Newbie here!

[Guest guest]

I have to agree with you about the storms. I'm here in Tulsa and in alot of

pain today. That's OK weather for you LOL! Best wishes, Holly

e <doggedame@...> wrote: Just wanted to say hello to everyone and

am happy that I've joined

what looks like a very active group.

I'm on 100mg of Imuran per day and it seems to give me stomach pains.

I was wondering if that has happened to anyone else and what you may

do/take to help.

The storms here in OK are really messing with my body today!!

[Guest guest]

Hello everyone!

My name is . I live in PA and was just diagnosed with

Fibromyalgia last week when I first vistied a Rheumaltologist.

I was diagnosed with DLE Lupus last year at a Dermatologist after they

did a biopsy of my facial rash. I am 30 years old with 4 children and

alot of pain!(not from them lol) I also get headaches so bad to the

point that I just stay in bed all day.. I am so tired all the time its

so frustrating to me! I hate this!!

I also have terrible sinus problems , which i think is a big part of

my headaches. As well as anxiety issues and a weight issue. (not over

terribly over weight but if i gain a pound i dont eat for days!)

Now that I am done rambling here I will get to my question! (sorry)!!

The Rheumy put me on Trazodone... he says its for

depression,anxiety,pain and my sleep problems and was the least likey

to have me gain weight.

Has anyone here been on that? If so did it work?? I still get up every

single morning with a headache ( and stuffy nose so its probably

sinuses) and I am so tired!!!

Any suggestions?? I go back to the Rheumy in a few weeks and have no

clue what questions I am supposed to ask!

Thanks so much for listening to me venting here.... I am looking

forward to meeting you all!

[Guest guest]

In a message dated 5/24/06 12:57:29 PM Central Daylight Time,

smokey61080@... writes:

> Has anyone here been on that? If so did it work?? I still get up every

> >single morning with a headache ( and stuffy nose so its probably

> >sinuses) and I am so tired!!!

>

Hello,

I used to be on trazodone for sleep and to help calm me, my doc

told me that it takes up to 3 -4 weeks before you will see the difference.

welcome to the group. I'm usually a quiet person here. I also have fibro,

sujgrens

and possibilty of lupus. I did find that when I'm able to sleep i have less

pain the next day.

peace,

Gayle

[Guest guest]

Welcome, !

Sorry to hear that you are having such terrible headaches. What did your

rheumatologist say about them?

Not an MD

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] Newbie here!

> Hello everyone!

> My name is . I live in PA and was just diagnosed with

> Fibromyalgia last week when I first vistied a Rheumaltologist.

> I was diagnosed with DLE Lupus last year at a Dermatologist after they

> did a biopsy of my facial rash. I am 30 years old with 4 children and

> alot of pain!(not from them lol) I also get headaches so bad to the

> point that I just stay in bed all day.. I am so tired all the time its

> so frustrating to me! I hate this!!

> I also have terrible sinus problems , which i think is a big part of

> my headaches. As well as anxiety issues and a weight issue. (not over

> terribly over weight but if i gain a pound i dont eat for days!)

> Now that I am done rambling here I will get to my question! (sorry)!!

> The Rheumy put me on Trazodone... he says its for

> depression,anxiety,pain and my sleep problems and was the least likey

> to have me gain weight.

> Has anyone here been on that? If so did it work?? I still get up every

> single morning with a headache ( and stuffy nose so its probably

> sinuses) and I am so tired!!!

> Any suggestions?? I go back to the Rheumy in a few weeks and have no

> clue what questions I am supposed to ask!

> Thanks so much for listening to me venting here.... I am looking

> forward to meeting you all!

>

[Guest guest]

Hi ,

He says he thinks its stress.. ( I am married and we have 6 kids between the

2 of us, husband just had Esophagial Cancer and was thru a huge operation and

was then on high doses of chemo and radiation for 6 months)

I know I am stressed out and worry ALOT about my hubby and the kids are not

making anything any easier thats for sure! lol But, yet again, I woke up this

morning with a headache and stuffy nose! I also have a deviated septum..doesnt

that cause headaches too? I have just had it with all this!!!

<Matsumura_Clan@...> wrote:

Welcome, !

Sorry to hear that you are having such terrible headaches. What did your

rheumatologist say about them?

Not an MD

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] Newbie here!

> Hello everyone!

> My name is . I live in PA and was just diagnosed with

> Fibromyalgia last week when I first vistied a Rheumaltologist.

> I was diagnosed with DLE Lupus last year at a Dermatologist after they

> did a biopsy of my facial rash. I am 30 years old with 4 children and

> alot of pain!(not from them lol) I also get headaches so bad to the

> point that I just stay in bed all day.. I am so tired all the time its

> so frustrating to me! I hate this!!

> I also have terrible sinus problems , which i think is a big part of

> my headaches. As well as anxiety issues and a weight issue. (not over

> terribly over weight but if i gain a pound i dont eat for days!)

> Now that I am done rambling here I will get to my question! (sorry)!!

> The Rheumy put me on Trazodone... he says its for

> depression,anxiety,pain and my sleep problems and was the least likey

> to have me gain weight.

> Has anyone here been on that? If so did it work?? I still get up every

> single morning with a headache ( and stuffy nose so its probably

> sinuses) and I am so tired!!!

> Any suggestions?? I go back to the Rheumy in a few weeks and have no

> clue what questions I am supposed to ask!

> Thanks so much for listening to me venting here.... I am looking

> forward to meeting you all!

>

[Guest guest]

Hi :

Welcome to the group! The people here are wonderful,

caring and supportive, and are full of great advice

and information. I know that you will enjoy being

with us.

I have RA and fibromyalgia, and take medications for

each. Are you on medications for your Lupus? We all

have the problem of fatigue and never getting enough

sleep, so I know how you feel. I was on Trazodone for

a while, and it did help some with my sleep, but I am

now on Ambien CR plus a muscle relaxant at night which

I find much more helpful. If the Trazodone does not

help, there are other meds that your doctor can

prescribe, and one is sure to be of help to you.

Sinus problems seem to be quite common with us too,

perhaps because of our immune systems not working

normally. Have you gotten any antibiotic treatment

yet? Sometimes we just need antibiotics to get a

really bad sinus problem cleared up. Sorry to hear

about your headaches being so bad - I am lucky and

don't have too much problem that way. It's my body

that hurts, not my head. As far as weight is

concerned, try not to be so hard on yourself, just

remember to eat right and to eat as healthily as you

can. A pound up or down daily is no big deal, it is

normal for our weight to fluctuate, just eat sensibly.

You need all the nutrition you can get.

I am sure that there will be other people here who can

give you their advice on Trazodone as I have heard it

mentioned here before. Between us all, I believe we

have tried about every medication and treatment out

there, so just ask away!

Take care - Kathe

__________________________________________________

[Guest guest]

Hi Kathe!

Thanks for the warm welcome! I have already received so much info in the last

day its GREAT! It really does make me feel alot better knowing here are others

(unfortunately) that are going thru the same thing as I am . I really don't

know all that much about the Lupus,RA, or Fibro. All I know is I have been

diagnosed with the DLE Lupus (skin) and Fibro. i don't know if or how to tell

my kids what is going on with me. They do not understand that there are days I

just do not feel well and cannot take them to the park or play football with

them for hours..I feel soo bad about that. They do know that I am not to be in

the sun and If I have to be, i need to wear alot of sunblock and a dumb hat,

because If i don't they have seen what it does to my face and it 'ain't pretty!

Not to mention it makes me feel so sick to be in the heat. I just wish , like I

am sure you all do that I could be " normal " and do the things I want to with

them and just had energy...just for 1 day!

They are so young and my ex is a amputee so he cant run around with my boys

either..all they have for that is my hubby who is recovering (in remission) form

the Esophageal Cancer. My poor babies!!! That is what has me force myself to

get up and out of bed! how do you explain this to a 5 and 6 year old?? The

older ones understand a bit more but still, this just isn't fair to them!

Anyway, All I planned on saying was thank you for the welcome and having this

group for people to go to for support! I think its great!! :-)

Kathe Sabetzadeh <lv2ryd@...> wrote:

Hi :

Welcome to the group! The people here are wonderful,

caring and supportive, and are full of great advice

and information. I know that you will enjoy being

with us.

I have RA and fibromyalgia, and take medications for

each. Are you on medications for your Lupus? We all

have the problem of fatigue and never getting enough

sleep, so I know how you feel. I was on Trazodone for

a while, and it did help some with my sleep, but I am

now on Ambien CR plus a muscle relaxant at night which

I find much more helpful. If the Trazodone does not

help, there are other meds that your doctor can

prescribe, and one is sure to be of help to you.

Sinus problems seem to be quite common with us too,

perhaps because of our immune systems not working

normally. Have you gotten any antibiotic treatment

yet? Sometimes we just need antibiotics to get a

really bad sinus problem cleared up. Sorry to hear

about your headaches being so bad - I am lucky and

don't have too much problem that way. It's my body

that hurts, not my head. As far as weight is

concerned, try not to be so hard on yourself, just

remember to eat right and to eat as healthily as you

can. A pound up or down daily is no big deal, it is

normal for our weight to fluctuate, just eat sensibly.

You need all the nutrition you can get.

I am sure that there will be other people here who can

give you their advice on Trazodone as I have heard it

mentioned here before. Between us all, I believe we

have tried about every medication and treatment out

there, so just ask away!

Take care - Kathe

__________________________________________________

[Guest guest]

Hi ,

Welcome to the group. I have been away for quite some

time. But hopefully I can get back into the swing of

things. I have been so swamped at work. I know what

you mean about the kids. But I think that they

understand better than you might think. My daughter is

12 and she likes to try to help me do things. She is

really great about it. I am so glad that your husband

is in remission. That is great. You will be in my

prayers.

Beth in AR

--- n Brett <erinnbrett00@...> wrote:

> Hi Kathe!

> Thanks for the warm welcome! I have already

> received so much info in the last day its GREAT! It

> really does make me feel alot better knowing here

> are others (unfortunately) that are going thru the

> same thing as I am . I really don't know all that

> much about the Lupus,RA, or Fibro. All I know is I

> have been diagnosed with the DLE Lupus (skin) and

> Fibro. i don't know if or how to tell my kids what

> is going on with me. They do not understand that

> there are days I just do not feel well and cannot

> take them to the park or play football with them for

> hours..I feel soo bad about that. They do know that

> I am not to be in the sun and If I have to be, i

> need to wear alot of sunblock and a dumb hat,

> because If i don't they have seen what it does to my

> face and it 'ain't pretty! Not to mention it makes

> me feel so sick to be in the heat. I just wish ,

> like I am sure you all do that I could be " normal "

> and do the things I want to with them and just had

> energy...just for 1 day!

> They are so young and my ex is a amputee so he cant

> run around with my boys either..all they have for

> that is my hubby who is recovering (in remission)

> form the Esophageal Cancer. My poor babies!!! That

> is what has me force myself to get up and out of

> bed! how do you explain this to a 5 and 6 year

> old?? The older ones understand a bit more but

> still, this just isn't fair to them!

> Anyway, All I planned on saying was thank you for

> the welcome and having this group for people to go

> to for support! I think its great!! :-)

>

>

> Kathe Sabetzadeh <lv2ryd@...> wrote:

> Hi :

>

> Welcome to the group! The people here are

> wonderful,

> caring and supportive, and are full of great advice

> and information. I know that you will enjoy being

> with us.

>

> I have RA and fibromyalgia, and take medications for

> each. Are you on medications for your Lupus? We

> all

> have the problem of fatigue and never getting enough

> sleep, so I know how you feel. I was on Trazodone

> for

> a while, and it did help some with my sleep, but I

> am

> now on Ambien CR plus a muscle relaxant at night

> which

> I find much more helpful. If the Trazodone does not

> help, there are other meds that your doctor can

> prescribe, and one is sure to be of help to you.

>

> Sinus problems seem to be quite common with us too,

> perhaps because of our immune systems not working

> normally. Have you gotten any antibiotic treatment

> yet? Sometimes we just need antibiotics to get a

> really bad sinus problem cleared up. Sorry to hear

> about your headaches being so bad - I am lucky and

> don't have too much problem that way. It's my body

> that hurts, not my head. As far as weight is

> concerned, try not to be so hard on yourself, just

> remember to eat right and to eat as healthily as you

> can. A pound up or down daily is no big deal, it is

> normal for our weight to fluctuate, just eat

> sensibly.

> You need all the nutrition you can get.

>

> I am sure that there will be other people here who

> can

> give you their advice on Trazodone as I have heard

> it

> mentioned here before. Between us all, I believe we

> have tried about every medication and treatment out

> there, so just ask away!

>

> Take care - Kathe

>

>

>

>

> __________________________________________________

>

[Guest guest]

,

I had to choose between Remicade, Embrel and Humira this past July. I choose

Remicade because it was an infusion that only took 2 hours every 2 months as

compared to the E and H being weekly self injects (I think they are even twice

weekly but I'm not sure). I also leaned to Remicade because it's been around

the longest and I felt has been investigated the hardest (just my opinion). In

addition, I have this fear of a bad reaction (had a terrible reaction once to an

IV dye for a cat scan, ended up in the er) so I felt that if I chose the

Remicade, at least I would be in the doctor's office with an rn and the doctor

would be on staff if I had a problem (I don't see the doctor when I go but the

rn is checking on my every 15 minutes while being infused). My insurance is

very good and all I pay is $30 each time I go. I have also heard that some

people have site pain with the E and H but I've always had a good rn that puts

the needle in my hand (my choice) and I really don't even feel it. I just sit

back and relax in a recliner for 2 hours and read. Good Luck with whatever you

choose.

[ ] Newbie here!

Hello Everyone,

I'm and I was diagnosed about 6 months ago with RA. I started

having cronic fatigue about 1 1/2 ago, pressed my primary doctor for

almost 6 months to give me more tests and finally i had a positive ANA

and was referred to a Rheumatologist. There I tested neg for Rh and

they continued tested and after MRI and scans they saw many erosions

on both sides and diagosed me w/ RA. I was put on azulfadine and just

recently quit taking it. it was only for pain and wasn't stopping the

disease, just easing the pain, and it was giving me mad yeast

infections...ugh! so my doctor just prescribed me embrel shots.

What is everyones opinion on the difference between embrel shots and

the remicade iv invusion? I really don't want to be on anything, but

i know i have to stop this disease because i'm only 31 an have a hard

time opening jars and picking up my son. Any advice is welcome!

eliSA