Thank you

[Guest guest]

This is wonderful NEWS??? (see question below) The CDC (Center for

Diease Control) FDA, US Public Health Service, ect. ALL must be wrong.

Here they up and thought that DMSA would chelate mercury lead cadimum

arsenic, ect. DETOX-MAX should contact these Federal agencies with all

due haste to set them straight that DMSA does not do these things.

I read about DETOX-MAX, you might be better off with snake oil at a

dollar a bottle.

I would like to thank everyone who has responded to my initial e-mail.

I did some searching on the boards and files. I understand that

everyone is using DMSA/ALA. But I just spoke to the company that

makes DETOX-MAX (company is Bioimmune and phone is 1-888-663-8844

ask for )

This product has been on the market for a year and they told me that

DMSA is only good for chelating mercury. The detox-max will chelate

all heavy metals like lead, mercury, nickel, etc and also toxic

chemicals. It will not cause a mineral imbalance or your gut flora.

Any input on this is greatly appreciated...again

would like to know if anyone has tried it. Thanks Again

-Jan

--- End forwarded message ---

[Guest guest]

> I would like to thank everyone who ha responded to my initial

e-mail.

> I did some searching on the boards and files. I understand that

> everyone is using DMSA/ALA.

Who is " everyone " ? I am not using DMSA/ALA. I am using only ALA. My

child no longer qualifies as autistic. I pay $12 per bottle of ALA at

my health food store, and it lasts me about 7-8 rounds for 4 children,

which equates to 2-3 months. How much does this product cost?

But I just spoke to the company that

> makes DETOX-MAX (company is Bioimmune and phone is 1-888-663-8844

> ask for )

> This product has been on the market for a year and they told me that

> DMSA is only good for chelating mercury.

Actually, DMSA is used primarily for chelating lead, but it also works

on other things. The *federal govt* even uses it for people who test

high for lead. So anyone who told you DMSA only chelates mercury is

not reading even the govt sites. I would be suspicious of other

claims made by this person.

The detox-max will chelate

> all heavy metals like lead, mercury, nickel, etc and also toxic

> chemicals.

What is the active ingredient/s? Be sure you know what it is, before

agreeing to use it. If it is ALA, and most of these " alternative

chelators " are based on ALA, why not just buy ALA [and any other

herbal supplements] at your local health food store and save money?

> It will not cause a mineral imbalance or your gut flora.

Neither does my protocol.

> Any input on this is greatly appreciated...again

> would like to know if anyone has tried it. Thanks Again

I have not tried this, but if you have a site or an ingredient list or

other information, other people can give you additional comments on

what you need to consider before using this with your child. It may

be a useful product, I don't know, but until I know more about it, I

cannot give more than just general comments.

Dana

[Guest guest]

That is untrue. DMSA chelates a lot of other things. It was originally

used for lead poisoning in children. I would distrust reps. who don't know

correct information!

Barb

[ ] Thank You

>I would like to thank everyone who ha responded to my initial e-mail.

>I did some searching on the boards and files. I understand that

>everyone is using DMSA/ALA. But I just spoke to the company that

>makes DETOX-MAX (company is Bioimmune and phone is 1-888-663-8844

>ask for )

>This product has been on the market for a year and they told me that

>DMSA is only good for chelating mercury. The detox-max will chelate

>all heavy metals like lead, mercury, nickel, etc and also toxic

>chemicals. It will not cause a mineral imbalance or your gut flora.

>Any input on this is greatly appreciated...again

>would like to know if anyone has tried it. Thanks Again

>-Jan

>

>

>

>=======================================================

>

[Guest guest]

Hi Jan-- it is good that you called the company, but keep in mind,

they have a product to " sell " you. They have a financial interest in

it. There was recently a bad case on this board of someone who had

used NDF with their son and he regressed on it. She had checked it

out, too, but it still did some bad things to her son. I don't know

if he has recovered yet (lecopeland? how's he doing?). Anyway, my

point is, the info you got is worth considering, but also consider

that if it has only been out for a year-- they probably have not

chelated many KIDS. Kids are different than adults. I would not

risk such a relatively new product. Stay on this board a while, read

the love letters files, etc., and see the good results that people

get with DMSA/ALA or just ALA. They are able to chelate out multiple

metals-- that person told you some incorrect information about DMSA.

I think looking at safety/long history of use are very important.

W

>

> Any input on this is greatly appreciated...again

> would like to know if anyone has tried it. Thanks Again

> -Jan

[Guest guest]

It is good to see that your feeling better! You are now one of us!

The crying, the decision making, and not time to get rounding!

Welcome to the group, I haven't had a chance to go through

yesterday's posts yet. Sorry!

Dustie, mom to , DOC Grad '03

--- In Plagiocephaly , " Lynette Cook " <cookie@c...>

wrote:

> I wanted to thank everyone who responded to my post. I spent most

of

> yesterday crying, even though my head knew that the world was

> definitely not ending! Reading people's posts made me feel so much

> better knowing that this would be nothing more than a little bump

in

> the road.

>

> I have looked through the photo file and I have never seen so many

> beautiful children! The results that you can see from the banding

is

> incredible and I'm anxious to get Brenna started.

>

> One comforting thought that I had yesterday was that I was glad to

be

> in my shoes and not the doctor. I would never want to look a parent

> in the face and tell them that the child they think is perfect

> actually has a flaw. I now understand why she almost looked scared

> and cautious when she recommended that we take Brenna to be

> evaluated. But flaw, or no flaw, she is still beautiful and I know

> that this group will continue to help us.

>

> Thank you so much and I look forward to getting to know everyone

> better,

> Lynette in Charlotte, NC

> mother of Brenna (6-month) and Caelan (2 years)

[Guest guest]

TYPO!! I'm getting real good at these. hehe....

Should say, *and now time for rounding* Sorry! Grrrrr......wake up

fingers.

Dustie

> > I wanted to thank everyone who responded to my post. I spent most

> of

> > yesterday crying, even though my head knew that the world was

> > definitely not ending! Reading people's posts made me feel so

much

> > better knowing that this would be nothing more than a little bump

> in

> > the road.

> >

> > I have looked through the photo file and I have never seen so

many

> > beautiful children! The results that you can see from the banding

> is

> > incredible and I'm anxious to get Brenna started.

> >

> > One comforting thought that I had yesterday was that I was glad

to

> be

> > in my shoes and not the doctor. I would never want to look a

parent

> > in the face and tell them that the child they think is perfect

> > actually has a flaw. I now understand why she almost looked

scared

> > and cautious when she recommended that we take Brenna to be

> > evaluated. But flaw, or no flaw, she is still beautiful and I

know

> > that this group will continue to help us.

> >

> > Thank you so much and I look forward to getting to know everyone

> > better,

> > Lynette in Charlotte, NC

> > mother of Brenna (6-month) and Caelan (2 years)

[Guest guest]

Lynette,

I'm so glad this group has been a good support system for you- they were there for me as well when I was crying and upset at the start of our journey. It will get easier as you get on with it. Your perspective will change from feeling a mountain of concern, to feeling blessed that this is a small, treatable problem in the grand scheme of life, compared to others that face much bigger hurdles everyday. Good luck to you and please vent away anytime, we can all relate!

'mom

[Guest guest]

Sara,

No need to thank us, it's what we're here for!

> Hi everyone,

>

> I just want to say thanks to all of you for your support. Its nice

> to know that I have people I can talk to that understand what we're

> going through.

>

> Sara, mother of 7 months

> Mishawaka, IN

[Guest guest]

Hi Sue,

I may have missed an earlier post from you, but I just wanted to

welcome you to the group!

I can remember when I first joined the group, it was so helpful to

see photos of other babies with plagio; I was so grateful that other

parents were willing to share a photo record of what helmets and

bands looked like, and how rounding progress occurred. It made the

whole situation seem a lot less scary and intimidating!

Would you let us know how your specialists appt. goes? There is a

link to a list of " Questions for the Doctor " in the links/helmets

and bands folder that may be of help, if you haven't been to the

link already. Please let us know if you have any concerns or need

any other information!

Take care,

Christie (Mom to Repo'd Remy)

--- In Plagiocephaly , " Sue Flavin " <justsue5@h...>

wrote:

> Thank you for allowing me to join this group and to view pictures

of

> your adorable babies. I'm going to make an appointment for my ds

to

> see a specialist to either put my fears to rest or seek

treatment.

> Good luck to everyone starting or going through treatment. Thank

you

> to everyone for the support offered here.

>

> Sue

[Guest guest]

Thank you so much. You didn't miss me - that was my first post!

I am going to ask our ped for a referral (I have to call back at

11:45) but is there any chance that you have the name of anyone

highly recommended in the Buffalo, NY area?

I am learning so much from this site already. It sounds as though if

your dc has a mild form it may just be up to the parents to decide

what to do? I will definitely let you all know what I am told by the

specialist.

Also, if there is anything that I can do to help awarenenss in my

area, please let me know. I wish I would've been informed of this

prior to my baby's birth. He is my first and I had little expereince

with infants.

Thanks again.

Sue

> > Thank you for allowing me to join this group and to view pictures

> of

> > your adorable babies. I'm going to make an appointment for my ds

> to

> > see a specialist to either put my fears to rest or seek

> treatment.

> > Good luck to everyone starting or going through treatment. Thank

> you

> > to everyone for the support offered here.

> >

> > Sue

[Guest guest]

Hi Sue,

Welcome to the group! I'm glad you've found it helpful! Please let

us know what happens with your son's appt.

, mom to Hannah, DOCband #3 3/30

Cape Cod, Ma

--- In Plagiocephaly , " Sue Flavin " <justsue5@h...>

wrote:

> Thank you for allowing me to join this group and to view pictures

of

> your adorable babies. I'm going to make an appointment for my ds

to

> see a specialist to either put my fears to rest or seek

treatment.

> Good luck to everyone starting or going through treatment. Thank

you

> to everyone for the support offered here.

>

> Sue

[Guest guest]

,

You're very welcome!! Keep us posted on your little cutie.

> I have just looked through the whole picture / photos section of the

> group once again and can't emphasize enough how relieved I am to

have

> found the group.

> I noticed my son's " odd " head shape from when he was born but as no

> medical person seemed to notice I just thought it would even out

> after a few weeks. When it didn't but got worse I always tried to

> (inconspicuously of course) look at other peoples babies to see if

> there were others with a head not quite round but I never saw any

> which made me worse. All babies I saw seemed to have a perfect

head !!

> But when I learend about his condition on the Internet and found

this

> group just browsing through the files and folders seeing so many

> babies which look like my little Yannick has really helped and

> reassured me that we are not alone - and most of all there is

> treatment available which is so effective.

> Thanks to everyone for posting photos and posting messages and

advice !!

>

>

> (mom of Yannick 4 months plagio and Matika 3 yrs)

[Guest guest]

Tess,

I consider YOU a blessing and a gift.

((((((((((((((hugs)))))))))))))

a

On Sep 22, 2005, at 12:53 PM, Grammi B wrote:

> You are all so sweet and encouraging. This group is one of the

> most loving I have found...and you are all a blessing and a gift!

>

> Love...

>

> Tess

>

>

[Guest guest]

Jtaylor,

I'm glad we helped you. Having had cancer was bad enough but then to have to deal with being sick from implants for 12 years makes me want to answer anyone's questions about implants.

Your welcome to stay as well.

Blessings,

Penni

thank you

Just wanted all of you to know that I canceled my saline implant surgery in part because of what I've learned on this group. I apologize for intruding when I haven't actually had problems with implants yet. I will cancel my membership after I write this. I found your group almost by accident (I say almost because I know nothing happens by accident, really). I couldn't help but find out what real women who have had implant problems were saying. My doctor led me to believe problems were rare and easily fixed. I was supposed to go in for my pre-op today. I canceled yesterday due to scheduling problems. However, I will not be rescheduling that appointment, thanks to what I've read. Thank you, thank you, thank you to all of you for letting the truth be known. My prayers are with you for your continued healing, and may God bless you for blessing others.

[Guest guest]

Congratulations on your decision. You will live

a far healthier life without implants.

Lynda

At 04:17 PM 8/2/2006, you wrote:

>Just wanted all of you to know that I canceled my saline implant

>surgery in part because of what I've learned on this group. I

>apologize for intruding when I haven't actually had problems with

>implants yet. I will cancel my membership after I write this. I found

>your group almost by accident (I say almost because I know nothing

>happens by accident, really). I couldn't help but find out what real

>women who have had implant problems were saying. My doctor led me to

>believe problems were rare and easily fixed. I was supposed to go in

>for my pre-op today. I canceled yesterday due to scheduling

>problems. However, I will not be rescheduling that appointment,

>thanks to what I've read. Thank you, thank you, thank you to all of

>you for letting the truth be known. My prayers are with you for your

>continued healing, and may God bless you for blessing others.

>

>

[Guest guest]

We must really say THANK YOU for making us feel that our suffering has not been in vain! Thank you so much for sharing your thoughts! We love to get letters such as yours, knowing that we have helped at least one person make a wise decision and avoid the same suffering that we have endured. It is like a balm to the soul! You are certainly welcome to stay....no need to run off! Kenda is on our group for the same reason, and her presence has been a true blessing to us. She is an angel that supports us in our struggle, and we appreciate it so much. It really helps to know that others care enough to encourage us and come along side us because so many of us have been neglected and our illnesses swept under the rug by so many people--it is really healing to hear kind words from others who haven't been where we have been. You have done a good thing for yourself.

Never look back or change your mind. Your body is a treasure, your health to be valued and protected, and you have made a decision that has guarded that. Bless you! Pattyjtaylor813 <jtaylor813@...> wrote: Just wanted all of you to know that I canceled my saline implant surgery in part because of what I've learned on this group. I apologize for intruding when I haven't actually had problems with implants yet. I will cancel my membership after I write this.

I found your group almost by accident (I say almost because I know nothing happens by accident, really). I couldn't help but find out what real women who have had implant problems were saying. My doctor led me to believe problems were rare and easily fixed. I was supposed to go in for my pre-op today. I canceled yesterday due to scheduling problems. However, I will not be rescheduling that appointment, thanks to what I've read. Thank you, thank you, thank you to all of you for letting the truth be known. My prayers are with you for your continued healing, and may God bless you for blessing others.

Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less.

[Guest guest]

Thank you, Patty, (and also Lynda and Penni) for your kind words. I

won't run off so quickly, and I appreciate the invitation to stay.

I hope I can be an encouragement to you. Oddly enough, I have had

to deal with some (though not as severe, perhaps) of the symptoms

that many with implants have dealt with, though I don't have them.

I have systemic candidiasis (yeast infection) which I have been

treating for the past few years. I have had some success, and the

chronic fatigue, memory loss, brain fog, etc. is slowly getting

better. In fact, the information on fungus growing in and leaking

out of the implants is one of the major things that got my

attention, because I already deal with that problem without

implants. Thank you again for helping me see the light, and not

plunge myself right back into a bigger problem than I have already

dealt with! For any of you suffering with fungal problems, I may be

able to offer some help and encouragement. Also, as a side note, as

I was doing this research on the implants, I had to wonder if many

of the problems associated with them also have to do with the

antibiotics given before, during, and after surgery which already

sets one up for fungus to overgrow around the implant (fungal

infections often go to the weakest parts of the body).

Praying for you all. You have a special place in my heart.

Jen

> Just wanted all of you to know that I canceled my saline

implant

> surgery in part because of what I've learned on this group. I

> apologize for intruding when I haven't actually had problems with

> implants yet. I will cancel my membership after I write this. I

found

> your group almost by accident (I say almost because I know nothing

> happens by accident, really). I couldn't help but find out what

real

> women who have had implant problems were saying. My doctor led me

to

> believe problems were rare and easily fixed. I was supposed to go

in

> for my pre-op today. I canceled yesterday due to scheduling

> problems. However, I will not be rescheduling that appointment,

> thanks to what I've read. Thank you, thank you, thank you to all

of

> you for letting the truth be known. My prayers are with you for

your

> continued healing, and may God bless you for blessing others.

>

>

>

>

>

>

> ---------------------------------

> Messenger with Voice. Make PC-to-Phone Calls to the US (and

30+ countries) for 2¢/min or less.

>

[Guest guest]

Thanks so much for sharing your decision. It is always such a

wonderful feeling to know that we have been a part in helping

someone else save themselves from getting ill. My prayer for you is

that you will stay in good health and learn to be happy with your

body just the way God made it! Blessings!

Kathy

--- In , " jtaylor813 " <jtaylor813@...>

wrote:

>

> Just wanted all of you to know that I canceled my saline implant

> surgery in part because of what I've learned on this group. I

> apologize for intruding when I haven't actually had problems with

> implants yet. I will cancel my membership after I write this. I

found

> your group almost by accident (I say almost because I know nothing

> happens by accident, really). I couldn't help but find out what

real

> women who have had implant problems were saying. My doctor led me

to

> believe problems were rare and easily fixed. I was supposed to go

in

> for my pre-op today. I canceled yesterday due to scheduling

> problems. However, I will not be rescheduling that appointment,

> thanks to what I've read. Thank you, thank you, thank you to all

of

> you for letting the truth be known. My prayers are with you for

your

> continued healing, and may God bless you for blessing others.

>

[Guest guest]

My step son had a huge problem with fungal rashes under his arms and also thick scaly dandruff on his head. The stuff was nasty. I kept telling him he needed to avoid sweets, especially soda. He is 16, what do I know. He kept drinking and eating what ever he wanted. His problems got worse, enough for him to beg me to think of something. I took him to the kinesiologist. The Dr. put him on zinc to help get rid of the fungus on his head and armpits. Then he noticed something, a bad smell coming from my son's feet. The first words out of his mouth was...stay away from sodas, especially Mountain Dew. (which happens to be his drug of choice). asked him how he knew he drank mountain dew. The doc said that pop strips the body of magnesium and a body low in magnesium emits a bad odor. So, he was also put on magnesium. He was told to stay off the sodas. (He still disobeys from time to

time). This was all at the beginning of the summer. He no longer has a scaly scalp and the nasty foot odor is gone also.jtaylor813 <jtaylor813@...> wrote: Thank you, Patty, (and also Lynda and Penni) for your kind words. I won't run off so quickly, and I appreciate the invitation to stay. I hope I can be an encouragement to you. Oddly enough, I have had to deal with some (though not as severe, perhaps) of the symptoms that many with implants have dealt with, though I don't have them.

I have systemic candidiasis (yeast infection) which I have been treating for the past few years. I have had some success, and the chronic fatigue, memory loss, brain fog, etc. is slowly getting better. In fact, the information on fungus growing in and leaking out of the implants is one of the major things that got my attention, because I already deal with that problem without implants. Thank you again for helping me see the light, and not plunge myself right back into a bigger problem than I have already dealt with! For any of you suffering with fungal problems, I may be able to offer some help and encouragement. Also, as a side note, as I was doing this research on the implants, I had to wonder if many of the problems associated with them also have to do with the antibiotics given before, during, and after surgery which already sets one up for fungus to overgrow around the implant (fungal infections often go to

the weakest parts of the body).Praying for you all. You have a special place in my heart.Jen> Just wanted all of you to know that I canceled my saline implant > surgery in part because of what I've learned on this group. I > apologize for intruding when I haven't actually had problems with > implants yet. I will cancel my membership after I write this. I found > your group almost by accident (I say almost because I know nothing > happens by accident, really). I couldn't help but find out what real >

women who have had implant problems were saying. My doctor led me to > believe problems were rare and easily fixed. I was supposed to go in > for my pre-op today. I canceled yesterday due to scheduling > problems. However, I will not be rescheduling that appointment, > thanks to what I've read. Thank you, thank you, thank you to all of > you for letting the truth be known. My prayers are with you for your > continued healing, and may God bless you for blessing others.> > > > > > > ---------------------------------> Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less.>

Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min.

[Guest guest]

Wow, it's interesting how fungal infections and magnesium deficiency

usually go hand in hand. My 5 year old and I were both taking

magnesium for a while, but after going home to see relatives, I got

a little lazy and haven't been taking it or giving it to her. My

husband and I have both been commenting on how we need to throw some

of her shoes away because they hold in bad foot odor. Who would

have thought that maybe all she needs is to be back on magnesium!

Thanks for the tip!

> > Just wanted all of you to know that I canceled my saline

> implant

> > surgery in part because of what I've learned on this group. I

> > apologize for intruding when I haven't actually had problems

with

> > implants yet. I will cancel my membership after I write this. I

> found

> > your group almost by accident (I say almost because I know

nothing

> > happens by accident, really). I couldn't help but find out what

> real

> > women who have had implant problems were saying. My doctor led

me

> to

> > believe problems were rare and easily fixed. I was supposed to

go

> in

> > for my pre-op today. I canceled yesterday due to scheduling

> > problems. However, I will not be rescheduling that appointment,

> > thanks to what I've read. Thank you, thank you, thank you to all

> of

> > you for letting the truth be known. My prayers are with you for

> your

> > continued healing, and may God bless you for blessing others.

> >

> >

> >

> >

> >

> >

> > ---------------------------------

> > Messenger with Voice. Make PC-to-Phone Calls to the US

(and

> 30+ countries) for 2¢/min or less.

> >

>

>

>

>

>

>

> ---------------------------------

> Talk is cheap. Use Messenger to make PC-to-Phone calls.

Great rates starting at 1¢/min.

>

[Guest guest]

Thanks. He's working on me. I actually surprised myself when I

cried after canceling my procedure. I realized that this surgery

has been in the back of my mind for a long time, even when I didn't

think I'd actually do it (I figured when I got the nerve and money,

I'd do it someday, and I looked forward to not feeling less-than any

more). I didn't even realize the emotions ran so deep until I

finally came to the decision to cancel the procedure. All along,

I've tried to teach my daughter how to be content with and thankful

for who she is, and I probably need my 5-year-old to teach me a

thing or two. Yep, I've learned a lot about myself through this,

and am still learning. Thanks for the prayer--I sure need His

perspective.

> >

> > Just wanted all of you to know that I canceled my saline implant

> > surgery in part because of what I've learned on this group. I

> > apologize for intruding when I haven't actually had problems

with

> > implants yet. I will cancel my membership after I write this. I

> found

> > your group almost by accident (I say almost because I know

nothing

> > happens by accident, really). I couldn't help but find out what

> real

> > women who have had implant problems were saying. My doctor led

me

> to

> > believe problems were rare and easily fixed. I was supposed to

go

> in

> > for my pre-op today. I canceled yesterday due to scheduling

> > problems. However, I will not be rescheduling that appointment,

> > thanks to what I've read. Thank you, thank you, thank you to

all

> of

> > you for letting the truth be known. My prayers are with you for

> your

> > continued healing, and may God bless you for blessing others.

> >

>

[Guest guest]

YES!! Praise God for your decision! I just had my 20 yr. old implants

removed a week ago -- I wouldn't want my worst enemy to go through what

I have. I am very happy for you. You are extremely intelligent and

obvobviously love yourself enough not to do harm in this way.

Thanks for believing what you read here and in turn, responded to it.

Love & Peace,

Sunny

--- In , " jtaylor813 " <jtaylor813@...>

wrote:

>

> Just wanted all of you to know that I canceled my saline implant

> surgery in part because of what I've learned on this group. I

> apologize for intruding when I haven't actually had problems with

> implants yet. I will cancel my membership after I write this. I

found

> your group almost by accident (I say almost because I know nothing

> happens by accident, really). I couldn't help but find out what real

> women who have had implant problems were saying. My doctor led me to

> believe problems were rare and easily fixed. I was supposed to go in

> for my pre-op today. I canceled yesterday due to scheduling

> problems. However, I will not be rescheduling that appointment,

> thanks to what I've read. Thank you, thank you, thank you to all of

> you for letting the truth be known. My prayers are with you for your

> continued healing, and may God bless you for blessing others.

>

[Guest guest]

This made me feel great Good for you.

[Guest guest]

Marcy, here's a big, huge hug for you!!! You're in my prayers.

Love & Healing,

Sunny

>

> Thank you for the wonderful replies to my post " Hi--I need some

> support " I am sitting here in tears again typing. Last night my

> tears were from desperation and tonight they are tears of relief in

> knowing that others can relate and offer me support. Thank you

thank

> you thank you!!! I needed to hear what all of you wrote. I really

> appreciate your taking the time to post back to me.

> Hugs, Marcy )

>

[Guest guest]

Lee, I feel so badly for your loses. My heart

goes out to you. I certainly wish you the best.

Welcome to the site. Tami

Tami -Dossey