Jump to content
RemedySpot.com

Re: just joined - intro JOY

Rate this topic


Guest guest

Recommended Posts

Hi Joy, Welcome to the board, I am new here too. My name is Lynne and Im also a

homeschooling mom of 6 with autoimmune diseases, the children have also. I have

been sick for over 5 yrs and foundout 3 yrs ago it is Celiac which is a

malabsorption disease,hereditary,autoimmune in which the protein Gluten destroys

the intestines and causes many other problems. Gluten is in all forms of

wheat,oats,rye,barley,spelt,triticale. Just about everything

boxed,bagged,frozen,canned and prepared in restaurants. Once I went gluten free,

I developed worsening allergies, Hashimotos Thyroiditis,Sjogrens,Restless Leg

Syndrome, Rheumatoid Arthritis,enlarged liver/spleen,heart problems due to

inability to absorb magnesium,skin sores from the celiac,Ive shrunk an inch from

the bones breaking apart down my spine,and a few other things. I had the

children genetically tested and they were positive for celiac. They also have a

variety of serious food allergies,of course different from each other to make

cooking a challenge! One has an Iga deficiency,another has speech

difficulty,and the littlest was born with many challenges such as cerebral

palsy,dysarthria,hypotonia,seizures,and lots of food allergies. Shes our miracle

baby,shes walking,talking,running,jumping.You would never know anthing was ever

wrong. The drs think she suffered neurologically since she was carried by me

woh was so malnourished(though I dont look it, I had gained weight from the

Hashimotos and steroids)now that shes been on the gluten,cassein,free diet for 3

years,shes almost 4, her brain has been able to develop properly. Shes also

allergic to eggs,dariy,soy,citrus,beef,fish,berries,gluten,and latex. We are in

the middle of trying to find a dr.for our 5 yr.old as his blood tests show

something is wrong but the allergist doesnt know what. His name is Kaleb. I

would love to exchange support and encouragement with you if you like. I

couldnt imagine ever living without Him, ever facing these challenges

alone,never mind 6 children,homeschooling and their and my special needs, but

God knows and provides. Isnt He awesome, to give us exactly who needs us?! By

all worldy standards,none of these kids should be here, most women lose their

babies or have spina bifeda when the mom has untreated celiac. I did lose 2 and

we even did everything to prevent them from coming, but if God wants you to have

a baby,sometimes,you dont get a choice,and Im so glad He knew better than I.

Because of these challenges, we are able to teach others to eat healthier and

that they too can face anything, as long as they depend on God and not

themselves. Time for me to start lessons and breakfast with them all. Take care

and God Bless! Lynne

" Josh, , Jamylyn, Jasmine " <joshjakejamyjazz@...> wrote: Hi, my name

is Joy & I just joined the list. I was diagnosed with RA when I was 27, and

that was 26 years ago. I'm doing pretty well on the meds I'm on but I feel

over-medicated & would like to go off of some. Here's what I'm taking now:

methotrexate, plaquenil, prednisone, celebrex, humira, elavil (for

fibromyalgia), aciphex, fosamax (because of the prednisone, which I've been on

since 1992) & synthroid. I'm also using restasis for dry eyes. I'm very

fortunate that I don't pay a penny for meds & no insurance co. has any say in

it. I'm a 60% disabled veteran & my husband is retired military so most of our

medical is free. I don't know what I'd do otherwise, I also have 4 children, 3

of whom have special needs. The care we get in the military is awesome.

Now a little about me. I became a mother of twin boys at the age of 41,

through adoption. Four years later I (we) adopted a baby girl & 4 years after

that another little girl. The kids are now 12, 12, 9 & 8. My 8 year old

daughter has autism & is in a multi-handicap class. I homeschool the other 3.

It's quite a challenge with all their therapy, counseling & Dr. appts. And it's

going to get worse, because my daughter's developmental ped just put her in for

2 speech therapy appts & an OT appt. each week. I guess I should say we " car

school " instead of homeschool. I rarely go to a Dr. myself because I'm always

running the kids around. I get really stressed out sometime, but It's just

awesome that I'm able to do all of this. While we waited (7 years) to adopt our

first, people would ask me how I could take care of a baby with my arthritis.

Now they're asking me how I take care of my 4 & I just have to tell them, " I

couldn't do it without God. " There are times when I feel

like I'm barely managing, but He gets me through. Don't mean to preach... Oh,

yea, I also have a wonderful husband & I couldn't do it without him, either.

I don't know if I'm going to be able to handle the volume of this list, but it

looks like a very supportive list & I look forward to getting to know you.

Joy (Ohio)

http://www.joyofthelord.ourfamily.com

---------------------------------

- Helps protect you from nasty viruses.

Link to comment
Share on other sites

Join the conversation

You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

Loading...
×
×
  • Create New...