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I think your aggression and anger are part of the depression we all suffer

to a point. I take an anti-depressant daily but see no difference taking it

or not. The better thing for me is xanax, alprazolam, for the times the pain

gets the better of me and works in only a few minutes. The tension and

resulting anger and sharp tongue seem to mostly melt away and I get more

pleasant to those around me. My doc didn't like me wanting to take it but to

take another that is slower acting and had to be taken regularly. I like the

pills that mend me rather quickly even though it doesn't last too long. It's

my solution.

Dennis in eastexas

On Fri, Jun 12, 2009 at 6:19 PM, marybethvogt <mbvogt1@...> wrote:

>

>

>

> Hi All, I am just wondering if anyone else has had problems with anger

> during the time they've had RA. I was just diagnosed in February (and

> am going to see another doctor for a second opinion on 6/18) but I have

> been so angry and frustrated since then. I suspect that I truly do have

> RA but on the other hand I really don't know (hope the new Dr. can

> help). I read all of your posts about this drug and that drug and feel

> nothing but hopeless and helpless and wanting to cry. My husband has

> been very supportive but I fear my children (ages 4 and 2) do not

> understand the pain I am going through and they sometimes bear the brunt

> of my temper. I do not want to slow down my life for what seems like

> such a stupid disease. I fight with myself about how to be hopeful and

> refuse to slow down and how to be willing to accept treatment (which may

> or may not work and in the meantime causes all kinds of side effects).

> Any advice is appreciated.

>

> Beth (San Diego, CA)

>

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One of my doctors actually asked me why I'm depressed. Ah, let's see, I have a

chronic disease which at best is progressive, severe physical limitations, I'm

in constant pain, I take a shit load of medications every morning and night plus

weekly injections, have have the strength of a two year old and the energy level

of a 100 year old man. Gee doc, I must have misplaced my @$% ing happy face!

Stan,

Seattle, at least I have sun!

Re: [ ] Anger

I think your aggression and anger are part of the depression we all suffer

to a point. I take an anti-depressant daily but see no difference taking it

or not. The better thing for me is xanax , alprazolam , for the times the pain

gets the better of me and works in only a few minutes. The tension and

resulting anger and sharp tongue seem to mostly melt away and I get more

pleasant to those around me. My doc didn't like me wanting to take it but to

take another that is slower acting and had to be taken regularly. I like the

pills that mend me rather quickly even though it doesn't last too long. It's

my solution.

Dennis in eastexas

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Hi beth:

I can fully understand your anger with this beast of a disease. When it

hit me, I had never heard of it. I went on line to check it out, got so

damned scared, that I never looked it up again.

I have felt more frustration than anger. I came to terms with it, take

whatever meds. my Rheumy wants me to take. I trust her so much, and I

don't question her treatment of me. She has taken me from barely able

to function, to a totally functioning woman, who is basically pain free

most of the time. It has taken over 5 years for this to happen.

I have changed my life style, and work around the RA. I set goals for

myself everyday, and try to get most of them done. If not, I will do

them the next day.

I am very grateful to be out of all the pain and suffering I had. I do

things at a much slower pace, but that is o.k. I can't shop a long

time, and I don't walk like I used to every day. I use to walk 4-5

miles each morning. Now I set the timer for 15 min., and walk around

inside the house. At least it is cooler for me. I give to get.

I know it is very hard having this beast of a disease with such small

children. It must be so frustrating at times for you. Children love

the quantity of time we spend with them. I guess you just have to do

what you can with them going on how you are feeling that day. It must

be so hard when you are feeling awful, and you just can't lie down when

you want.

I hope you find the right RA meds. " cocktail " that works great for you.

I finally did, and I thought I would never see that day arrive. My feet

and ankkles were hit the hardest, I could barely stand or walk with

them. I was really bed bound for a long time, and used my walker all

the time. My pain level was off the charts. So you see, there is

always hope for us all.

Wishing you pain free days ahead. Enjoy your children every day, as

they grow up so fast, those days are gone before you know it. Everyday

spent with children is a wonderful day.

God Bless you and your beautiful family.

Hugs,

Barbara

>

>

> Hi All, I am just wondering if anyone else has had problems with anger

> during the time they've had RA. I was just diagnosed in February (and

> am going to see another doctor for a second opinion on 6/18) but I

have

> been so angry and frustrated since then. I suspect that I truly do

have

> RA but on the other hand I really don't know (hope the new Dr. can

> help). I read all of your posts about this drug and that drug and feel

> nothing but hopeless and helpless and wanting to cry. My husband has

> been very supportive but I fear my children (ages 4 and 2) do not

> understand the pain I am going through and they sometimes bear the

brunt

> of my temper. I do not want to slow down my life for what seems like

> such a stupid disease. I fight with myself about how to be hopeful and

> refuse to slow down and how to be willing to accept treatment (which

may

> or may not work and in the meantime causes all kinds of side effects).

> Any advice is appreciated.

>

> Beth (San Diego, CA)

>

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Hi ((((( Beth))))) - I feel your anger and frustration. I don't have small

children at home (they're grown), but I have the same emotional roller coaster

ride of feelings that you do. The biggest thing is to educate yourself and find

a Rheumy that will work with you. This disease is miserable and what works for

one does not necessarily work for another, but there are so many drugs out there

to treat RA that you just have to be willing and open to try it. Most of the

time there is relief for side effects and I (personally) have not had very many

of them. We don't have to suffer through the pain of RA.

It is wonderful that you have a supportive husband - that can feel like half the

battle at times. I'm also glad to see you reaching out here - we're all in this

boat together. We can learn and teach one another. You are not alone.

Have you had any bloodwork done yet? My bloodwork came back negative for RA, but

I have been diagnosed with sero-negative RA. I am going through the same thing

as everyone else - it just isn't showing up in my blood. My CRP's and Sedrates

have been very high - indicative of inflammation - so I guess between that and

my symptoms, that's how they came up with sero-negative. I take Sulfasalazine,

Methotrexate, Folic Acid, Prednisone, Percocet and most recently Enbrel. My

symptoms are not totally under control yet, but I'm working on it.

I'm happy to hear you are refusing to give up. This has certainly been an

adventure for me - I definitely can't go through my days like I used to, but I

try to make the best of every day there is. I have learned to make modifications

to the way I do things and there have been things that I just have to accept I

can't do anymore. Creativity is my new challenge - finding creative ways to do

the things that I can't do in the old way.

Check out http://www.butyoudontlooksick.com/navigation/BYDLS-TheSpoonTheory.pdf

This has been the best explanation of how I have to handle my days that I've

seen yet. While I don't have Lupus - like the woman in the story - we all have

auto-immune disorders that this certainly can apply to.

Hang in there - keep us posted - rant and vent all you need to. We are here for

you.

Doreen :)

>

>

> Hi All, I am just wondering if anyone else has had problems with

> anger during the time they've had RA. I was just diagnosed in

> February (and am going to see another doctor for a second opinion

> on 6/18) but I have been so angry and frustrated since then. I

> suspect that I truly do have RA but on the other hand I really

> don't know (hope the new Dr. can help). I read all of your posts

> about this drug and that drug and feel nothing but hopeless and

> helpless and wanting to cry. My husband has been very supportive

> but I fear my children (ages 4 and 2) do not understand the pain I

> am going through and they sometimes bear the brunt of my temper. I

> do not want to slow down my life for what seems like such a stupid

> disease. I fight with myself about how to be hopeful and refuse to

> slow down and how to be willing to accept treatment (which may or

> may not work and in the meantime causes all kinds of side effects).

> Any advice is appreciated.

>

> Beth (San Diego, CA)

>

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LMAO!! Way to go, Stan - I think you summed it all up really well!!

Doreen :D

One of my doctors actually asked me why I'm depressed. Ah, let's see, I have a

chronic disease which at best is progressive, severe physical limitations, I'm

in constant pain, I take a shit load of medications every morning and night plus

weekly injections, have have the strength of a two year old and the energy level

of a 100 year old man. Gee doc, I must have misplaced my @$% ing happy face!

Stan,

Seattle, at least I have sun!

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The strange thing is we do manage to keep our spirits up!

Stan

[ ] Re: Anger

LMAO!! Way to go, Stan - I think you summed it all up really well!!

Doreen :D

  One of my doctors actually asked me why I'm depressed. Ah, let's see, I have

a chronic disease which at best is progressive, severe physical limitations, I'm

in constant pain, I take a shit load of medications every morning and night plus

weekly injections, have have the strength of a two year old and the energy level

of a 100 year old man. Gee doc, I must have misplaced my @$% ing happy face!

 

 Stan,

 Seattle, at least I have sun!

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hey Stan, you are soooo right that is hilarious!!! MicheleBB

>

> One of my doctors actually asked me why I'm depressed. Ah, let's see, I have

a chronic disease which at best is progressive, severe physical limitations, I'm

in constant pain, I take a shit load of medications every morning and night plus

weekly injections, have have the strength of a two year old and the energy level

of a 100 year old man. Gee doc, I must have misplaced my @$% ing happy face!

>

> Stan,

> Seattle, at least I have sun!

>

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Beth,

At your upcoming appointment, please tell your rheumatologist what you

have told us here. He/she should be able to offer some reassurance.

Not all, and not even most, stories about RA and its treatment are

horror stories. It may seem that way in our group at times, but most

posts are about problems. Believe me, I do get mail from people who

leave the group because they are feeling very good.

Today, there are many excellent options for treatment of RA, and

remission is a realistic goal.

Not an MD

On Fri, Jun 12, 2009 at 6:19 PM, marybethvogt <mbvogt1@...> wrote:

>

>

>

> Hi All, I am just wondering if anyone else has had problems with anger

> during the time they've had RA. I was just diagnosed in February (and

> am going to see another doctor for a second opinion on 6/18) but I have

> been so angry and frustrated since then. I suspect that I truly do have

> RA but on the other hand I really don't know (hope the new Dr. can

> help). I read all of your posts about this drug and that drug and feel

> nothing but hopeless and helpless and wanting to cry. My husband has

> been very supportive but I fear my children (ages 4 and 2) do not

> understand the pain I am going through and they sometimes bear the brunt

> of my temper. I do not want to slow down my life for what seems like

> such a stupid disease. I fight with myself about how to be hopeful and

> refuse to slow down and how to be willing to accept treatment (which may

> or may not work and in the meantime causes all kinds of side effects).

> Any advice is appreciated.

>

> Beth (San Diego, CA)

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  • 1 year later...

Kathy,

Yes, is about " the positive " . It is unfortunate when events happen in our

lives to evoke anger - i.e., school issues, work problems. I have learned to let

go of anger, for me it is poison. I have learned for every problem, there is a

solution. And thus I believe there is.

Gretchen

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and I have learned for every problem there is not an answer!

Some but not all...and yes I get angry !

From the school of hard knocks!

Geri

Kathy,

Yes, is about " the positive " . It is unfortunate when events happen in

our lives to evoke anger - i.e., school issues, work problems. I have learned to

let go of anger, for me it is poison. I have learned for every problem, there is

a solution. And thus I believe there is.

Gretchen

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