Re: 'whine'-no cheese

[Guest guest]

Hi Tess

I was having the same problem of not sleeping, I went to my

Dr office for appointment one day, and the nurse saidwow you look awful, I

laugh and

said lack of sleep, when my Dr came into the office and she saw me, she said the

same thing, and that point I broke down and starting crying I cried about

the pain the lack of sleep, and the fact that even when am not having pain I

can't seem to sleep and the fact that no one understand this illness heck I

don't

even understand it. she let me cry for a good 20 min and then

wrote a prescription for sleeping pills and told me that sleep was very

important, and if these didn't work come back and see her, It took us

trying three different brand of sleeping pills before we found one that work.

Am not saying I get a good now sleep every night but if I go two or three days

without sleep I take a pill,

I don't if its the RA that keeps me awake, because even without the pain

I find myself up counting the hours until daylight does this happen to anyone

else.

Also family can be a joy and pain, by sister call ask how are you doing

and when I start with not to good today, her remark your still sick, when

are you going to get cure. As if.! I just hung up the phone, because am tried

of explaining to the same people what I have realized most people hear what

they want to hear.

---------------------------------

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[Guest guest]

Tess,

Thank you for being honest and up front. I am sorry to hear that the road

is still serving you speed bumps. You have certainly had your share it

seems. Let us know if there is anything we can do for you. Wish I could

carry some of the burden for you. When do you see your doctor again? Hope

that it will be less than a month before you can get some relief.

Terri

[ ] 'whine'-no cheese

> Hi...I am really feeling poorly. The RA has come back with a

> vengeance...the wrists and ribcage are the worst...the pain is so intense

> I feel nauseous. The hands are not good either. I cannot go back on the

> Humira and Mtx. until the seroma issues are resolved, and my surgeon is

> thinking possibly another month. Pain meds are not helping. I am

> confident that once I get back on my meds things will improve, so

> essentially I just need to ride out the next few weeks. I think because I

> have had such good results with Humira and Mtx, and have only had small to

> moderate flares the past couple years, I forgot how bad this can be. The

> ribcage on the left side is awful...the pain doesn't stop, and I feel

> tight in my chest. The wrists have no strength, and the pain rarely

> leaves. I am not sleeping well, and need to as I am still healing from

> surgery. Well, I just needed to 'whine' a little.

>

> I am also a little discouraged as so many people ask how I am and when I

> reply 'tired' or 'in pain' they ask 'why?' These are folks who know I had

> recent surgery and also have RA. I think it is that they want so much for

> me to be ok, and they do not want to 'hear' that right now I am not. I

> don't understand that, but it seems to be how some people are. However, I

> have spent the majority of my life being Miss Sunshine, trying not to

> make waves, giving people answers I think they want to hear, and not being

> honest or true to myself. I am not a whiner, and I do not give

> unnecessary details. However, if someone asks how I am, I am going to

> answer honestly. To do less than that feels like a betrayal to myself.

>

> OK, I am done. Just another bump on this journey we all walk.

>

> Love to all...

>

> Tess

>

>

[Guest guest]

On 1/29/06, Grammi B <grammi_love@...> wrote:

> Hi...I am really feeling poorly.

Tess, so sorry to hear this. You will be in my thoughts and prayers.

South Pasadena, CA

Polymyaligia Rhuematica, Fibromyalgia, Diabetes, ADH

Prednisone, Methotrexate (pills), Lipitor, Fosamax D, Metformin

[Guest guest]

Hi Tess,

I am sorry to hear you are not doing well. I wish I knew what to

say. I have been where you are emotionaly and physically, and

actually still there because I have been taken off the mtx also due

to elevated liver enzymes. However, the mtx doesn't help me or I am

usually too nauseated to notice. I am only taking the blood thinners

because of the blood clots and pain meds, otc. Even so, I have had a

few good days here and there so know how really painful days can get

you down.

I would just say be sure to get plenty of water. I try to get in at

least 10 cups a day. Cut back on things that can dehydrate you like

coffee. I find staying well hydrated eases the flare somewhat and

every little bit helps. Also giving the digetive system a break for

awhile helps me too. Maybe eat light for awhile if you are not

diabetic and can afford to do so, do a juice fast for a day or 2 or a

fruit fast. This also helps with the flares a bit. Sometime allergy

meds taken with antiinflammatories like ibuprofen can help me too. I

don't know if you have tried any of these but staying hydrated is the

best of them all.

Feel better soon.

Ebony