'm in my late fifty's and just had my knees replaced. When I was seen at Mayo Clinic in 2001 I was told they would not consider surgery until you were sixty. Can someone comment on this. Bev _,_._,___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2008 Report Share Posted April 3, 2008 > Quality of life (and returning younger patients to a productive life) is > more important to them now than an arbitrary figure. I know someone who has > a hip replacement at 29, and it wasn't because of trauma. > I had R THR at 36 and L THR at 45. (Had osteotomies when I was 3 to correct dysplasia/dislocation, which led to early arthritis). I've just now, after 15 years, had to have the right revised. I'm sure glad I got to spend those 15 years in my 30s and 40s doing what I wanted to instead of sitting in a rocking chair in pain waiting until I was old enough to have surgery! ;-) Andi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2008 Report Share Posted April 3, 2008 It still also depends on the doctor... I am 48 and hav= e dealt with knee issues for years and was told the same thing and put t= hrough cortizone that didn't work along with other attempts to prolong w ithout replacement... I was VERY frustrated so my GP referred me t= o a teaching hospital nearby and first visit the dr said which do you wa= nt to do first (I also needed a hip replacement...) I chose the hi= p (1/2008) and will hopefully be scheduling the knee very soon! ---- Original message ---- Date= : Thu, 3 Apr 2008 11:08:05 -0700 (PDT) From: iamflustered = insocal <iamflusteredinsocal@...> Subject: RE: [To= tal_Joint_Replacement] Age Joint Replacement@gr= oups.com <= BR> I had my right hip replaced last year at age 40 and I will be having = my left hip replaced in August at age 41. My surgeon estimates that I wi= ll not need to have revisions for 25-30 years. (I really hope he is righ= t!!) As previously stated, it has to do with quality of life. I have = 3 children who need an active mom who is not in constant pain. If my new= hips don't last 25-30 years then I will take the 10-15 which would allo= w my children to be grown and not so dependent on me. Putting a speci= fic age as a qualifier makes no sense. Would a doctor with hold say Bloo= d pressure medication if a 20 year old needed it and tell them they are = too young for blood pressure medication? I think not. Find a new doctor.= .... on <mdavison@...> wrote: The ment= ality has changed somewhat. I had my right hip replacement at 53, lef= t at 54, and the OS was surprised I had waited that long. Formerly, the<= BR>materials didn't last as long, but now the average hip replacement li= fe is about 15 years with present materials. That means if you have y= our replacement at 50, you can expect a revison around 65, and anothe= r at 80, if you live that long. Quality of life (and returning= younger patients to a productive life) is more important to them now= than an arbitrary figure. I know someone who has a hip replacement a= t 29, and it wasn't because of trauma. RTHR-2003, LTHR-20= 04 _____ From: Joint Replacement@yah= oogroups.com [mailto:Joint Replacement@= ] On Behalf Of bab19502000 Sent: ä 03 à ô= øéì 2008 12:34 Joint Replacement@= groups.com Subject: Age <B= R>=28632/stime=1207240934/nc1=5191950/nc2=5191951 /nc3=4025338> I'm suprised how many people are in thier fo= rtys and early fifty's that are haveing knee replacements. Are Dr.'s= really recomending surgery at this early age. I'm in my late fifty'= s and just had my knees replaced. When I was seen at Mayo Clinic in = 2001 I was told they would not consider surgery until you were sixty= . Can someone comment on this. Bev _,_._,___ [Non-tex= t portions of this message have been removed] --------------= ---------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2008 Report Share Posted April 3, 2008 Hi; Most surgeons are now looking at a person's quality of life versus age I think. I had my replacement due to a fall, and then it escalated to a rapid downfall from there. I'm having my left knee replaced in Oct, and I'm 53. Angel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2008 Report Share Posted April 3, 2008 --my husband is 42 and on june 17th will be having both knees replaced. His os said yes we like to wait till you are in your 50- 60s but sometimes that is not possible. My husband has already had dailypain and limited function for 5 years. For him it is totaly quality of life. - In Joint Replacement , " andi1022 " <andir@...> wrote: > > > > Quality of life (and returning younger patients to a productive life) is > > more important to them now than an arbitrary figure. I know someone who has > > a hip replacement at 29, and it wasn't because of trauma. > > > > I had R THR at 36 and L THR at 45. (Had osteotomies when I was 3 to correct > dysplasia/dislocation, which led to early arthritis). I've just now, after 15 years, had to have > the right revised. I'm sure glad I got to spend those 15 years in my 30s and 40s doing what > I wanted to instead of sitting in a rocking chair in pain waiting until I was old enough to > have surgery! ;-) > > Andi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2008 Report Share Posted April 3, 2008 My first knee was replaced at 25 (I'm 50 now), first hip at 32. I've had the plastic parts replaced in both knee and hip, ea alittle over 10 years later with much thicker plastic the second time. tanya TACHANKA SIBERIANS " All Four Paws Rolling " wenatchee, wa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2008 Report Share Posted April 4, 2008 I sure wish docs around here had the same viewpoint. My knees have been painful since I was 16, getting much worse in the last 15 years. They still say I'm too young at age 45. Joi Gizmo, Max, Jazzy, Artemis, Maui, the GC and Painted breeders <http://www.toolady.com/www/breeders/joyfulfeathers/index.html> http://www.toolady.com/www/breeders/joyfulfeathers/index.html Helping Birds Find People Member of the Pyrrhura Breeders Association - Not just for breeders! <http://www.pyrrhurabreedersassociation.com> www.pyrrhurabreedersassociation.com Member of the ASA Check out my new group! ParrotsofWA-Support _____ From: Joint Replacement [mailto:Joint Replacement ] On Behalf Of hookermichelle Sent: Thursday, April 03, 2008 2:43 PM Joint Replacement Subject: Re: Age --my husband is 42 and on june 17th will be having both knees replaced. His os said yes we like to wait till you are in your 50- 60s but sometimes that is not possible. My husband has already had dailypain and limited function for 5 years. For him it is totaly quality of life. - In Total_Joint_ <mailto:Joint Replacement%40> Replacement , " andi1022 " <andir@...> wrote: > > > > Quality of life (and returning younger patients to a productive life) is > > more important to them now than an arbitrary figure. I know someone who has > > a hip replacement at 29, and it wasn't because of trauma. > > > > I had R THR at 36 and L THR at 45. (Had osteotomies when I was 3 to correct > dysplasia/dislocation, which led to early arthritis). I've just now, after 15 years, had to have > the right revised. I'm sure glad I got to spend those 15 years in my 30s and 40s doing what > I wanted to instead of sitting in a rocking chair in pain waiting until I was old enough to > have surgery! ;-) > > Andi > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.