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Louise,

I hope you will get a second opinion before you have surgery. Maybe you've

already had one. A friend recently had her thyroid removed because the

doctor said she might have Cancer. There was no Cancer.

Barb

On Sun, Jan 23, 2011 at 1:58 PM, Roni Molin <matchermaam@...> wrote:

>

>

> It depends on whether they'll be removing the thyroid or just removing a

> tumor. If the thyroid is removed you will have to be on thyroid replacement

> for the rest of your life. Finding the right dose for you can sometimes be

> challenging, but most people are able to get to that.

>

> I would suggest that you get hard copies of your blood tests, from the labe

> complete with your results and the lab ranges. If there is any question

> about whether you are being treated properly, the people on this list will

> help you.

>

> My best wishes go with you.

>

> <>Roni

> Immortality exists!

> It's called knowledge!

>

> Just because something isn't seen

> doesn't mean it's not there<>

>

>

>

> From: Louise <mtt5nf@... <mtt5nf%40>>

> Subject: surgery

> hypothyroidism <hypothyroidism%40>

> Date: Saturday, January 22, 2011, 3:47 AM

>

> I'll be having surgery in a few months on my thyroid. Any suggestions of

> what I should be prepared for? Any long term negative effects?

>

> Thank you for your responses.

>

> Louise

>

> ------------------------------------

>

>

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Thank you for your responses. I am medication and have been for over 30 years

which is the cause of the thyroid complications. I went for a biospy over a

month ago and the results show that I may cancerous cells. My next Dr.

appointment is to see a specialist about medication. Thank you again for your

suggestions.

Louise

> >

> > From: Louise <mtt5nf@... <mtt5nf%40>>

> > Subject: surgery

> > hypothyroidism <hypothyroidism%40>

> > Date: Saturday, January 22, 2011, 3:47 AM

> >

> > I'll be having surgery in a few months on my thyroid. Any suggestions of

> > what I should be prepared for? Any long term negative effects?

> >

> > Thank you for your responses.

> >

> > Louise

> >

> > ------------------------------------

> >

> >

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  • 3 weeks later...

Louise:

You wrote:

> In a couple of months I'll be having surgery to have my thyroid totally

removed. I'm scared of having the surgery but even afterwards of how weak and

for how long I'll be weak. I work physically and I hope to have the strength

quickly to return full time to work. ...

No need to worry. You will be up and around within a day or two, although they

might restrict heavy lifting. My son took a little longer than that, because he

was on blood thinners for his heart. They only kept him overnight to make sure

there was no bleeding.

You will be out of circulation longer with the iodine procedure later, although

that is even less of a physical problem for you. They just don't want you

contaminating the countryside with radioactivity.

Chuck

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I would say the answer to that is yes. I would make sure to take vitamins and

minerals to nourish your body's immune system, get plenty of rest initially.

Take your thyroid pills when the doctor says you should, and you should be all

right. Good luck.

<>Roni

Immortality exists!

It's called knowledge!

 

Just because something isn't seen

doesn't mean it's not there<>

From: Louise <mtt5nf@...>

Subject: surgery

hypothyroidism

Date: Friday, February 11, 2011, 3:51 AM

In a couple of months I'll be having surgery to have my thyroid totally

removed.  I'm scared of having the surgery but even afterwards of how weak and

for how long I'll be weak.  I work physically and I hope to have the strength

quickly to return full time to work.  That's my only source of income so I need

to work.

Do most patients have a full recovery within a month or so and are able to

return to full time work?

Thank you for your knowledge.

Louise

------------------------------------

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It strikes me strange that the doctors don't want people taking radioactive

iodine to contaminate the countryside, but they don't mind at all if it

contaminates the patient.

<>Roni

Immortality exists!

It's called knowledge!

 

Just because something isn't seen

doesn't mean it's not there<>

> In a couple of months I'll be having surgery to have my thyroid totally

removed.  I'm scared of having the surgery but even afterwards of how weak and

for how long I'll be weak.  I work physically and I hope to have the strength

quickly to return full time to work.  ...

No need to worry. You will be up and around within a day or two, although they

might restrict heavy lifting. My son took a little longer than that, because he

was on blood thinners for his heart. They only kept him overnight to make sure

there was no bleeding.

You will be out of circulation longer with the iodine procedure later, although

that is even less of a physical problem for you. They just don't want you

contaminating the countryside with radioactivity.

Chuck

------------------------------------

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For the patient it is like every medical procedure: a risk versus

reward situation. There is some small risk to the patient, but the risk

of negative results from not doing it are considered far greater.

Specifically, of dying from cancer that the radiation can easily remove.

For the general population that might be exposed to that radiation there

is only risk with no reward, therefore it should be avoided.

Luck,

..

..

>

> Posted by: " Roni Molin " matchermaam@...

> <mailto:matchermaam@...?Subject=%20Re%3A%20surgery>

> matchermaam <matchermaam>

>

>

> Fri Feb 11, 2011 5:45 pm (PST)

>

>

>

> It strikes me strange that the doctors don't want people taking

> radioactive iodine to contaminate the countryside, but they don't mind

> at all if it contaminates the patient.

>

> <>Roni

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On 2/11/2011 7:44 PM, Roni Molin wrote:

> It strikes me strange that the doctors don't want people taking

> radioactive iodine to contaminate the countryside, but they don't mind

> at all if it contaminates the patient.

I'm not sure why this would be strange. In the patient, the radioactive

iodine is intended to destroy cancerous thyroid cells. Thus, the risk is

greatly outweighed by the benefit. For the rest of the population, there

is not benefit whatsoever, just risk or destruction of viable thyroid

cells. So, you want one exposed a great deal and the other not exposed

at all.

Chuck

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It still gives me the shivers.

<>Roni

Immortality exists!

It's called knowledge!

 

Just because something isn't seen

doesn't mean it's not there<>

> It strikes me strange that the doctors don't want people taking

> radioactive iodine to contaminate the countryside, but they don't mind

> at all if it contaminates the patient.

I'm not sure why this would be strange. In the patient, the radioactive

iodine is intended to destroy cancerous thyroid cells. Thus, the risk is

greatly outweighed by the benefit. For the rest of the population, there

is not benefit whatsoever, just risk or destruction of viable thyroid

cells. So, you want one exposed a great deal and the other not exposed

at all.

Chuck

------------------------------------

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Roni,

You wrote:

> It still gives me the shivers.

You are at greater risk from environmental chemicals or radon in the air

you breathe, especially in some parts of the country. The EPA says about

as many people die from radon every year as from car accidents.

When you break one of those " green " fluorescent lights, you contaminate

your house with mercury vapors, exposing you to heavy metal poisoning.

There is also methyl mercury in tuna and especially in fresh water fish.

At least the iodine is mostly gone in about three days, with only a

trace after two weeks.

Chuck

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Well, I hope I never need it, but will keep it in mind. Chuck, if I should have

to go for an MRI for something, I know the gadolinim is not good. What else do

they use if they want contrast and what do you think about it?

<>Roni

Immortality exists!

It's called knowledge!

 

Just because something isn't seen

doesn't mean it's not there<>

> It still gives me the shivers.

You are at greater risk from environmental chemicals or radon in the air

you breathe, especially in some parts of the country. The EPA says about

as many people die from radon every year as from car accidents.

When you break one of those " green " fluorescent lights, you contaminate

your house with mercury vapors, exposing you to heavy metal poisoning.

There is also methyl mercury in tuna and especially in fresh water fish.

At least the iodine is mostly gone in about three days, with only a

trace after two weeks.

Chuck

------------------------------------

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On 2/13/2011 2:11 PM, Roni Molin wrote:

> Well, I hope I never need it, but will keep it in mind. Chuck, if I

> should have to go for an MRI for something, I know the gadolinim is not

> good. What else do they use if they want contrast and what do you think

> about it?

As usual, it is a " risk, " rather than a definite harm. If you really

need the MRI, the benefit of the gadolinium contrast agent will almost

certainly outweigh the risk.

Chuck

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Is the MRI safer than a CAT scan?

Barb

On Sun, Feb 13, 2011 at 8:22 PM, ChuckB <gumboyaya@...> wrote:

>

>

> On 2/13/2011 2:11 PM, Roni Molin wrote:

> > Well, I hope I never need it, but will keep it in mind. Chuck, if I

> > should have to go for an MRI for something, I know the gadolinim is not

> > good. What else do they use if they want contrast and what do you think

> > about it?

>

> As usual, it is a " risk, " rather than a definite harm. If you really

> need the MRI, the benefit of the gadolinium contrast agent will almost

> certainly outweigh the risk.

>

> Chuck

>

>

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On 2/13/2011 7:27 PM, Barbara Mackie wrote:

> Is the MRI safer than a CAT scan?

Most of the time, yes. The types of risk are very different. However,

MRI is also much more expensive, so it is generally only used when other

imaging techniques do not have adequate resolution.

Chuck

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Don't they use anything else?

<>Roni

Immortality exists!

It's called knowledge!

 

Just because something isn't seen

doesn't mean it's not there<>

> Well, I hope I never need it, but will keep it in mind. Chuck, if I

> should have to go for an MRI for something, I know the gadolinim is not

> good. What else do they use if they want contrast and what do you think

> about it?

As usual, it is a " risk, " rather than a definite harm. If you really

need the MRI, the benefit of the gadolinium contrast agent will almost

certainly outweigh the risk.

Chuck

------------------------------------

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Here's some info re: gadolinium.

 

http://gadolinium-side-effects.net/

<>Roni

Immortality exists!

It's called knowledge!

 

Just because something isn't seen

doesn't mean it's not there<>

> Is the MRI safer than a CAT scan?

Most of the time, yes. The types of risk are very different. However,

MRI is also much more expensive, so it is generally only used when other

imaging techniques do not have adequate resolution.

Chuck

------------------------------------

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Well that's scary!

Barb

On Sun, Feb 13, 2011 at 11:02 PM, Roni Molin <matchermaam@...> wrote:

>

>

> Here's some info re: gadolinium.

>

> http://gadolinium-side-effects.net/

>

> <>Roni

> Immortality exists!

> It's called knowledge!

>

> Just because something isn't seen

> doesn't mean it's not there<>

>

>

> > Is the MRI safer than a CAT scan?

>

> Most of the time, yes. The types of risk are very different. However,

> MRI is also much more expensive, so it is generally only used when other

> imaging techniques do not have adequate resolution.

>

> Chuck

>

> ------------------------------------

>

>

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That's why I was asking Chuck's opinion. He's a very smart man, but we don't

always agree on

the " risk/benefit " issue. I had one taken with the contrast a very long time

ago. Since I've found out what it is and what it can do, if I need an MRI, I'll

have it done with no contrast. My doctor

for the last 10 years always ordered them with no contrast.

<>Roni

Immortality exists!

It's called knowledge!

 

Just because something isn't seen

doesn't mean it's not there<>

> > Is the MRI safer than a CAT scan?

>

> Most of the time, yes. The types of risk are very different. However,

> MRI is also much more expensive, so it is generally only used when other

> imaging techniques do not have adequate resolution.

>

> Chuck

>

> ------------------------------------

>

>

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> > > Is the MRI safer than a CAT scan?

> >

> > Most of the time, yes. The types of risk are very different. However,

> > MRI is also much more expensive, so it is generally only used when other

> > imaging techniques do not have adequate resolution.

> >

> > Chuck

> >

> > ------------------------------------

> >

> >

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Sorry for the blank post; can I blame it on the cat? [ggg]

What I was trying to say is that I think not using the contrast lowers

the resolution so that there is a risk that something might be missed

that would not have been missed had the contrast been used. There's a

risk no matter what you do. Probably the greatest risk in getting an

MRI is from an auto accident on the way.

Regards,

..

..

>

> Posted by: " Roni Molin " matchermaam@...

> <mailto:matchermaam@...?Subject=%20Re%3A%20surgery>

> matchermaam <matchermaam>

>

>

> Sun Feb 13, 2011 10:55 pm (PST)

>

>

>

> That's why I was asking Chuck's opinion. He's a very smart man, but we

> don't always agree on

> the " risk/benefit " issue. I had one taken with the contrast a very

> long time ago. Since I've found out what it is and what it can do, if

> I need an MRI, I'll have it done with no contrast. My doctor

> for the last 10 years always ordered them with no contrast.

>

> <>Roni

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Louise, I'm sorry that happened to you, but it's not an unusual occurrence.

People have false negative results to different kinds of tests all the time. A

lot depends on the one who is giving the test and the one who is reading it. A

co-worker's husband (this was years ago) went in for a battery of tests for his

heart. After getting a sparklingly good evaluation, he left the office and was

walking to the subway, collapsed and died of a heart attack in the street.

 

I think we have to make sure that if we feel something is wrong and are getting

opposite answers from our doctors or tests (also depends on what tests doctors

ask for and how they're done), then we have to find another doctor and try

again. It's an awfully stressful way to have to get the proper healthcare for

ourselves, but the fact of the matter is that many, many of us have had to go

from doctor to doctor till we find out the truth. I wish the best for you.

 

Roni

<>Roni

Immortality exists!

It's called knowledge!

 

Just because something isn't seen

doesn't mean it's not there<>

From: Louise <mtt5nf@...>

Subject: Re: surgery

hypothyroidism

Date: Monday, February 14, 2011, 4:14 AM

> > > Is the MRI safer than a CAT scan?

> >

> > Most of the time, yes. The types of risk are very different. However,

> > MRI is also much more expensive, so it is generally only used when other

> > imaging techniques do not have adequate resolution.

> >

> > Chuck

> >

> > ------------------------------------

> >

> >

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LOL, that's probably right. With me, the chemical sensitivities that I have are

really bad. My cardio recently gave me two perfectly natural things l-carnitine

and d-ribose. I felt more energized and

generally stronger for a few days. Then started having to run back and forth to

the bathroom, and even cutting the doses in half (which are not that big to

begin with) didn't help and I had to stop taking them, even though I would

really like to take them because they made me feel better for those few days. I

have to be so careful. I was not always this way, so I know that these things

can come about because of the body becoming sensitized for one reason or

another. I HAVE to

err on the side of caution. It stinks, but there it is.

 

<>Roni

Immortality exists!

It's called knowledge!

 

Just because something isn't seen

doesn't mean it's not there<>

From: <res075oh@...>

Subject: Re: surgery

hypothyroidism

Date: Monday, February 14, 2011, 7:05 AM

Sorry for the blank post; can I blame it on the cat? [ggg]

What I was trying to say is that I think not using the contrast lowers

the resolution so that there is a risk that something might be missed

that would not have been missed had the contrast been used.  There's a

risk no matter what you do.  Probably the greatest risk in getting an

MRI is from an auto accident on the way.

Regards,

..

..

>

>       Posted by: " Roni Molin " matchermaam@...

>       <mailto:matchermaam@...?Subject=%20Re%3A%20surgery>

>       matchermaam <matchermaam>

>

>

>         Sun Feb 13, 2011 10:55 pm (PST)

>

>

>

> That's why I was asking Chuck's opinion. He's a very smart man, but we

> don't always agree on

> the " risk/benefit " issue. I had one taken with the contrast a very

> long time ago. Since I've found out what it is and what it can do, if

> I need an MRI, I'll have it done with no contrast. My doctor

> for the last 10 years always ordered them with no contrast.

>

> <>Roni

------------------------------------

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On 2/13/2011 9:20 PM, Roni Molin wrote:

> Don't they use anything else?

Gadolinium comes in many forms, some with lower risk than others, but

this gadolinium compound " family " has almost completely replaced the

iodine based agents, because it is relatively safer.

Chuck

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Louise,

You wrote:

>

>

> I don't mean to go onto another subject. Concerning the MRI I know it is

> not always accurate because 15 years ago I had tests to see if I have

> epilepsy and the tests showed nothing resulting to it....

There are other things that can cause seizures besides overt structural

injuries that would show up on an MRI. My mom had petite mal attacks

subsequent to a car accident in her childhood. As she aged, these

eventually progressed to grand mal on occasion, but they could never

find a structural issue. Like her thyroid meds, the ones she took to

control the epilepsy were life long.

Chuck

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So how is a patient who is going to get an MRI to know

which form has the lowest risk?

<>Roni

Immortality exists!

It's called knowledge!

 

Just because something isn't seen

doesn't mean it's not there<>

> Don't they use anything else?

Gadolinium comes in many forms, some with lower risk than others, but

this gadolinium compound " family " has almost completely replaced the

iodine based agents, because it is relatively safer.

Chuck

------------------------------------

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Roni,

You wrote:

> LOL, that's probably right. With me, the chemical sensitivities that I

> have are really bad. My cardio recently gave me two perfectly natural

> things l-carnitine and d-ribose....

In addition to the reported side effects, l-carnitine interferes with

your thyroid meds. Did your cardio warn you about that? Since d-ribose

is a sugar, diabetics need to avoid it.

Both of these " natural " supplements have digestive upsets and diarrhea

as known side effects. " Natural " does not mean harmless. There are lots

of things in nature that would consider us " lunch. "

Chuck

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