Beth

[Guest guest]

Hi, Everyone....MB....Gareth faired a lot better the second time around.

Just a quick 15 minute flushing and he was home in half the time of the first

surgery. It's a shame they had to put him out for that, but what else

could they do? The doc didn't want Gareth swinging his arms at him......the

ENT said it was too close to the eyes and brain for a *mistake* . He still

tells me his left ear hurts, but the doc said that's good.....Gareth is

relating to the pain of a perforated ear drum. Gosh.......at 23 y/o, he's

just learning !!! As for the infusions, his PCP says no since it's too early

in the scientific community to tell if the results are worth it. We have

a second opinion next month with an Immunologist to see what he says. I

finally was able to track down where this IvG 4 deficiency report came

from....his Pediatrician in Lancaster......5 yrs ago!!! They never told me

anything about it. I think it was in with a mess of blood work completed when

he was first dx'd with the esophageal dismotility and Scleroderma.

Hope PB is doing better. Has he settled down from the new den/bathroom,

etc?

Take care, Everyone.

Margaret

Mom to Gareth, 22 y/o, DS/ASD/OCD