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Re: B-12 injections

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In a message dated 4/7/99 7:31:23 PM Eastern Daylight Time,

rhbailey@... writes:

> just published a study showing that oral

> B-12 is as effective.

Hello Sue.......

I did like the injections but started to take one kind of sublingual

but had some major sugar tasting in it, stopped and now i have tried B12

another company and sure do like this one. Insurance won't pay for pills.

and still might pay for injections...

Susy dog.....

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  • 5 years later...
  • 1 year later...
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> What are the improper ways that the DAN docs are prescribing these injections

>in your opinion?

Without regard to any more specific indication than that the kid is

autistic, and also without titrating up an oral dose first before

deciding on using it by injection.

>What is the legitimate reason to give these or this Jill cocktail?

I'm not familiar with it by that name, could you enumerate what it is

exactly? Is this the mb12 shot plus folinic acid + ... ?

> I am not sure what real " bad " side effects are that make up the 30%.

angry agitated aggression with no motivation, lasting several months at

least.

For a small child with a physically healthy mother this is not a very

big risk, for a large strong child or a frail mother this can be life

threatening. Much depends on context here.

>I am considering not following the Dan bio-medical route anymore.

Don't follow any fads, do what makes sense for your kid.

There is no consensus because 100% of MD " s are trained to not be

technical people, so they are unable to figure out what to do and the

most arrogant ones WANT to be discoverers of great cures so they all

proclaim their therapy " IT! "

If MD's had a clue, this never would have happened in the first place.

It isn't the fault of the people in the system - the individual MD's -

they are as much victims as anybody. But you still have to figure out

what to do in a situation where listening to " experts " doesn't work, so

you have to think it through yourself.

Andy . . . . . . . . . . .

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  • 10 months later...
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We have recently consulted the only DAN doctor in the state (New

Mexico) because I have been fascinated by Dr. Neubrander's website and

claims and want to do methly B12 injections with our son. The local

doc is excited about sublingual hydroxy B12 drops. He says he met

another DAN doc recently who raves about his results. We are to start

next week (if the drops arrive from the compounder). I will post

results. I certainly welcome all other input!

in Santa Fe

>

> Is anyone doing this? Seeing results? We've been doing it since

last

> August, but haven't noticed any significant changes.

>

> Patty

>

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--

hi Patty

We started MB12 shots for our 4.5yrs old son since october, and

he has made significant progress on them. How often do you give

them, We give every 3rd day, subcutaneously, and also

vitamin/mineral supplement, ProEFA.

goodluck

Archana

Archana

- In , " nicmat22003 "

<prabito@...> wrote:

>

> Is anyone doing this? Seeing results? We've been doing it since

last

> August, but haven't noticed any significant changes.

>

> Patty

>

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Is the Vitamin B12 injections for verbal apraxia? Inever heard of this only

the pro-efa. Who orders these? your reg ped or your dev. pediatrician?

Jlynch

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Hi Archana,

We started every 3 days, then changed to every other day when I

wasn't seeing results, and still aren't so we're back to every 3 days.

> >

> > Is anyone doing this? Seeing results? We've been doing it since

> last

> > August, but haven't noticed any significant changes.

> >

> > Patty

> >

>

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>

> Is the Vitamin B12 injections for verbal apraxia? Inever heard of

this only

> the pro-efa.

Yes and other speech disorders.

Who orders these? your reg ped or your dev. pediatrician?

> Jlynch

>

Usually a DAN (Defeating Autism Now) doctor. Dr. Neubrander is the one

who pioneered the protocol. Check out his website:

http://www.drneubrander.com/page1.html

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  • 4 years later...

Dear Shaye,

My doctor has not suggested having the shots at home but my

sister has a prescription and uses B-12 at home. Guess my doctor likes the

charge of an office call.!!! ?? It is getting harder for me to get out but my

therapist tells me to keep going and try to do everything that I use to. " If

you do not use it...you loose it " he says and I have lost a lot I wear AFOs

inside and add a walker to go shopping and have an Amigo that I use to go out in

the yard. I am glad the B-12 helps you.

Jeanann

[Non-text portions of this message have been removed]

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Marika,

I was 45 years old before I felt the need to see a neurologist who gave me the

needle testing and sent me to have bracing. I live in Michigan so Dr. Shy was

close and he repeated the testing and came up that I had CMT2. My first pair

of AFOs felt so good I could not believe how much better I walk and they help

with the balance. Of course my legs have lost a lot of muscle because of

them....but I could walk.!! Guess I have had CMT for about 40 years.

Jeanann

>

> [Non-text portions of this message have been removed]

>

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