surgery

August 24, 2008

MY SON IS IN THE 75TH PERCENTILE FOR HIS HEIGHT AND WAIT BUT HIS HEAD IS WAY UP THERE I AM NOT SURE WHAT PERCENTILE BUT I SAW THAT IT WAS WAY ABOVE THE LINE BUT HIS HEAD DOES SEEM TO MATCH HIS BODY. I AM REALLY HOPING SURGERY IS NOT NEED BUT I WILL KEEP U POSTED AND LET U KNOW.

THANK YOU,

CONNIE

From: christineashok <christineashok@...>Subject: Re: surgeryPlagiocephaly Date: Sunday, August 24, 2008, 2:51 AM

My daughter's head was 50th percentile at birth, and 90+ by 6 mo. Theywere a little concerned about hydrocephalus, but she didn't have anydelays and was rolling and sitting on her own by then. In our casethey chose to do an ultrasound, although our doc told us that a CTscan is the "gold standard for this". She felt the risk was low, butwanted some reassurance. My daughter checked out fine, and her headhas measured about 95th percentile since that time (staying on thesame curve since then). My daughter's height and weight have both been 90+ percentile sinceshe was young, so I think her head was just catching up with herbody. I just wanted to let you know that fast growth is something tocheck, but not always a problem. I do think the fast growth at a timewhen she wasn't sitting yet was a major contributor to her flat head(brachy). I hope things check out okay for your baby too, but pleaselet

us know.-christinesydney 2.5 yrs starband grad> >> > well i am hoping someone will have some advice. i took my son cadyn > > who is 9 and a half months to see a neurosur. doctor and he said that > > my son does not need a helmet but he might need surgery because ofthe > > growth of his head. i am wondering if anyone has had to deal with > > this. i am scared and i will find out tomorrow if he is going to need > > it. so

if anyone had any advice please let me know thank you > > connie> >>

August 24, 2008

THANKS FOR THE RESPONSE I WILL KEEP U UP DATED ON EVERYTHING

THANK YOU,

CONNIE

AARON [4YEARS]

CADYN [9MTHS]

From: Jen <ronandjenvelez@...>Subject: Re: surgeryPlagiocephaly Date: Sunday, August 24, 2008, 6:36 PM

I just wanted to post quick and say that my oldest Daughter's head was ALWAYS around 90-95% when she was little. Though, the Dr was never concerned at all. Don't worry too much about it until you're able to get the CT done. Hopefully everything will come out fine.Keep us updated.Jen ( 4 yrs), tort resolved, Hanger Band Grad (6 1/2 yrs)> >> > well i am hoping someone will have some advice. i

took my son cadyn > > who is 9 and a half months to see a neurosur. doctor and he said that > > my son does not need a helmet but he might need surgery because of the > > growth of his head. i am wondering if anyone has had to deal with > > this. i am scared and i will find out tomorrow if he is going to need > > it. so if anyone had any advice please let me know thank you > > connie> >>

October 18, 2008

Hi : Good luck with your Tonsil surgery. That is going to help

you so much.

My daughter had her deviated septrum

--- In , " Massey " <renandstimpy3@...>

wrote:

>

> I just thought I would let everyone know so far so good. I " ve been

oked by the Rheumy to stop my enbrel after this week. So tomorrow is my

last shot. I have seen the ENT and he has gaven me the ok to go ahead

with the surgery. I'm having my tonsils taken out after years of

suffering. I go see my primary doc on the 22nd and will be asking for

alternative pain meds to help me through the flare that I know I'm going

to be getting before the surgery.

>

> My ENT doc wants to perform another surgery after this one but I will

have to figure out when that will be. I have something called a diveated

septum that is causing my breathing issues. I breath out of one side of

my nose and the other side is constantly clogged or feels that way. So I

guess my nose is going to be my next surgery.

>

> I'm scared about having it though. My boyfriend is blind and I will

not be able to talk for several days. How do I communicate with him and

let him know what I need? Any ideas would be nice.

>

> _______________________________________

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> Scanned by iolo AntiVirus 1.5.3.5

> http://www.iolo.com

>

October 18, 2008

,

You should be able to whisper. I don't know if that helps or not.

I can only breath out of my left nostril, so I know how that feels

with the breathing issue also.

I hope everything goes smoothly.

Shirley

> >

> > I just thought I would let everyone know so far so good. I " ve

been

> oked by the Rheumy to stop my enbrel after this week. So tomorrow

is my

> last shot. I have seen the ENT and he has gaven me the ok to go

ahead

> with the surgery. I'm having my tonsils taken out after years of

> suffering. I go see my primary doc on the 22nd and will be asking

for

> alternative pain meds to help me through the flare that I know I'm

going

> to be getting before the surgery.

> >

> > My ENT doc wants to perform another surgery after this one but I

will

> have to figure out when that will be. I have something called a

diveated

> septum that is causing my breathing issues. I breath out of one

side of

> my nose and the other side is constantly clogged or feels that

way. So I

> guess my nose is going to be my next surgery.

> >

> > I'm scared about having it though. My boyfriend is blind and I

will

> not be able to talk for several days. How do I communicate with

him and

> let him know what I need? Any ideas would be nice.

> >

> > _______________________________________

> > No viruses found in this outgoing message

> > Scanned by iolo AntiVirus 1.5.3.5

> > http://www.iolo.com

> >

October 18, 2008

Hi ,

Good luck with your surgery!

Have been trying to think of any practical suggestions for you and your

boyfriend communicating post surgery... Well, I would suggest be prepared

beforehand.Work something out between you (hand gestures,recognised by touch)

signifying basic needs.

Suggestion: make a brief (perhaps 5 or 10 point list) of likely questions

/needs you might have and write them down(for you) speak out loud (for

him) allocating each a number.Have a sign to show you want something from the

list.

Your boyfriend would need to learn these and relevant number.Then he could

make an informed guess,and ask you ,and you signal thumbs up or whatever (To be

recognised by feeling the hand(s)) or alternatively you could display 3

fingers, eg, if you needed say Item 3 on your list. Does your boyfriend read

braille?.Know there may be flash cards of certain items as used in schools)

Hope your 'speechless time' is very short and the pain looked after well.

Yes that would be an important item to have on your list. You could direct

nurses, doc's attention to such things. So perhaps 2 lists???

Don't know if this is any help but hope so.

Best wishes

Chris

UK

retired doc

From: Barbara <bcreedon@...>

Subject: [ ] Re: Surgery

Date: Saturday, 18 October, 2008, 8:04 AM

Hi : Good luck with your Tonsil surgery. That is going to help

you so much.

My daughter had her deviated septrum

--- In @gro ups.com, " Massey " <renandstimp y3@...>

wrote:

>

> I just thought I would let everyone know so far so good. I " ve been

oked by the Rheumy to stop my enbrel after this week. So tomorrow is my

last shot. I have seen the ENT and he has gaven me the ok to go ahead

with the surgery. I'm having my tonsils taken out after years of

suffering. I go see my primary doc on the 22nd and will be asking for

alternative pain meds to help me through the flare that I know I'm going

to be getting before the surgery.

>

> My ENT doc wants to perform another surgery after this one but I will

have to figure out when that will be. I have something called a diveated

septum that is causing my breathing issues. I breath out of one side of

my nose and the other side is constantly clogged or feels that way. So I

guess my nose is going to be my next surgery.

>

> I'm scared about having it though. My boyfriend is blind and I will

not be able to talk for several days. How do I communicate with him and

let him know what I need? Any ideas would be nice.

>

> ____________ _________ _________ _________

> No viruses found in this outgoing message

> Scanned by iolo AntiVirus 1.5.3.5

> http://www.iolo. com

>

October 18, 2008

,

Good luck with your surgery.

You can use this:

http://www.research.att.com/~ttsweb/tts/demo.php

Just type a word or phrase, and it will be " spoken. "

Not an MD

On Fri, Oct 17, 2008 at 10:39 PM, Massey

<renandstimpy3@...> wrote:

> I just thought I would let everyone know so far so good. I " ve been oked by

> the Rheumy to stop my enbrel after this week. So tomorrow is my last shot. I

> have seen the ENT and he has gaven me the ok to go ahead with the surgery.

> I'm having my tonsils taken out after years of suffering. I go see my

> primary doc on the 22nd and will be asking for alternative pain meds to help

> me through the flare that I know I'm going to be getting before the surgery.

>

> My ENT doc wants to perform another surgery after this one but I will have

> to figure out when that will be. I have something called a diveated septum

> that is causing my breathing issues. I breath out of one side of my nose and

> the other side is constantly clogged or feels that way. So I guess my nose

> is going to be my next surgery.

>

> I'm scared about having it though. My boyfriend is blind and I will not be

> able to talk for several days. How do I communicate with him and let him

> know what I need? Any ideas would be nice.

>

October 18, 2008

Jenifer and group;

Good luck on your surgery it sounds like a it will be uneventfull...

Your in my prayers... My sister had her tonsils out... You will get

all the icecream you want..

I know what a diveated septum is and that is a commom procedure

also.. I need my done so when you get yours done let me know how it

was..

gentle hugs

Clora

********************************************************

>

> I just thought I would let everyone know so far so good. I " ve been

oked by the Rheumy to stop my enbrel after this week. So tomorrow is

my last shot. I have seen the ENT and he has gaven me the ok to go

ahead with the surgery. I'm having my tonsils taken out after years

of suffering. I go see my primary doc on the 22nd and will be asking

for alternative pain meds to help me through the flare that I know

I'm going to be getting before the surgery.

>

> My ENT doc wants to perform another surgery after this one but I

will have to figure out when that will be. I have something called a

diveated septum that is causing my breathing issues. I breath out of

one side of my nose and the other side is constantly clogged or feels

that way. So I guess my nose is going to be my next surgery.

>

> I'm scared about having it though. My boyfriend is blind and I

will not be able to talk for several days. How do I communicate with

him and let him know what I need? Any ideas would be nice.

>

October 18, 2008

,

My son had his tonsils taken out 2 years ago when he was 19, he also had a

diveated septum that was done at the same time. He was in the hospital

overnight and then home with me waiting on him. He was really not that bad, did

drink liquids for about a week I think, he didn't even use most of the pain

meds the dr prescribed. Can you ask your doctor about doing both at the same

time?

Good Luck, in PA

-------------- Original message --------------

From: " Massey " <renandstimpy3@...>

I just thought I would let everyone know so far so good. I " ve been oked by the

Rheumy to stop my enbrel after this week. So tomorrow is my last shot. I have

seen the ENT and he has gaven me the ok to go ahead with the surgery. I'm having

my tonsils taken out after years of suffering. I go see my primary doc on the

22nd and will be asking for alternative pain meds to help me through the flare

that I know I'm going to be getting before the surgery.

My ENT doc wants to perform another surgery after this one but I will have to

figure out when that will be. I have something called a diveated septum that is

causing my breathing issues. I breath out of one side of my nose and the other

side is constantly clogged or feels that way. So I guess my nose is going to be

my next surgery.

I'm scared about having it though. My boyfriend is blind and I will not be able

to talk for several days. How do I communicate with him and let him know what I

need? Any ideas would be nice.

_______________________________________

No viruses found in this outgoing message

Scanned by iolo AntiVirus 1.5.3.5

http://www.iolo.com

October 18, 2008

Best of luck with your surgery .

hugs,

Debbie L

>

> I just thought I would let everyone know so far so good. I " ve been

oked by the Rheumy to stop my enbrel after this week. So tomorrow is

my last shot. I have seen the ENT and he has gaven me the ok to go

ahead with the surgery. I'm having my tonsils taken out after years

of suffering. I go see my primary doc on the 22nd and will be asking

for alternative pain meds to help me through the flare that I know

I'm going to be getting before the surgery.

>

> My ENT doc wants to perform another surgery after this one but I

will have to figure out when that will be. I have something called a

diveated septum that is causing my breathing issues. I breath out of

one side of my nose and the other side is constantly clogged or feels

that way. So I guess my nose is going to be my next surgery.

>

> I'm scared about having it though. My boyfriend is blind and I

will not be able to talk for several days. How do I communicate with

him and let him know what I need? Any ideas would be nice.

>

> _______________________________________

> No viruses found in this outgoing message

> Scanned by iolo AntiVirus 1.5.3.5

> http://www.iolo.com

>

October 18, 2008

,

Good luck on the surgery! I will pray for you for a speedy recovery,

Tawny

--- In , " Massey " <renandstimpy3@...>

wrote:

>

> I just thought I would let everyone know so far so good. I " ve been

oked by the Rheumy to stop my enbrel after this week. So tomorrow is my

last shot. I have seen the ENT and he has gaven me the ok to go ahead

with the surgery. I'm having my tonsils taken out after years of

suffering. I go see my primary doc on the 22nd and will be asking for

alternative pain meds to help me through the flare that I know I'm going

to be getting before the surgery.

>

> My ENT doc wants to perform another surgery after this one but I will

have to figure out when that will be. I have something called a diveated

septum that is causing my breathing issues. I breath out of one side of

my nose and the other side is constantly clogged or feels that way. So I

guess my nose is going to be my next surgery.

>

> I'm scared about having it though. My boyfriend is blind and I will

not be able to talk for several days. How do I communicate with him and

let him know what I need? Any ideas would be nice.

>

> _______________________________________

> No viruses found in this outgoing message

> Scanned by iolo AntiVirus 1.5.3.5

> http://www.iolo.com

>

October 18, 2008

Hi - best of luck with your surgery - my prayers will be with

you. Does your boyfriend read braille? And if he does, can you write

it on a braille machine? That's the main thing that I can think of.

The other thing would be for him to come close and you say one word at

a time as slowly and clearly as you can. Best of luck to you. I was 16

when I had my tonsils out and it was miserable. I pray you will have

an easier time of it...........Doreen

I just thought I would let everyone know so far so good. I " ve been

oked by the Rheumy to stop my enbrel after this week. So tomorrow is

my last shot. I have seen the ENT and he has gaven me the ok to go

ahead with the surgery. I'm having my tonsils taken out after years

of suffering. I go see my primary doc on the 22nd and will be asking

for alternative pain meds to help me through the flare that I know I'm

going to be getting before the surgery.

My ENT doc wants to perform another surgery after this one but I will

have to figure out when that will be. I have something called a

diveated septum that is causing my breathing issues. I breath out of

one side of my nose and the other side is constantly clogged or feels

that way. So I guess my nose is going to be my next surgery.

I'm scared about having it though. My boyfriend is blind and I will

not be able to talk for several days. How do I communicate with him

and let him know what I need? Any ideas would be nice.

October 18, 2008

My boyfriend is blind and I will not be able to talk for several days.

How do I communicate with him and let him know what I need? Any

ideas would be nice.

>

- Just trying to get caught up on all the posts so sorry if

this has already been suggested but there are several software " text

to speech " programs out there. I believe even the Microsoft operating

system has the ability within the " Accessibility " functions. Of

course, you may need to carry around a laptop or be near your

computer, but it may provide the temporary means by which you and your

guy could continue to communicate. In some of the text to speech

programs you also get your choice of women's voices to pick from. If

I get a chance I'll do a search and see what I can find.

Best of luck with the surgery. I'll keep you in my prayers.

Bob

October 18, 2008

I knew I was way behind on my reading. Thanks . You always come

through.

> > I just thought I would let everyone know so far so good. I " ve been

oked by

> > the Rheumy to stop my enbrel after this week. So tomorrow is my

last shot. I

> > have seen the ENT and he has gaven me the ok to go ahead with the

surgery.

> > I'm having my tonsils taken out after years of suffering. I go see my

> > primary doc on the 22nd and will be asking for alternative pain

meds to help

> > me through the flare that I know I'm going to be getting before

the surgery.

> >

> > My ENT doc wants to perform another surgery after this one but I

will have

> > to figure out when that will be. I have something called a

diveated septum

> > that is causing my breathing issues. I breath out of one side of

my nose and

> > the other side is constantly clogged or feels that way. So I guess

my nose

> > is going to be my next surgery.

> >

> > I'm scared about having it though. My boyfriend is blind and I

will not be

> > able to talk for several days. How do I communicate with him and

let him

> > know what I need? Any ideas would be nice.

> >

>

October 18, 2008

- what a totally awesome tool!! I have been having a blast

" talking " to my hubby and daughter through this. This seems like the

perfect solution for you, .............Doreen

>

> ,

>

> Good luck with your surgery.

>

> You can use this:

>

> http://www.research.att.com/~ttsweb/tts/demo.php

>

> Just type a word or phrase, and it will be " spoken. "

>

> Not an MD

>

October 19, 2008

yes there is, we use 2 of them one called JAWS and the other called window eyez.

But my computer doesn't do sound very well and his computer keyboard is too

small for my fat fingers. so we will have to figure something out.

My boyfriend has a computer called an eee pc, its a tiny tiny laptop.

[ ] Re: Surgery

My boyfriend is blind and I will not be able to talk for several days.

How do I communicate with him and let him know what I need? Any

ideas would be nice.

>

- Just trying to get caught up on all the posts so sorry if

this has already been suggested but there are several software " text

to speech " programs out there. I believe even the Microsoft operating

system has the ability within the " Accessibility " functions. Of

course, you may need to carry around a laptop or be near your

computer, but it may provide the temporary means by which you and your

guy could continue to communicate. In some of the text to speech

programs you also get your choice of women's voices to pick from. If

I get a chance I'll do a search and see what I can find.

Best of luck with the surgery. I'll keep you in my prayers.

Bob

------------------------------------------------------------------------------

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_______________________________________

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October 19, 2008

because I can not take more then 12 days off of my job he won't do it. The

other factor was my immune system issues with the RA.

Re: [ ] Surgery

,

My son had his tonsils taken out 2 years ago when he was 19, he also had a

diveated septum that was done at the same time. He was in the hospital overnight

and then home with me waiting on him. He was really not that bad, did drink

liquids for about a week I think, he didn't even use most of the pain meds the

dr prescribed. Can you ask your doctor about doing both at the same time?

Good Luck, in PA

-------------- Original message --------------

From: " Massey " <renandstimpy3@...>

I just thought I would let everyone know so far so good. I " ve been oked by the

Rheumy to stop my enbrel after this week. So tomorrow is my last shot. I have

seen the ENT and he has gaven me the ok to go ahead with the surgery. I'm having

my tonsils taken out after years of suffering. I go see my primary doc on the

22nd and will be asking for alternative pain meds to help me through the flare

that I know I'm going to be getting before the surgery.

My ENT doc wants to perform another surgery after this one but I will have to

figure out when that will be. I have something called a diveated septum that is

causing my breathing issues. I breath out of one side of my nose and the other

side is constantly clogged or feels that way. So I guess my nose is going to be

my next surgery.

I'm scared about having it though. My boyfriend is blind and I will not be

able to talk for several days. How do I communicate with him and let him know

what I need? Any ideas would be nice.

_______________________________________

No viruses found in this outgoing message

Scanned by iolo AntiVirus 1.5.3.5

http://www.iolo.com

November 7, 2008

, sounds alot like my mother. in PA

[ ] surgery

went well. They have me on Loratab liquid, biaxin liquid and demerol. I also

have percocets from my primary as well if needed. My throat is very sore even

when taking the loratab. the last thing I remember was seeing them put the

sleepy stuff into my iv then waking up in the recovery room and wanting dustin.

My mom drove us home and well from the get go when we got her she became a witch

with a b. she took dustin to walmart to get my scripts filled and got lunch and

muttered under her breath that dustin was a baby. He is far from it. Ok getting

tired so will write more when I have more energy again.

_______________________________________

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Scanned by iolo AntiVirus 1.5.3.5

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November 7, 2008

,

I am glad you are home. I hope you are feeling better soon.

Shirley

> [ ] surgery

>

> went well. They have me on Loratab liquid, biaxin liquid and

demerol. I also have percocets from my primary as well if needed. My

throat is very sore even when taking the loratab. the last thing I

remember was seeing them put the sleepy stuff into my iv then waking

up in the recovery room and wanting dustin. My mom drove us home and

well from the get go when we got her she became a witch with a b.

she took dustin to walmart to get my scripts filled and got lunch

and muttered under her breath that dustin was a baby. He is far from

it. Ok getting tired so will write more when I have more energy

again.

>

> _______________________________________

> No viruses found in this outgoing message

> Scanned by iolo AntiVirus 1.5.3.5

> http://www.iolo.com

>

November 7, 2008

glad to hear everything went well hope you feel better

O

On Fri, Nov 7, 2008 at 4:04 PM, Massey

<renandstimpy3@...>wrote:

> went well. They have me on Loratab liquid, biaxin liquid and demerol. I

> also have percocets from my primary as well if needed. My throat is very

> sore even when taking the loratab. the last thing I remember was seeing them

> put the sleepy stuff into my iv then waking up in the recovery room and

> wanting dustin. My mom drove us home and well from the get go when we got

> her she became a witch with a b. she took dustin to walmart to get my

> scripts filled and got lunch and muttered under her breath that dustin was a

> baby. He is far from it. Ok getting tired so will write more when I have

> more energy again.

>

> _______________________________________

> No viruses found in this outgoing message

> Scanned by iolo AntiVirus 1.5.3.5

> http://www.iolo.com

>

November 7, 2008

, I'm glad your surgery went well. I hope that your recovery

will be swift, and you have a minimum of pain. Get well soon.

Sue

On Friday, November 7, 2008, at 04:04 PM, Massey wrote:

> went well.

>

November 8, 2008

Hi - so glad to hear that all went well with your surgery. My

prayers are with you. I assume that is your son? or husband?

Either way, Mom should keep quiet about her opinions. Sorry, just my

humble opinion.....Doreen

went well. They have me on Loratab liquid, biaxin liquid and demerol.

I also have percocets from my primary as well if needed. My throat

is very sore even when taking the loratab. the last thing I remember

was seeing them put the sleepy stuff into my iv then waking up in the

recovery room and wanting dustin. My mom drove us home and well from

the get go when we got her she became a witch with a b. she took

dustin to walmart to get my scripts filled and got lunch and muttered

under her breath that dustin was a baby. He is far from it. Ok

getting tired so will write more when I have more energy again.

November 8, 2008

dustin is my boyfriend, he has no sight

[ ] Re: surgery