Guest guest Posted September 24, 2010 Report Share Posted September 24, 2010  I am curious about why N. would be prescribed for over a year. Even when my loved ones were on chemo and had severe thrush with agonizing open blisters in genitals and mouths, throats, digestive tracts, it was not prescribed for this duration. Is this common for our kids on the list? What are 's symptoms and severity of yeast infection ?  My daughter had loose poops because of probiotics and I was concerned, not to mention the mess of incontinance. I finally took her off probiotics and her poops became firm again and she has not   shown any signs of yeast overgrowth in recent cultures. Maybe a break is a fair thing to try for a while to see how he does?  Good poops are heaven. She can't even tolerate probiotics in yogurt or she gets very loose stools. Regular yogurt, no issues. less laundry! happy child and mom. Jay, mom to kezia 12 Ontario Canada ps. Nystatin typically alters the taste and appetite in my patients at work. Sometimes we see nausea, vomitting and stomach cramping associated with this drug and we usually see loose stools or even dysentry. .. But seriously I have never heard of it being prescribed for this length of time. usually a couple of weeks to a couple of months depending on severity of symptoms. I am only a caregiver and not trained in pharmacology but this is my limited first hand experience .  ________________________________ To: BEATMN ; GAPShelp ; ; OxidativeStressRelief Sent: Thu, September 23, 2010 4:35:20 PM Subject: Natural alternative to Nystatin?  Hello, I'm the " concerned about mushy-poop " lady. All this past year we've been treating our 4 year old son, (DS/ASD) with Nystatin. I was very concerned about his mushy poops and thought that they were mushy because of a severe gut dysbiosis...rampant yeast and other bacteria. When we took him off of Nystatin for a couple months as we implemented the GAPS diet, his poops became normal! Yay! But...he began to display evidence of yeast infection once we started chelation, so I put him back on Theramedix/CDX and Nystatin. Almost immediately, his poops became mushy and really foul-smelling. I was told that this was because the yeast was dying off. Well, the yeast had all of this past year to die-off but his poops never became normal until we took him *off* of Nystatin. I called the pharmaceutical company who makes the stuff (Mutual Pharmaceuticals) and found out that diarrhea and/or loose stools is a side-effect of Nystatin! So, I'm relieved to know why he has had terrible poops all year but mad that we spent so much energy/time/money in trying one thing after another with no results when all along, it was the dang Nystatin. Too bad he apparently will need to be on a long-term maintenance level of something to keep the yeast at bay. And I don't want to just accept the mushy stools either - I don't think he's absorbing his food/supplements well and besides, normal poops are a good baseline for determining his reaction to foods we hope to re-introduce to him. So. I'm curious if anyone else has experienced this with Nystatin - and I'm curious: is there a natural alternative to Nystatin to keep yeast at bay - one without a side-effect of mushy stools? Granted, the other " inactive " ingredients could also be causing him problems (inactive ingredients: anhydrous lactose, carnauba wax, corn starch, FD & C Blue #2 Aluminum Lake, FD & C Red #40 Aluminum Lake, hydroxy propyl cellulose, hypromellose, magnesium sterate, microchristaline cellulose, polyethylene glycol, povidone, sodium starch glycolate, stearic acid, titanium dioxide). I was told the word " Aluminum " just referred to the color of the dye used. The only idea I have would be to try and crowd out the yeast with more and more probiotics instead of Nystatin - but that sounds really expensive since I'm sure it would take A LOT. Thanks for your help/ideas, as ever, Kathy in France with , 4 (DS/ASD), Genna (NT, 21 months) and hubby (soon-to-be PhD) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2010 Report Share Posted September 24, 2010 We have used GSE (grapefruit seed extract) with success in fighting yeast. Now we are using Bio-Kult probiotics with our son . He takes 2 caps a day and so far his stools have been normal since we started about 2.5 months ago. The inactive ingredients in the Nystatin are mostly GAPS-illegal, and I would especially be careful with polyethelene glycol, the main ingredient in Miralax. The Miralax label advises not to take it for more than 2 weeks. Read more about potential problems here: http://www.danasview.net/miralax.htm Mike Petricig I'm curious if anyone else has experienced this with Nystatin - and I'm curious: is there a natural alternative to Nystatin to keep yeast at bay - one without a side-effect of mushy stools? Granted, the other " inactive " ingredients could also be causing him problems (inactive ingredients: anhydrous lactose, carnauba wax, corn starch, FD & C Blue #2 Aluminum Lake, FD & C Red #40 Aluminum Lake, hydroxy propyl cellulose, hypromellose, magnesium sterate, microchristaline cellulose, polyethylene glycol, povidone, sodium starch glycolate, stearic acid, titanium dioxide). I was told the word " Aluminum " just referred to the color of the dye used. The only idea I have would be to try and crowd out the yeast with more and more probiotics instead of Nystatin - but that sounds really expensive since I'm sure it would take A LOT. Thanks for your help/ideas, as ever, Kathy in France with , 4 (DS/ASD), Genna (NT, 21 months) and hubby (soon-to-be PhD) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2010 Report Share Posted September 24, 2010 Thanks, Mike. MY GOSH - and they call polyethelene glycol an " inactive ingredient " in the Nystatin? Great review below. I'm going to forward it to our DAN! Even though the amount of Miralax per tablet is probably " not that much " , he has been taking 4 per day since Sept. 11 and is extremely sensitive to certain foods/supplements - apparently the fillers in Nystatin too. What I read from your weblink below made me think I should stop the Nystatin immediately until I can get the grapefruit seed extract. On the other hand, I've had a few people suggest I find a compounding pharmacy that sells just raw Nystatin powder. But - what do you think? Even though Nystatin itself is apparently " natural " , I suspect even alone it might still cause loose stools. Do you know? I had lost track of your family, Mike, so I'm *so glad* to hear from you again. By the way - how's the GAPS diet going for ? It's off topic on this list-serve, so maybe off-line. Are you and your wife still doing it? Can eat eggs or home-made yogurt yet? We tried Ben on quail egg yolks but he got really irritable. I'm not sure if egg yolks can cause that but we stopped just to be sure. Could've been a side-effect of the chelation too. So, he's fairly limited in what he's eating these days - fruit is OK in moderate amounts (due to yeast issues), but he seems to like the stuff I make him from GAPS. If he grabs bread off his sister's high-chair, or a cracker, it makes him " loopy " , so I know he's still gluten sensitive. Hey - if you've found any good recipes, I'd love to swap. I sort of invented one for a GAPS-legal birthday cake that actually tastes like cheese-cake! I'm really disgusted about the Nystatin and hope it hasn't ruined all the good gut-healing we've had on GAPS. Do you think I should start him over again on the intro to GAPS for a few days (without eliminating all the supplements)? Maybe just give him more beef/chicken broth? He had really strong detox when we first started the GAPS intro and now I suspect it was his body cleansing from the previous months of Nystatin. Grrrr!!!!! I just hate that we sometimes seem to trade one evil (yeast) for another (toxic reaction to treatment meds). Take care, Kathy _____ From: [mailto: ] On Behalf Of petricig Sent: Friday, September 24, 2010 8:59 AM To: Subject: RE: Natural alternative to Nystatin? We have used GSE (grapefruit seed extract) with success in fighting yeast. Now we are using Bio-Kult probiotics with our son . He takes 2 caps a day and so far his stools have been normal since we started about 2.5 months ago. The inactive ingredients in the Nystatin are mostly GAPS-illegal, and I would especially be careful with polyethelene glycol, the main ingredient in Miralax. The Miralax label advises not to take it for more than 2 weeks. Read more about potential problems here: http://www.danasview.net/miralax.htm Mike Petricig I'm curious if anyone else has experienced this with Nystatin - and I'm curious: is there a natural alternative to Nystatin to keep yeast at bay - one without a side-effect of mushy stools? Granted, the other " inactive " ingredients could also be causing him problems (inactive ingredients: anhydrous lactose, carnauba wax, corn starch, FD & C Blue #2 Aluminum Lake, FD & C Red #40 Aluminum Lake, hydroxy propyl cellulose, hypromellose, magnesium sterate, microchristaline cellulose, polyethylene glycol, povidone, sodium starch glycolate, stearic acid, titanium dioxide). I was told the word " Aluminum " just referred to the color of the dye used. The only idea I have would be to try and crowd out the yeast with more and more probiotics instead of Nystatin - but that sounds really expensive since I'm sure it would take A LOT. Thanks for your help/ideas, as ever, Kathy in France with , 4 (DS/ASD), Genna (NT, 21 months) and hubby (soon-to-be PhD) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2010 Report Share Posted September 24, 2010 We do not do the internal nystatin (or should I say have not done). But judging from the ingredients, I would not use it because my son is allergic to red dye (vomits and mushy, frequent poop or sometimes diarrhea). I think that is your culprit. > > Hello, > > I'm the " concerned about mushy-poop " lady. All this past year we've been > treating our 4 year old son, (DS/ASD) with Nystatin. I was very > concerned about his mushy poops and thought that they were mushy because of > a severe gut dysbiosis...rampant yeast and other bacteria. When we took him > off of Nystatin for a couple months as we implemented the GAPS diet, his > poops became normal! Yay! But...he began to display evidence of yeast > infection once we started chelation, so I put him back on Theramedix/CDX and > Nystatin. Almost immediately, his poops became mushy and really > foul-smelling. I was told that this was because the yeast was dying off. > Well, the yeast had all of this past year to die-off but his poops never > became normal until we took him *off* of Nystatin. > > I called the pharmaceutical company who makes the stuff (Mutual > Pharmaceuticals) and found out that diarrhea and/or loose stools is a > side-effect of Nystatin! So, I'm relieved to know why he has had terrible > poops all year but mad that we spent so much energy/time/money in trying one > thing after another with no results when all along, it was the dang > Nystatin. Too bad he apparently will need to be on a long-term maintenance > level of something to keep the yeast at bay. And I don't want to just > accept the mushy stools either - I don't think he's absorbing his > food/supplements well and besides, normal poops are a good baseline for > determining his reaction to foods we hope to re-introduce to him. > > So. > > I'm curious if anyone else has experienced this with Nystatin - and I'm > curious: is there a natural alternative to Nystatin to keep yeast at bay - > one without a side-effect of mushy stools? Granted, the other " inactive " > ingredients could also be causing him problems (inactive ingredients: > anhydrous lactose, carnauba wax, corn starch, FD & C Blue #2 Aluminum Lake, > FD & C Red #40 Aluminum Lake, hydroxy propyl cellulose, hypromellose, > magnesium sterate, microchristaline cellulose, polyethylene glycol, > povidone, sodium starch glycolate, stearic acid, titanium dioxide). I was > told the word " Aluminum " just referred to the color of the dye used. > > The only idea I have would be to try and crowd out the yeast with more and > more probiotics instead of Nystatin - but that sounds really expensive since > I'm sure it would take A LOT. > > Thanks for your help/ideas, as ever, > > Kathy in France > with , 4 (DS/ASD), Genna (NT, 21 months) and hubby (soon-to-be PhD) > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.