Guest guest Posted March 2, 2001 Report Share Posted March 2, 2001 Welcome Jenn, you'll grow to look forward to it. I still haven't mastered the get out of bed thing but once I'm up it's great. All the best! Kit Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2001 Report Share Posted March 2, 2001 Hi, Kit Thanks, I'll get there. I hope Jenn --- Kit Keyes <kit.keyes@...> wrote: > Welcome Jenn, you'll grow to look forward to it. I > still haven't mastered > the get out of bed thing but once I'm up it's great. > All the best! Kit > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2006 Report Share Posted January 31, 2006 Welcome, . Sorry you are having so many troubling symptoms. Have you seen a rheumatologist yet? What tests have you had so far? Not an MD I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] Hi I'm a Newbee > Hello, I'm . I'm a 40 yr old woman/mother/wife with FM and > what I think is Lupus. I'm frustrated with tests that come up normal > and doctors who's eyes glaze over everytime I open my mouth. Anyone > else relate? I just had another blood work up this AM and I'm > praying that something, anything shows up on the results! I can tell > the difference between the FM pain and the other. The other is more > of a joint/bone ache. I have rashes that come and go. Some that are > like what I've read about lupus. Scarring rashes on body and face. > I have a light red rash on my face. Because I'm part Native American > I think the rash does not show up very well. I noticed it because I > never, ever used to have a red tone to my cheeks and face. I'm more > of an olive tone. Anyway, if you have time, here is a list of my > syptoms: > > Scalp; hair loss, short hairs near scalp, hair itself is thin, pain, > itching and numbness at times. > > Joints; stiff, crackeling, popping, painful. Most pain hips, ribs > hands. > > Brain; confusion, memory loss, headaches and migraines > > Stomach; nausea, decreased appetite, Unexplained weightloss > > glands; swollen and painful > > eyes, extremely dry eyes > > sleep; bouts of insomnia , bouts of fatigue/sleepiness, > > I guess that's about it does this sound like anyone else out > there? Any help in getting a DX? I'm in Oregon and would take any > private e-mails with ideas of good lupus Docs. Please put Lupus in > the subject line or I'll think its junk mail. > > Thanks for being here. I hope to become an active part of this board. > > xo- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2006 Report Share Posted February 2, 2006 Hi : Welcome to the group - you will find wonderful, caring and supportive people here, and great information from our moderators, and a. I have RA and FM, and some related problems, and it does take some time to get diagnoses. It sounds like you might have some sort of arthritic process going on, and maybe it is lupus, but blood work does not always show these things. It might take a while to get a definate dx, and sometimes the blood work never shows anything. My first doctor told me that these immune system diseases are sometimes very hard to dx, and that the symptoms can overlap making it very difficult to tell exactly what is going on, but she believed in treating the symptoms and going from there. My blood work was positive for RA, but so were all of my syptoms, so that is what I was first treated for. Then along came Fibro. It's very confusing at times just what came when and for how long it was present before dx. Besides the blood work, have you had any x-rays? Those can be helpful in seeing if there is any joint involvement or destruction, and might help point toward a dx. Are you being seen by a rheumatologist? A specialist is best for proper dx and treatment. Hang in there - hopefully there will be a positive dx for you soon, so that the appropriate treatment can be started for you. Kathe in CA --- <jarmer5@...> wrote: > Hello, I'm . I'm a 40 yr old > woman/mother/wife with FM and > what I think is Lupus. I'm frustrated with tests > that come up normal > and doctors who's eyes glaze over everytime I open > my mouth. Anyone > else relate? I just had another blood work up this > AM and I'm > praying that something, anything shows up on the > results! I can tell > the difference between the FM pain and the other. > The other is more > of a joint/bone ache. I have rashes that come and > go. Some that are > like what I've read about lupus. Scarring rashes on > body and face. > I have a light red rash on my face. Because I'm > part Native American > I think the rash does not show up very well. I > noticed it because I > never, ever used to have a red tone to my cheeks and > face. I'm more > of an olive tone. Anyway, if you have time, here is > a list of my > syptoms: > > Scalp; hair loss, short hairs near scalp, hair > itself is thin, pain, > itching and numbness at times. > > Joints; stiff, crackeling, popping, painful. Most > pain hips, ribs > hands. > > Brain; confusion, memory loss, headaches and > migraines > > Stomach; nausea, decreased appetite, Unexplained > weightloss > > glands; swollen and painful > > eyes, extremely dry eyes > > sleep; bouts of insomnia , bouts of > fatigue/sleepiness, > > I guess that's about it does this sound like > anyone else out > there? Any help in getting a DX? I'm in Oregon and > would take any > private e-mails with ideas of good lupus Docs. > Please put Lupus in > the subject line or I'll think its junk mail. > > Thanks for being here. I hope to become an active > part of this board. > > xo- > > > > > > > Kathe " To ride a horse is to borrow freedom. " __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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