Guest guest Posted February 15, 2011 Report Share Posted February 15, 2011 Marika, I went to a top doctor at a hospital who is familiar with CMT and he also said that having the disease makes you the expert and he has found that his patients usually know more that he does. I guess it is difficult for a neurologist to know everything about every disease in the nervous system. Of course, great idea to talk to doctors who are the most knowledgable like Dr Shy. Good luck and try not to feel too discouraged. I believe we all go through stages where we feel CMT has gotten the best of us and then when we readjust our minds to our bodies and get more information we start to feel like ourselves again. Jackie Quote Link to comment Share on other sites More sharing options...
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