Guest guest Posted April 20, 2011 Report Share Posted April 20, 2011 Tori had her Upper GI Series this morning and did FANTASTICAL!! The Radiologist was in with us and he showed me what was going on. Her esophagus has severe hypotonia and whatever she digest does back up a bit. He will be getting the results to her GI asap. She has her Video Barium Swallow Study this afternoon. Will let you know how this goes! -- *Liz* Let me win, but if I cannot win, let me be brave in the attempt. - Special Olympics Motto-RIP Eunice Kennedy Shriver “When we long for life without difficulties, remind us that oaks grow strong in contrary winds and diamonds are made under pressure.-Author Unknown " Knowing trees, I understand the meaning of patience. Knowing grass, I can understand persistence. " - Hal Borland Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2011 Report Share Posted April 20, 2011 I'm so glad she did well!! Sent from my iPhone > Tori had her Upper GI Series this morning and did FANTASTICAL!! The > Radiologist was in with us and he showed me what was going on. Her > esophagus has severe hypotonia and whatever she digest does back up a bit. > He will be getting the results to her GI asap. She has her Video Barium > Swallow Study this afternoon. Will let you know how this goes! > > -- > *Liz* > > Let me win, but if I cannot win, let me be brave in the attempt. - Special > Olympics Motto-RIP Eunice Kennedy Shriver > > “When we long for life without difficulties, remind us that oaks grow strong > in contrary winds and diamonds are made under pressure.-Author Unknown > > " Knowing trees, I understand the meaning of patience. Knowing grass, I can > understand persistence. " - Hal Borland > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2011 Report Share Posted April 20, 2011 Liz, Thanks for the update. I hope all goes well. C yndi > > Tori had her Upper GI Series this morning and did FANTASTICAL!! The > Radiologist was in with us and he showed me what was going on. Her > esophagus has severe hypotonia and whatever she digest does back up a bit. > He will be getting the results to her GI asap. She has her Video Barium > Swallow Study this afternoon. Will let you know how this goes! > > -- > *Liz* > > Let me win, but if I cannot win, let me be brave in the attempt. - Special > Olympics Motto-RIP Eunice Kennedy Shriver > > " When we long for life without difficulties, remind us that oaks grow strong > in contrary winds and diamonds are made under pressure.-Author Unknown > > " Knowing trees, I understand the meaning of patience. Knowing grass, I can > understand persistence. " - Hal Borland > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2011 Report Share Posted April 20, 2011 Liz, I am so happy that it went well so far. I don't think I could swallow that barium stuff. I hope Tori can manage that one. Charlyne Subject: Update To: " DS-AUTISM " < > Date: Wednesday, April 20, 2011, 11:03 AM Tori had her Upper GI Series this morning and did FANTASTICAL!! The Radiologist was in with us and he showed me what was going on. Her esophagus has severe hypotonia and whatever she digest does back up a bit. He will be getting the results to her GI asap. She has her Video Barium Swallow Study this afternoon. Will let you know how this goes! -- *Liz* Let me win, but if I cannot win, let me be brave in the attempt. - Special Olympics Motto-RIP Eunice Kennedy Shriver “When we long for life without difficulties, remind us that oaks grow strong in contrary winds and diamonds are made under pressure.-Author Unknown " Knowing trees, I understand the meaning of patience. Knowing grass, I can understand persistence. "  - Hal Borland Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2011 Report Share Posted June 21, 2011 How sad!! Our prayers are with you and Cyndi. and Ebonie In a message dated 6/21/2011 9:36:35 P.M. Mountain Daylight Time, charlyne1121@... writes: Hi Group, Cyndi called to say that took a turn for the worst last night shortly after I spoke with her. They managed to stabilize him, however, he is sedated and on a respirator. The doctors told her that he is septic and believe that it may have permeated the bones. They are watching his liver functions that nose dived. He need mega prayers. Charlyne ------------------------------------ -------------------------------------------------- Checkout our homepage for information, bookmarks, and photos of our kids. Share favorite bookmarks, ideas, and other information by including them. Don't forget, messages are a permanent record of the archives for our list. http://groups.yahoo.com/group/ --------------------------------------------Yahoo! Groups Links Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2011 Report Share Posted June 21, 2011 Please tell Cyndi that I will be praying for . Terry Update Hi Group, Cyndi called to say that took a turn for the worst last night shortly after I spoke with her. They managed to stabilize him, however, he is sedated and on a respirator. The doctors told her that he is septic and believe that it may have permeated the bones. They are watching his liver functions that nose dived. He need mega prayers. Charlyne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2011 Report Share Posted June 21, 2011 Lots of prayers going out > > Hi Group, > Cyndi called to say that took a turn for the worst last night shortly after I spoke with her. They managed to stabilize him, however, he is sedated and on a respirator. The doctors told her that he is septic and believe that it may have permeated the bones. They are watching his liver functions that nose dived. He need mega prayers. > Charlyne > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2011 Report Share Posted June 21, 2011 I was wondering if creating a page for with Caring Bridge would be a good idea? http://www.caringbridge.org/about > > Hi Group, > Cyndi called to say that took a turn for the worst last night shortly after I spoke with her. They managed to stabilize him, however, he is sedated and on a respirator. The doctors told her that he is septic and believe that it may have permeated the bones. They are watching his liver functions that nose dived. He need mega prayers. > Charlyne > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2011 Report Share Posted June 22, 2011 I'll say some prayers for and Cyndi!!! To: Sent: Tuesday, June 21, 2011 8:36:30 PM Subject: Update  Hi Group, Cyndi called to say that took a turn for the worst last night shortly after I spoke with her. They managed to stabilize him, however, he is sedated and on a respirator. The doctors told her that he is septic and believe that it may have permeated the bones. They are watching his liver functions that nose dived. He need mega prayers. Charlyne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2011 Report Share Posted June 22, 2011 Me, too. This sounds nightmarish and scary. Sent from my iPhone On Jun 22, 2011, at 6:44 AM, Van Straaten wrote: > I'll say some prayers for and Cyndi!!! > > > To: > Sent: Tuesday, June 21, 2011 8:36:30 PM > Subject: Update > > > Hi Group, > Cyndi called to say that took a turn for the worst last night shortly after I spoke with her. They managed to stabilize him, however, he is sedated and on a respirator. The doctors told her that he is septic and believe that it may have permeated the bones. They are watching his liver functions that nose dived. He need mega prayers. > Charlyne > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2011 Report Share Posted June 22, 2011 SO sorry! Hugs and love egoing out to both Cyndi and ALex! On Tue, Jun 21, 2011 at 11:36 PM, charlyne1121 wrote: > ** > > > Hi Group, > Cyndi called to say that took a turn for the worst last night shortly > after I spoke with her. They managed to stabilize him, however, he is > sedated and on a respirator. The doctors told her that he is septic and > believe that it may have permeated the bones. They are watching his liver > functions that nose dived. He need mega prayers. > Charlyne > > > -- Sara- different pathways lead to Nirvana. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2011 Report Share Posted June 22, 2011 Char, We're storming heaven here, too...at a loss for words. Thank you for being the group's bridge to Cyndi. She is not alone in this. If Gareth could recover as his systems were shutting down (two years ago) than so can this sweet boy. Love and hugs during this unthinkable time. Beth > > Hi Group, > Cyndi called to say that took a turn for the worst last night shortly after I spoke with her. They managed to stabilize him, however, he is sedated and on a respirator. The doctors told her that he is septic and believe that it may have permeated the bones. They are watching his liver functions that nose dived. He need mega prayers. > Charlyne > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2011 Report Share Posted June 22, 2011 Cyndi I have been gone for a while not been able to keep up with emails do you mind just giving a quick synopsis of what happened with ?? I am also fairly new to group how old is he? I will say some prayers that he gets better Zahn mtzahn@... > SO sorry! Hugs and love egoing out to both Cyndi and ALex! > > On Tue, Jun 21, 2011 at 11:36 PM, charlyne1121 > wrote: > > > ** > > > > > > Hi Group, > > Cyndi called to say that took a turn for the worst last night shortly > > after I spoke with her. They managed to stabilize him, however, he is > > sedated and on a respirator. The doctors told her that he is septic and > > believe that it may have permeated the bones. They are watching his liver > > functions that nose dived. He need mega prayers. > > Charlyne > > > > > > > > -- > Sara- different pathways lead to Nirvana. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2011 Report Share Posted June 22, 2011 and Cyndi, our prayers and thoughts are with you. Charlyne - thanks for posting the update. Becky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2011 Report Share Posted June 22, 2011 Hi Beth & group, I agree and from previous situations this is a powerful group. I spoke with Cyndi last night about 11:00 pm. I called this am and his levels are seesawing. He was given potassium and magnesium. The liver levels are still not good but better than yesterday. He remains on the respirator in ICU. He has doctors from every specialty. Charlyne Subject: Re: Update To: Date: Wednesday, June 22, 2011, 8:29 AM Â Char, We're storming heaven here, too...at a loss for words. Thank you for being the group's bridge to Cyndi. She is not alone in this. If Gareth could recover as his systems were shutting down (two years ago) than so can this sweet boy. Love and hugs during this unthinkable time. Beth > > Hi Group, > Cyndi called to say that took a turn for the worst last night shortly after I spoke with her. They managed to stabilize him, however, he is sedated and on a respirator. The doctors told her that he is septic and believe that it may have permeated the bones. They are watching his liver functions that nose dived. He need mega prayers. > Charlyne > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2011 Report Share Posted June 22, 2011 , just turned 16. He has not been well for sometime with repeated bouts of pneumonia and staph infections. The doctors see a young man with a disability and SIB. They tend to treat the behaviors than listen to a parent and look further to investigate the root cause. Charlyne > > > ** > > > > > > Hi Group, > > Cyndi called to say that took a turn for the worst last night shortly > > after I spoke with her. They managed to stabilize him, however, he is > > sedated and on a respirator. The doctors told her that he is septic and > > believe that it may have permeated the bones. They are watching his liver > > functions that nose dived. He need mega prayers. > > Charlyne > > > > > > > > -- > Sara- different pathways lead to Nirvana. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2011 Report Share Posted June 22, 2011 We are praying for here. Please update us when you can! > > Hi Group, > Cyndi called to say that took a turn for the worst last night shortly after I spoke with her. They managed to stabilize him, however, he is sedated and on a respirator. The doctors told her that he is septic and believe that it may have permeated the bones. They are watching his liver functions that nose dived. He need mega prayers. > Charlyne > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2011 Report Share Posted June 22, 2011 Please let Cyndi know that are thoughts and fervent prayers are with all of them. Desi, and Aubrey ________________________________ To: Sent: Wed, June 22, 2011 3:51:47 AM Subject: Re: Re: Update Hi Beth & group, I agree and from previous situations this is a powerful group. I spoke with Cyndi last night about 11:00 pm. I called this am and his levels are seesawing. He was given potassium and magnesium. The liver levels are still not good but better than yesterday. He remains on the respirator in ICU. He has doctors from every specialty. Charlyne Subject: Re: Update To: Date: Wednesday, June 22, 2011, 8:29 AM Char, We're storming heaven here, too...at a loss for words. Thank you for being the group's bridge to Cyndi. She is not alone in this. If Gareth could recover as his systems were shutting down (two years ago) than so can this sweet boy. Love and hugs during this unthinkable time. Beth > > Hi Group, > Cyndi called to say that took a turn for the worst last night shortly >after I spoke with her. They managed to stabilize him, however, he is sedated >and on a respirator. The doctors told her that he is septic and believe that it >may have permeated the bones. They are watching his liver functions that nose >dived. He need mega prayers. > Charlyne > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2011 Report Share Posted June 30, 2011 Cyndi, That's good news that he's feeling better and about also. I have to tell Cyndi, my daughter went through the same thing, she is 19. Hers was hereditary dysplasia. My sister had it when she was 16. Scary stuff when a teenager gets an abnormal pap. Terry Update Hi Group, Cyndi called late last night. I meant to post this last night but sat on my sofa for a few minutes and fell asleep, oh well. The docs are leaning toward lupus that may have been the result of undiagnosed Raynaud Syndrome. was gabbing yesterday; go, Mom, Dad, get. Cyndi was thinking that the steriods had something to do with him being so verbal. I think wants out of that hospital, poor guy. She was also told that he did not have MRSA, someone misread the files, MSSA. , 's sister is doing fine with a clear biopsy. Charlyne Quote Link to comment Share on other sites More sharing options...
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