Thank you

[Guest guest]

, if you don't ask, you'll never know. Speak up, the most that can

happen is you'll be told " No " , and you've had that happen at some point

before. And if you don't 'advertise' your pill consumption, nobody will know

if you are a 'drug addict'. Don't let that stop you.

Dennis in eastexas

On Mon, Jul 13, 2009 at 9:43 PM, Avery <shelly_avery@...>wrote:

>

>

> Thank you for such a warm welcome. I hope I answer everyone that has asked

> me questions. I do have a rheumy(Sp). She is really nice. The problem I

> have is before I got the rheumy I was seeing a gp and the first thing she

> said to me was we don't treat RA with pain meds so now I'm afraid to ask for

> anything for pain because I don't want anybody to think that I'm a drug

> addict. The problem is that I don't know how much longer I can deal with

> this pain. The depression is getting worse and I just think god just one

> day without pain would make my depression so much better. Another problem

> is with all of the x-rays it shows that I have very little damage to my

> joints so I don't know even if I asked for something for pain if she would

> give it to me. I don't know what to do anymore. I feel like such a baby.

> Today I was only able to get my dishes done and I feel so bad about that. I

> just feel like I should be doing more. Thank god I have

> such an understanding husband but I feel like I'm letting him down. Well

> enough of my rambling and please bear with me It's got to get better Right?

>

>

>

> Mom to the blessing from above

>

[Guest guest]

Hi ,

Shame on that gp who wouldn't give you pain meds. Bet when she gets as much as a

headache it's the first thing she does. Take your husband with you and tell them

that you can't bear the pain and it's affecting your depression. Your other meds

won't be as effective without tackling the pain. What other meds are you on?

Also don't be concerned about the x rays as they are not an exact science. Some

people's show great damage but they don't complain of pain, whilst others will

show very little damage but have great pain. This is well documented. Your

husband will understand, no one has ever died through not doing dishes on time

or getting the vacuum cleaner out every 5 minutes. These things are so

unimportant when you are dealing with pain. Be kind to yourself and rest.

Sometimes we get so caught up with just trying to keep going. Why not try and

get yourself a high stool so you can sit at the sink to do the dishes. Your

hands can be glad of the warm water. Learn to do all sorts of tasks sitting,

it's surprising how your mind can come up with ideas. I got myself an office

chair on castors, with adjustable height/back/seat. I can be seen gliding around

my kitchen at great speed, so much so that my grandaughter thinks I should be

wearing knee and shin pads and a crash

helmut like she does when she goes out on her bike!!!

Seriously though, you need to tell them the pain is affecting you, we all have

the human right to be as painfree as possible.

love and hugs

x

________________________________

From: Avery <shelly_avery@...>

Sent: Tuesday, 14 July, 2009 3:43:00

Subject: [ ] Thank you

Thank you for such a warm welcome. I hope I answer everyone that has asked me

questions. I do have a rheumy(Sp). She is really nice. The problem I have is

before I got the rheumy I was seeing a gp and the first thing she said to me was

we don't treat RA with pain meds so now I'm afraid to ask for anything for pain

because I don't want anybody to think that I'm a drug addict. The problem is

that I don't know how much longer I can deal with this pain. The depression is

getting worse and I just think god just one day without pain would make my

depression so much better. Another problem is with all of the x-rays it shows

that I have very little damage to my joints so I don't know even if I asked for

something for pain if she would give it to me. I don't know what to do anymore.

I feel like such a baby. Today I was only able to get my dishes done and I feel

so bad about that. I just feel like I should be doing more. Thank god I have

such an understanding husband but I feel like I'm letting him down. Well enough

of my rambling and please bear with me It's got to get better Right?

Mom to the blessing from above

[Guest guest]

,

If your in pain, ask your doctor for pain meds. You have a legit reason for it.

I can understand the reluctance for prescribing pain meds to treat RA. It's not

like that is the only medication you are taking to control your RA. With your RA

meds, its not like you can take tons of ibroprofen or tylenol on top of your RA

meds. There is break-through pain; I think that is just cause for asking for

pain meds. Granted I am not a doctor, but if you are in severe pain...talk to

your rheumy or pcp.

When I was 1st diagnosed w/ RA...I was 24 and it was diagnosed fairly early. My

x-rays showed minimal damage, but my rheumy wanted to deal with it aggressively.

He gave me an rx for tylenol #3 for breakthrough pain and he only gave me like

20 tablets. Hope you get relief soon!!

>

> Thank you for such a warm welcome.  I hope I answer everyone that has asked me

questions.  I do have a rheumy(Sp).  She is really nice.  The problem I have is

before I got the rheumy I was seeing a gp and the first thing she said to me was

we don't treat RA with pain meds so now I'm afraid to ask for anything for pain

because I don't want anybody to think that I'm a drug addict.  The problem is

that I don't know how much longer I can deal with this pain.  The depression is

getting worse and I just think god just one day without pain would make my

depression so much better.  Another problem is with all of the x-rays it shows

that I have very little damage to my joints so I don't know even if I asked for

something for pain if she would give it to me.  I don't know what to do

anymore.  I feel like such a baby.  Today I was only able to get my dishes done

and I feel so bad about that.  I just feel like I should be doing more.  Thank

god I have

> such an understanding husband but I feel like I'm letting him down.  Well

enough of my rambling and please bear with me It's got to get better Right?

>  

>  

>

> Mom to the blessing from above

>

>

>

>

>

>

>

[Guest guest]

Hi Sue:

    Welcome to our wonderful group.  I am glad you learned something here to

help your mother and yourself.  I had to use that Nystatin rinse for a very

badly infected throat.  It works well.  I hope her mouth sores heal as they

can be so painful.

     Wishing you both pain free days ahead.

 

Hugs,

 

Barbara

From: twoshaw <twoshaw@...>

Subject: [ ] Thank You

Date: Monday, November 9, 2009, 12:03 PM

 

I am glad that I joined this list because this is where I read that if you

are taking antiobiotics you shouldn't take Methotrexate. Then there was the

thread about mouth sores and Methotrexate.

Last week, my mom had a foot wound and she was prescribed antibiotics by her

primary care and a podiatrist (who is also a surgeon). She complained to

her primary care (again) about this sore she had on her lip and mouth.

She was to start Orencia this morning but I starting questioning the RN

about the antibiotics, the Metotrexate and the mouth sore. He told us no

infusion today, do not take Methotrexate until 10 days after her last dose

of antibiotics and that the sore on her mouth was probably related to

Methotrexate. We are waiting for the doctor to call so we can get a

prescription for the Nyastatin (?) mouthwash.

Thank you to the people (I can't remember the names) who were discussing all

of the above this weekend. If I hadn't read it here I wouldn't known what

questions to ask.

Sue

[Guest guest]

Last Wednesday I started back on the methotrexate shots because my body

was not absorbing the pills. I am going to be giving myself the shot at home.

but since getting the shot I have had a headache and it has not let up. My

D-3 levels were very low after taking calcium and D-3 medicines the last 3

months 3 times a day. Now I have to take what is called Thera-D 2000. Has

anyone taken these? I also am to start taking another round of Rituxin in

January due to the flare ups coming so regular. I am never in remission and

in constant pain and stiffness lasts all day now. My fingers are beginning

to freeze up...stay where I cannot bend them at all. My toe joints are

corroding the doctor says and to be careful not to have a fall and break

something that it would be a great deal for my joints.

Irish

[Guest guest]

I already had very low Vit-D levels before going on Methotrexate. My father

suffers from a Vit-D defiency and has to take MEGA doses for supplement.

Apparently I also have problems with this b/c after taking Calcium with D and

large doses of over-the-counter Vit-D. My doctor just put me on the Thera-D

2000. Not sure if it is working or not. We shall see.

I'm currently on the lowest dose of Methotrexate by mouth. Four tablets once a

week. I have managed to catch it early I guess and maintain at this level for

about a year.

I'm so sorry to hear that you are in constant pain and not getting relief. Not

to mention the damage still inflicted by the RA on your joints.

I don't know if you have tried this... but I found that water exercise--took an

arthritis water class at the YMCA was very helpful for stiffness. It is

extremely low-impact.

Good luck!

~ Graves

Re: [ ] Re: Thank You

Last Wednesday I started back on the methotrexate shots because my body

was not absorbing the pills. I am going to be giving myself the shot at home.

but since getting the shot I have had a headache and it has not let up. My

D-3 levels were very low after taking calcium and D-3 medicines the last 3

months 3 times a day. Now I have to take what is called Thera-D 2000. Has

anyone taken these? I also am to start taking another round of Rituxin in

January due to the flare ups coming so regular. I am never in remission and

in constant pain and stiffness lasts all day now. My fingers are beginning

to freeze up...stay where I cannot bend them at all. My toe joints are

corroding the doctor says and to be careful not to have a fall and break

something that it would be a great deal for my joints.

Irish

[Guest guest]

Hi, Mrs. Goldberg,

We spoke about it at our last visit. He mentioned his dog often and you could

tell how much loved he was loved by both of you. Your husband is a wonderful man

and we are blessed to have him in our lives.

All the best,

Robyn

From: ElyseG <elyse-g@...>

Subject: Thank you

Date: Thursday, February 10, 2011, 4:17 PM

 

A big thank you for all your kindness to my husband on the loss of our

dog. With all the time he puts in for the children the dog was really his best

friend.

I really owe you guys for the support and love

Thank you again,

Elyse

[Guest guest]

Amen! We all love him too! He gets me back on track every time. I am

so thankful for him in our lives. I don't know if I could ever

express it without sobbing and making a fool of myself. You must be

an awesome wife, supporting him with all he does. God bless you both,

Jerri Gann

---- Original Message ----

From: rngcoggs@...

Subject: Re: Thank you

Date: Thu, 10 Feb 2011 16:58:45 -0800 (PST)

>Hi, Mrs. Goldberg,

>

>We spoke about it at our last visit. He mentioned his dog often and

>you could tell how much loved he was loved by both of you. Your

>husband is a wonderful man and we are blessed to have him in our

>lives.

>

>All the best,

>

>Robyn

>

>

>

>From: ElyseG <elyse-g@...>

>Subject: Thank you

>

>Date: Thursday, February 10, 2011, 4:17 PM

>

>

>

>

>

>

>

> 

>

>

>

>

>

>

>

>

>

> A big thank you for all your kindness to my husband on the loss

>of our dog. With all the time he puts in for the children the dog was

>really his best friend.

>

>I really owe you guys for the support and love

>

>

>

>Thank you again,

>

>Elyse

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

To and all those who responded to my post about my medical records. They

turned up in the mail about 4 days later. I am just glad to know they didn't

wind up in the wrong person's hands. You gave me some interesting items to

ponder and I thank you for taking the time to respond.

Nina in Stockton, Age 40, CMT 2A and mitochondrial disease

[Guest guest]

Oh Betty, I'm so glad that you updated us.  I've been so worried about you

and

praying everyday that things would work out.  It did not occur to me at all

that

you were whining.  You had a lot of serious stuff going on.  Your spirits

seem

much improved, even though you are still experiencing pain.  I hope that they

can get your pain under control because when you feel better other things will

feel more manageable.  May God bless you with his comfort and healing.

Jody

Schaumburg, IL 

________________________________

From: bettygates tds.net <bettygates@...>

< >

Sent: Wed, April 6, 2011 9:47:21 AM

Subject: [ ] thank you

 

i want to thank all of you who answered me on my whining.... god

bless you all.

we will go to the hospital tomorrow for the dr.'s to put a tube with

light on it, into tom's lungs. they will find out if there is a tumor

or not. hopefully they'll find out where the blood is coming from.

my mama is still the same, .... she's old and not got anything else to

build back on. i just hope i can go and see her, after we get the

results on tom's tests.

i've taken my third fentonol patch now, one every 72 hours. i don't

see much difference in my pain relief yet. still taking 30mg of lortab

a day, for the breakthru pain. ....lol.... there is no " breakthru "

pain.....its constant...there are so many people on here, that take so

many different kinds of pain meds, its just finding the right ones. by

the time you find one that works, its stops because you've been taking

it so long... but,....i wake up every morning, look outside, and

thank God i'm here. spring is so beautifull. i finally got a golf cart

to ride around the yard in. it had been so long since i'd been able

to get outside and just get around to look at every thing. wish i

could get in the dirt again and have a garden and flowers.

thank you all again. its good to see e mails from you all, knowing you

all care. i love you all. this group is my family , to talk to ya'll,

.....nobody else understands.

i type with one, or two fingers....my hands are messed up...lol....

joints look like z " s....lol....

have a good day ya'll. take good care of yourselves.

Betty

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